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Rare and Other Cancers

Neuroendocrine cancer
I'm interested in anyone who has consulted with Dr. Oberg in Sweden...need to know chemo meds and progress. We have been to him 1x and want to go back but we need some documented progress to show MD. Thank you, maganda8
vuluar cancer
Looking for other people with stage 2 Vuluar cancer and what to do from here on?
TARCEVA (ERLOTINIB)
MY WIFE YOUS TARCEVA AND AFTER 7 DAYS SHE HAVE RASH ON HER FACE.DID SOMEBODY HAVE EXPERIENCE ABOUT THIS.
Plasmacytoma in orbit of eye
This is a rare condition and I am looking for cancer centers/physicians with experience treating plasmacytoma in orbit of eye.
Neuroendocrine Carcinoma
I had a tumor removed from my liver and it was diagnosed as NEC. They aren't sure if it's the primary but I had tumor markers done recently and all my levels were normal. Have any of you had markers done and levels were normal but more tumors were found? I'm asking because less than 1% of NEC tumors originate in the liver…
Early Esophageal Cancer
I am posting this story for anyone with early stage Esophageal Cancer. (Stage 0-1) Mike, my husband was diagnosed with Stage 1 Esophageal Cancer May of last year. His cancer was most likely caused by Acid Reflux (Barretts Esophagus). He was scheduled for surgery to remove his esophagus in June at the recommendation of his…
Neuroendocrine Carcinoma, Unknown Primary, Lymph Node Mets
My husband has been diagnosed with large cell Neuroendocrine Carcinoma, unknown primary, with a colon resection on May 28, mets to lymph nodes. He has completed 2 cycles of Carboplatin and Etoposide and had a CT scan, results tomorrow, to see how the treatment has gone. I am interested in any information, specialists,…
Adrenal Cancer Information
Folks, I'm an Adrenocortical Carcinoma patient 2 and a half years surgical remission. There are two very active Yahoo groups for this cancer and a useful website with links to those groups. It's my website and it has links to everything that we've gleaned from other patients and caregivers.…
Update-SCC-Penile Cancer
My boyfriend had his surgery at IU Monday.They did not perform Moh's,but he had excisional & the plastic surgeon did not have to graft,instead he pulled skin up from scrotum & base of penis to make a flap over the area.Its like a sideways horseshoe shape scar,about 3 inches! Bad news was from the time I 1st had him looked…
CSN Discussion Boards Changes- Effective May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging the "Pancreatic Cancer" discussion board with this board. At the…
CSN Discussion Boards Changes on May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging this "Pancreatic Cancer" discussion board with the "Rare and Other…
ELEVATED PANCREATIC ENZYMES AGAIN
Hello everyone. I posted on this website back in June of 2006. My liapse enzymes were in the 700's and amylase in the 500's, CA19.9 went into the 80's. On its own back in SEpt.21, 2006 all enzymes went back to normal with the exception of the CA19.9 which went down to 44. I had an MRCP back in JUly which was normal. An…
The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-ie; stem cells, which could very well bring the cure to all cancer. The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500 even…
Gangliocytic paraganglioma
If there is any information anyone can provide to me I would be very grateful. I have just been diagnosed and a 3cm tumor was removed from my ampulla. I am planning now for a recommended Whipple procedure. Any and all info on this type of tumor or procedure would be so helpful. Thanks, Michelle
Carcinomatous Meningitis (Ovarian)
Leptomeningeal Carcinomatous (Carcinomatous Meningitis) Ovarian cancer does not commonly involve the nervous system. Brain metastasis is a rare complication of ovarian cancer with only 67 well documented cases in the literature until 1994. A multi-institutional study of 4027 ovarian cancer patients over 30 years identified…
Whipple Procedure
Can anyone tell me about this? I am 38 and will need to have one in the near future. Any prep I can do, expectations etc...
NEUROENDOCRINE CARCINOMA POORLY DIFFERENCIATED (cervix+ METS IN THE LIVER)
Hello, Sorry for my english, I'm 38, I'm french,and Iwas diagnosised in January 2006. Cervix+ big mets in the liver, I started chemiotherapy in January every 3 weeks (etoposide+cisplatin) and had 6 cycles of three days. The mets had really well reduced, but at the end of the treatment it was not enough. Now I have…
Neuroendocrine Large Cell Carcinoma
Hi, I have just found this resource and live in the UK, I have a dear friend in Italy that is suffering from Neuroendocrine Carcinoma Large Cell , speciifcally to the right lung with secondary mediastinal lymph node infection and he has been treated for 8 months with Cisplatin + Gemcitabina (italian name) currently the…
Whippple survivor deaths
I am a 5 year survivor of the Whipple operation after pan-can. I, and we-all, would like to know why we eventually die? What does the Whipple do that makes problems? I believe that iron anemia is a prime cause. Anybody know?
ELEVATED CA19.9 TEST
Hi there again. I posted yesterday about what was going in with myself. I was just wondering if those dx.with pancreatic cancer have the CA19.9 test done. My CA19.9 test back in April 2006 was 48, now it is 65. Is this test indicative for pancreatic cancer or can it get elevated for pancreatitis.?? Any answer would…
PANCREATIC CANCER-NATURAL TREATMENT
MY MOM HAS PANCREATIC CANCER. I WOULD LIKE TO KNOW IF SOMEONE KNOWS ABOUT A NATURAL TREATMENT. UNFORTUNALY SHE IS IN PERU SOUTH AMERICA. AND SHE HAS NOT BEEN GRANTED THE TOURIST VISA. IF SOME ONE COULD GIVE ME REFERENCES ABOUT IPIFA (INSTITUTO PERUANO DE INVESTIGACION FITOTERAPICA ANDINA) I WILL BE THANKFUL.
blue cell neuroendocrine carinoma
Has anyone taken gemcitabine and Venorelbine ? If so, any good results ?
Dermatofibrosarcoma
Has anyone experienced this form of cancer.. rare and slow growing.
ESSIAC TREATMENT
Hello. I hope all is well with everyone. My mother is battling advanced stage vaginal cancer. It has spread to her lungs and liver. Her days are numbered now. I was wondering if anyone has used the Essiac Tea treatment for cancer. If so, how was your experience? Please respond as soon as possible. Thank you for listening.…
Whipple procedure my dad will have....
My dad will be undergoing the Whipple procedure on 5/23. Drs are pretty optimistic that it hasn't spread, but they won't know definitly until they're in there. I've been reading some of the posts and I'd love to hear others that have had this procedure. What to ask about? What to look for? How curative is this? Thanks for…
Hypodense lesion?
Has anyone heard of Hypodense lesion on the tail pancreas?
hemangioparacytoma
Abdominal Sarcoma, found in June '03, 30 rounds Rads, 30 days to heal, removal of rectum, colon, prostate, bladder, and 6" tumor. As of Feb '06 I'm NED.
Desperate for information!
We just found out yesterday that my Mom, in all probability, has pancreatic cancer. I'm scared to death. I'm not ready to lose her. I know it is bad though. Her doctor called me because Mom felt like she wouldn't be able to answer all the questions that I may have. They found a mass in her pancreas that measures 8 x 5.3…
Erbitux and Tarceva rash help is here
I know there is a physician in Chicago that is becoming very well known at Northwestern hospital that specializes in the treatment of these rashes. He leads the research and the special clinic there called the SERIES clinic that treats these reactions.... Call or e mail him asap His contact information is below: Mario E…
Pancreatic Cancer, no quinio
My name is Luis Belo i am 46 years old and i live in Portugal. I can say that till now i am a surviver. My case Letter from my oncologist, in case that I would want a 2ªnd opinion on my case, ~ Dear Sir Luis Belo, a 45 year-old patient, admitted in our hospital in January 28 because of jaundice and loss weight 15 days…

Rare and Other Cancers

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