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My sweet amazing mom now has bone metastases
Hello, this is the first time I'm writing on this site to say my story, my mom's story. I may go all over the place but I need to write and hope someone can let me know I'm not going crazy as I feel I am even though it's my mom suffering. My mom was misdiagnosed approximately 5 years ago as having acid reflux when in fact…
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Probable papillary spread to a lymph node on the side of my New York friend's neck
Wow. Thyroid cancer is more prevalent. My old high school buddy John in New York called me. (I told him to join and post here but his wife rags on him that he already spends too much time on the internet). He had his thyroid removed completely two months ago in Boston for papillary cancer. Now in New York on ultrasound…
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TT recovery time?
Hello all, I'm scheduled for my TT on December 14th. (I am currently hypo) It is unknown if it's cancer or not. My doctors tell me to take 2-3 weeks for recovery. This time frame is near Christmas. We normally travel for Christmas--2 weeks on the road visiting family. When I explained to the husband that we may be spending…
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Inconsistent information about I-131
I was reading the discussion boards from this website and now I am scared that I have exposed my children to radiation. I was administered 50mCi’s on 8/25 at 3:10pm and was give the following indications in writing: “Sleep in a separate bed (at least 7 foot separation) 4 days Avoid close contact with children and pregnant…
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Non-tradiitonal ways to help eliminate papillary thyroid cancer
Okay. In additional to doing whatever you doctor says, has anyone learned of non-traditional treatments ? Hi dose Vitamins ? Herbs ? Heavy doses of anti-oxidants ? Hypnosis ?
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What foods and drinks make hypothyroidism withdrawal feel better ?
How about coffee ? Green tea ? Pot ? Herbs ?
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not good news but it looks like Thyroid cancer got a little publicity
I don't know if any of you watch CSI NY but Hill Harper "Dr. Sheldon Hawkes" is recovering from Thyroid cancer http://newsone.com/entertainment/books-entertainment/news-one-staff/hill-harper-cancer-the-wealth-cure/ It is always sad when anyone gets any cancer but hopefully we will get a little public boost out of this.
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thyroglobulin 411
I just got results from my bloodwork during RAI treatment (about 5 days into it) and the thyroglobulin levels are detectable, at 5.7. I'm a bit freaked out and my endo does not like me asking questions, so I thought I'd ask... how bad is this? I never received any results from my scan, so I am totally in the dark...TSH was…
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Drug Cuts Death Risk for Melanoma Patients With BRAF Mutation
stumbled across this not sure if it is relitive to thyroid cancer BRAF mutation but thought this might be a good read Aug. 17, 2011 -- The FDA today approved Zelboraf, a drug that can extend survival for the 50% of melanoma patients whose tumors carry the BRAF V600E mutation.…
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leg cramps
I've had a TT with lymph node removal 3 years ago. On 150mcg one day and alternate that with 175 mcg the next day. Doctor says my medicine levels are fine. Does anyone have problems with really bad leg aches? Not the muscle cramps that someone can get in their sleep, but just deep muscle pain in their thighs? I had a…
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depression
Drowning in depression unfortunately for me Cancer is not my big concern Throughout my treatment for thyroid cancer and some other surgeries to restore my hearing over the past almost 2 years. I have developed Debilitating vertigo. I got my clean scan (1 year out scan) in may 2011. So cancer is on the back burner. Right…
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depressed and lonely
hi, i was diagnosed with papillary carcinoma on june 2010. and i has two separate surgeries to remove both my thyroids separately. i happened to get this shockin news when preparations for my marriage were goin on. everyone around me wer so disturbed tat i literally had no one to stand by me during my tough timee and…
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1 year + after care questions
as most of you know i am 1 year + from thyroid cancer as i transition from military life to the real world my doctors are going to change... all of them... so I was wondering for the people who have been more than 1 year what plans for WBS's and how often should they check what types of bloodwork... Since I am going to…
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Japan and upcomming thyroid cancer from reactor accident
It is a sad thought but due to the reactor accident in Japan Reading the news online today it is showing that --- The government’s nuclear accident taskforce tested 1,149 children aged up to 15 about two weeks after the March 11 earthquake and tsunami triggered meltdowns, blasts and fires at the Fukushima plant.…
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Found something new I can celebrate
now that I am a year past all my surgeries and am 1 year + from cancer and none of my meds preclude me from.... Tomorrow I will be able to donate blood, For over 15 years I was able to donate at least 3 times a year and now finaly again after almost 2 years I will be able to donate again. it may seem silly to some but if i…
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ThyCA Conference
Hello all. I haven't been on this board it a long time. Sorry, just been busy. As far as how I am feeling, okay. This morning I am going to provide some blood for some testing. Meeting with my ENDO next Monday for a second follow up from my TT (2/7) and RAI (4/13). Fingers crossed. Now, there is a ThyCA conference here in…
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high dose radioactive iodine and exposure to children
Im having my first hospitalization for high dose radioactive iodine treatment and Im very worried about exposing my 1 year old, 3 year old, and 4 year old when Im released. I am married but he works long days and I am the only one available to care for them. Ive read so many conflicting articles about how long to stay away…
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thyroid scan Friday "questionable" MRI next week
Can someone tell me what this is about? I know everyone is different, but my mind is reeling about what it could be. I am two years (almost) post-op TT. Papillary with a follicular varient...3cm, stage III; RAI 131 Nov 2009, clear scan 2010, questionable scan 2011 (on Friday evening I get this news). I simply keep thinking…
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Clear Scan and Bloodwork?????
History: I had/have papillary thyroid cancer. It had moved into my lymph nodes but only right around the thyroid bed. I had a total thyroidectomy last July (2010) and then the RAI first part of September (2010). Present: I just had my first follow-up scan. I was on the LID, had my thyrogen injections, and then my scan and…
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Tried Acupunture
Hi all. I went to my first acupunture session today. I'm tired of feeling not right, and decided to give it a try to see if it can help my body get back to some semblence of its old self. The doctor took a full medical history, asked to see my records, and listened to all my complaints about how I'm feeling. I quite liked…
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RAI the second time around
Submitted by need a vacation... on August 4, 2011 - 3:29pm Hello, Just was told that I need to have a second round of RAI. not looking forward to this at all!!! I know what everyone is talking about. The tiredness, lack of energy, pain and aches. I get very bad headaches and sounds of crashing waves in my ears. Very…
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RAI + fooooood :)
When you were in the radioactive period, what were the best things to eat? I've heard sour candies are good... is there anything else I need to purchase ahead of time to help me get through the first few days of being radioactive and fabulous? I welcome any tips from you all :)
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thyroglobulin ab & levels......
Hi I am new to this and am just looking anywhere for a definate answer. I had thyroid cancer 4yrs and 8 months ago. I had a total thyroidectomy. About a month ago I saw a lump in the side of my neck. I waited 2 weeks, ya know because im a mom and it will just go away! After about 2 weeks it began to hurt and feel like…
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When to end LID?
I feel like I should know this, but I don't... how long until you end the LID? Do you wait until the 1 week whole body scan after RAI, or is there another rule of thumb? No one has told me how long I'm on this lovely diet :(
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xkcd breast cancer comic
For all of those who needs some humor for the day http://xkcd.com/931/ it is breast cancer related not thyroid cancer but I though it fits for much of us in one way or another
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Mammogram with contrast?
Is this a really bad idea? My TT is scheduled for Dec. 14. I have a nodule that has started to affect my voice (but interesting, I didn't get my synthroid refilled on Friday, and my voice is almost back to normal on Cytomel only). I have some spots on my breasts that are extremely tender, thus the order for the mamm with…
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6 YEARS ON
Hi everyone, this is my first time, so please go easy on em.! lol i'd like to ask if anyone whom has had thyroid cancer is still undergoing treatment after 6 years, im now in the hands of the hospital and they say im a "special case" the hospital cant get my levels down i've had a complete thyroidectomy and they found…
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Trouble Concentrating, Memory and Confusion
I can't seem to get back to my mental capacities and I am not sure I ever will. I try so hard to remember important things but I just can't. Since my Thyroidectomy I have to do something several times before I can retain the information. This is so unlike me. I have a demanding job that requires quick thinking and…
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Low Dose of I -131 Today
Hi I'm new. I was diagnosed with thyroid cancer in March, then had a TT in May and had thyrogen injections the past two days and received my RAI today. The dr. said I was getting 50 which is only 1/3 of the typical dose. He was kind of "whatever" about the regulations and kept saying "don't pee on anyone." He told me to…
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Diet once everything is done
I have a question for those who have gone through the whole surgery and RAI business and are getting their lives back on track. A friend of mine who is a doctor, advised that I should be staying away from seafood products / iodine as it may stimulate the thyroid cells. Has anybody else been told this? Thanks