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Experience with surgeon in NY
Does any one had experience with Dr David Samadi in NY. I was told that my case was going to be difficult and need the most experience surgeon. Gleason 8 and 7[ 4+3 ] and perineural invasion in 2 of the cores. Thanks for your help
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BLEEDING FROM PENIS
THIS PAST FRIDAY I PASSED A BLOOD CLOT & THEN LOTS OF BLOOD, THE BLOOD KEPT coming out of the penis---went to eMERGENCY ROOM AT HOSPITAL--THE UROLOGIST ON DUTY PERFORMED A CYSTOSCOPE PROCEDURE TO CAUTERIZE A BLEEDING BLOOD VESSEL IN THE BLADDER. I'M BACK HOME NOW BUT FEEL LIKE YOU KNOW WHAT. PASSING THIS ON AS INFO--ANY…
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ObamaCare and Us
I was over in the anal cancer board seeing what was being discussed there. One of the topics being discussed is the impact of Obamacare on current coverage plans. That topic hasn't come to our boards yet, but here it is now. Have new insurance regulations mandated by ObamaCare impacted your coverage yet? Are you concerned…
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Swami's Supplements
I was asked on a different thread to list my supplements, so here it is. Now, I have no idea if anything on this list will help, hinder, or do nothing. I am not recommending anything to anyone. This is just what I doing. HERBS AND SUCH Daily 3x Ampalaya Capsicum Malunggay Mangosteen Tumeric Milk Thistle 1x I get the…
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Answers - well sort of
In follow-up to my earlier posts, we finally met with a radiation oncologist today. We both really liked the man and his CV is pretty impressive. He answered all of our questions. In particular, we told him how confused we were over the relatively low Gleason score (6) vs. the pretty high PSA (40) and the positive cores on…
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IMRT Salvage radiation is complete!
On Friday I completed my final 38th round of IMRT delivered salvage radiation to the prostate bed. The salvage radiation was started in early Sept. 4 years after my Davinci Surgery. A positive margin was noted back than and my psa increased over the past year from 0 to .3 A total of 68 gy were delivered. Over all the…
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Digital check after prostate surgery??
After radiation at Loma Linda U in CA I was told we (group finishing radiation in the next week or so- about 20 of us) still needed to have our prostate checked even if we don't have one. That was about 4 yrs ago and I have yet to have a doctor indicate I need to do a digital exam on me. Has anyone had a digital exam since…
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PROLIA /ELIGARD UPDATE
HAD appointment with urologist today----gave me another PROLIA SHOT. ANOTHER ONE IS SCHEDULED 6 months from now. HE performed a prostrate check via up the rear & said it felt very good. MY current PSA is 0.15---he told me I'm in remission & He may stop injections after DECEMBER which will mark 3 years on the drugs. HE WILL…
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Almost one year since RP
I am very happy to report that after almost a year (Tuesday after Thanksgiving) 2012 My latest Blood work came back today, my PSA remains at <0.03 the lowest number the lab can assign has stayed the same ever since being post op. needless to say but I really have special meaning to my anniversary falling at the…
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Any Experiences with Focal Cryotherapy
I began my journey with PC being diagnosed in Feb/2008 with GL (4+5), psa 34, T3a with bulging of the left seminal vesicles observable. Radiation was completed in Aug/2008 (73.8 gy) and luprone shots completed in April, 2011. The psa slowly rose from a low of 0.21 with a DT finally reaching 6-7 months. After CT/MR fear…
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My dads diagnosis Gleason 8, PSA 10
mt father was just diagnosed with prostate cancer. We know very little of this disease. I read the pathology report but if course don't really understand. Total involvement is 22.5 percent. There is less than five percent involvement on the right side in one section. Each of the four sections on the left side has 30-50…
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hypermetabolic lymph nodes in chest
my husband has been watching his PSA slowly rise for the last fifteen years, when it reached 13 in 2011 he got one posetive bit from a biopsy gleason of 6. we were encouraged to watch and wait no big deal. In June 2013 PSA went to 14 so we had another biopsy four positive bites gleason of 7. We did bone scan and mri and we…
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Advice For change in pathology
Initial diagnosis Gleason 8, age 60 years Pathology reviewed by Maimi VA and revised to Gleason 9, 4 cores I am not fond of the idea of of EBRT and Adnrogen Supression therapy. I also understand that the chance of getting clear margins in the face of Gleason 9 are slim/\
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gvax trial
hello , looks like I am going through this journey once again.I am a head and neck cancer survivor from 2010. I have been diagnosed with very aggressive high risk prostate caner.gleason=4+3=7, 8/12 cores positive , psa 42. the oncologist at johns hopkins has decided I am a candidate for the GVAX study. This involves the…
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Injured during DaVinci- I'mm Baaack
It's been a long time since I have made a post on CSN. As many of you know who are regulars to this site and can remeber that I had PR almost 4 1/2 years ago. I would still like to hear from members who have been down the same road I have. There has to be plenty of people out there because of all the adds I see from…
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Contemplating dual surgery of sling and penile prosthesis
Been 3 years since robotic removal of my extremely large cancerous prostate (large grapefruit sized). Still leaking but only a pad a day -- sex is another story!! Tried the needle route but wife seems turned off by same. Going to see my Doc on Tuesday to discuss dual surgery of sling and implant. would love to hear from…
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Feel cold even in normal room temperature. Why? Prostate cancer for four years.
See above subject
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I'm confused more than ever
My husband and I met with the urologist yesterday for results of bone scan and we left feeling pretty good, but I still had some unresolved questions. Here's his status: Gleason score is 6. Both sides were positive. 10 cores taken, 5 from each side. All 5 cores taken from left were positive and 2 of the 5 on right were.…
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Gleason 10 and rapidly escalating PSA
Hi All, I am writing on behalf of my father. On tuesday (22 October) this week he was diagnosed with stage 4 prostrate cancer that has metastisised to the hip bone and spine. The biopsy has returned a gleason of 10. His PSA was 5 in the beginning of august and is currently sitting at 14 after the tests this week. He has…
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PROLIA UPDATE
HAD APPOINTMENT WITH UROLOGIST TODAY----GAVE ME ANOTHER SHOT OF PROLIA. MY Current PSA is 0.15 & My next ELIGARD SHOT IS IN DECEMBER. HE told me it looks like I'm in remission & Will stop drugs AFTER the next shot of ELIGARD---BUT WILL KEEP Monitoring PSA----if it goes up I WILL HAVE TO START ELIGARD SHOTS AGAIN. DOES THIS…
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Prostate & lung cancer - New information only one primary - prostate?
I had left this board because although my husband was diagnosed with prostate cancer (gleason 9) in January of 2012, he was diagnosed with another primary cancer - lung cancer with spread to bones. He had 40 radiation treatments for the prostate, ending in May. 8 weeks of chemo for lung ending May 7th. Lung mets…
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Biopsy 2nd opinion & radiation oncologist visit
Hi all, Got my 2nd opinion from Johns Hopkins and it's pretty much the same as my original pathology report: 3+3=6. One core, but where the original says 10% involvement the new one says less than 5% involvement. It also says something I don't understand except that it probably means it could be cancer or not. I am waiting…
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Any possible negative effect to PCA/psa or rectal areas with sigmoidoscopy/biopsy 2 years after IMRT
SUBJECT: Is there any risk that by having a sigmoidoscopy and biopsy during it, that there might be a negative effect on the prostate or rectal areas radiated by IMRT ? Would really appreciate your opinions or personal experiences on this topic. Here's some background info followed by my questions in the QUESTIONS section…
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ARE THERE ANY FACTUAL CURES WITHOUT PROSTRATE REMOVAL ? (SURGERY)
ALL ON THIS BOARD Does anyone know of someone being cured & still retained their prostrate?? CORDIALLY RADIATION HOPEFUL
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Pathology Report
Well, it looks like surgery was the right choice for me. The Pathology Report shows that my initial Gleason 3+3 score remained the same, involving less than 5% of the total prostate volume; the stage was T2A. Although it was a small tumor, and my urologist thought I would be a good candidate for watchful waiting, the…
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metastatic prostate cancer and bones, high psa
My husband was diagnosed in March 2007 with metastatic prostate cancer. It had already spread to the hip and pelvic regions. He was given Zometa and Lupron and for a short while Casadex. His psa started at 67 and came down to 27 and started to go up rapidly in January 2009. He was diagnosed with cancer in his femur last…
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Official Start date of my radiation treatments
Finally got the call from the radiaiton oncologist today and my Official start of IMRT Radiation will begin on Sept 3. 38 treatments planned. This is to hopefully knock out my local recurrance following DaVinci Surgery 4 years ago. Lewvino
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PSA Drop
PSA rose from 1.6 to 3.15 in a little less than two years. Had biospy, 12 samples, one positive, one suspicious. On active surveilence. My question my PSA had been steadly trending upward everytime until last blood test just 3 months after 3.15 it droped to 2.2. Dr. did not indicate any reason other than tends to flucuate?…
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Surgery Wednesday
Hi all, Sorry, haven't been very active here past few months. But I've been visiting almost daily and reading. I'll be going for Da Vinci surgery on Wednesday. My surgeon will be the same doctor who removed my kidney three years ago and he has done thousands of these Da Vinci prostate surgeries. So I feel pretty confident…
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Screening PSA 40 - worried wife
Hello- I'm from the breast cancer board and uterine cancer board (have had both). Now it seems we may be moving on to my husband having prostate cancer. At this point we know next to nothing - PSA screening was 40 (it was 3.3 last year), urologist feels a hard spot on prostate, says if he was to bet, he'd bet he has…