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Looking for others that have been diagnosed with two different types of Thyroid Cancer at the same t
I am searching for others that have been diagnosed with two types of Thyroid Cancer at the same time. I have been diagnosed with Hurthle Cell Carcinoma / tumor 4.1 cm 33 grams in one lobe and Papillary Carcinoma / tumor 1.1 cm and 9 grams with vascular and soft tissue invasion in the other. I have had two surgeries now,…
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Totally confused
I had surgery to have my thyroid removed in Feb of this year. They also did a partial dissection of the lymph nodes on the left side of my neck. I just went last week to get an ultrasound done and the right side noe has 2 lymph nodes that one has grown and one has shrunk. I am on Synthroid medication and the doses have…
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new article I came across about when to take your synthroid
http://www.thyroid.org/patients/ct/volume4/issue5/ct_patients_v45_7.html to me this sounds like I might be able to start takeing it at night instead of in the morning... is that what everyone else reads... wouldnt it make it so much easyer to take it at bed time if you dont take other pills then. Craig thats my thoughts…
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Can one private message another member here ?
How does one do it ?
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Thoughts anyone??? New to this discussion board but not CSN
Hi Everyone, I've been on CSN:head/neck cancer for my partner. I was his caregiver for Stage 4 Tonsil Cancer. I'm happy to say his 13mo PET scan on Thurs 14Jul was clean. As if the past year wasn't enough, I noticed that I was feeling a "weird" sensation when I swallowed, ear fullness, occasional sore throat and sometimes…
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The its a major surgery list
ok i posted this on another board but I figured it would be usefull to have it hear as well and besides you can add to it this is at this point all my list and I thought of and typed it in 5-10 min. --- in refrence to its a good cancer Not sure if I mentioned this one before... It is kind of like the doctor saying we had…
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Pappilary thyroid cancer
Hi- I have had Pappilary thyroid cancer going on the 1 first year. I am recovering from a second surgery that was a result of three lumps I felt in my neck a month ago. After an ultra sound,biopsy, MRI and PET scan all test showed activity in the neck. I went in for a partial neck dissection ( 27 lymph nodes taken and 19…
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RAI Treatment
Hello, I am new to this so just bear with me please----I was diagnosed with papillary carcinoma July 2010. I had a thyroidectomy. However, I was never given the radio iodine pill to kill any left over tissue from surgery and did not have the I-131 scan/process until just two weeks ago (over a year later). I got the results…
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My sweet amazing mom now has bone metastases
Hello, this is the first time I'm writing on this site to say my story, my mom's story. I may go all over the place but I need to write and hope someone can let me know I'm not going crazy as I feel I am even though it's my mom suffering. My mom was misdiagnosed approximately 5 years ago as having acid reflux when in fact…
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Probable papillary spread to a lymph node on the side of my New York friend's neck
Wow. Thyroid cancer is more prevalent. My old high school buddy John in New York called me. (I told him to join and post here but his wife rags on him that he already spends too much time on the internet). He had his thyroid removed completely two months ago in Boston for papillary cancer. Now in New York on ultrasound…
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TT recovery time?
Hello all, I'm scheduled for my TT on December 14th. (I am currently hypo) It is unknown if it's cancer or not. My doctors tell me to take 2-3 weeks for recovery. This time frame is near Christmas. We normally travel for Christmas--2 weeks on the road visiting family. When I explained to the husband that we may be spending…
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Inconsistent information about I-131
I was reading the discussion boards from this website and now I am scared that I have exposed my children to radiation. I was administered 50mCi’s on 8/25 at 3:10pm and was give the following indications in writing: “Sleep in a separate bed (at least 7 foot separation) 4 days Avoid close contact with children and pregnant…
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Non-tradiitonal ways to help eliminate papillary thyroid cancer
Okay. In additional to doing whatever you doctor says, has anyone learned of non-traditional treatments ? Hi dose Vitamins ? Herbs ? Heavy doses of anti-oxidants ? Hypnosis ?
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What foods and drinks make hypothyroidism withdrawal feel better ?
How about coffee ? Green tea ? Pot ? Herbs ?
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not good news but it looks like Thyroid cancer got a little publicity
I don't know if any of you watch CSI NY but Hill Harper "Dr. Sheldon Hawkes" is recovering from Thyroid cancer http://newsone.com/entertainment/books-entertainment/news-one-staff/hill-harper-cancer-the-wealth-cure/ It is always sad when anyone gets any cancer but hopefully we will get a little public boost out of this.
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thyroglobulin 411
I just got results from my bloodwork during RAI treatment (about 5 days into it) and the thyroglobulin levels are detectable, at 5.7. I'm a bit freaked out and my endo does not like me asking questions, so I thought I'd ask... how bad is this? I never received any results from my scan, so I am totally in the dark...TSH was…
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Drug Cuts Death Risk for Melanoma Patients With BRAF Mutation
stumbled across this not sure if it is relitive to thyroid cancer BRAF mutation but thought this might be a good read Aug. 17, 2011 -- The FDA today approved Zelboraf, a drug that can extend survival for the 50% of melanoma patients whose tumors carry the BRAF V600E mutation.…
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leg cramps
I've had a TT with lymph node removal 3 years ago. On 150mcg one day and alternate that with 175 mcg the next day. Doctor says my medicine levels are fine. Does anyone have problems with really bad leg aches? Not the muscle cramps that someone can get in their sleep, but just deep muscle pain in their thighs? I had a…
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depression
Drowning in depression unfortunately for me Cancer is not my big concern Throughout my treatment for thyroid cancer and some other surgeries to restore my hearing over the past almost 2 years. I have developed Debilitating vertigo. I got my clean scan (1 year out scan) in may 2011. So cancer is on the back burner. Right…
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depressed and lonely
hi, i was diagnosed with papillary carcinoma on june 2010. and i has two separate surgeries to remove both my thyroids separately. i happened to get this shockin news when preparations for my marriage were goin on. everyone around me wer so disturbed tat i literally had no one to stand by me during my tough timee and…
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1 year + after care questions
as most of you know i am 1 year + from thyroid cancer as i transition from military life to the real world my doctors are going to change... all of them... so I was wondering for the people who have been more than 1 year what plans for WBS's and how often should they check what types of bloodwork... Since I am going to…
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Japan and upcomming thyroid cancer from reactor accident
It is a sad thought but due to the reactor accident in Japan Reading the news online today it is showing that --- The government’s nuclear accident taskforce tested 1,149 children aged up to 15 about two weeks after the March 11 earthquake and tsunami triggered meltdowns, blasts and fires at the Fukushima plant.…
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Found something new I can celebrate
now that I am a year past all my surgeries and am 1 year + from cancer and none of my meds preclude me from.... Tomorrow I will be able to donate blood, For over 15 years I was able to donate at least 3 times a year and now finaly again after almost 2 years I will be able to donate again. it may seem silly to some but if i…
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ThyCA Conference
Hello all. I haven't been on this board it a long time. Sorry, just been busy. As far as how I am feeling, okay. This morning I am going to provide some blood for some testing. Meeting with my ENDO next Monday for a second follow up from my TT (2/7) and RAI (4/13). Fingers crossed. Now, there is a ThyCA conference here in…
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high dose radioactive iodine and exposure to children
Im having my first hospitalization for high dose radioactive iodine treatment and Im very worried about exposing my 1 year old, 3 year old, and 4 year old when Im released. I am married but he works long days and I am the only one available to care for them. Ive read so many conflicting articles about how long to stay away…
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thyroid scan Friday "questionable" MRI next week
Can someone tell me what this is about? I know everyone is different, but my mind is reeling about what it could be. I am two years (almost) post-op TT. Papillary with a follicular varient...3cm, stage III; RAI 131 Nov 2009, clear scan 2010, questionable scan 2011 (on Friday evening I get this news). I simply keep thinking…
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Clear Scan and Bloodwork?????
History: I had/have papillary thyroid cancer. It had moved into my lymph nodes but only right around the thyroid bed. I had a total thyroidectomy last July (2010) and then the RAI first part of September (2010). Present: I just had my first follow-up scan. I was on the LID, had my thyrogen injections, and then my scan and…
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Tried Acupunture
Hi all. I went to my first acupunture session today. I'm tired of feeling not right, and decided to give it a try to see if it can help my body get back to some semblence of its old self. The doctor took a full medical history, asked to see my records, and listened to all my complaints about how I'm feeling. I quite liked…
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RAI the second time around
Submitted by need a vacation... on August 4, 2011 - 3:29pm Hello, Just was told that I need to have a second round of RAI. not looking forward to this at all!!! I know what everyone is talking about. The tiredness, lack of energy, pain and aches. I get very bad headaches and sounds of crashing waves in my ears. Very…
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RAI + fooooood :)
When you were in the radioactive period, what were the best things to eat? I've heard sour candies are good... is there anything else I need to purchase ahead of time to help me get through the first few days of being radioactive and fabulous? I welcome any tips from you all :)