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Need help re Xofigo
My husband has been fighting prostate cancer for 5-1/2 years. When first diagnosed in 2012 it had already metastasized to 80% of the bones in his body. He has been on Lupron, Casadex, Taxatere, radiation to the L5 veterbrae and now Zytiga. He's developed an osteo necresosis in his jaw from exgeva, has had hypercalcemia ,…
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How cancer effects me!
I have cancer in my body and my job is to keep it out of my spirit! The shock of cancer can only be understood by those who have it. I have known many who had cancer and felt empathy for them but did not get the gut-wrenching shock until my doctor said, “you have cancer!” My mind went to almost shut down as he talked, and…
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zytiga
has anyone had a riding psa and declining alk the fist two months on Zytiga. I am very voncernef
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chronic radiation proctitis
My husband had hormone treatment, followed by external beam radiation, followed by seeding. The seeding was done a year ago. He is now suffering intense pain from radiation proctitis. Would like to hear from anyone else who has had this problem. Thank you.
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Leery of Lupron - Please Help!
I've been lurking for the past 3+ months in this most helpful, compassionate forum while waiting for a comprehensive medical analysis of my particular PCa condition. Condensation: 1997-2006 Treatment for BPH (Benign Prostatic Hyperplasia - Prostatitis Unspecified) with periodic R/X (Cipro) for low-grade infection and…
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Where to from here?
I just had a radical prostatectomy with removal of 23 lymph nodes for Gleason 9 (5+4) prostate cancer. Surgical pathology staged the tumor p3aN1Mx. Cancer was found in the bladder neck as well as 1 lymph node. I am a type 1 diabetic and have an open ulcer on my leg that is being very difficult to heal. I am 58 years old…
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Stage 4
I believe I last wrote about 4 months ago. My partner diagnosed with Stage 4 cancer in August/16. He finished his taxotere in Dec. Three days later he was rushed to the hospital for quintuple heart bypass surgery . He was in the hospital for two weeks. After he got out about a week later he got a gum infection and was on…
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Recently diagnosed and new to the forum as well
Greetings, This seems like a good place to start. March 1 I went to see my new doctor for a physical and update my PSA number. It had been 3 yrs since I had seen a doctor. Historically my psa has been low for my age however during my DRA the doctor felt a nodule on my prostate. That psa was 3.7 with blood detected in my…
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Newly Diagnosed - Gleason (3+4)
Thanks in advance for the empathy and technical knowledge shown on this message board. My Situation: 55 Married, WM - Overall Good Health - No symptons. Wife and two teenage boys. Good Health Insurance. Life Insurance, Good Finaces. Wife is upset but stable. Kids do not know and will not until it is necessary. Employer…
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New MRI Results
I have been on active surveillance for five years and just completed a fusion mri. My Dr is out of town and I would like to know the meaning of some of the results in terms of how serious they are. Anatomic findings: There is a small focus of altered signal typical of tumor in the left posterior lateral peripheral zone in…
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Movember
to bring awareness of Prostate Cancer and other Men's diseases to the general population. Spread the word about what is needed to screen for disease. foundation site: https://us.movember.com/ Previous threads: https://csn.cancer.org/node/305457 https://csn.cancer.org/node/297696
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Low PSA = no growth in cancer
In the case of my metastasis Prostate cancer and with a PSA of only 0.2 now and taking ZYTIGA. One would think that there is no growth in the tumor's which is in the Lymph Nodes. If that is the case, then why would MD Anderson would want me to do a full CT / bone scan in July. Is it money or is it to check the size of the…
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Rising PSA
It's been a couple of years since I last visited this discussion board. I had a davinci RP back in 2010 and subsequent PSA tests have shown a slight rise in my PSA since 2015. For years 2010 through 2014, my PSA was .01, but the last three years it's gone from .04 (2015), .05 (2016) and now it's .07. Is this cause for…
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Seed Implant - radiation damage
I am interested if any other patients who have had seed implants have had damage to urinary tract and colon due to radiation burn.
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LA Times: UCLA slammed for patient bid (xtandi)
https://www.pressreader.com/usa/los-angeles-times/20171022/281994672732555
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Options to Chemo?
New here, so to introduce myself/ourselves, I'm Tanya and my husband is Roger.--he's 63, in great shape, active and feels great so far. He was Dx'd PCa in July 2017, (G-7, 2 cores of 12 positive) RP on Aug 31, 2017, PSA went up from 5.3 pre-op to 14.1 3 and Dxd Mets to bones and Stage IV on Oct 13, 3 weeks post op.…
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Continency after catheter removal
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Just Got Biopsy Results
My PSA crept up over 4 recently and my urologist told me it was time for a prostate biopsy. Results of the biopsy were: 4 cores Gleason 3+3=6 involving 5 to 10% of each core 1 core Gleason 3+3=6 discontinuously involving 80% of that core 2 cores atypical small acinar proliferation 5 cores no tumor seen My age is 68. The…
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Very High PSA
I have a PSA of 250. 2 of 6 Biopsy probes showed presence of cancer. But my Whole Body Bone Scan and Pelvic Pet Scan show no spread. (a) My Urologist says there is no spread and hence has me scheduled for prostectomy. But my Oncologist and another Uroloist are convinced that the Very High PSA is because the cancer indeed…
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Organ donor
Just something no one has ever talked to me about. In Indiana we note on our drivers license that we are organ donors in case of accidental death. But, if PC survivors are having their blood tested for PSA every year... There is a chance the "bandit" has escaped and may lie dormant until detected by PSA rise. Since there…
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Hello, I'm new here!
My dad (age 59) was just diagnosed with hormone-sensitive metastatic prostate cancer. His bone scan was today, so we don't have results yet, but a lesion on his hip was discovered after his L3 vertebrae fractured about two weeks ago. Surgery repaired the vertebrae, and aside from some stiffness, it has healed up with no…
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CyberKnife?
Recently I got the word that I have PCa. Age:70, otherwise good health and quite active Gleason: 3+3= 6 , low risk 1 core: 1.5mm , 10% involvement Last PSA: 7.3 I was told the PCa is small and slow growing and has been caught early. Obviously one option is AS. My URO said men with PC like mine have a 60-70% chance of…
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Urination after surgery
I am hoping that someone can tell me if what I am experiencing post surgery is normal. I am now two weeks post surgery. Foley was removed on October 10th, was able to void in doctors office but had to bear down as if I was defecating to force urine out. Since then I am incontinent with mostly a steady drip with more force…
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Treatment with xofigo
My brother is pondering whether to do this treatment or not. The drawbacks seem heavily weighted against the benefits. Has anyone of you or your loved ones gone through this treatment and can offer data/experience that I can relay to him?
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Prostate Cancer Metastasized to my Spine
My prostate and surrounding tissues were surgically removed in April 2014 and I also received follow-on radiation treatment and hormone blocking therepy (Firmagon). While my PSA levels declined to almost zero, the weight gain lead to the onset of Type 2 Diabetes. I remained in that condition for nearly two years. Then in…
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Provenge
Has anyone with advanced prostate cancer had the Provenge treatment, and if so, what were the results? I had my prostate removed in March 2016 after finding 11 of 12 biopsy hits cancerous. My PSA was 17. Gleason score was an 8. Cancer was found in one lymph node. I had no radiation and was placed on Lupron injections. My…
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Provenge? Anyone scheduled for this treatment?
Hope all is well to all. I am scheduled for first Provenge treatment on October 22, 2010, one of three, and am wondering if anyone has experienced or has an appointment for such? My last PSA was 1.58 with Casodex failure, lasted about 5 months, stage IV, with some micrometastatic lesions to upper spine. Not too bad at his…
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Cryotherapy as first course of action?
Im 63 white male with a PSA of 4.31, clinical stage T2a and Gleason score of 4+3=7. Biopsy showed 5 of 12 cores, all on right side. PTI was 1 to 5% for 4 cores and 60% for one. All came back as perineural invasion not identified. Currently scheduled for RP surgery by Davinci in 6 weeks. A friend's father swears by…
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AUS 800
I am in my 13th year dealling with incontinence after prostate surgery. The last 2 years has been much worse (6-8 pads per day). I have considered the AMS 800 since the onset of incontence and recently had the procedure 5 days ago and am very concerned with the outcome. first I noticed a weak stream and trouble empting my…
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Looking for da Vince doc in Atlanta
I am looking for recomendations for a robotic prostrate surgeon in the Atlanta area. I received my diagnosis and biopsy from Dr. Shah, who just as I received my diagnosis, quit surgery to take an adminsitarative position. I was very pleased with Dr Shah, and very sorry to have lost him as my doctor. I am Gleason 3/3 and my…