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Dad 72 Prostate Cancer
Hi to everyone within this group - I had previous posts about my Dad and the help that everyone gave me and the support was unbelivable. My Mam 3 years ago also went for a routine check up regarding her eyes and she had a cataract that needed to be removed so she asked to be knocked out for it and they said no problem and…
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Permanent urinary catheter and Firmagon or any HT
Please could anyone with PC who has had a permanent urinary catheter inserted and is having Firmagon injections (HT) let me know what their experience has been? My husband with PC has one because he could not urinate properly, and has been told that perhaps with Firmagon he´ll be able to urinate without the catherer…
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Firmagon (Degarelix) Initial dose
Hi I´m new in this forum so I hope you can all bear with me. My husband has an aggressive prostate cancer with metastasis in bone region (L2). Gleason>7 T3, N1 M1 PSA 36. His docter wants to start hormone therapy immediately tomorrow, but because he has heart problems (arythmias and myocardiopathy, takes sotalol) and is…
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First holiday season with cancer.
First holiday season with cancer. Today I am at peace and grateful for the many gifts in my life. While I am not grateful to have cancer, I am very grateful for the people I have met, the wonderful medical professionals who go out of their way to help me. I am also extremely grateful I live in a country where quality…
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Firmagon (Degarelix) substitute for Lupron
After discovering this new gonadotropin drug I discussed taking this with my Oncologist and we decided to inject this in a week or two since my PSA doubled from 2.8 to 4.7 this past month. If you have any experience with Firmagon from Ferring Pharma I would love to hear back on side effects etc. I'm a 58 yr. old two year…
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The Holy Grail -interesting but not conclusive
Interesting article on cancer cell cycle deregulation. Don't know if what they are saying is true or not... Could be another weapon in the arsenal or it could be snake oil. https://chipsahospital.org/1001-the-cancer-killing-ratio-how-this-combination-of-vitamin-c-and-k3-is-changing-the-way-we-fight-cancer/
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Bone Density after long use of Casodex
Bone Density after long prostrate cancer control. I had a radical prostatectomy in 1993 and everything was fine until 2000 when my PSA jumped to 50-60. The PSA has been controlled with Leuprolide & for the last 4 years with casodex and my PSA is still only 0.4 or so. However, after being on Leuprolide & casodex for so…
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Hypofractionated radiation
Gentlemen, Anyone have thoughts about salvage radiation reducing the number (27 vs 39) of sessions of radiation? Each session radiation is increased but delivered over a shorter period of time. Recovery from side effects actually quicker?
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Considering FLA
Has anyone had experience with Sperling Prostate Center or Prostate Laser Center, or had FLA anywhere else? Husband has PSA 11, Gleason 7 (3+4) one core and one Gl 6. Age 60. Was considering CK but discovered this treatment. Thanks!
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Advice, support, anything you would like to add
New to the site, I have read some of the diagnosis that other men on the forum have had and have read how they are handling their issues. My PSA results have been creeping higher in the last few years. My original test in 2011 was 3.9 so during my yearly check up this year my GP was not going to do a PSA but I asked to…
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choosing a DR if you dont have PC yet but are worried
i started another trend..not sure if it will help anyone but it might...i was recently dignosed PC..early stages thank the Lord for that because i skipped teating for a year and could have been much worse....so 8 years back at 48 first PSA test 5.0 biopsy negative..dr made light of it but needed to be checked ever 6…
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Celebrating 10 Year Anniversary
Well it has been 10 years (Feb/2008) since we got the news about PC from our general doctor. It was dialed in at GL 9 with a PSA of 32 with MRI indications that the cancer was outside the gland. After two rounds of radiation treatment (IMRT and PB) and a round of cryoablation treatment in between, the last PSA results…
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Newly diagnosed - is CK for us?
My husband was diagnosed with PC in July. PSA: April 10.4, July 14.7. BX: Gleason's 7 (3+4) in one of 4 cores 30% of total tissue, 7.1MM. I hope this is enough info. Scheduled surgery for January but then learned about CK. Was not told about that option by oncologist. He is a "young age 60" according to doctors so that's…
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Recently diagnosed - PSA 114 - Gleason score 8
I'm 46 and was just diagnosed last week with prostate cancer. Today I was told that my Gleason score is an 8 and my Doctor said that he would like to meet with a team next Thursday to get a few other opinions on how to proceed. His first though is to have me start hormone shots to slow down my testosterone which in return…
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Uptick in gleason score
Have had prostate cancer for a long time now, do not know how long but at lest 4 years, have been on AS since then,got the results of my latest biopsy today and one core showed up as gleson 7. 3 plus 4. Three other cores showing gleason 6. 13 cores taken with 4 showing cancer. The 7 shows 30% of the core as cancerous. Will…
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Multiparametric MRI Raidologist within a few hours of Tampa Bay
There is a debate on-line at the 2016 American Urological Association meeting which gives the for and against arguments for having a multiparametric mri done with a fusion biopsy instead of having the standard biopsy of the prostate. I think I would like to have the mri and fusion biopsy. However, it is only the better…
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How to decide on treatment, facts, and prejudices.
Today I was reading a few new guys posts and the wonderful feedback they were receiving. I reflected on my journey to date and was struck by the difficulty I had and time it took to get to a decision. What factors affected my decision? First my decision path was not linear, not rational at times, and certainly influenced…
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active surveillance
Any body on active surveillance status? Just wondering how often blood work required and biospy is done. I am considering it once i get my oncotype dx testing back . I have 3+3=6 gleason score t2a 25% left mid psa 2.97. negative for lymphovascular or perineural invasion 61 years old also considering robotic surgery at…
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cyberknife success rate
Hi Everyone... Just diagnosed with prostrate cancer. I'm 67 in otherwise very good health,gleason score is7, PSA11.5,biopsiedtwice, Gleason score described as 7 [3+4] and tumor is local- still only in prostrate. I have to choose the method of treatment. I prefer cyberknife but have some questions. Would I be a good…
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casodex
I haven't been on this forum while because perhaps my prostate cancer was the least of my worries. And the fact that taking 50 mg of bicalutamide per day for a few months on and off has kept my PSA down. however, it looks as though the bicalutamide is not working so well as befor. This is usually the case with this…
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Multiparametric MRI Raidologist within a few hours of Tampa Bay
I have been recommended for a prostate biopsy. My present doctor only does a transrectal ultra sound. I think I may be interested in a multparametric mri. I am weighing the options. I am looking for the most experience mri radiologist with multiparametric MRIs within a few hours of Tampa Bay. There are two locations in…
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CDC recommends new shingles vaccine to replace older one
CDC recommends new shingles vaccine to replace older one Dec 16, 2017 - 1:45 pm http://www.cnn.com/2017/10/25/health/cdc-new-shingles-vaccine/index.html .................................... What are Shingle symptons https://www.mayoclinic.org/diseases-conditions/shingles/symptoms-causes/syc-20353054 Here is a thread ,…
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Rash with Flomax
I have been taking Flomax for about 2 months. At some point during the past month, I have developed an itchy rash on my back and trunk. My wife has made no changes in laundry products and I'm wearing essentially the same stuff I have been wearing for several months. I mentioned this condition in a phone call with my Mom,…
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HDR BT article
Interesting read on HDRBT https://www.americanbrachytherapy.org/guidelines/Guidelines_High-Dose-Rate_Prostate.pdf Denis
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New here with some(probably) familiar questions
I had robotic procedure 5 weeks ago and ,although I have been improving daily, the pace of improvement has slowed considerably. Still going through multiple pads/day and still getting up 4-6 times each night to urinate/change pad. Even when limiting fluid intake before bed I get up. Where is it all coming from? I get a…
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What Now ?
PSA has been at zero for 2.5 yrs, in Sept. it had risen to .84. Urologist said it could be an unknown spike but will recheck in 3 mos. Yesterday I retested and it came back at 4.95, I'm definitely in trouble here. Get a bone scan on Monday and hormone shot on Tues and then my urologist is handing me off to the doc in…
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Just diagnosed
Hello, I was just diagnosed with prostate cancer. Biopsy results indicate: 12 cores taken, 6 are positive for cancer. Right apex - 10% occupied Right base - 30% occupied Left base - 10% occupied The report did not indicate a T score, the urologist did indicate that it was contained so based on this, I place it as a T1c We…
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signs leaking will stop
No doubt this topic has been addressed elsewhere and I would appreciate direction to find these forums. I'm in need of information on the urinary leaking I'm experiencing since my prostectomy's catheter was removed 10 days. I am desparate to talk to someone to know what "normal" is right now. I don't leak overnight, but…
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CDC recommends new shingles vaccine to replace older one
http://www.cnn.com/2017/10/25/health/cdc-new-shingles-vaccine/index.html .................................... What are Shingle symptons https://www.mayoclinic.org/diseases-conditions/shingles/symptoms-causes/syc-20353054 Here is a thread , " Shingles and the Prostate Cancer" started by VascoDaGama started in Nov. 2014…
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Faces of RP
https://www.medicalnewstoday.com/opinions/44196