varient hairy cell , pancreas tumor

ajbf Member Posts: 28
edited March 2014 in Rare and Other Cancers #1
sept our lives came crashing down, the doctors found a 2 inch neuroendocrine tumor in my husbands pancreas and mass in stomach and enlarge lymph node in his lung, enlarge spleen , and varient hairy cell leukemia / lymphoma , he had a distal pancreatectomy, splenectomy and therapy rituxan and cladribine, no sign of varient hairy cell and enlange lymph node gone... they now found 7mm lesion on his liver, and his ca 19-9 is 98 .they want him to do octreotide scan next, he is going to work , he feels good, i dont understand how one could have all this going on,is there anyone out there like this? what dose all these test mean?