Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

2 year aniversary
Hello all. I have been monitoring the site but only as a spectator. On October 1 2011 I learned I had PC and on Noveber 11th 2011 had an RP. My Gleason went from a 3+4 to a 4+3. No posative margins or extraporstatic extension but was in both lobes. My psa post op was <01 and moved around to .04 when I had a lymphoceal then…
How about the Hell with it
I
Extracapsular Extension at Posterior Left Apex
Hi Everyone I am new to this forum. I have been reading many of the threads, and I find it very informative. I recently has RP, and the post-op pathology report came back. Most of the bullet points were good, except for one: Extraprostatic extension is present at posterial left apex. The doctor explained that the cancer…
Unexpected rise in PSA
Hello, I am new to this so please bear with me. I am 62 and was dignosed in 4 months ago with Gleason 3+3 type 1 based on two positive cores, 1 at 2%, the other at 5%. After a detailed meeting with the urologist, we are working on active surveillance. I went for my first post diagnosis PSA test a week ago and was very…
Should radiation be carried out after orchiectomy when (multiple) lymph node(s) are involved?
Hi everyone I've joined this network in the hope that someone here can help my father who has been diagnosed with prostate cancer with the following history: Age: 68 PSA post TURP - November 2012 - 17.6 Biopsy of TURP specimen confirms prostate cancer Initial Glaesons score given as 5 (2+3) - this was later deemed to be…
Some Medical News
Click here to go directly to the article: http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=32040 (AOL users click here.) Note: This article is only accessible through the above link for 7 days from the date of this e-mail. After that it can be found in Ivanhoe's archive using the "Search Reports" box on the left…
Prostate Cancer Success Rates
I'm new to CSN and to the diagnosis. With a Gleason of (5+4) 9 and a Locally Advanced Cancer stage the GP has put me on hormone therapy with a bone scan in 2 weeks. What are the survival rates for this stage of cancer? I realise this is like the question "How long is a piece of string?" but at the same time it would be…
Effects of an online support group for prostate cancer survivors: A randomized trial - Abstract
Published on 17 September 2013 0 inShare This longitudinal study evaluated the effect a prostate cancer-specific online support group had for self-assessed quality of life. Participants (N = 40) were randomly assigned to an online support group or the control group. Data consisted of four previously validated…
Can I receive TRT 5 yrs after prostatectomy?
I'm 53 yrs old, middle school teacher, campus tech and IT Facilorator (new responsibility). This takes lots of energy, which i really dont have anymore, task concentration, which I'm lacking, enjoyment of life is waning, probably depressed. no sex life anymore to compared to just several years ago. i have 7 grandkids and 6…
Managing pain without drugs?
My partner has just been accepted for Provenge, so he can't take Vicodin or pain opiates of any kind. But he is still having pain, sometimes extreme, related apparently to ongoing Xofigo treatments and recent radiation on one hip. Can anyone suggest ways to reduce pains so he can stay off pain meds? Thank you!
PSA velocity in Top Gear – I’ve to cut short Drugs’ Vacations
Unfortunately my latest test results requires me to shorten my “vacations” on the hormonal treatment. The PSA came at 0.13 ng/ml and the Testosterone at 2.52 ng/ml (252 ng/dL). This is upsetting because I wished to stay off drugs for 5 years but the exponential calculations of the PSA velocity shows that I will reach the…
Post Surgical Pathology Shows Gleason 9!
I am a 56 male, living in Ontario Canada, who was diagnosed with Prostate Cancer in March 2013. I had an elevated PSA (about 6.5) and my urologist suggested a biopsy. The biopsy came back showing that 5/12 needle cores were positive for cancer. The 5 were all on one side and they showed Geason 7 (3+4). I was told that I…
Casodex failed - next step
Not sure if you guys remember me. My mom's significant other was diagnosed with prostate cancer last August 29th. He is stage four with multiple bone tumors and has to have bilateral nephrostomy tubes due to the growth of the cancer blocking his bladder and urethea tubes. His psa was 370 in the beginning and quickly…
What is the Deal with Testosterone and TRT? And Finesteride as well!!!
I am in the dark. I thought that the purpose of castration, Bicaltumide, and Hormone Therapy was to eliminate ALL testosterone. Then, the very knowledgeable and gifted Vasco suggested TRT with patches. So, I go to the internet and search and find this link: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3424887/ This was VERY…
seed treatment
Can anyone talk to me about pro's and con's with seed treatment, removal surgery, radiation treatments
help for my dad
Hi, I recently found out that my dad has prostate cancer. I got this information not from him but, from his wife. I am going to his doctor's appointment tomorrow and am trying to make sure I ask necessary questions. Here is all that I know My dad is 82. He has been having UTIs and currently has a catheter. My dad told me…
Searching for comprehensive diagnosis
Hello to anyone out there who may be up to tackling this verbose post that has to do with diagnosing prostate cancer. My husband, almost 58 years old, was diagnosed with BPH in 2004. He was having the usual, bothersome/degrading symptoms associated with an enlarged prostate at the age of 49 . . . too young, in our opinion,…
Can't understand the fluctuation of PSA results.
I'm new to the forum and after reading quite a few posts concerning PSA results I'm still at a loss for why the numbers fluctuate. I am posting my PSA history from detection to the present in hopes of receiving a viable reason for the up again down again readings. My Urologist (third one) is always in a hurry and I…
Is PSA falling too slowly?
Hi all, My husband was diagnosed with an aggressive (Gleason 8 4+4) form of PCa stage IV with extensive bone mets in February. His PSA was 32. He went on Casodex in early March and Firmagon in April. His last blood test showed a PSA of 0.33. I would like to see it lower than this. Can anyone with similar circumstances…
I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
Bone mets
CuriousCurious if anyone has had any luck slowing or vanishing bone mets.friend of mine has wide spread mets from prostate cancer, diagnosed stage four 3-4 years ago. Has had many treatments and the cancer continues tospread. Getting ready for IV radiation (I assume something along the lines of Alpharadin. Has mets to…
PSA ---latest results
I got the OCTOBER PSA results today & the number now went down to 0.28 again-----last month it was 0.31.. In JUNE of this year I had a 0.28 LOOKS like I may have hit NADIR---comments appreciated RAD HOPEFUL
Viadur Implants
Anyone tried Viadur Implants?
Cancer Update From John Hopkins Research
Starve Cancer cells to kill cancer before it kills you Cancer Advise -- from John Hopkins There are some do's and don'ts…… at the end you may find interesting. AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY (TRY THE KEY WORD) AND ELIMINATE CANCER, JOHN HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS…
HIFU, High Intensity Focused Ultrasound
Has anyone here had HIFU rather than the Davinci Robot or radiation? My urologist strongly suggests the Davinci. He strongly advises against radiation because of my general overall good health. Most think I am ten years younger. Most who are twenty years younger and larger than me falter when lifting what I lift with ease…
Proton treatment results/side effects?
I appreciated feedback from my initial post in early June. I was diagnosed with aggressive prostate cancer in May (G9, T2b... so far) had MRI and cat scans (all negative results) as well as MRI to check for metasteses from previous melanoma. Because of my high gleason scores, my urologist initially recommended radical…
Exercise
Exercise is always mentioned as an important adjunct to any Pca treatment program, but lets look at why. Any cancer will shrink you, and make you weak. With advanced Pca, all testosterone is eliminated from the system thru the use of drugs or castration, and this has insidious effect. How important is T? A woman who takes…
Anyone Tried Massive Vit. C?
I have done the search and read all the posts about Vitamin C. I am wondering if anyone has tried taking massive C doses and did it help? I have not seen any posts by anyone who has taken C, but there are good discussions about it. Any information would be apreciated if it is about consumption and personal experience. I…
Ending Active Surveillance Having Da Vinci 29th
After almost two (2) years of AS, due to a rising PSA I have decided to have surgery on 29 May. At 52 my doctor has given me a pretty good chance for full recovery. I will keep you guys posted as to how it goes, if you are keeping score.
Understanding PSA test numerical results/ decimal places
Hi, I hope this information can make it easier to understand the differences in the values when PSA results are reported with one, two or three decimal places. Perhaps it is easier to look at the numbers as if you were buying gasoline. If we were paying $3.35 for a gallon of gasoline and they added another digit to the…

Prostate Cancer

Discussion List

Discussion Boards