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Need help with biopsy
Urolgist gave me some bad news, said removal of bladder and prostate needed to be done. REPORT of condition: INFILTRATIVE HIGH GRADE UROTHELIAL CARCINOMA.I have read this is a very common bladder cancer. At the age of 79 I question the outcome of this type of surgery.No C-T scans done as yet to determine the grade or…
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casodex side effects
As previously posted my Doctor put me on casodex 50mg daily because I have a "recurrence" after IMRT. I was to try this medicine for one month and see if my PSA went down. After about a week of taking casodex I started terrible stomach pains, diahrea and nausea. So I have to stop taking it. It seems not only HT but now…
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Best treatment for sparing nerves
Is robotic surgery the best hope for sparing nerves? Does radiation nuke the nerves along with the prostate?
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new diagnosis
We are in the midst of deciding what direction to go. My husband (57) had a PSA of 4.6 with DRE showing non-smooth borders. With his biopsy 1/12 biopsies showed positive with a Gleason score of 7(3+4), 12% and 1/12 had HGPIN. The other 10 areas were B9. The urologist encourages DaVinci surgery and discourages any CT or MRI…
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Xofigo vs Xtandi
My husband is one of the blessed ones with prostrate cancer. He is a retired Medical Doctor, 73 years old now, diagnosed with prostrate cancer in 1999. He opted for the removal of his prostrate, then had radiation. He was doing fine, he was doing everday things like mowing, fixing things around the house and etc. I am 63…
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Cheaper, more aggressive prostate cancer treatment may also be riskier
Guys trying to chose between SBRT and IMRT may find the following study helpful: http://news.yale.edu/2014/03/10/cheaper-more-aggressive-prostate-cancer-treatment-may-also-be-riskier
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What happens to our previously attached sex nerves after radical prostetectomy?
Assuming the gap where the prostate existed pre-surgery eventually has other organs that squish in to fill the empty space, what happens to any nerves that were hopefully spared? That is, do they just float around? Or does the surgeon tuck them away? I am fully fucntional and still pulling zeros 3.4 years past DaVinci…
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Radiation over
Update - hubby completed 38 radiation sessions on March 3. It went well with very minimal side effects. His PSA prior to radiation was 40. After radiation it is 0.1. The urologist was pretty impressed. He sees the radiation oncologist next week sometime. So, we remove forward with follow-up PSAs and hormone therapy at…
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Figure I need something new to worry about....
I'm a visitor here from Lymphoma, where I have been a regular for some time (full remission, 4.5 years now). I posted here for a while last year until my friend Gary died of prostate, after a 13-year fight (his psa was 980 at the end) I would like your opinions on whether I should see a urologist. I had prostate infections…
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Oncotype
I just received news from UCSF that I am a candidiate for active surveillance due to an analysis called "oncotype" by a company called Genomics. (I had a Gleason 6 (3+3) in 3 cores. ) Does anyone out there have experience with this analysis? Thanks!
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turning flow on
Back on the ams 800 site someone mentioned about forgetting to turn on the flow (working the pump). Well it happens and you stand there and wait for the flow and then you remenber it isn't comming until you do your thing with the pump. I don't know why but I can no longer get on the other site any more my last post was in…
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need advice please
I am hereby mentioning the case as under for your Expert Opinion Patient Name S. Satinderpal Singh (My Father age 63 at Present) diabetic but under control with insulin ( mild dosage ) Brief History A) In 2008 PSA was 55.3ng/ml ,biopsy suggestive of poorly differentiated adenocarcinoma ,Gleason Score 5+5, Bone scan was…
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Sensitive PSA
Just wanted to check with some members about sensitive PSA. I am 2 1/2 years post open surgery and the first 3 test after surgery my uro did a sensitive PSA. They all came back at <0.03. After that they have been doing normal PSA test where they only go to 0.1. They all have read 0.0. He has said he would not recommend any…
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Flutamide
Has anyone had a positive response with this medication? My father is on it, as he had a reaction to casodex. Just want to see what your thoughts are or if you would recommend something difference. He is advanced with bone mets and has had an orchiectomy
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Pending DaVinci Surgery
My husband is getting ready for the DaVinci Surgery this coming Tuesday. I sure hope everything goes okay. He is the person I lean on.
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LATEST PSA RESULTS FOR RADITION HOPEFUL
JUST GOT RESULTS------- psa is now 0.11.----------IS THIS GOOD ?
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Testosterone Replacement Therapy After Prostate Cancer Surgery
Since I'm still pulling zeros after successful Da Vinci surgery three years ago, I am considering TRT. But until reading this article, all the information available thus far suggested TRT was not a wise move. What do you guys think about this current theory? http://onlinelibrary.wiley.com/doi/10.1002/tre.178/pdf
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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Update: 6 week post op results with MD Anderson and Dr. John Davis
Ok, So I had robotic assisted radical prostatectomy on January, 14 2013 at MD Anderson with Dr. John Davis. I am 49 years old and had a gleason score of 6 (3+3). He also did a lymph node descretion. I can not say enough about MD anderson and Dr. John Davis and his staff. I was in the hospital for 2 days, went home, had a…
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Casodex strange results
I have previously posted about my experience with Casodex (bicalumide) 50mg. 20 months after IMRT my PSA doubled in 3 months and then started rising fast to 9.5 Since I can not tolerate HT . Dr Reccomended 50mg Casodex daily. But after about 8-9 days I got very sick and stopped. Then I had my PSA taken 3 weeks after I…
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PSA & Surgery
My husband had his prostate removed in early December 2013 by the DaVinci robotic method. Final pathology report stated that there was one positive margin, 24 out of 24 lymph nodes were clear but his Gleason score was 9 (4+5). First PSA reading 6 weeks after surgery was 0.46. What significance does this have on the…
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Dr. Strum has stablized my recurrent PSA with a DIM supplement
Dr. Steve Strum suggested I take BR-DIM to stablize my PSA that had been doubling every 5 months. I started at 1 per day of the 150mg, it stablized my PSA at 0.2 then dropped to .17. It started going up again so I increased to 4x per day and it is stable at 0.2 for 10 months now. Available as DIM Plus by Natures Life…
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HIFU
Has anyone heard about High Intensity Focused ultrasound for the treatment T-1 or T-2 pc.? It is not approved by the FDA in the USA but is used in Europe and canada. They claim it is very effective and has little to no side effects. It can be repeated and used even after other treatments have been used. The Cleveland…
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Life Insurance after being 5 years Cancer free
I was surprised that I was able to get Life Insurance after 5 years of being cancer free. Has anyone else had this experience?
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up date
Hi All, it's been months since I've posted, lost contact with the network but just found it again. Also was listed as SPARK PLUG & KOZY KITTY just in case anyone remenbers names. But I have to give TREW alot of credit, he has been a great help in his postings. I had the prostrate removed in 2011 after having the numbers go…
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A Christmas Gift
Have not posted in a long, long time. PCa Dx May 6,2009, with a pre Gleason of 7 and a post robotic surgery Gleason of 8 and Dx of Stage 3B. Went just under a year with no post surgical changes and then a very, very slight increase in reading (0.02). Some would say not enough to react. I, and my urologist thank goodness,…
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Have I been a fool or have I used wisdom
Have I been foolish? Am I playing Russian Roulette? I respect your opinions and will appreciate any comments to my question after you ready my story. Ater a biopsy in October of 2011, I was told that I have prostate cancer. The results are listed below: Container/Label Pieces Length Gross Description Gleason Score %…
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My blog
I would like to share my blog entitled Living with Prostate cancer. The focus is on the living. Please read at toddseals63.blogspot.com
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CyberKnife SBRT, 6 years treatment results
Here is a very comprehensive report of CyberKnife treatment, side effects and biochemical control. These results may help the many now contemplating CK as their favourite choice. Unfortunately it does not give details to distinguishing between Low, Intermediate and High risk patients but the Gleason above (4+3) 7 did…
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psa screening recommendations survey
Recommendations for prostate-specific antigen screening for prostate cancer: A national survey of radiation oncologists and urologists, "Beyond the Abstract," by Simon P. Kim, MD, MPH, et al. Published on 11 December 2013 BERKELEY, CA (UroToday.com) - Early detection of prostate cancer through the use of prostate-specific…