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Inoperative Pancreatic Cancer
Does anyone know of any clinical trials accepting people, in the Boston area? I am desperate to find something for my husband. He'll begin intense radiation and chemo in about a month, but I'm not hopeful. Please help. Thanks, Paula
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Bile Duct Cancer
My step-father was just diagnosed with bile duct cancer about a month ago. He had the triple by-pass surgery, you know the small intestine re0route etc. He is doing just ok now. He has lost sooo much weight and hardly has any energy. He was just admitte dintot he hospital agin..he was complaining of pain in a couple parts…
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neuroendocrine carcinoma
Hi, I just came out of hosp. this week. Had a tumor removed and a axillary disection. I had a small lump under my arm in breast area. Felt flat and had a bruse over my skin. Nothing to do with breast cancer. It's name was neuroendocrine carcinoma. The 15 nodules removed from the axillary disection came out negative. I am…
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Islet cell tumor / neuroendricine tumor
Is there anyone out there who has had a whipple operation to remove an islet cell tumor of the pancreas?
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Oral cancer/tongue
The guy I have been with for a little over a year has a small white growth on his tongue, and is scared to death to get it looked at. I have done research on oral cancers, and the outcomes never seem to be good. Is there anyone that has a good story of survival from an oral cancer? I am so lost on this. I don't even know…
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GIST
Hello, Last November I had a Gastro-Intestinal Stromal Tumor surgically removed from my stomach. Four days following surgery, they informed me that they had found some cancer cells in the tumor and would have to perform a second surgery (five days after the first surgery) in order to cut an exclusion area around where the…
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bileductcancer /pancreatic
Any one need to talk but me?
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Painful, blue fingertips
My husband has pancreatic cancer and is on his second round of chemo. He has the normal effects from chemo such as nausea and fatigue but his latest problem is blue fingertips on the index and middle fingers of both hands. It is very painful and hurts constantly. He has been checked for vaculitis and autoimmune disorders…
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I could use some support
My step-dad was diagnosed about 5 weeks ago and after 2 weeks of tests and meetings at M D Anderson in Houston they had decided that whipple surgery was not an option and to send him back to Dallas for Chemo. He was given 2-6mo w/o treatment. 2 years tops if he does treatment... I am kinda freakin out!! He is going to…
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Liposarcoma and Chemo
I'm on my third recurrence of liposarcoma. the first in 1997 was removed surgically as was the second. I've had one round of chemo and radiaion. I now have another tumor, plus lots of little ones. I understand the success rate for standard treatments is 35% (Ifosmide and dixiorubicin). The second round, as perscribed by MD…
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Peritoneal Mesothelioma
I was diagnosed with Diffuse Malignant Peritoneal Mesothelioma in Sept. 2001. Had surgery in Oct. 2001 and intraperitoneal chemotherapy. The cancer came back. Had surgery again Sept. 2002 and now in intravenous chemotherapy. I wonder if anyone else out there has a similar situation.
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Clinical trials and hospice
My dad, age 80, was diagnosed with Stage IV pancreatic cancer two months ago. Since his diagnosis I've been frustrated with the lack of coordinated health care management of his life limiting disease. No doctor wants to discuss anything other than the immediate issue, whether that be a particular test or medication or pain…
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tell me if there is hope
posted a message yesterday on my husband was diagnosed with pancreatic cancer..been reading all of your messages and reply's..gone to the cancer specialest today and they did not answer alot of my questions..the only answer is my husband had 6-8months to live and an wipple was not the answer..only info: I recieved from the…
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Cutting into cancer
I have a theory that once they cut into cancer that is advanced it will spread whatever you do I would never have surgery again and certainl;y not radio or chemo its awfultreatment and kills more than it cures although i am sure lots woill disagree with me
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Question for Tim
Hi Tim, I've seen a few of your posts, and they are the only promising news I've really found so far. My mother in law was diagnosed with PC early last week. Doctor's have yet to give us any information relative to her situation, other than it's stage 1 or 2 and only a 2cm tumor. My mother in law has gathered most of her…
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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thoroughness
My family had a somewhat similar experience 1998. My dad had gone to the doctors complaining of tiredness and ache in his side. Doc kept saying that there was nothing they could find in the blood tests and that he should go home, several times over,etc. Since he was 79 yrs of age they just said it was part of aging even…
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thoroughness
farrah, i'd be angry too. it is sad when you know something is just not right with your own body and the docs act like your a hypochondriac. i am a breast cancer survivor (it has not been 2 years yet since the first surgery) who has been having aches and pains that have begun to scare me. they are not constant but they…
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Looking for Hope/Survivors
My mom was diagnosed with stage 3, locally advanced PC; whipple not an option since tumor is wrapped around arteries. My family and I are looking for hope and/or survivor stories. ANy help out there. . .please?
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Thoroughness
Farrah, I have heard the pancreas called the "silent" organ and pc a "silent killer." Well it boggles me that if someone is coming complaining of digestive problems that cannot be medically diagnosed using current screenings, why not check the pancreas???? It seems like a no brainer, because if you read people's stories of…
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husband has pancreatic cancer
hi my name is Susan and my husband was just diagnosied with pancreatic cancer..Were from just south of Pittsburgh and going to the hillmen center tomorrow in Pittsburgh...I guess this is hell on earth right now and I am trying to get as much info..that my mind can take..this is my first visit to this website and I have…
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Is it lack of thoroughness on the part of the medical profession or is it just plain old "Don't give
My husband died one week ago today after a horribly painful illness that had obvious symptoms for at least 18 months. Of course the symptoms got progressively worse until three months ago when he collapsed and had to be taken to the emergency hospital. He was hospitalized (he and I decided) one year ago with these very…
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Total Pancreatectomy on 30DEC03
Our mother (64 year-old diabetic of three years) just finished having her Pancreas, Gall Bladder, Spleen, small portion of her stomach, and five lymph nodes removed on Tues, Dec 30, 2003. Only her Pancreas had a small tumor in addition to one of the five lymph nodes. There are no signs of cancer anywhere else: stomach,…
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My mom
we just found out my mom has Pancreatic cancer and surgery is not an option. I am hoping to find someone who is a survivor of this cancer and find out about treatment options. Please give me some info bad or good. thank you so much and please pray for my mom her name is Chris.
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stonegang@yahoo.com
Gale Stone died on December 14, 2003. I didn't know this and wrote to her on January 5, 2003. Her husband Richard replied to me, and her death has been very hard on him. I know we would all want to express our sorrow over Gale's death, but I can understand that right now, we only make Richard's pain greater by reminding…
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Cat Scan
Well i have had some good news. My tumor has shrunk. I jave just started me second round of chemo and I am very upbeat and praying for a very good Christmas
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failed whipple
my mother had an attempted whipple as she seemed to be a good candidate, but the surgery was not completed due to blood vessel encapsulation. the surgeon did palliative bypasses and closed her up. she now faces 5-6 weeks of recovery and then chemo/radiation is being recommended. all i see in the literature is that…
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Father died of pancreatic cancer
My father died this past December of pancreatic cancer. How does a 20-year-old daughter come to grips with this?
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First 4 Chemo Treatments
Hello Everyone. I am new to this so bear with me.I found out On June 3rd that i have Pancreatic cancer. Two Months before my 40th Birthday. To this date i have had 4 chemo treatments and doing well. I seem to get better withe every treatment and am able to do more. I know this tyep of cancer normaly hits pepole older than…