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Paraganglinoma (Abdomen)
My friend (age 47) has been diagnosed with Maglinant Paraganglinoma. The doctors don't want to do anything but continue to remove the tumors. She would just like contact with someone esle with this form of cancer. We are trying to get her into the Anderson Center in Texas. She had her first tumor over 20 years ago.
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financial support
Does anyone know of any organizations that could help me financially while going through treatments? I am a single mom.
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Mesothelioma
Why are they not more comments on this cancer? It is a horrific cancer, yet few write about it. No cancer is good, but mesothelioma is really aggresive, we need more support and comments on this topic. Merlin Olsen just died of mesothelioma last week. Emily
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MY RARE CANCER recently diagnosed Sinonasal melanoma stage TIVa
My cancer considered less than .4% of all cancers. Not many statistics on survival but looks pretty bleak even without metastasis. Surgeon says 1 1/2 to 5 years. Surgeon says think can cure in sinus but will come back elsewhere. Will have face radiation after surgery. seems side effects of salivary gland and no taste which…
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Primary Peritoneal Cancer /Breast Cancer Survivor
I am looking to communicate with anyone who has been recently been diagnosed with Primary Peritoneal Cancer (PPC). I am a 6 year breast cancer survivor, (2005) but was diagnosed with PPC in November 2009. PPC was determined not to be metastatic breast cancer. After undergoing major abdominal debulking surgery and 6 months…
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Peritoneal mesothelioma
Are there other military out there with peritoneal mesothelioma?
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Adrenal corticol carcinoma
I read a while back about someone using alternative therapies for management of adrenal cortical carcinoma. Could someone contact me about that? I am extremely interested. Mine cannot be resected, and I have 2 little girls at home that I need to be here for.
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Dermatofibrosarcoma protuberans
Hi. I am confused if anyone can help. I had my right lower leg operated on to remover it also had skin Grafs done 13 yrs ago now. I have searched all the site I can on it but none of the photos look anything like mine did. It was the size of a 5 cent price when I first Noticed it but it was an indent it the skin that had…
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Pancreatic Cancer?
I am surprised P.C. was relegated to rare and other. I just lost my mom to this monster. It's a viscious cancer. It's very hard to detect it early given there are few warning signs. Most early symptoms appear similar to other treatable health issues so the Dr goes no further with testing. It wasn't until my mother…
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Appendix
goblet cell caricinoid looking for anyone with information on this type of cancer of the appendix.
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Paraganglioma
My husband had a tumor near his liver and kidney.. they removed it back in june.. they said it was not cancer but my husband satrted feeling so much better. No more night sweats, throwing up, or abdominal pain. 5 weeks post surgery he started getting all the symptoms again. He went back into see the surgeon and they…
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Tumor feeds on sugar?
I read from stillsmiliing that this cancer feeds on sugar. I am wondering about this and want more information. My dad had pancreatic cancer in 1998. Then I had been diagnosed with Breast cancer for the first time about 18 months later. I have now just finished (2003-04)with breast cancer treatments for the 2nd time. I am…
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Dermatofibrosarcoma protuberans
Hi. I am confused if anyone can help. I had my right lower leg operated on to remover it also had skin Grafs done 13 yrs ago now. I have searched all the site I can on it but none of the photos look anything like mine did. It was the size of a 5 cent price when I first Noticed it but it was an indent it the skin that had…
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Dermatofibrosarcoma protuberans
Hi. I am confused if anyone can help. I had my right lower leg operated on to remover it also had skin Grafs done 13 yrs ago now. I have searched all the site I can on it but none of the photos look anything like mine did. It was the size of a 5 cent price when I first Noticed it but it was an indent it the skin that had…
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lung cancer
i am new on here and haven a hard time learn how to you the blob to talk with people could someone please try to help me
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liposarcoma recovery time
In November 2010 I was diagnosed with a large liposarcoma in my left thigh. I had 5 weeks of radiation and then 5 weeks post radiation I had surgery to remove the large sarcoma. I am 6 weeks post op and am having lots of complications...still have a drain in...lots of swelling and pain...can anyone tell me if you have had…
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radiation for pancreatic cancer
Husband has pancreatic locally advanced stage 3, non-resectable (at this point). Considering radiation after we finish Fulfironox for 12 weeks. Has anyone done radiation after Fulfironox? And, if not, what have you done?
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pancreatic cancer that has spread to the lungs
My husband has pancreatic cancer that had already spread to his lungs. Lots of different chemo's and treatments. Doctor now wants him to go into a Clinical Trial. Is anyone else going through this? I have questions....
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Spindle cell carcinoma
Hi everyone, I am new on this board. Diagnosed in April 2011 with a large tumor in my L3 vertebrae, and tumors in my lung. It took more than a week to get the pathology report at City of Hope after two biopsies, one on my spine and one in my lung. They are calling it spindle cell carcinoma, although they admit whatever I…
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myelofibrosis
my dad was diagnosed a year ago with myelofibrosis, now his doctor advised him to have his spleen remove. He is 65 yrs old, I'm afraid that the surgery is too risky for him due to his age. I've read some articles about disadvantage of spleen removal which is mainly the risk of infections. anybody's opinion is much…
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Looking for information on Small Cell Neuroendocrine Carcinoma of Esophagus with METs to Liver
Hi, I just joined this group in the hopes of finding out some information that will help me understand what my family is about to endure. On October 10 my 66 yr old mother in law had an endoscopy becuase of a gastro pain...they thought she had reflux. (She has a terrible pain in her chest that she felt starting in the…
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pheochromocytoma
Anybody here been diagnosed or even hear of Pheochromocytoma? I have tried other sites for support and info for years, and been shot down. Sometimes I think they don't believe me!! Am a 22 year survivor, at least that was the date of diagnosis. Now a tumor in left kidney apparently unrelated to the pheo, and I only have…
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Intravascular B Cell Lymphoma
I was wondering if anyone has any experience with Intravascular B Cell Lymphoma? My Dad was recently diagnosed with this very rare, aggressive sub-type of NHL. Apparently it's so rare that it is usually found post-mortem so we are so grateful for the doctors who didn't give up until they found out what was really going on.…
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Mucoeprdernoid carcinoma
is there anyone out there with this? My family ,my wife is my support she is fantastic. I found out last week my employer walmart is trminating me because i have cancer and can't go back for full duty, i was released for light duty but thats not good enough for them. I will loose my insurance for my wife and myyself , they…
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Peritoneal Carcinomatosis Treatment
I have Stage IV Peritoneal Carcinomatosis metasticized in 2008 from breast cancer that I had in 2001. I first had Taxol for 8 months, then was put on the hormonals Arimidex and then Aromasin, neither of which was working. Now I am going to have Navelbine/Gemzar chemotherapy. Has anyone had this combination? Would love to…
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Hello there :)
Hello, my name is Kerri and i am a 15 year cancer survivor of Retinoblastoma. Here's my story: At a mere 11 months old as my mom sat rocking me to sleep, she noticed an odd puffiness and redness in my right eye. Thinking nothing of it she brushed it off. A couple weeks later as the redness worsened, she decided to take me…
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liposarcoma
I am interested in hearing from someone who has been diagnosed with liposarcoma in the past 5 years.
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Paraganglioma (Help)
Hi my name is Jonathan. I have only recently been diagnosed with metastatic paraganglioma. I have mets in my orbit,humerus,femur and abdomen. I have one all my work up and I stil have no answers. The healthcare system in Ireland is pretty poor and have not even given me a treatment plan or anything. I have no symptoms and…
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Squamous Cell Cancer
Hi, My Dad was just diagnosed with Squamous Cell Cancer on the back of his tongue. He was never a smoker or heavy drinker entire life so finding out he has this cancer was shocking and very upsetting. I've read a few articles and discussion boards about the Squamous Cell Cancer being caused by Agent Orange for Nam Vets. My…
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Bile Duct Cancer
Hi, My name is Michael, I am a 67 year old Chinese male born in China and grew up in the New York City area. Easter this year I had my gall bladder removed at Memorial Sloan Kettering in NYC where I had had a colon resection in May of 2006. The gall bladder was determined to be infected and was removed. The pathology…