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Thyroid Cancer

Stopped taking thyroid medication and......
Had total thyroidectomy last November due to Hurthle Cells Ardinicoma (non-cancerous) along with two suspicious lymph nodes. Since I took Lex 137 MG, my body gradually went crazy with unexplainable symptoms (heavy leg, constantly tired/sleepy, quick weight gains). So three days ago I decided to quit taking the meds and…
tests to determine cancer, etc.
Hi, I am new on this website....I have lots of questions and concerns... I was diagnosed hypothyroid in 1996 and have been taking synthroid all this time. After my second son was born in 2003, a nodule was found on the right side of my thyroid gland. It was sonogrammed and the endocrinologist did a fine needle…
hashimotos disease
I dont have thyroid cancer (had us for enlarged t.but clear) but thought maybe you guys cld help cnt get into endo till 1/6/10. For many years I hv had every sign of hypo. but tests kept coming back fine so last yr I went to nose ear throat dr. and just happened to tell him abt my symstoms he gave me a different test for…
Lid
I am having my rad on May 13 I ask my surgeon if I needed any special prep i.e. lid and he said no. Do I need to check this or is this something that is now always needed. I dont want to go and find out I needed to do the lid and have to pospone because I want to get this done and overwith. Advise please
Question about muscle and joint pain
Hi, I am new to this discussion board. I recently had a TT on April 12 for papillary carcinoma cancer. When I left the hospital the next day my calcium levels were good. My Dr. told me that if I got bad muscle cramping to go to the ER. The first night home, in the middle of the night, my fiance had to bring me to the ER…
Dental Advice
Hi, I have Papillary Thyroid cancer and have had a couple of surgeries and the RAI. I went for my routine cleaning yesterday and my gums were inflamed and more plaque than usual. I was told that if a persons saliva glands are affected from the radiation than you should be using a prescription strength fluoride tooth paste.…
Driving while on LID and during RI treatments
I am getting my first RI treatment. Went off meds on Wednesday, and went on LID on Wednesday as well. My first test shot is on 4/26. My questions is are you able to drive to this or not??? I also have jobs scheduled and I'm not sure whether to cancel them or not?? What did everyone do about working??? Can anyone tell me…
prepairing for RI treatment
this is my first post here so I will give my background Summary so far I was diagnosed with a large thyroid mass Dec 2009 Bremerton Naval Hospital in Jan 2010 they determined the mass was follicular cells but could not determine by fine needle aspiration if it was cancerous or not but since it was making it hard to breath…
Recurrent papillary cancer possibly due to insufficient dose of RAI-131 for ablation?
Hi, Glad to find a site and discussion board like this... I'm new on this site so please bear with me. I'm 36 yrs old, diagnosed with a nodule (abt 1.8cm) suspected of malignancy 2yrs ago. I had neartotal thyroidectomy same year, and the nodule was found positive of papillary CA. About 2 months after, I had I-131 RAI…
TT surgery site
I had a TT on April 12(2 weeks ago) due to papillary carcinoma. I didn't have to have any glands removed so it was just a standard TT. I was curious about how long it took for other peoples surgery site to heal. My incision looks good but it is still quite swollen(about the size of an egg), and it is also hard to the…
Help Did not have radiation Pill
I had my thyroid out 2 years ago. Went thru the depressed/tired period & over it now. I was assured by both the endro and the surgeon that I did not need radiation pill. I feel fine; am on 275 Synthyroid. Have regular work ups and have had an ultrasound this year. My GP had me have a complete PET this fall because I also…
Endo visit wasn't' so positive
Both my husband I feel like we have been run over by a truck. With the cell type being hurthle cell Carcinoma, we really have to wait to see if the radioactive iodine will be taken up by the cells. If it doesn't, then we are up the creek without a very good paddle. Of course without the body scan we are at stage 3 cancer.…
:0( could I REALLY have cancer???
These past 9 mos. I have been experiencing throat/neck pain. At first I thought it was from not drinking enough water with my night meds. I went through a few lidocaine cocktails at work to get me by, but they didn't work,lol. The pain has gotten to be quite bothersome lately, which prompted me to get it checked. My…
What do i say to my daughter?
We just found out that our daughter has thyroid cancer. She had one lobe of her thyroid removed two weeks ago and the pathologist report came in today that she has a micro invasive follicular cancer. In another two weeks she is scheduled to have the rest of her thyroid removed. She is only 26. What can I tell her that will…
Am I alone?
I'm 34 F who is still trying to recover from the day as I say "the doctor's took out my soul"...............I'm just not the person I use to be, and It's killing not only me, but my personally life and relationship........HELP
Reoccurence of thryoid cancer
Hello everyone: My name is Sharon. I was first diagnoised almost thirteen years old , back in 1989. I had my entire thyroid, parathryroids, lymphs nodes and chest cavitiy scraped. Followed by M131 radiation in Feb 90, May 96, June 99 and Jan 00. Followup with tearduct reconstructive surgery (July 01) due to the side…
thyrogen 14...body scan negative...dr says to come back in 4 months and insurance coverage
I heard from my doctor about my body scan being negative w/Tg being at 14. He said to come back in 4 months after having blood work done at that time. (Did not order PET/CT) I am setting up an appt. w/an oncologist w/Illinois Cancer Care to get a second opinion. I am eager to hear what he has to say. The problem is that he…
2 RNs said, "I didn't think you could have recurrent thyroid cancer after thyroid removal"
I know I need to wait until my body scan is done and I get the results, but I had TT in Aug. 2008. Thyroglobulin always 0.2 Now it is 14 with body scan scheduled Friday 2nd. I've heard 2 nurses (not at my drs office)say that they didn't think you could get thyroid cancer reoccurance after having TT, the ablation and body…
My Tg is 14...body scan came back negative...now what
I posted some stuff last week about my Tg being elevated to a 14 from always being 0.2 1 1/2 years after TT and lymph node removal for papillary cancer. My body scan and uptake scan on neck came back negative. My doctor is out of town all week and have to wait until next week to see if he wants to do anything else. I put a…
genetic link?
My sister, age 54 and 5 years younger, was just diagnosed with Hurthle Cell. She had the flu and her doctor found her thyroid enlarged during an exam. The nodule on the right lobe tested positive from the FNA biopsy. She will have her surgery March 23. She has been on Synthroid for a few years for Hypothyroidism. I was…
Should family members and children be tested
I was diagnosed with Hurthle Cell Cancer of the Thyroid at 49 years old. My brother had a benign nodule removed last year, and I was told by my PCP that thyroid nodules often run in families. Has anyone been told if their family members should be checked with an ultrasound (mine was pretty much found by accident...no…
Thyrogen Injections
I am going to get the thyrogen injections next monday and tuesday. I am a little nervous to find out what the results will be, because I have been having very painful salivary glands. It comes and goes with very bad swelling, and i usually don't eat when they are like this. They also are very painful on one side…
Question for those who did RAI anad Thyrogen
Hello, I am going to undergo RAI soon just waiting for my Thyrogen shots to come in. After I take the shots, what happens? Do I just go in 3 days later for the RAI? Plus I have 22 month old twins as well as 10 year old twins at home. I have told my doc I prefer to do the RAi in the hospital...he said since the radiology…
TT Surgery Postponed - Hurthle Cell Neoplasm
Hi All, I was all set for my surgery tomorrow and then became ill Friday, the day after my complete all-day pre-op appointment. I have an elevated red and white blood count and some other CBC abnormalities, diarrhea (now resolved) and upper abdominal pain. My GP ordered a stat ultrasound and now per that report, I might…
Still haven't scheduled my surgery - very freaked out
Hi. I got diagnosed with Hashimoto's at the end of September and put on 100mcg of Synthroid... found out that I had papillary carcinoma right afterward. I have a well-differentiated 3 x 2.5 x 2.3 cm tumor on the lower right lobe of my thyroid. The doctors want me to have a total thyroidectomy followed by radioactive iodine…
Radiation side effects
Hi, I was just wondering if anyone had the RAI affect their mouth. I had RAI on the 17th of Feb. had bad jaw pain the next morning and I still I have had a bad taste in my mouth occasionally. Now I have sore areas in the corners of my mouth. Like they are cracked and now one side is open. I have been applying lip balm and…
Need some positive Hurthle Cell Stories
Had my visit with the endo on Friday. Based on the fact that I am 49 years old, my tumor was vascular and non-encapsulated, I have lymph node mets (1 of 3 tested), it was a pretty bad appointment. I know that it isn't going to be easy to beat this. That Hurthle Cells are resistant to RI, but I need some positive survivors…
Does it ever get better?
I am a thyroid cancer patient, I have posted on her several times!!! I'v had the TT July 09 an RAI Nov 09. Tg above 6.0 in Dec 09. Changed Levo many times now on 250mcg which seems to be doing better :) I just wanted to vent to u guys because u seem to offer the best comfort and advice. After the cancer came a multitude of…
how long off work after surgery and awaiting radioactive iodine trx????
Just wondering how long people take off work after TT and awaiting radioactive iodine treatment???????? I had two surgeries to remove my thyroid last one being Jan. 4 and now the docs are dragging my scans and treatment out while I am miserable being hypo. I have two young children who take all my energy. I'm not back to…
I'm new here!
I'm new here and still trying to muddle through this whole thing. As an intro I should tell you that I am 49 years old and a Registered Nurse. I worked my first 5 years of nursing in Oncology in the 80's. This can be both a blessing and a curse as I have seen just about everything. In Mid January when seeing my PCP for…

Thyroid Cancer

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