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Mets to the bone
Hi All, I am posting this on behalf of my father who is in his late 70s. He was diagnosed 2 years ago with Prostate Cancer (early stages) and went through radiation therapy which was successful, he fully recovered and his Cancer was in remission until recently.(last year follow-up scan results of his prostate did not show…
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AGGRESSIVE PROSTATE CANCER
Dear All, I need support if possible! I am 55 years old I was diagnosed with agressive Gleason 9 prostate Cancer in October 2011 with a PSA of 53. My doctor put me right away on Eligard shots every six month and 35 Radiotion sessions ended in February 2012 The surgery was not an option bearing in mind that the cancer has…
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Four year update
For those of you that have recently started down the prostate cancer journey, here is my update. I was diagnosed in September, 2009. My PSA was a little over 4, which by itself is not alarming. But I didn't have regular check-ups so my doctor didn't have a baseline to compare it to. He was concerned because the digital…
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MRI vs. Bone Scan
Coming up now on 4 years since my Radical Prostatectomy (12/14/09) I continue with an undetectable PSA (<0.1) which is typically a good sign. What has bothered me over the past 4 years is that upon diagnosis of my Prostate Cancer my PSA was only 2.2, which is the highest that it has ever gotten. My history is: Radical…
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Active Surveillance
I am 74 yrs old with PC 3+3 gleason scale 6 and 7% canc in one core. I am having the prolaris gene test done but do not have the results. My urologist wants me to do active surveillance probably because of my age, but I am healthy and on no medications. I want to live long enough to see my 4 young grand kids grow up.…
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New to this forum
Hello, I am new to this forum and am using another username until I can figure out how to register. I have a few questions: i am going to a leading cancer hospital For treatment . They have put me on a strong dose of harmonies , and a new drug called Xtandi, i am concerned because I am so tired all the time and my bones…
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Should we be worried Psa 2.81 up from .51
Husband had 40 radiation treatments (gleason9) completed radiation in may. Also on Lupron. Last shot has been delayed 30 days due to other complications. Diagnosed with lung and bone dance in November, treated with chemo and scan shows improvement there, thank God. The prostate has taken a back seat to this devastating…
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Do "dead" cancer cells produce PSA?
This might seem like the world's daftest question but could dead PCa cells release PSA? It is a protein, and dead cells are composed of various proteins. The reason I ask is that I just had a dream that someone told me this. (My husband's PSA recently went up from 0.3 to 1.9, and this has been on my mind a lot.) I was…
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Xofigo
My husband was diagnosed with stage 4 Metastatic prostate cancer in June 2011. He has gone thru several radiation treatments to different parts of his body, as well as different chemo treatments. Nothing has worked. He is now basically confined to his bed, in pain constantly, and as of today it will be a week since he's…
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Watchful Waiting
PSA is 18, (doubling time around 2 yrs) bone scan negative, no symptoms. Diagnosed July 2011, 2 of 10 cores cancerous one 30%, one 40%, Gleason 3+4=7. I'm 57, fit and treating with active surveillance, diet exercise. Vegetarian for over a decade. Father had prostate cancer and lived until 83. Not sure if cancer was a…
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New member need some input
I am a new member and this is my first post. Last week I had a radical robotic prostatectomy. Everything went well. I think. Today I had my catheter removed (what a relief). Also, today I received a copy of my surgical pathology report indicating, pretty much, what the surgeon had already told me. The cancer was contained…
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Experience with surgeon in NY
Does any one had experience with Dr David Samadi in NY. I was told that my case was going to be difficult and need the most experience surgeon. Gleason 8 and 7[ 4+3 ] and perineural invasion in 2 of the cores. Thanks for your help
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BLEEDING FROM PENIS
THIS PAST FRIDAY I PASSED A BLOOD CLOT & THEN LOTS OF BLOOD, THE BLOOD KEPT coming out of the penis---went to eMERGENCY ROOM AT HOSPITAL--THE UROLOGIST ON DUTY PERFORMED A CYSTOSCOPE PROCEDURE TO CAUTERIZE A BLEEDING BLOOD VESSEL IN THE BLADDER. I'M BACK HOME NOW BUT FEEL LIKE YOU KNOW WHAT. PASSING THIS ON AS INFO--ANY…
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ObamaCare and Us
I was over in the anal cancer board seeing what was being discussed there. One of the topics being discussed is the impact of Obamacare on current coverage plans. That topic hasn't come to our boards yet, but here it is now. Have new insurance regulations mandated by ObamaCare impacted your coverage yet? Are you concerned…
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Swami's Supplements
I was asked on a different thread to list my supplements, so here it is. Now, I have no idea if anything on this list will help, hinder, or do nothing. I am not recommending anything to anyone. This is just what I doing. HERBS AND SUCH Daily 3x Ampalaya Capsicum Malunggay Mangosteen Tumeric Milk Thistle 1x I get the…
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Answers - well sort of
In follow-up to my earlier posts, we finally met with a radiation oncologist today. We both really liked the man and his CV is pretty impressive. He answered all of our questions. In particular, we told him how confused we were over the relatively low Gleason score (6) vs. the pretty high PSA (40) and the positive cores on…
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IMRT Salvage radiation is complete!
On Friday I completed my final 38th round of IMRT delivered salvage radiation to the prostate bed. The salvage radiation was started in early Sept. 4 years after my Davinci Surgery. A positive margin was noted back than and my psa increased over the past year from 0 to .3 A total of 68 gy were delivered. Over all the…
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Digital check after prostate surgery??
After radiation at Loma Linda U in CA I was told we (group finishing radiation in the next week or so- about 20 of us) still needed to have our prostate checked even if we don't have one. That was about 4 yrs ago and I have yet to have a doctor indicate I need to do a digital exam on me. Has anyone had a digital exam since…
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PROLIA /ELIGARD UPDATE
HAD appointment with urologist today----gave me another PROLIA SHOT. ANOTHER ONE IS SCHEDULED 6 months from now. HE performed a prostrate check via up the rear & said it felt very good. MY current PSA is 0.15---he told me I'm in remission & He may stop injections after DECEMBER which will mark 3 years on the drugs. HE WILL…
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Almost one year since RP
I am very happy to report that after almost a year (Tuesday after Thanksgiving) 2012 My latest Blood work came back today, my PSA remains at <0.03 the lowest number the lab can assign has stayed the same ever since being post op. needless to say but I really have special meaning to my anniversary falling at the…
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Any Experiences with Focal Cryotherapy
I began my journey with PC being diagnosed in Feb/2008 with GL (4+5), psa 34, T3a with bulging of the left seminal vesicles observable. Radiation was completed in Aug/2008 (73.8 gy) and luprone shots completed in April, 2011. The psa slowly rose from a low of 0.21 with a DT finally reaching 6-7 months. After CT/MR fear…
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My dads diagnosis Gleason 8, PSA 10
mt father was just diagnosed with prostate cancer. We know very little of this disease. I read the pathology report but if course don't really understand. Total involvement is 22.5 percent. There is less than five percent involvement on the right side in one section. Each of the four sections on the left side has 30-50…
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hypermetabolic lymph nodes in chest
my husband has been watching his PSA slowly rise for the last fifteen years, when it reached 13 in 2011 he got one posetive bit from a biopsy gleason of 6. we were encouraged to watch and wait no big deal. In June 2013 PSA went to 14 so we had another biopsy four positive bites gleason of 7. We did bone scan and mri and we…
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Advice For change in pathology
Initial diagnosis Gleason 8, age 60 years Pathology reviewed by Maimi VA and revised to Gleason 9, 4 cores I am not fond of the idea of of EBRT and Adnrogen Supression therapy. I also understand that the chance of getting clear margins in the face of Gleason 9 are slim/\
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gvax trial
hello , looks like I am going through this journey once again.I am a head and neck cancer survivor from 2010. I have been diagnosed with very aggressive high risk prostate caner.gleason=4+3=7, 8/12 cores positive , psa 42. the oncologist at johns hopkins has decided I am a candidate for the GVAX study. This involves the…
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Injured during DaVinci- I'mm Baaack
It's been a long time since I have made a post on CSN. As many of you know who are regulars to this site and can remeber that I had PR almost 4 1/2 years ago. I would still like to hear from members who have been down the same road I have. There has to be plenty of people out there because of all the adds I see from…
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Contemplating dual surgery of sling and penile prosthesis
Been 3 years since robotic removal of my extremely large cancerous prostate (large grapefruit sized). Still leaking but only a pad a day -- sex is another story!! Tried the needle route but wife seems turned off by same. Going to see my Doc on Tuesday to discuss dual surgery of sling and implant. would love to hear from…
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Feel cold even in normal room temperature. Why? Prostate cancer for four years.
See above subject
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I'm confused more than ever
My husband and I met with the urologist yesterday for results of bone scan and we left feeling pretty good, but I still had some unresolved questions. Here's his status: Gleason score is 6. Both sides were positive. 10 cores taken, 5 from each side. All 5 cores taken from left were positive and 2 of the 5 on right were.…
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Gleason 10 and rapidly escalating PSA
Hi All, I am writing on behalf of my father. On tuesday (22 October) this week he was diagnosed with stage 4 prostrate cancer that has metastisised to the hip bone and spine. The biopsy has returned a gleason of 10. His PSA was 5 in the beginning of august and is currently sitting at 14 after the tests this week. He has…