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liposarcoma recovery time
In November 2010 I was diagnosed with a large liposarcoma in my left thigh. I had 5 weeks of radiation and then 5 weeks post radiation I had surgery to remove the large sarcoma. I am 6 weeks post op and am having lots of complications...still have a drain in...lots of swelling and pain...can anyone tell me if you have had…
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radiation for pancreatic cancer
Husband has pancreatic locally advanced stage 3, non-resectable (at this point). Considering radiation after we finish Fulfironox for 12 weeks. Has anyone done radiation after Fulfironox? And, if not, what have you done?
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pancreatic cancer that has spread to the lungs
My husband has pancreatic cancer that had already spread to his lungs. Lots of different chemo's and treatments. Doctor now wants him to go into a Clinical Trial. Is anyone else going through this? I have questions....
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Spindle cell carcinoma
Hi everyone, I am new on this board. Diagnosed in April 2011 with a large tumor in my L3 vertebrae, and tumors in my lung. It took more than a week to get the pathology report at City of Hope after two biopsies, one on my spine and one in my lung. They are calling it spindle cell carcinoma, although they admit whatever I…
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myelofibrosis
my dad was diagnosed a year ago with myelofibrosis, now his doctor advised him to have his spleen remove. He is 65 yrs old, I'm afraid that the surgery is too risky for him due to his age. I've read some articles about disadvantage of spleen removal which is mainly the risk of infections. anybody's opinion is much…
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Looking for information on Small Cell Neuroendocrine Carcinoma of Esophagus with METs to Liver
Hi, I just joined this group in the hopes of finding out some information that will help me understand what my family is about to endure. On October 10 my 66 yr old mother in law had an endoscopy becuase of a gastro pain...they thought she had reflux. (She has a terrible pain in her chest that she felt starting in the…
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pheochromocytoma
Anybody here been diagnosed or even hear of Pheochromocytoma? I have tried other sites for support and info for years, and been shot down. Sometimes I think they don't believe me!! Am a 22 year survivor, at least that was the date of diagnosis. Now a tumor in left kidney apparently unrelated to the pheo, and I only have…
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Intravascular B Cell Lymphoma
I was wondering if anyone has any experience with Intravascular B Cell Lymphoma? My Dad was recently diagnosed with this very rare, aggressive sub-type of NHL. Apparently it's so rare that it is usually found post-mortem so we are so grateful for the doctors who didn't give up until they found out what was really going on.…
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Mucoeprdernoid carcinoma
is there anyone out there with this? My family ,my wife is my support she is fantastic. I found out last week my employer walmart is trminating me because i have cancer and can't go back for full duty, i was released for light duty but thats not good enough for them. I will loose my insurance for my wife and myyself , they…
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Peritoneal Carcinomatosis Treatment
I have Stage IV Peritoneal Carcinomatosis metasticized in 2008 from breast cancer that I had in 2001. I first had Taxol for 8 months, then was put on the hormonals Arimidex and then Aromasin, neither of which was working. Now I am going to have Navelbine/Gemzar chemotherapy. Has anyone had this combination? Would love to…
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Hello there :)
Hello, my name is Kerri and i am a 15 year cancer survivor of Retinoblastoma. Here's my story: At a mere 11 months old as my mom sat rocking me to sleep, she noticed an odd puffiness and redness in my right eye. Thinking nothing of it she brushed it off. A couple weeks later as the redness worsened, she decided to take me…
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liposarcoma
I am interested in hearing from someone who has been diagnosed with liposarcoma in the past 5 years.
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Paraganglioma (Help)
Hi my name is Jonathan. I have only recently been diagnosed with metastatic paraganglioma. I have mets in my orbit,humerus,femur and abdomen. I have one all my work up and I stil have no answers. The healthcare system in Ireland is pretty poor and have not even given me a treatment plan or anything. I have no symptoms and…
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Squamous Cell Cancer
Hi, My Dad was just diagnosed with Squamous Cell Cancer on the back of his tongue. He was never a smoker or heavy drinker entire life so finding out he has this cancer was shocking and very upsetting. I've read a few articles and discussion boards about the Squamous Cell Cancer being caused by Agent Orange for Nam Vets. My…
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Bile Duct Cancer
Hi, My name is Michael, I am a 67 year old Chinese male born in China and grew up in the New York City area. Easter this year I had my gall bladder removed at Memorial Sloan Kettering in NYC where I had had a colon resection in May of 2006. The gall bladder was determined to be infected and was removed. The pathology…
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metastatic unknown primary
I've just been told that a few cancerous lymph nodes (MAYBE 8 or 9)have spread beyond the inguinal area; did have one removed for the biopsy which was decided as squamous cell of unknown primary. Have had all of the tests and all are negative for the primary except for the bladder which is upcoming. Have been reading many…
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Please Help - Questions About Chemo Regimen for a Rare Cancer Type
Hello all-- I hope and pray you're all doing well and recover. I come from the breast cancer forum, but wanted to share a story here. Someone I know dearly, her aunt was dx with a rare type of cancer, and she is getting treated with chemo regimen that's also used for colorectal cancer, from my understanding. Just wanted to…
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Really need help! I cant sleep because of worrying
September 4, 2011 - 5:38pm My husband has been having a lot of pain in his hip and finally had an MRI that shows "there is an enhancing macrolobulated low T1 high T2 heterogeneous signal soft tissue mass which reveals post contrast enhancement juxtaposed between the left femur and the gluteus maximus musculature" it goes…
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Chemo Drug Everolimus
Is there anyone out there that is on or has been on Everolimus? It is a chemo pill taken once a day? My dad has Mesothelioma. This is the next course of treatment that his oncologist is advising him to proceed with. He had chemo (2 rounds) and stopped because it was not working - tumor progressed. Then went in for surgery…
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new person
just found amass on gland after ct post lung cancer surgery have to have pet scan tuesday. dont no much about all this, amy advice?very very scared.
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Unusual cancer
My wife was diagnosed with lung cancer in August of 2005 just short of our 55 wedding anniversary passed away after a long battle April of 2009, I was diagnosed with a rather rare cancer sinus in January of 2007 that spread. After radiation to head area working around eye, hearing and brain involving a hard mask and five…
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Neuroendocrine carcinoma
hello, I was diagnosed 6 months ago with nondifferentiated high-grade neuroendocrine carincoma of unknown origin. In lungs, liver, and on rib. 41 - year old male. Have been through 2 rounds of chemo (cisplatin & CPT11). First round was about 50% effective. Found out this week that tumors have become resistant to chemo…
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Interview with Dr. Nick Gonzalez, MD
Alternative cancer MD in NYC speaks about his successful cancer treatment with Dr. Mercola: http://www.youtube.com/watch?v=bWTHbGu8JSY&feature=results_video&playnext=1&list=PL2F898C5972E83D49
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PRRT for carcinoids
Have just been diagnosed with @ least 1 carcinoid tumor 2x3 on the liver with other lesions showing on the liver. Enlarged lymph nodes. So far they have not found the primary tumor. Have an Octreoscan scheduled with the VA in November. I have read about PRRT with Lu-177 treatments in Germany & I understand they have them…
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Esthesioneuroblastoma
Has anyone with this type of cancer been treated @ Loma Linda Medical Center in Loma Linda, CA?
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Palliative Treatment Question
Hi all, I just found this discussion board today! We are new to GB cancer; my Mom is 85 and was diagnosed in mid-April with Stage 4. It has invaded the liver and some local lymph nodes. She had 7 infusions of Gemzar since June to no avail. The CT scan on July 23 showed the tumor had grown about 1-inch all around. The good…
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Stage IV 4 months post surgery
Well, it has been 4 months since my surgery. I am doing very well. I have lost overall around 60lbs. Weighing 207 right now. Just had PET scan July 29th. NED...THANK YOU GOD!!! Doctor's say I am looking very good.i will have scans every three months for about the next two years. I start back to work tomorrow. Just for an…
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Xeloda is helping
I am new here.....i saw that someone asked about longterm effects of xeloda. I have neuroendocrine pancreas cancer... Is not "pancreas cancer" which is "exocrine"....i have tumours in my pancreas and liver and others in lymphnodes. I was diagnosed last november 2010. After 3 months of chemo in IV form that didnt work for…
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Issels treatment
Hello I would like to post my opinion if anyone is looking for an alternative treatment and is considering the issels treatment. My mother was had endstage gallbladder cancer and she was giving only 6 months to live and was in the hospice program. I was not ready to except that there's no other ways to save her and just…
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Question about Pancreatic Cancer
I am a 55 year old male in very good physical condition. I was diagnosed with Pancreatic cancer after having some abdominal pain for a couple of weeks. I am in stage 1. I am in my final week of both radiation and 5fu therapy. My hope is to get to M.D. Anderson and have the tumor removed. My question is should i go ahead…