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Sertoli-Lydig Stromol cord Ovarian Cancer
Its supposedly the most rare type of ovarian cancer. It affects the connective tissue in your ovaries and makes your hormones go out of control. The tumors grow huge and rupture causing you to bleed internally. Most of the doctors Ive seen have never treated a case. Has anybody else had it or know somebody who does and if…
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metastatic adenocarcinoma -small intestine from uterine cancer
My heart has broken as I'm sure many of you have felt when dealing with cancer. A woman that I love DEARLY has recently been told that she has metastatic adenocarcinoma. Her plight began with colon cancer nine years ago which was successfully resected. Four years ago, she underwent a hysterectomy due to uterine cancer.…
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Adenocarcinoma of unknown primary
My mom had been having trouble breathing for quite some time before it was finally determined that she had a pericardial effusion. She has COPD and always seems to end up with bronchitis or pneumonia. She had multiple chest x-rays done and she was always given medicine for various problems. She was referred to a…
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Power Port Removal - Pancreatic Cancer
Can anyone let me know if it would be beneficial to keep my power port, or remove it. I have pancreatic cancer diagnosed 5/31/2011, had the whipple 6/15/2011, chemo ended 2/13/2012. My scan on 2/28/2012 shows no sign of cancer. I am starting a new job and have removal surgery scheduled 4/16/12. I am really confused on…
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My Chromogranin A is 1009! High is 95. What Does This Excessively High Result Mean?
For anybody who has any idea, because maybe it happened to you, what could such an excessive chromogranin A test result mean? I mean, I'm not just high, I'm through the roof! Thanks for any input.
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Malignant Peripheral Nerve Sheath Tumor
My husband had a malignant peripheral nerve sheath tumor removed from his back in September last year. It had spread to his lungs (10 tumors) and 2 on the liver. He also has a compromised immune system. He had 3 rounds of chemo which only made the tumors larger and did nothing. He is now on alternative treatment and will…
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Husband Newly Diagnosed
Hi all, My husband, in 2010 had left sided colon cancer, had surgery for same, it was an adneocarcinoma and all the path reports came back negitive. Out oncologist sent his tissue sample out and the Oxytype said that the chance of reoccurence wa 17%. In 2011, he was diagnosed with Prostate CA, had 44 rounds of radiation.…
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Bile duct cancer
I am a 38 year old male that was diagnosed with stage II Bile duct cancer in April 14, 2011. While having my gallbladder removed the surgeon found a tumor on my liver. He took a biopsy and it came back as cancer. I was sent to Denver and on April 29th I had a liver resection completely taking the left lobe of my liver. The…
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Cholangiocarcinoma Positive Response
I was diagnosed with cholangiocarcinoma in June 2011 and have been undergoing treatment for the past 10 months. In appreciation for others who have shared there stories, I wanted to share some of my information in hopes that it may help others. I initially had a liver resection last June and the pathology showed clear…
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Spindle cell cancer
My mother has spindle cell cancer. She just had a lump removed from her cheek and completed 20 days of radiation. Now the area that was radiated is infected. She is taking antibiotics and I think the infection is getting better. She is 80 years old. It is a rare type of cancer. Does anyone else have this on there face?
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My brother has liposarcoma rare cancer and little time left. I'm scared.
He has been fighting cancer for 12 years. His initial tumor weighed 26 lbs. I left my life in Nevada to come help him and be with him until the end. I arrived March 5th and called the ambulance March 6th. His blood ct was 3.6 and he was in the hospital for 30 days. Doctors are afraid to operate because the cancer is…
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Diffuse Large B cell lymphoma of the orbit of my eye.
Was diagnosed two weeks ago with a biopsy. The visit to the onocologist said it is too rare he knows nothing about this and wants me to shuffle on to MD Anderson in Houston from where I live in Fl. I am so scared as all I read is disfigurment, tests, tests, and vile awake tests I am in for. I have a bladder infection now…
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advanced "stages" of neuroendocrine cancer
Has anybody heard of anything new for treatment of this?
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Early cancer detection
Cancers and tumors can originate from any cell in the body. The only life-saving treatment is early detection. The common screening methods can detect early some of the most common cancers, but they miss two things: 1. Common cancers that develop in earlier age than the screening is recommended, and this is not rare today,…
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Gallbladder Cancer - 2011
Hello Everybody! Happy New Year! I know I’m a little late but better late than never. I have started this new discussion thread because over the last year of posting we have ended up with many different threads going on at the same time. It was hard to keep up with them all. I had many people tell me that they couldn’t…
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whipple procedure
I would like to have e-mail or phone contact with someone that had cancer of the pancreas and has had whipple surgery. It would be so helpful to compare notes, problems and successes. barb616 love.doxies@yahoo.com
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Metastatic Pancreatic Cancer
Hello - My partner was just diagnosed with metastatic pancreatic cancer with metatases to the liver and associate peritoneal carcinomatosis. She's almost 63 and this has been one hell of a blow to the two of us. She saw the oncologist yesterday; surgery is not an option. They will be doing a biopsy, hopefully next week and…
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Has anyone else experienced heart attacks due to 5FU chemo?
I have appendiceal cancer, signet cell carcinoid tumors, Stage 4, BUT it has metastasized to my ovaries and rectum, NOT to my liver, lymph nodes, bones, lungs, etc. Doctor tried putting me on 5FU in January 2011 but I had 3 heart attacks in 4 weeks from it. Switched me to Irinotecan from February to August. It didn't do…
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Pleomorphic Liposarcoma
My husband who is now 64 yrs. was first diagnosed with 'pleomorphic liposarcoma' cancer in December 2003. He had it on his upper right back near the arm pit. He first noticed a very small lump on his back in Sept 2003. The VA doctor kept saying it was only a fatty tumor and do not worry about it. Well it kept growing and…
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Pleomorphic Liposarcoma
I have just been diagnosed with this disease. Could someone tell me what to expect or anything about it? Thanks in advace teri
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Apocrine (sweat gland) cancer
My mom has been diagnosed Stage IV-Apocrine Carcinoma. It is metastatic (brain, kidneys, lungs,spine). She has has 10 brain radiation treatments and 1 course of chemotherapy (Vincristine, Adriamycin, Cytoxin) which has done little. This is a very rare cancer. I would appreciate any suggestions, insight, anything...
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Aggressive digital papillary adenocarcinoma
Trying to locate doctors who have seen the most cases for second opinion as soon as possible.
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Anyone with Pleural Mesothelioma
My father has recently been diagonosed with Stage IV meso. He will begin chemo on Thursday. I know this is a rare cancer but lookig for anyone that is also going through this horrific experience. Everywhere you look with this diagnosis is grave...I'm looking for something positive
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Paraganglinoma (Abdomen)
My friend (age 47) has been diagnosed with Maglinant Paraganglinoma. The doctors don't want to do anything but continue to remove the tumors. She would just like contact with someone esle with this form of cancer. We are trying to get her into the Anderson Center in Texas. She had her first tumor over 20 years ago.
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financial support
Does anyone know of any organizations that could help me financially while going through treatments? I am a single mom.
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Mesothelioma
Why are they not more comments on this cancer? It is a horrific cancer, yet few write about it. No cancer is good, but mesothelioma is really aggresive, we need more support and comments on this topic. Merlin Olsen just died of mesothelioma last week. Emily
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MY RARE CANCER recently diagnosed Sinonasal melanoma stage TIVa
My cancer considered less than .4% of all cancers. Not many statistics on survival but looks pretty bleak even without metastasis. Surgeon says 1 1/2 to 5 years. Surgeon says think can cure in sinus but will come back elsewhere. Will have face radiation after surgery. seems side effects of salivary gland and no taste which…
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Primary Peritoneal Cancer /Breast Cancer Survivor
I am looking to communicate with anyone who has been recently been diagnosed with Primary Peritoneal Cancer (PPC). I am a 6 year breast cancer survivor, (2005) but was diagnosed with PPC in November 2009. PPC was determined not to be metastatic breast cancer. After undergoing major abdominal debulking surgery and 6 months…
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Peritoneal mesothelioma
Are there other military out there with peritoneal mesothelioma?
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Adrenal corticol carcinoma
I read a while back about someone using alternative therapies for management of adrenal cortical carcinoma. Could someone contact me about that? I am extremely interested. Mine cannot be resected, and I have 2 little girls at home that I need to be here for.