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Thyroid Cancer

When to end LID?
I feel like I should know this, but I don't... how long until you end the LID? Do you wait until the 1 week whole body scan after RAI, or is there another rule of thumb? No one has told me how long I'm on this lovely diet :(
xkcd breast cancer comic
For all of those who needs some humor for the day http://xkcd.com/931/ it is breast cancer related not thyroid cancer but I though it fits for much of us in one way or another
Mammogram with contrast?
Is this a really bad idea? My TT is scheduled for Dec. 14. I have a nodule that has started to affect my voice (but interesting, I didn't get my synthroid refilled on Friday, and my voice is almost back to normal on Cytomel only). I have some spots on my breasts that are extremely tender, thus the order for the mamm with…
6 YEARS ON
Hi everyone, this is my first time, so please go easy on em.! lol i'd like to ask if anyone whom has had thyroid cancer is still undergoing treatment after 6 years, im now in the hands of the hospital and they say im a "special case" the hospital cant get my levels down i've had a complete thyroidectomy and they found…
Trouble Concentrating, Memory and Confusion
I can't seem to get back to my mental capacities and I am not sure I ever will. I try so hard to remember important things but I just can't. Since my Thyroidectomy I have to do something several times before I can retain the information. This is so unlike me. I have a demanding job that requires quick thinking and…
Low Dose of I -131 Today
Hi I'm new. I was diagnosed with thyroid cancer in March, then had a TT in May and had thyrogen injections the past two days and received my RAI today. The dr. said I was getting 50 which is only 1/3 of the typical dose. He was kind of "whatever" about the regulations and kept saying "don't pee on anyone." He told me to…
Diet once everything is done
I have a question for those who have gone through the whole surgery and RAI business and are getting their lives back on track. A friend of mine who is a doctor, advised that I should be staying away from seafood products / iodine as it may stimulate the thyroid cells. Has anybody else been told this? Thanks
New with Questions
I lost my husband to colon cancer in July 2010 and found out today that my 14 year old niece, who I am very close with, has papillary thyroid cancr which has spread to surrounding lymph nodes. She is scheduled for a total thyroidectomy and removal of the nodes on Aug 9. The Drs have not yet staged the cancer. Can anyone…
Very confusing one year after TT & RAI
It seems that I'm lost and I need advice. I got my TT on April 13th 2009 and RAI on May same year. Now finally after a year and half I get to prepare for my whole body scan. The problem I'm facing is that none of my doctors told me that despite I don't have any more cancer I need to go under RAI, when I asked the tech the…
Put off surgery?
Need input. My TT is scheduled for Sept. 28 at MDA, I'm going to see if I can get on the cancellation list, but here is my dilemma: My last semester of college is this semester. I'm getting a degree in Computer Systems Maintenance--so very hands on. I would miss a minimum of 2 weeks, possibly 3--which just won't work. If I…
Hindsight, what would you of done differently?
Besides being certain to keep good medical records (thanks Nasher) what do you know now that you wish you had known before being treated? Thanks! Sarah--3boys_mom
hyper + weight gain?
Is it at all possible to be hyper and still have weight gain? I got results that my TSH is .39, but I am still having weight gain issues.
RAI 2 years after radiotherapy?
Still waiting on the results of my thyroid FNA (2 years after having had radiotherapy - which included the left side of my thyroid for a head and neck cancer in my parotid gland) Does anyone know if they still do RAI if you've already had half the gland radiated? I'm sure my specialist knows what he's doing - and it's…
My biopsy
Can I just say, MD Anderson ROCKS!! I went in, registered, then had my ultrasound, and stayed in the room--radiologists looked at the pictures and did the biopsy. I choose to skip the lidocaine, not because I was trying to be brave or anything, but because I know how those lidocaine shots hurt, so I figured one needle was…
Second diagnoses??
Hey Everyone, It's been about 2 years since my surgery and RAI, but I still feel like crap all the time. More so tonight than ever I think. My doctor is thinking there may be some other cause as to why I still feel so horrible and my TSH levels keep jumping all over the place. I was just wondering if any of you had any…
lymph nodes - random question
Hi - I had a sinus infection a few weeks ago, and I'm not experiencing tightness in the lymph nodes. I've had a TT in Feb (nodule was contained, according to the path report), but my mind always jumps to cancer when things like this happen. I've had the lymph tightness in varying degrees since the sinus infection, but it…
Question please
I recently had my entire thyroid removed, due to cancer.. i have been having problems with numbness I can't feel my fingers and they cramp up. Also, my toes cramp and tingle. almost as if they have been asleep for days and just awoken. I get extremely tired and forgetful, the worst part is that cobra insurance ended just a…
Tenderness in Tyroid Bed after Thyrogen Injections
History: I had/have papillary thyroid cancer. It had moved into my lymph nodes but only right around the thyroid bed. I had a total thyroidectomy last July and then the RAI first part of September. Present: I am now going in for a follow-up scan. I have been on the low iodine diet and just had my thyrogen injections the…
I-123 scan & CT scan
Hi guys and gals, Has anyone had a CT scan immeadiately following an I-123 scan? I need to have both done sometime this December, and I'm wondering what sort of scheduling problems there will be. I know that you can't have a CT scan with dye before an I-123 scan or an I-131 treatment. I had a CT scan with dye 5 months…
emotional :(
My name is crystal,and I am 26 yrs old...I was diagonsed with thyroid cancer may 5 2011...I just had my total thyroid ectomy on wed, July 13th... Since surgery I feel empty inside....extremely emotional crying a lot. Usually I am a happy out going person, but since surgery I have been the complete opposite of who I…
Hello Everyone- New member :)
Hello everyone! I'm so happy I decided to finally register with this network. Thank you for all your stories. It really makes a difference to know what you are going through and how supportive you all are. I was diagnosed with thyroid cancer November 2009. It has been a roller coaster. A single mother of 4, have been…
Just wanted to say hello.. I'm new on here :)
Hey everyone... I finally got around to signing up for this site. I'm 22, from ohio, and I was diagnosed with Papillary Thyroid Cancer back in Aug of 09.. had my surgery the same month.. and then had my RAI in December 09. I've had a million and one side effects and "medical mishaps" and currently still feel horrible. My…
Genetic Testing, BRAF, etc. Anyone done it?
I'm curious about genetic testing. I have papillary thyroid cancer and Hashimotos, and autoimmunity and other weird stuff runs in my family big time. I'd like to look into genetic testing, but I'm not really sure how to go about it, or even really what to ask for, what they do, etc. Anybody here ever done it? I live near a…
Scans, tests, etc./Discrimination
I hope other people have input to provide; two years after removal of cancerous thyroid and RAI 123 pill, my antithyroglobulin antigen level was very high so, I Spent one and a half years taking scans, PET< CAT, biopsy, etc etc, nothing was ever 'conclusive' until last January lymph nod removed for reocurrance of thyroid…
My 12 year old daughter
Is there anyone out there who was diagnoised with papillary thyroid cancer at such a young age. My daughter had a total thyroidectomy January 2010, and is now dealing with getting her TSH level under control.
Frankenstein
So had a right disection on Wed and just got home from hospital today. I have a scar from the right back of my head at the hair line to the left side of the front of my neck. it's closed with staples, about 30 staples. Needless to say I look horrible. I've never been really vain, but I always got a second look from people…
thyroid results what does it mean
Theisthmus; is normal in size, also heterogeneous with 0.3 x 0.2 cm module towards the right lobe. Findings: The thyroid gland is high normal in size. The right lobe measures 4.5 x 1.9 x 1.5cm and the left lobe measures 3.8 x 1.8 x 1.7 cm. there are multiple bilateral cysts and nodules. The larges nodule in the right lobe…
Thyroid hormone levels-help! PLEASE!
My endo left early this year and now his replacement is gone. We have a shortage of endocrinologists here and have been told it could take several months to get in to see one. If this is the case...I want to make sure I have the correct levels required for cancer survivors to give to my doctor. As I know it is not the same…
Thyrogen
Hello all, I have brought this up before, but my Dr. keeps insisting that I do not need to go on a low iodine diet but that I do need to stop my synthroid before my thyrogen scan. Everything that I have read says the opposite of what she is telling me. Everytime before my other scans I had been on the atkins diet which…
Facebook Group - Thyroid Cancer 411
Great site for men and women to discuss issues related to thyroid cancer and radioactive iodine. It's a closed group but they accept members so just ask to join.

Thyroid Cancer

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