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Rare and Other Cancers

Mastocytosis desease and UESL
Does anybody have systemic mastocytosis that has caused a sarcoma in their Liver. Or does anyone know about undifferentiated embroyanal sarcoma of the liver. Looking for experiences and info.
need prayers said
Everyone please say prayers for a friend of mine. His cancer is pancreatic. Due to confidentiality I can't release his name. Just say prayers for G. There's some good healing coming about from these boards. Thank you all and God bless.
Worried daughter
It's something you never, ever expect to hear. Especially when you're only seventeen. My father was diagnosed almost two years ago, but he didn't tell me or my brothers until November of 2001. He had always been healthy as a horse, until the summer and fall of 2001 when, more often than not, he couldn't come down to visit…
Veginal cyst---atypical pap results
Hi everyone, It has been a few months now that my wife (29yrs old) has noticed that there was a lump (maybe size of a golf ball) on the inner right lip side of her vegina She went to see her family doctor and the doctor told her it's most probably a cyst called Bartholin cyst and reffered her to a gynocologist Recently she…
Hi, I am a new member
HI My name is Sandie and I just signed up today and I would like to like to know if anyone has had or has Anal Cancer, especially if it has spread. I do have and has spread to the lymph nodes. I have been looking for a Cancer support site and a friend of my husband directed me to this one. Hope to talk to anyone!! Thanks!!
squamous cell carcenoma
im told my husband has this rare form of squamous cell...ill give you all the scoop of what is happening and if anybody can add anything please do - it is ? the 17th of Jan / 09 - he was diagnosed easter / 08 - he was told he was pallitive and had 18? mths to live - we are rounding a year with this monster no diff than a…
ablation for Pancreatic Cancer Spread to Lungs
I was diagnosed with Pancreatic Cancer 12/04, now almost 4 years later, I have nodules growing in my lungs and a biopsy shows the Pancreatic Cancer has spread. I really feel fortunate since I did not undergo any chemotherapy, radiation or any other treatment for my Pancreatic Cancer and I was perfectly fine up until now. I…
work limitations full time to part time
would like to know how others are still working full time etc ; and if disabilities acts could maybe supplement if i chose to work only pt?
Need some info help
I live in Shelby N.C. and there are alot of people saving, plastic bottle caps. But everyone I know say they have enough. I have still been saving anyone with info please help.
Survey
Hey everyone, my name is Paul Hogan and I am currently a psychology student at the California State University in Fresno. I am currently conducting research on the life outlooks of cancer survivors. If you could spare 10 minutes of your time to take a survey, I would greatly appreciate it. I myself am a past cancer…
My dad and mesothelioma
Hello everyone and I am sorry for anyone who has to come here seeking information about mesothelioma. My dad was diagnosed August 8, 2008 with Epithelioid Malignant Mesothelioma. We're currently traveling To MD Anderson in Houston to consult and work with Dr David Rice. When he originally went to the doctor it was…
Mets to the heart
Hello everyone Is anyone of you guys familiar with mets to the heart? Specifically on the rt atrium.
Gallbladder/Liver cancer
Does anyone know an excellent Oncologist in Placentia, California or close to that area. My daughter in law was diagnosed with Gallbladder Cancer and it may of traveled to her Liver. She needs to seen by an Oncologist.
Nexavar
I am currently on the oral chemo, Nexavar. I have stage IV neuroendocrine carcinoma of the pancreas. I am wondering if anyone else on this board is also taking this medication, regardless of type of cancer.
Pancreatic cyst worried sick
Hi, I am actually a Hodgkins Lymphoma survivor of about 1 year. However, my last scan 6 months ago showed a small 5 mm hypodense lesion in the tail of the pancreas. The report said it was a pancreatic cyst vs a side branch IPMN. The radiologist and my oncologist were not concerned and said this could be reimaged in 12…
Ever clinical trials for RARE cancers, or can't they get a large enough group?
My oncologist said that he doubts that there are any clinical trials for treatment of my cancer (Uterine Papillary Serous Carcinoma) because it is too difficult to get a decent sampling assembled for a rare cancer. Makes me wonder if it's a matter of economics, as advances in treating rare cancers don't have the impact as…
squamous cell carcinoma
My father was recently diagnosed with Squamous Cell Carcinoma that developed as a tumor under the skin. The tumor has been removed from his jaw as well as the corotid gland and part of a nerve. His surgeon is saying this is very rare and he can only find 12 cases like this in the world. I find that hard to believe. If…
EC discussion boards
ok - I have lost the esophageal cancer discussion board; I can't even find esophageal ca in the listing. What am I doing wrong? I must be stressed if I lost that! (LOL)
Stage 4 parotid Cancer
Hi all! I have stage 4 Partid Cancer. It has spread to my hip and to my breast. The tumor in my breast was removed and did not return. Had radiation treatment on my hip, leasion is still there, but could be dead tissue. I am trying to get some information. My tumor has been removed 3 times. The last time it was removed 3…
Medicare pay schemes?
Mom, J., has metastat anal cancer. 2 tiny mets now -- 1 to lung, 1 to liver. Dr. says radio ablation is way to go. Blue Cross/Shield won't pay. Mom is 65. Shd Mom sign up for Part A and B Medicare? Her fear is that MC might refuse radio ablation for lesions and then Blue Cross will say "We told you so!" Conversely, if MC…
Symptoms
Can someone please tell me the symptoms of Pancreatic Cancer. I feel like i am going crazy. I watched my grandmother go undiagnosed for over a year or better. CT scan, even a Biopsy. The Biopsy was Neg is late Nov. Then in late Jan her Cancer markers were sky high, she died in April. She had complained of a back ache in…
Carcinoid (Lungnoid)
Is there anyone out there who has had this type of cancer, and had surgery to remove the tumor from the lung. I just want to talk. I'm going thru a depression period and I'm trying to cope as best as I can.
varient hairy cell , pancreas tumor
sept our lives came crashing down, the doctors found a 2 inch neuroendocrine tumor in my husbands pancreas and mass in stomach and enlarge lymph node in his lung, enlarge spleen , and varient hairy cell leukemia / lymphoma , he had a distal pancreatectomy, splenectomy and therapy rituxan and cladribine, no sign of varient…
am i one of a kind?
i am a 67 year old stove up ole cow poke an oil field hand.now i have been told i have a medusa snake growing in my belley,called a expulmery small cell cancer of the stomach. now the queston, has anyone lived for five years aifter diagnosis,or am i goning to be the first?
Cancer
I am post hysterectomy and salipingoophrectomy for 10-15 years. A cat scan monday reveiled that i have now in my adnexa (previously where ovaries were) two very large masses. this is my first time ever writing does anyone know how this could have happened. im am following up with more procedures this week.
splenic angiosarcoma
I have passed 5 years in remission from the above cancer and am anxious to find other survivors. Thus far I haven't found ANYONE who has been diagnosed with and/or survived this rare cancer. If there is someone out there with any ideas to help me find fellow survivors, I would be most grateful. I am also at 3 years in…
terminal follecular lymphoma
i have been given 2 to 3 months of life left, doctors say there is nothing more they can treat me with,i have had 8 chop, with mabthera""rituximab"" + 2 eshsap treatments, thats 5 days 24/7 chemo and now vicomicin 1 treatment weekly,with steroids, it started off with a tumor in upper bowel, that was size of a grapefruit,it…
Alternative Medicine
I have been undergoing acupuncture, homeopathy and Chinese medicine for leiomyosarcoma. My LMS originated in my uterus and spread to my left lung...both tumors were surgically removed...Then they found a small tumor in my right lung (undetermined nature)....I turned to Alternative medicine and the tumor is shrinking, but I…
ganglioneuroblastoma
I have recenlty been diagnosed with this rare cancer. I have been told that it is normally found in children. I am way past the childhood phase of life. If anyone has any expirence with this please pass it on.
cholangiocarcinoma
Hi, I'm new to this board. We just found out last night that my husband has this type of cancer. Any information or words of encouragement would be greatly appreciated. We were expecting some time of liver cancer or pancreatic cancer and were somewhat relieved that it wasn't pancreatic because of its toughness to fight and…

Rare and Other Cancers

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