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Cholangiocarcinoma Positive Response
I was diagnosed with cholangiocarcinoma in June 2011 and have been undergoing treatment for the past 10 months. In appreciation for others who have shared there stories, I wanted to share some of my information in hopes that it may help others. I initially had a liver resection last June and the pathology showed clear…
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Spindle cell cancer
My mother has spindle cell cancer. She just had a lump removed from her cheek and completed 20 days of radiation. Now the area that was radiated is infected. She is taking antibiotics and I think the infection is getting better. She is 80 years old. It is a rare type of cancer. Does anyone else have this on there face?
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My brother has liposarcoma rare cancer and little time left. I'm scared.
He has been fighting cancer for 12 years. His initial tumor weighed 26 lbs. I left my life in Nevada to come help him and be with him until the end. I arrived March 5th and called the ambulance March 6th. His blood ct was 3.6 and he was in the hospital for 30 days. Doctors are afraid to operate because the cancer is…
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Diffuse Large B cell lymphoma of the orbit of my eye.
Was diagnosed two weeks ago with a biopsy. The visit to the onocologist said it is too rare he knows nothing about this and wants me to shuffle on to MD Anderson in Houston from where I live in Fl. I am so scared as all I read is disfigurment, tests, tests, and vile awake tests I am in for. I have a bladder infection now…
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advanced "stages" of neuroendocrine cancer
Has anybody heard of anything new for treatment of this?
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Early cancer detection
Cancers and tumors can originate from any cell in the body. The only life-saving treatment is early detection. The common screening methods can detect early some of the most common cancers, but they miss two things: 1. Common cancers that develop in earlier age than the screening is recommended, and this is not rare today,…
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Gallbladder Cancer - 2011
Hello Everybody! Happy New Year! I know I’m a little late but better late than never. I have started this new discussion thread because over the last year of posting we have ended up with many different threads going on at the same time. It was hard to keep up with them all. I had many people tell me that they couldn’t…
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whipple procedure
I would like to have e-mail or phone contact with someone that had cancer of the pancreas and has had whipple surgery. It would be so helpful to compare notes, problems and successes. barb616 love.doxies@yahoo.com
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Metastatic Pancreatic Cancer
Hello - My partner was just diagnosed with metastatic pancreatic cancer with metatases to the liver and associate peritoneal carcinomatosis. She's almost 63 and this has been one hell of a blow to the two of us. She saw the oncologist yesterday; surgery is not an option. They will be doing a biopsy, hopefully next week and…
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Has anyone else experienced heart attacks due to 5FU chemo?
I have appendiceal cancer, signet cell carcinoid tumors, Stage 4, BUT it has metastasized to my ovaries and rectum, NOT to my liver, lymph nodes, bones, lungs, etc. Doctor tried putting me on 5FU in January 2011 but I had 3 heart attacks in 4 weeks from it. Switched me to Irinotecan from February to August. It didn't do…
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Pleomorphic Liposarcoma
My husband who is now 64 yrs. was first diagnosed with 'pleomorphic liposarcoma' cancer in December 2003. He had it on his upper right back near the arm pit. He first noticed a very small lump on his back in Sept 2003. The VA doctor kept saying it was only a fatty tumor and do not worry about it. Well it kept growing and…
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Pleomorphic Liposarcoma
I have just been diagnosed with this disease. Could someone tell me what to expect or anything about it? Thanks in advace teri
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Apocrine (sweat gland) cancer
My mom has been diagnosed Stage IV-Apocrine Carcinoma. It is metastatic (brain, kidneys, lungs,spine). She has has 10 brain radiation treatments and 1 course of chemotherapy (Vincristine, Adriamycin, Cytoxin) which has done little. This is a very rare cancer. I would appreciate any suggestions, insight, anything...
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Aggressive digital papillary adenocarcinoma
Trying to locate doctors who have seen the most cases for second opinion as soon as possible.
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Anyone with Pleural Mesothelioma
My father has recently been diagonosed with Stage IV meso. He will begin chemo on Thursday. I know this is a rare cancer but lookig for anyone that is also going through this horrific experience. Everywhere you look with this diagnosis is grave...I'm looking for something positive
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Paraganglinoma (Abdomen)
My friend (age 47) has been diagnosed with Maglinant Paraganglinoma. The doctors don't want to do anything but continue to remove the tumors. She would just like contact with someone esle with this form of cancer. We are trying to get her into the Anderson Center in Texas. She had her first tumor over 20 years ago.
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financial support
Does anyone know of any organizations that could help me financially while going through treatments? I am a single mom.
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Mesothelioma
Why are they not more comments on this cancer? It is a horrific cancer, yet few write about it. No cancer is good, but mesothelioma is really aggresive, we need more support and comments on this topic. Merlin Olsen just died of mesothelioma last week. Emily
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MY RARE CANCER recently diagnosed Sinonasal melanoma stage TIVa
My cancer considered less than .4% of all cancers. Not many statistics on survival but looks pretty bleak even without metastasis. Surgeon says 1 1/2 to 5 years. Surgeon says think can cure in sinus but will come back elsewhere. Will have face radiation after surgery. seems side effects of salivary gland and no taste which…
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Primary Peritoneal Cancer /Breast Cancer Survivor
I am looking to communicate with anyone who has been recently been diagnosed with Primary Peritoneal Cancer (PPC). I am a 6 year breast cancer survivor, (2005) but was diagnosed with PPC in November 2009. PPC was determined not to be metastatic breast cancer. After undergoing major abdominal debulking surgery and 6 months…
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Peritoneal mesothelioma
Are there other military out there with peritoneal mesothelioma?
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Adrenal corticol carcinoma
I read a while back about someone using alternative therapies for management of adrenal cortical carcinoma. Could someone contact me about that? I am extremely interested. Mine cannot be resected, and I have 2 little girls at home that I need to be here for.
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Dermatofibrosarcoma protuberans
Hi. I am confused if anyone can help. I had my right lower leg operated on to remover it also had skin Grafs done 13 yrs ago now. I have searched all the site I can on it but none of the photos look anything like mine did. It was the size of a 5 cent price when I first Noticed it but it was an indent it the skin that had…
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Pancreatic Cancer?
I am surprised P.C. was relegated to rare and other. I just lost my mom to this monster. It's a viscious cancer. It's very hard to detect it early given there are few warning signs. Most early symptoms appear similar to other treatable health issues so the Dr goes no further with testing. It wasn't until my mother…
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Appendix
goblet cell caricinoid looking for anyone with information on this type of cancer of the appendix.
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Paraganglioma
My husband had a tumor near his liver and kidney.. they removed it back in june.. they said it was not cancer but my husband satrted feeling so much better. No more night sweats, throwing up, or abdominal pain. 5 weeks post surgery he started getting all the symptoms again. He went back into see the surgeon and they…
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Tumor feeds on sugar?
I read from stillsmiliing that this cancer feeds on sugar. I am wondering about this and want more information. My dad had pancreatic cancer in 1998. Then I had been diagnosed with Breast cancer for the first time about 18 months later. I have now just finished (2003-04)with breast cancer treatments for the 2nd time. I am…
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Dermatofibrosarcoma protuberans
Hi. I am confused if anyone can help. I had my right lower leg operated on to remover it also had skin Grafs done 13 yrs ago now. I have searched all the site I can on it but none of the photos look anything like mine did. It was the size of a 5 cent price when I first Noticed it but it was an indent it the skin that had…
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Dermatofibrosarcoma protuberans
Hi. I am confused if anyone can help. I had my right lower leg operated on to remover it also had skin Grafs done 13 yrs ago now. I have searched all the site I can on it but none of the photos look anything like mine did. It was the size of a 5 cent price when I first Noticed it but it was an indent it the skin that had…
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lung cancer
i am new on here and haven a hard time learn how to you the blob to talk with people could someone please try to help me