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Facebook Group - Thyroid Cancer 411
Great site for men and women to discuss issues related to thyroid cancer and radioactive iodine. It's a closed group but they accept members so just ask to join.
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Medications and lab tests
I am doing research because I am having a FNA on a very large nodule on my thyroid. It has blood flow, and I have some swollen nodes. I'm not looking for the worst case scenario, but trying to be educated when I go to my appointments. (and I'm a little scared, my mother died of cancer at age 33) I've been reading several…
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Medical Recoard Madness
I was going to post this as a response to Uncaring Doctors, but I realized this is something we should all look at. I have been collecting my medical records as I am approaching Military retirement and I need to submit my medical record to the VA. Everyone needs to make sure you have a full copy of your record for yourself…
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RAI - would you do it all over again?
I am at a point where I am on the border about RAI - doc recommends it just to be sure the cancer is all gone, so we've opted to go the thyrogen route (and wait.....and wait...). My question is for those of you who've been in this situation - would you do RAI if you had the choice again? Or would you opt out? My papillary…
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RAI - second thoughts
I am having second thoughts about the RAI... My tumor was right on the cusp of where it is recommended to do RAI, as it was right at 2 cm. This delay in thyrogen has made me reconsider whether I should do the RAI at all. If one does not do RAI, how can they tell if the cancer returns? Is it harder to treat if it does, and…
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Baby, maybe?
I am curious if any women out there have gotten pregnant after thyroid cancer and RAI. My doc says I'd need to wait at least 1 year to start trying, and frankly, I'm not sure if I'm up for it. I always wanted more children, but I am a bit scared - how was it managing the thyroid levels while pregnant?
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When do I get to be "cancer free"?
Hello. I'm new here. Have been posting on the thyca board, but figured I'd expand a little. (You guys aren't enemies, are you? :) Just got back from my follow-up WBS, six days after my 75mc RAI dose. For some reason I was expecting that nothing would light up this time and they'd be able to say that the RAI had worked and…
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hurthle cells found but told everything is ok?
Hello my name is Linda. In 2005 I had a hemi-thyroidectomy. In the pathology report it states that things like-hyperplastic coloid nodules, grossly encapsulated nodule micro and macrofollicular change with cholesterol granuloma formation. In some areas Hurthle cells change has been seen with cytologic atypia. Dystrophic…
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Not Necessarily cancer free like I thought
So today I had an appointment with both my surgeon and my Endo. The surgeon informed me that during my nuclear scan there was some uptake of RAI in my lymph nodes on my left side. I only had some on the right side removed during surgery. I told him I wasn't aware of that since the nurse from my Endo had called me and told…
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breast cancer and thyroid
Does anyone think that it is weird that I am a breast cancer patient, and an ultrasound of my thyroid showed 2 nodules, and then one more on the next test? And no biopsy? Just repeat ultrasound in 6 months?
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Hi
How long has every one been cancer free?
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Thyroid levels normal-Still feeling bad
I had a thyroidectomy in Sept 2010, RAI at the end of Oct 2010, with scan in early Nov 2010. Everything came out fine. I started Synthroid in early Nov 2010 and have been on a roller coaster ever since. The seven week period after I have an increase in medication, it takes 2 weeks for me to start feeling better, then…
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Online support Facebook Group
Hi everyone, I would like to invite you to an online facebook group. It is a wonderful form of support for all battling this disease. Here is the link. Looking forward to seeing you there and God Bless!!! http://www.facebook.com/home.php?sk=group_120198271342265&ap=1
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water retention
Is anyone having trouble with excessive water retention during LID?
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Hurthle Cell Carcinoma Free
I am six years out and have had all my scans come back clear. I have only done the low iodine diet for my last scan. I wasn't strict about it until the week of my scan. The techs and Drs said that was fine. Everything looks good so now it will be interesting to see what dose of synthroid I end up on. They have been keeping…
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Muscle aches and pains
Hi all. I have been having muscles aches and pains - mainly in my legs, since my last surgery and RAI. Its been 3 months since the surgery and 6 weeks since the RAI. My thyroxine has been adjusted - I just had blood work and they say I'm taking too much now so my dose will change again. I feel ok except that my leg muscles…
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RAI and loss of taste
I had my RAI pill on April 18th and I'm experiencing a loss of taste. What's funny is I think it hit me a week later and not so much during the week of my radiation. I can only barely taste something...everything is pretty much flavorless, even water tastes funny. Just wondering if anyone experienced the same thing and how…
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8 years later and enlarged lymph nodes
8 years ago I had a total thyroidectomy, a mass, and 6 lymph nodes removed. I was told they all had cancer. Did the I131 a year later. Have been scanned every year since up til 2 years ago. I just had a US and they found 3 lymph nodes 2cm in size in my neck were they removed the others 8 years ago. Has anyone had this…
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Exhausted 3 Weeks After Lobectomy
Hello everyone. I'm new here. I'm a 30 yr old male and I had a thyroid lobectomy because of what the fine needle biopsy determined was a tumor that had the potential to be a follicular neoplasm. I was diagnosed last week with papillary cancer with follicular characteristics, whatever that means. I'm scheduled to have the…
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extremely anxious
I am 6 day's post-op from my total thyroidectomy and lymph node dissection. I had an aspiration biopsy last month that came back "suspicious" for cancer. The day following my surgery, the surgeon told me that my lymph nodes looked inflammed and that I did indeed appear to have cancer growing in my thyroid and lymph nodes.…
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Iodine resistant with lung mets -surgical lung biopsy
After my recent 5millicurie dose of I-131 and WBS we've concluded I am no longer avid for iodine. To confirm that the nodules in my lungs are thyroid cancer and not something else, I will be undergoing a surgical biopsy with a cardio-thoracic surgeon. Haven't met with that specialist as yet so don't know all that it…
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Thyroid Level
Would someone please explain exactly what the thyroid numbers represent? For example, T4 T3 etc etc. Shame on me. I am a thyroid cancer survivor, but do not understand my levels. My doctor has become a bit aloof so I thought I ask here. Thank you.
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Medical Card Walet
If you have not done this I would recommend it because it makes things so much easier in my wallet I have a card with my medications , surgeries , allergies and other medical important info SAMPLE ------ Medications 1) Synthroid 200 mgs/day 2) Cytomel 25 mgs/day 3) ... ... ... i am not going to list all my meds here but be…
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Do you know your lab results
Ok thought I would bring this topic up. I was wondering how many of you have learned to read and understand your lab results myself I have had to go through alot of serches to ensure I understand every line of my lab results and have started to keep a listing of every one cause in my world NORMAL dosen't cut it. there have…
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weight loss
Has any one lost weight after starting the Cytomel without trying?
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Uncaring Doctors
I had my scan done the week of the 9th of May, they scheduled me with a PA at my Dr. office to get the results back on the 18th. I had requested to see my Dr. as it was supposed to be the last time since I had moved to Florida and was transferring my info there. The first appointment was August 1st with the Dr. They…
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Side Effects??
Hi I am 18 years old and on June of 2010 I was diagnosed with thyroid cancer. I had my surgery in November of 2010 and my radiation treatment in December of 2010. It was a very emotional process before and and after the surgery. I had many lymph nodes removed along with a full thyroid removal. All of the lymph nodes were…
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Lymphadema
Hi gang, I asked my ENT surgeon if some sort of massage therapy might be beneficial to post operative healing in my case. He recommended I see a lymphadema specialist. Now, he hadn't volunteered that I should do this, I brought up the massage suggestion myself. This makes me think that he doesn't think I'm having any…
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TSH levels and anxiety
My 20 year old daughter has a TT 6 years ago. Her TSH levels have gone up and down constantly ever since. Her dosage is changing every few months. She has gone from 100 mcg up to 200 mcg and back down to 125 mcg now. Along with this, she has anxiety, palpitations, chest pain, etc. Her Endo keeps her below 0.1, usually…
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Weight gain with appropriate levels?
I am getting pretty bummed, as my weight seems to slowly be creeping up - even though I exercise 6 days a week (cardio and weights) and eat very well. I am working my butt off with absolutely the reverse of what I've been trying to do! I asked my endo and she said that since my levels look good, I am on the right dose. I…