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Rare and Other Cancers

My mom
we just found out my mom has Pancreatic cancer and surgery is not an option. I am hoping to find someone who is a survivor of this cancer and find out about treatment options. Please give me some info bad or good. thank you so much and please pray for my mom her name is Chris.
stonegang@yahoo.com
Gale Stone died on December 14, 2003. I didn't know this and wrote to her on January 5, 2003. Her husband Richard replied to me, and her death has been very hard on him. I know we would all want to express our sorrow over Gale's death, but I can understand that right now, we only make Richard's pain greater by reminding…
Cat Scan
Well i have had some good news. My tumor has shrunk. I jave just started me second round of chemo and I am very upbeat and praying for a very good Christmas
failed whipple
my mother had an attempted whipple as she seemed to be a good candidate, but the surgery was not completed due to blood vessel encapsulation. the surgeon did palliative bypasses and closed her up. she now faces 5-6 weeks of recovery and then chemo/radiation is being recommended. all i see in the literature is that…
Father died of pancreatic cancer
My father died this past December of pancreatic cancer. How does a 20-year-old daughter come to grips with this?
First 4 Chemo Treatments
Hello Everyone. I am new to this so bear with me.I found out On June 3rd that i have Pancreatic cancer. Two Months before my 40th Birthday. To this date i have had 4 chemo treatments and doing well. I seem to get better withe every treatment and am able to do more. I know this tyep of cancer normaly hits pepole older than…
CANCER OF THE NERVOUS SYSTEM
Hi all, my very dear girlfriend who is 37 years old has a rare and complicated form of cancer that started in her breast and spread to her spine and brain. It was referred to by one doctor as cancer of the nervous system. She underwent massive doses of chemo through a shunt directly to her brain and through her arm…
Metaplastic breast cancer
I have just recently been told that I have metaplastic breast cancer. Has anyone with this type of cancer been to MD Anderson for treatment? My doctor says it is treated just like other breast cancers, but with the way it returns, surely researchers have found other drugs to treat.
Spindel Cell Synovial Sarcoma
I am a very tired and frustrated wife of a rare cancer patient. 2-1/2 yrs ago my husband was diagnosed with spindel cell synovial sarcoma. It started in his lungs and has spread to his face and bottom portion of the brain. He has had 3 lung surgeries and 2 neurosurgeries; 2 different types of chemo and 1 - 10-day round of…
Urachul Carcinoma
I was diagnosed with urachul carcinoma back in January of this year. I'l like to talk with someone else that has this.
Any help?
My brother has been diagnosed with adenocarcinoma cancer. He is not in the United States. He is in very healthy condition overall and they can not find any tumor. He has cancer cells in his lung lining. The doctors are baffled, never seen anything like this before, don't know what to do. I am hoping someone else has had…
CAAT
Hi everyone! As a public service announcement I want to let you all know about the promising cancer treatment called Controlled Amino Acid Therapy (CAAT). I have been volunteering there for 3 years and have seen and heard of many patients responding. I have even answered the phone and spoken to oncologists requesting our…
CAAT
Hi everyone! As a public service announcement I want to let you all know about the promising cancer treatment called Controlled Amino Acid Therapy (CAAT). I have been volunteering there for 3 years and have seen and heard of many patients responding. I have even answered the phone and spoken to oncologists requesting our…
Does anyone know what blood results mean?
My father had a blood test today and called me very excited. His first blood test (prior to treatment) was 174,000. His result today was 6800. Where can I go to find out what this means? Thank you for your help!
father got diagnosed with pc
my father got diagnosed with pc in January and he has been fighting it very hard though doesnt take medicines like hunger stimulators to help him eat or doesnt tell the doctor about his pain like back pain headaches and depression. he is a very hard man and also very stuburn. we are from ethiopia and he thinks it has…
Malignant endometriosis
I am 50 yrs. old. I had a total hysterectomy for extensive endometriosis in 1985. There was endometriosis inside my bladder at that time, but the surgeons thought it would atrophy after the hysterectomy. My doctor put me on estrogen and that kept the endometriosis going. On 2/28/03, I had 25% of my bladder removed, part of…
Gemzar
My Husband is haveing Gemzar. So far the tumor has not gotten any larger than it was when he was dianosed. he cancer had mestastisized to the liver and now he is having gemzar and EKB 569. Hopefully we can buy time.
Gonzales Treatment for Pancreatic Cancer
My father has unresectable pancreatic cancer that has metastasized to the liver, and we are considering alternative treatment options. Recently we have learned about the Gonzales treatment, and would like to talk with someone who has experience with this treatment. If anyone has tried the Gonzales (or Kelley) treatment, I…
carciniod tumors with carciniod syndrome
I would really like to chat with someone who has this disease, so please read and lets chat...
gemzar
yes i am having gemza. My cancer has also mestatized to the liver also. I am goinh to continue to have gemzar and I am going into a study for oral chemo pills taken every day; to stop the growth of any more liver tumors. I have a lot of good healthy liver left.
Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight. email me at CelebrateLife@sbcglobal.net
Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight. email me at CelebrateLife@sbcglobal.net
Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight. email me at CelebrateLife@sbcglobal.net
Carcinoid Lung Cancer
I have two tumors of Spindle-cell carcinoid in my remaining right lung. I will be under-going surgery, but I wondered how easily does this spread. These are my 3rd tumors in one year.
Spindle epithelial tumor with thymus like differentiation
AKA "SETTLE" Is there anyone out there that has had it? My son had a tumor removed last year. Not much info. on it and no one to compare notes with. kheibein@sympatico.ca
Best Friend Died
Thought I would just let you know my friend died at 11:44pm,July12,02.She was a beautiful person and fought a long and hard battle with this cancer.I will miss her dearly.God Bless You,ltodd
What progress have you seen with treatment?
My mother was diagnosed with pancreatic cancer with mets to the liver. She started a clinical trial of chemotherapy last month. It is really hard on her, I can't begin to imagine what it's like. The prognosis for pancreatic cancer isn't very good in general, and I would love to hear about any progress at all from anyone on…
emergency help
Hello, everyone. I am 57, a widow and an only child. I was diagnosed with neuroendocrine cancer located in my liver. I rent a house but it has now been condemned and I need to find a new home immediately. I only have disability to live on and, in looking through the newspaper, I cannot afford anything. I have contacted…
EKB 569 plus clinoril
one is an arthritis drug, the other experimental. this combo looks very promising and should NOT be toxic like chemo.
chemo pump
My dad wore a carrier I designed for him during his chemo treatment(approx 1 year). I would like others to have the same opportunity

Rare and Other Cancers

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