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Rare and Other Cancers

any good pc dr's in southern ca?
I am looking for a doctor who specializes in pancreatic cancer in the Los Angeles/Orange County area for a second opinion. Does anyone know any from City of Hope or from another hospital? Thx
Rare colon cancer
Hello! I am a 53-year old female recently diagnosed with a high grade adenocarcinoma, poorly differentiated, with signet ring cells and mucinous features which has metastatic involvement in the lymph nodes. I'm also diabetic and have NASH, a liver disease. My cancer is in Stage 3B, but another CT scan is scheduled for next…
Emotional healing
I have a sibling who just underwent the whipple. He was diagnosed with advanced pancreatic cancer. We, as a familiy, are just starting to understand all the waves of ups and downs involved with his cancer. He has good news and bad news continually. My biggest concern is what I can do to help him through this emotionally.…
Where is Dr. Jeremy Kortmansky?
Dr. Jeremy Kortmansky has left Memorial Sloan Kettering and we were told he has moved to Connecticut and may be practicing near New Haven. However, we have been unable to find him. We live in Connecticut and had a successful experience with Dr. Kortmansky with an ampulary carcinoma, almost three years ago. We'd like to…
Carcinoid Syndrome
Are there any women out there with carcinoid syndrome? I am currently on octreotide treatment and trying to find out any info regarding treatment and pregnancy?? Please help
squamous cell carcinoma of nasal septum
I am a 32 year old female, in the UK and I have just been told that I have squamous cell carcinoma of my nasal septum.It has eaten away much of my septum and spread out into some other nasal areas.It has also eaten away at the bone above my 2 front teeth and into my hard palate.I have been given the choice of having just…
NEUROENDOCRINE ISLET CELL NON FUNCTIONING TUMORS
Hi My husband was diagnosed with neuroendocrine islet non functioning tumors and is being treated with sandostatin lar. He has received one treatment and will receive 2 others and then have a scan to see results. Is there anyone out there with a similar diagnosis? we don't know much about any of this and could use som…
Carcinoid tumor of small intestine
My husband recently had a portion of his small intestine removed because of a carcinoid tumor. Can anyone please address the issue of diarrhea. He is taking cholestyramine for this at the present.
gemcitabine tolerability in older patients
Hi, Has anyone had experience of how to cope with side effects of gemcitabine chemo? My mother, 82, was diagnosed with nonresectable locally advanced pancreatic cancer 5 months ago. Her doctor started gemcitabine a month ago. She tolerated the procedure well, however, developed edema and high fever. She was hospitalized…
Chronotherapy cancer treatment
Did anyone hear about chronotherapy cancer treatment in the University of Illinois College of Medicine at Chicago?
jerking of the body
what cause this and is there something we can do to stop this
RARE CANCER?
I AM NOT SURE IF I SHOULD CALL THIS A RARE CANCER AS FOR ALL NORMAL REASONS A LOT OF PEOPLE HAVE HAD IT - CANCER OF THE LARYNX. I CALL IT RARE BECAUSE IT WAS DIAGNOSED IN THE LAST OF ITS FINAL STAGE WHERE REMOVAL OF THE VOICE BOX WAS THE ONLY OPTION. NOT WILLING TO GIVE UP MY VOICE - I WENT DIRECTLY INTO 42 SITTINGS OF…
Insolinoma/ islet cell of the pancreas
My husband was diagnosed in August. They operated and removed the tail of the pancreas, a lymph node, spleen, left kidney, and an adreanal gland. The mass was huge, about 21cm. The size of a basketball. He is doing well and there were no signs of it in the bloodstream. He goes for a liver scan with Octriotide this week to…
Tumor around bile duct in pancreas
Hello to everyone out there. My future Mother-In-Law was told she has a tumor in her pancreas, wrapped around her bile duct. Within three weeks she has had a series of test including an ERCP and most recently an ECU. The only reason she went to the doctor was she had jaundice. I don't understand why she DOESN'T have an…
Help dealing with anxiety and fear
Need advice.
CyberKnife. New Hope.
If you have been told that you have an inoperable tumor(s), please look into CyberKnife, This new treatment is painless, non-invasive, no side-effects, no frame required radiation surgery that is allowing previously inoperable tumors to be treated. For more info, go to www.cksociety.org. I do not work for CyberKnife or any…
PRIMARY PERITONEAL CARCINOMA
HELLO EVERYONE--I AM NEW TO CSN AND I WOULD LIKE TO KNOW IF THERE IS ANYONE OUT THERE THAT HAS WHAT I HAVE? I HAD A TOTAL HYST WITH SALPINGO OORPHORECTOMY BECAUSE I HAD UTERINE CANCER. CANCER WAS ALL REMOVED AND WHEN I WENT TO HAVE MY STAPLES OUT TWO WKS. LATER MY GYN/ONCOL TOLD ME THAT THE PATHOLOGY REPORT SHOWED A NEW…
PC Progression & Treatments
I was diagnosed in Oct w/stage1V PC. My tumor is 4.8.with very small spots on my liver and lungs. I have had no symtoms now or before diagnoses.The Gemzar makes me very tired, the neulasta makes my bones ache otherwise I am doing well. I have had two scans which indicated that the tumors were the same as the 1st scan. I…
small cell esophogeal
HI, my mom has recently been diagnosed with small cell carcinoma of the esophogus with bone mets. The doc says that this is rare, but has a 80% success rate with chemo and radiation. Does anyone have any experience with this type of cancer? My mom is only 61 and grandma to 2 young girls. She's got a lot more living to do:)
Great article on Mesothelioma Cancer
Hi, While going through the internet browsing seeking some info to help me understand mesothelioma cancer http://www.mesotheliomaresourceonline.com/articles.html , I came across this site above which is informative, and would be very helpful for people suffering from this type of cancer can get quite a lot of information…
Newly Diagnosed mother
My mother was newly diagnosed with pancreatic cancer. She is a candidate for the WHipple procedure as the cancer is only 3/4" at this time and localized. She is 81 years old and in good health otherwise. She is very scared and doesn't want to do the procedure. Does anyone have any suggestions of what I can say to encourage…
Fighting PC with Erbitux+Irenotecan? Advice.
Hi there - I am writing on behalf of my aunt, who was diagnosed with Pancreatic Cancer in Sept. 04. She was taking the GTX chemo protocol (Gemzar/Taxotere/Xeloda) for the past 9 months with good results; however, she may have developed a resistance. She is looking into a combination therapy using Erbitux (CPT-11, I think)…
29yr.old with pan.cancer
My son-in-law is 29yrs.old. He was diagnosed in Sept. He was also diagnosed with colon cancer,spread to the nodes. It is inoperable and he just started chemo. Is there anyone near this age with any info. or just support?
Bartholin's Gland Sarcoma
Does anyone else out there have this diagnosis? I haven't met anyone who knew what the Bartholin Gland is! Imagine that's the same feeling for others of the "rare cancer" sort. Interesting category to be in for all of us. I am just starting in this group and with this diagnosis (2 surgeries so far) and there is much to…
kim franklin
God called one of his angels, Kim Franklin on July 8th home. She had a very rare type of skin cancer. She was being treated at M D Anderson in Houston. She was here in Denton in the hospital for the last month or so. So any of you knew Kim, she was special. Her services were beautiful. Some of the nurses aides who helped…
hoarseness/pancreatic cancer
My husband is having chemo for pancreatic cancer and has been extremely hoarse for weeks. Does anyone know if this is a chemo side effect or cause by the disease?
GTX Protocol Possibly Failing - Looking for Options, Help!
Hello. I'm new to this board, hopefully you can help me. I'm writing on behalf of my aunt, who was diagnosed with PC Sept. 04. She's been doing well on GTX (Gemzar/Taxotere/Xeloda) combination therapy with Dr. Fine in NYC, but things have taken a turn, and we're looking for new chemo options. My aunt's message is below.…
coriolus versicolor
Does anyone here know anything about this Japanese (I think) cancer cure?
What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
Parotid Gland Cancer.
My illness has left me unable to chew anything. Thus still on mainly tube feedings one year later. They had to remove bone in my jaw and cut the muscles in the right side of my jaw joint. Which means they had no where to connect new muscle back to the upper and lower right side joint.And my teeth do not line up. Is there…

Rare and Other Cancers

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