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Pancreatic cyst worried sick
Hi, I am actually a Hodgkins Lymphoma survivor of about 1 year. However, my last scan 6 months ago showed a small 5 mm hypodense lesion in the tail of the pancreas. The report said it was a pancreatic cyst vs a side branch IPMN. The radiologist and my oncologist were not concerned and said this could be reimaged in 12…
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Ever clinical trials for RARE cancers, or can't they get a large enough group?
My oncologist said that he doubts that there are any clinical trials for treatment of my cancer (Uterine Papillary Serous Carcinoma) because it is too difficult to get a decent sampling assembled for a rare cancer. Makes me wonder if it's a matter of economics, as advances in treating rare cancers don't have the impact as…
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squamous cell carcinoma
My father was recently diagnosed with Squamous Cell Carcinoma that developed as a tumor under the skin. The tumor has been removed from his jaw as well as the corotid gland and part of a nerve. His surgeon is saying this is very rare and he can only find 12 cases like this in the world. I find that hard to believe. If…
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EC discussion boards
ok - I have lost the esophageal cancer discussion board; I can't even find esophageal ca in the listing. What am I doing wrong? I must be stressed if I lost that! (LOL)
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Stage 4 parotid Cancer
Hi all! I have stage 4 Partid Cancer. It has spread to my hip and to my breast. The tumor in my breast was removed and did not return. Had radiation treatment on my hip, leasion is still there, but could be dead tissue. I am trying to get some information. My tumor has been removed 3 times. The last time it was removed 3…
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Medicare pay schemes?
Mom, J., has metastat anal cancer. 2 tiny mets now -- 1 to lung, 1 to liver. Dr. says radio ablation is way to go. Blue Cross/Shield won't pay. Mom is 65. Shd Mom sign up for Part A and B Medicare? Her fear is that MC might refuse radio ablation for lesions and then Blue Cross will say "We told you so!" Conversely, if MC…
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Symptoms
Can someone please tell me the symptoms of Pancreatic Cancer. I feel like i am going crazy. I watched my grandmother go undiagnosed for over a year or better. CT scan, even a Biopsy. The Biopsy was Neg is late Nov. Then in late Jan her Cancer markers were sky high, she died in April. She had complained of a back ache in…
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Carcinoid (Lungnoid)
Is there anyone out there who has had this type of cancer, and had surgery to remove the tumor from the lung. I just want to talk. I'm going thru a depression period and I'm trying to cope as best as I can.
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varient hairy cell , pancreas tumor
sept our lives came crashing down, the doctors found a 2 inch neuroendocrine tumor in my husbands pancreas and mass in stomach and enlarge lymph node in his lung, enlarge spleen , and varient hairy cell leukemia / lymphoma , he had a distal pancreatectomy, splenectomy and therapy rituxan and cladribine, no sign of varient…
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am i one of a kind?
i am a 67 year old stove up ole cow poke an oil field hand.now i have been told i have a medusa snake growing in my belley,called a expulmery small cell cancer of the stomach. now the queston, has anyone lived for five years aifter diagnosis,or am i goning to be the first?
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Cancer
I am post hysterectomy and salipingoophrectomy for 10-15 years. A cat scan monday reveiled that i have now in my adnexa (previously where ovaries were) two very large masses. this is my first time ever writing does anyone know how this could have happened. im am following up with more procedures this week.
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splenic angiosarcoma
I have passed 5 years in remission from the above cancer and am anxious to find other survivors. Thus far I haven't found ANYONE who has been diagnosed with and/or survived this rare cancer. If there is someone out there with any ideas to help me find fellow survivors, I would be most grateful. I am also at 3 years in…
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terminal follecular lymphoma
i have been given 2 to 3 months of life left, doctors say there is nothing more they can treat me with,i have had 8 chop, with mabthera""rituximab"" + 2 eshsap treatments, thats 5 days 24/7 chemo and now vicomicin 1 treatment weekly,with steroids, it started off with a tumor in upper bowel, that was size of a grapefruit,it…
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Alternative Medicine
I have been undergoing acupuncture, homeopathy and Chinese medicine for leiomyosarcoma. My LMS originated in my uterus and spread to my left lung...both tumors were surgically removed...Then they found a small tumor in my right lung (undetermined nature)....I turned to Alternative medicine and the tumor is shrinking, but I…
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ganglioneuroblastoma
I have recenlty been diagnosed with this rare cancer. I have been told that it is normally found in children. I am way past the childhood phase of life. If anyone has any expirence with this please pass it on.
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cholangiocarcinoma
Hi, I'm new to this board. We just found out last night that my husband has this type of cancer. Any information or words of encouragement would be greatly appreciated. We were expecting some time of liver cancer or pancreatic cancer and were somewhat relieved that it wasn't pancreatic because of its toughness to fight and…
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Neuroendocrine cancer
I'm interested in anyone who has consulted with Dr. Oberg in Sweden...need to know chemo meds and progress. We have been to him 1x and want to go back but we need some documented progress to show MD. Thank you, maganda8
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vuluar cancer
Looking for other people with stage 2 Vuluar cancer and what to do from here on?
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TARCEVA (ERLOTINIB)
MY WIFE YOUS TARCEVA AND AFTER 7 DAYS SHE HAVE RASH ON HER FACE.DID SOMEBODY HAVE EXPERIENCE ABOUT THIS.
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Plasmacytoma in orbit of eye
This is a rare condition and I am looking for cancer centers/physicians with experience treating plasmacytoma in orbit of eye.
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Neuroendocrine Carcinoma
I had a tumor removed from my liver and it was diagnosed as NEC. They aren't sure if it's the primary but I had tumor markers done recently and all my levels were normal. Have any of you had markers done and levels were normal but more tumors were found? I'm asking because less than 1% of NEC tumors originate in the liver…
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Early Esophageal Cancer
I am posting this story for anyone with early stage Esophageal Cancer. (Stage 0-1) Mike, my husband was diagnosed with Stage 1 Esophageal Cancer May of last year. His cancer was most likely caused by Acid Reflux (Barretts Esophagus). He was scheduled for surgery to remove his esophagus in June at the recommendation of his…
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Neuroendocrine Carcinoma, Unknown Primary, Lymph Node Mets
My husband has been diagnosed with large cell Neuroendocrine Carcinoma, unknown primary, with a colon resection on May 28, mets to lymph nodes. He has completed 2 cycles of Carboplatin and Etoposide and had a CT scan, results tomorrow, to see how the treatment has gone. I am interested in any information, specialists,…
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Adrenal Cancer Information
Folks, I'm an Adrenocortical Carcinoma patient 2 and a half years surgical remission. There are two very active Yahoo groups for this cancer and a useful website with links to those groups. It's my website and it has links to everything that we've gleaned from other patients and caregivers.…
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Update-SCC-Penile Cancer
My boyfriend had his surgery at IU Monday.They did not perform Moh's,but he had excisional & the plastic surgeon did not have to graft,instead he pulled skin up from scrotum & base of penis to make a flap over the area.Its like a sideways horseshoe shape scar,about 3 inches! Bad news was from the time I 1st had him looked…
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CSN Discussion Boards Changes- Effective May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging the "Pancreatic Cancer" discussion board with this board. At the…
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CSN Discussion Boards Changes on May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging this "Pancreatic Cancer" discussion board with the "Rare and Other…
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ELEVATED PANCREATIC ENZYMES AGAIN
Hello everyone. I posted on this website back in June of 2006. My liapse enzymes were in the 700's and amylase in the 500's, CA19.9 went into the 80's. On its own back in SEpt.21, 2006 all enzymes went back to normal with the exception of the CA19.9 which went down to 44. I had an MRCP back in JUly which was normal. An…
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The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-ie; stem cells, which could very well bring the cure to all cancer. The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500 even…
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Gangliocytic paraganglioma
If there is any information anyone can provide to me I would be very grateful. I have just been diagnosed and a 3cm tumor was removed from my ampulla. I am planning now for a recommended Whipple procedure. Any and all info on this type of tumor or procedure would be so helpful. Thanks, Michelle