Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

can incontinence return
I posted this in a reply instead of a new topic, so not sure if it will be read by many. I am 7 months post robotic prostatectomy combined with a diverticulotomy. As a result, I have the ususal side effects of ED and incontinence. There are days when I think I am making progress with my control, then other days not much…
Father's cancer has spread to bones (again). In a panic!
Hello, I'm hoping a few of you can shed some light. About 3 years ago my father had an elevated PSA to later find out he had prostate cancer. He went through hormone treatment and was in remission. It then spread to his spine and had radiation which took care of it. About two weeks ago when talking to him on the phone he…
Other's experience with genomic testing
To recap my findings: Current stage T1c PSA 3.7 Biopsy 12 cores, 1 core positive, 10% of the core Gleason 6, 3+3 MRI showed "no lesions of concern" Age 69 Also my biopsy sample was sent for Oncotype DX testing and the results were a GPS of 19, which indicates a very low risk of negative pathology going forward. I had…
How fast does untreated metastised PC tumors spread
I am trying to make a informed decision if I can. After a bone scan and xray and MRI they found a tumor in my forearm ( ulner bone marrow) now it is not in a normal place for mets.. But none of the doctors can say for sure it is not. It could be atypical as they keep saying. But also in the same breath they say it may not…
Just Diagnosed
Received my diagnosis 4 days ago Current stage T1c PSA 3.7 Biopsy 12 cores, 1 core positive, 10% of the core Gleason 6, 3+3 Next up, I will be having an MRI next week, plus the positive biopsy will be sent for Oncotype DX genomic testing. I'm currently 69 years old in good health. No major illnesses in my lifetime, have…
castration
This word may send shivers down my spine, but at least I may still have a spine. Get the point? I see so much that I don't like about hormone therapy that I am considering ALL other methods and if I reduce testosterone production to zero, what's wrong with that? I know there are probably OTHER problems associated with…
Blood in urine after BM Radiation 5 months ago
A little concerned.. I had blood in my urine after a straining bowl movement. It wasnt red it was dark colorgel consistancy.. I completed 40 treaments of radiation back in May.. I beleive it has only happend this once.. Has this happened to others...
Good news!
Hi All, Just got back from the Urologist yesterday and for my 3 year aniversary I had no detectable PSA(<.01). I had a Da Vinci RP back in Sept. of 2014, almost no complications from surgery and a little longer than expected recovery on the ED & leakage but I am very happy with the results 3 yrs. later. I can't say enough…
Looking for advice
Just signed up - first post. History - I'm a 65 yr old diagnosed with Prostate cancer in Feb, 2016. Prostate PSA jumped to 4.9 from 2.4. in January of 2016. Biopsy - cancer of prostate. Prostatectomy performed. Some cells leaked into seminal vesicle and urethra. Post surgery showed PSA of 0.1. Eurologist recommended 8…
Newly Diagnosed-Could use some advice re Lab findings
Gentlemen- I have been trolling these boards recently after my first inclination I might have pCA. I must say I am impressed by the amount of unselfish, sincere help offered on these boards and the level of educated, well thought out responses offered by it's members. I hope to return the same at some point. I was hesitant…
Partial nerve sparing
Hello all I was wondering how many of you all that had nerve sparing on one side only are able to have an erection? I had nerve sparing on the right side only and had my surgery on Sept 29th and still have had no luck at all. I have talked to a few guys and found no one with the partial sparing having any luck. So is there…
Just diagnosed question on treatment
Hello hope all are well. I️ am a 72 year old man just diagnosed with aggressive prostate cancer. The results show 4+3 and 4+4. Prostate is very swolen. Good thing is that it has not spread and contained in the prostate. The doctor recommended hormones injections and finesteride and good diet. This for three months until…
Recurrence-Looking for information
Hello everyone, I am officially out of the zero club. 22 months after RP, my last 2 psa's were .4 and .3(a week later tested at the same lab). My local urologist and the surgeon who performed the robotic assisted RP are in agreement that I'm having a recurrance. The drs. both suggest salvage radiation therapy My radiation…
3 Year CyberKnife Results
I joined CSN in 2013 after being diagnosed, 3 of 18 cores positive, 3+4 Gleason. (my story here: https://csn.cancer.org/node/264905; My CyberKnife experience here: https://csn.cancer.org/node/292915). For those that want to be spared the threads - here's an abridged version: My case was relatively low involvement, possibly…
Prostate cancer in peritoneum with no other metastasis
Hi, My close friend friend was diagnosed with prostate cancer about 18 months ago. Gleason 8. He had surgery and radiation and test results since then were good, until 3 weeks ago when abdominal discomfort led to the discovery of substantial growths in the peritoneum. Biopsy indicates that it is the prostate cancer. So…
Newly dianosed, lots of questions and concerns
Hello everyone, As the topic says I've been recently diagnosed with PC and have lots of questions. I realize this probably won't kill me, at least any time soon, but that doesn't keep me from being scared to death. After all, it is the C word. Brief history: My father was diagnosed with PC in his early 60s, my age now. I…
Decision Made
To recap, about a month ago I received the result of a prostate biospy. Here are all my stats: Age 69 PSA 3.7 12cores taken, 1 showed cancer in one core, 10% of the core Gleason score 6 Prostate volume 87 cc PSA density 0.4 Free PSA 0.8 Stage T1c MRI showed no lesion of concern Results from Oncotype DX testing on the…
Xtandi, Tecentrique: Rash Solutions?
Does anyone have any relief suggestion or experience combatting a severe, full-body rash that has developed while on these drugs? I see that rash and itching are shown as side effects (of which drug, I don't readily recall) and I have developed both conditions. A truly maddening itch! Thanks.
3 Years On
It has been three years since I went through cyberknife for prostate cancer. All is well and my PSA has dropped to acceptable levels almost immediately after the procedures. Since then I have always encountered a burning sensation while urinating. The doctors have never shown much concern and it is certainly not…
Surgery tomorrow
Hi all, my surgery for radical prostatectomy robotic assisted is scheduled for November 2nd at 7:30am CDT. it is about 9 hours until surgery commenc. I am doing my bowel prep now and will take few hours of sleep. i feel very anxious about surgery and recovery but I am positive I have chosen right treatment for my prostate…
Anyone on AS taking Proscar?
I've petty much decided that given my test results, AS is the way for me right now. That leaves me with BPH and all the symptoms that go with it. My urologist mentioned Cialis as a possibility, but I don't think that actually shrinks the prostate. I have a pretty big one, 72 cc sticks in my mind, and shrinking it makes…
feeling the burn
Half way through radiation and I've started to feel the burn in urination. Will this last through the rest of the treatment? I've completed 20 of 39 treatments
Hormone Therapy hot flashes
I started hormone therapy 6 weeks ago. Im having 5-6 hot flashes per night that are wet sweating ones. Does anybody have any helpful tips. I went to a naturalist doctor and he had me on liver supplements but no help, he now put me on some other supplement 2 days ago. As of last night, nope not helping.
Value of having an MRI before a biopsy
Study: MRI can rule out clinically significant disease (video) https://www.youtube.com/watch?v=t6_OH9VQWTg&feature=youtu.be
Best Imaging For Recurrent & Metastatic PCa
Brothers, I am lining things up for a future cyberknife treatment and believe that the centerpiece to a successful outcome is the best imaging possible that clearly shows the tumor location plus any junior bandits that may be lurking elsewhere. Here is a link to an article I pulled from Renal and Urology News.com that…
gravitational incontinence 2 years after daVinci prostatectomy
59 years old. I'm two years post-op daVinci prostatectomy. Have attempted 3 months of pelvic floor therapy one year ago with minimal improvement. Bladder does not retain urine at all when standing. Leak when sitting and sometimes when lying down. Change 6-8 pads per day. Two urologists say AUS 800 only way to go with one…
metformin and radiation
I just started radiation and just found out how beneficial metformin is along w/ radiation. If you are going through or will go through radiation, look at the benefits of metformin. Only thing is that it helps to get Rx if you are diabetic or pre diabetic.
Meds - Xtandi
Dr. called last week, scan revealed cancer cells from my prostate cancer (treated with radiation therapy 3 years ago) cells are in a lymph node near the aorta. Saw the doc - urologist - who has been treating it this AM. It's not as dire, apparently, as we had imagined from that brief phone call. He's starting the paperwork…
Two New Books That Discuss Prostate Cancer
How Not To Die by Dr. Micheal Greger has chapters on Breast Cancer, Prostate Cancer, and other killers. He focuses on diet, exercise, and natural products, such as ground flaxseed and ginger to prevent cancer and halt it's spread. The Truth About Cancer by Ty Bollinger focuses on natural and "underground" cures for cancer.…
A Fork In the Road on my PCa Journey.
Hi Everyone, To Recap, I was diagnosed with PCa in Feb 2014 and had a RP two months later. My PSA at the time of the procedure was 7.4 with a Gleason of 4+3. My side effects from the RP are ED and severe incontinence that I've endured ever since. In Sept of 2014 the PCa came back and I went through two months of EBRT and…

Prostate Cancer

Discussion List

Discussion Boards