Myxoid inflammatory fibroblastic sarcoma

PaulineVee

I'm interested in contacting survivors who have had myxoid fibro sarcoma and their treatments, prognoses, etc.

suzie sunshine

myxofibrosarcoma
Hi Pauline,

I think I have the same type of Sarcoma. The doctor called it myxofibrosarcoma. So far, I have had two operations. The first surgery was done when the surgeon thought he was removing a harmless lipoma. When the pathology report came back as it being Sarcoma, the second operation was performed on Feb. 25, 2010, to remove as much surrounding tissue as possible. I am now scheduled to have a series of 32 radiation treatments. My cancer is on my upper thigh. Let me know about your condition.

suzie sunshine

nanonanu

myxofibrosarcoma
Hi Pauline,

My diagnosis is Myxoid MFH, although the Mayo consulting service called it myxofibtosarcoma. The first surgery was January 18, 2010 when a general surgeon thought they were removing a cyst from my trapezius (which was initially thought to be a lipoma). The wide local excision was on Feb 15, 2010 where I had 20% of the trap removed. I opted out of radiation as I had studied radiation biology in a early postdoc. Now I will go on surveillance. I have however, begun, phenotyping my tumor for cancer stem cell content and metastasis markers such as ezrin, stc-2, etc. Results from these analyses will provide some guidance to the level of continued surveillance.

PS I should also mention I have working hard in physical therapy as I have found loss of the trapezius more of an issue than first expected.

Lisak78227

Fibro myxoid sarcoma

Hi my 14 year old daughter is recovering from a fibro myoid saroma removed from right chest wall 3.8 cm x3.7 cm they resected it with 3 cm margins came back cancer free margins no chemo or radiation needed.