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Rare cancers
My Mom has just recently been diagnosed with a rare form of cancer called...adrenocortical carcinoma. It is cancer of the adrenal cortex, and only effects 1 in 2,000,000. I'm here because I am wondering about any success stories dealing with this type of cancer. I would love to hear whatever you have to say.....
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Whipple surgery
I had the "whipple surgery" before I started my treatments for pancreatic cancer. I have tried several kinds of enzymes and they make me sick. Does anyone know if I can get better if I don't find an enzyme I can take. I eat and the food goes right thru me and I can't gain any weight.
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ALCL
I would like to communicate with people who have Anaplastic Large Cell Lymphoma. I have the cutaneous type which started out as LyP.
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paitent and family web sites
I just wanted to tell all of you about the john hopkins web site! It is very active with alot of info. Pan Can web site is great and usefull too. Please post if you know of any others. Jen
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Myasthenia Gravis and Thymoma
I understand this is quite rare and I havent found anyone in this area that can relate - is there anyone out there that can share their story?
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Angiosarcoma
Hello,I'm new here I'm 22 years old and I was diagnosed with Angiosarcoma in my Breast when i was 20. I'm all better now. and I'm more than willing in answering any questions.
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Is there hope
My dad was diagnosed with pancreatic cancer December of 2003 he had the whipple procedure and underwent chemo and radiation and got a clean bill of health in June 2004. Now it is back and has spread to his liver I am so scared he is only 53. Is there hope can he live?
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Cholangiocarcinoma
My husband has bile duct cancer. Does anyone know that outcome of the proceedures? or the Prognosis if they remove the tumor?
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Looking for support....
Hi, I saw this commercial and segment last week on the Sharon Osbourne show and thought I would come find out and see what is here. I'm 27 and come from a loving family, but sometimes its hard to show all my feelings because I know they are dealing with things too in their own way. My Mom has pancreatic cancer and is 51…
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Severe Itching
Can anyone suggest anything to relive the severe itching associated with pancreatic/liver ca? I know it is caused by the bile backing up in the system.
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bile duct cancer
Can anyone give me some hopeful stories about this rare cancer? My mum (an otherwise healthy, fit 70yr old)has just been diagnosed and I would love to hear a positive story from someone who has been through the same cancer and survived!
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grandma with pancreatic tumor
My grandma has a pancreatic tumor. They did a blood test to see if it was cancer or not. It showed up that it wasn't but they said it is not 100% accurate. Can anyone tell me how often pancreatic tumors are cancerous? Please respond!
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Pancreatic CA Discussion on Radio
On Sunday, November 14, 2004, The Group Room, the nationally syndicated radio call-in cancer talk show, will air a special live broadcast in support of National Pancreatic Cancer Awareness Month, in association with the Pancreatic Cancer Action Network (PanCAN). We welcome your voices Sunday, November 14th in The Group…
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Healthy! 1 year post whipple 34 years old
I just want to tell all of you out there that there is hope. I am a 33 year old female that was diagnosed with pancreatic cancer stage 3 following a whipple operation. Its been 13 months and I feel great! No meds, a little pain from time to time but I feel like my life is back to normal. I invite you to read my story. I…
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Advanced pancreatic cancer,liver,lungs
My mother had a whipple done 2002.She did not have chemo. 6 months ago it come back in her pancreas 2cms what is left of it. Spread to her liver not much alittle she couldint go through the clinical trials because her kidneys were bad. so they put her on gemzar through the ivy no nutrition nothing. 3months later they…
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Life after Whipple
My mom has PC. She should be having her Whipple surgery within a month. She fears the recovery from the surgery almost to the point where she doesn't even want to have the surgery done. I was hoping to get some feedback on what to expect during the recovery period. Do the pain meds help? I've read 2-3 months for recovery.…
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2 years and counting
Today my dad turns 64 years old, 2 years ago when he was dx with stage4 pancreatic cancer I never thought this was possible. He underwent chemo and RXT prior to his whipple as the tumor completely encased this mesentaary artery. The doctor waas doubtful that he would be able to have surgery but a miracle happened the tumor…
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Gonzales Treatment for pancreatic cancer
Does anyone know anyone who has undergone the Gonzales treatment? Any info regarding someone who has had direct experience with the treatment would be greatly appreciated. Thank you.
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switching chemo drugs
I have pancreatic cancer in the tail, the duodenum and surrounds the celiac axis. I have been receiving chemo treatment since March (Gemcitabine and cis-platinum) I am on a one month hiatus and after that my oncologist is thinking of switching chemo drugs. I want to know if anyone has some suggestions to share
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I need some info on what to expect during this period..
My dad was diagnosed 2 weeks ago with pancreatic cancer. It is the size of a quarter, and he has just learned that he must wait 1 more month (july 27) to see the cancer doctor. Is this normal? Every day hes sick at least once and is losing weight faster that I have ever seen. He eats right but he cant keep the weight on. I…
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savor eccrine sweat gland carcinoma
Hello. I am 25 and have recently been diagnosed with savor eccrine sweat gland carcinoma. I have had my tumor removed and a margin surgery done. Tissues came back negative, but there was another small tumor. I am scheduled for a CT and lymph node section. Just wondering if anyone else has experienced this type of cancer or…
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Slurring/Memory
My father was diagnosed just about 6 months ago with 6-12 months to live, pancreatic cancer which has metastasized, especially to the lung (or from, who knows). He was okay until about 3 weeks ago and now is slurring his speech, losing memory. Is it the drugs? Has anyone else had this experience? He is using morphine and…
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People with more than 1rare cancer??
Hi, Im 33 and have had 2 rare cancers in 4 years. Thymoma (malignant) and Mucoepidermoid Carcinoma. The Docs claim that they are unrelated. I am curious to know if there are others out there like me who only grow crazy stuff?? I would also like to know if anyone is experiencing hair loss 5 years after chemo? Thanks, m
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Trouble Swallowing After Whipple
Has anyone had trouble swallowing about 8 days after their Whipple procedure? Did you have a "blocked" feeling when trying to eat jello or clear liquids? Like it won't go down... and a feeling of fullness and no room for the food or liquid to go?
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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Nothing you haven't heard/read already
I signed up with CSN not quite a year ago. I have read many posts but this is my first actual posting. My girlfriend was diagnosed with pancreatic cancer in Nov 2003. The doctors were hopeful since they caught it soon and the spot was small. She has been on chemo until last month. her liver was beginning to fail so they…
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Help! Treatment Options
My 55 year old father has just been diagnosed with Stage IV of pancreatic cancer that has metastisis to the liver. He has a 5.2 cm tumor on the lower end of the pancreas which is causing him great pain but the doctors say is inoperable. Any advice on doctors and treatments? We just found out this past Tuesday, so there has…
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brother died of pancreatic cancer
I need to talk so very much about the neglect of his care.