PC Newbie

celliott7

Hello to all:

I am 55, just Dx with PC. Gleason 6, Stage 1. No family history, no symptoms, but blessed to have a urologist who urged biopsy for 4.3 PSA after no change from antibiotics for a month. My wife and I go back to see him Oct 7 to discuss options. Also, am a medical professional.

Emotionally, I move from DaVinci removal to seeds and everything in between depending upon the day and the research I have done. I just watched an online video of a prostate removal via DaVinci, was very impressed. Also, doing lots of research in medical databases. Fortunately, my odds seem academically good at this point with most options but at a very basic human level, am really struggling as to what is best route.

Any input appreciated from those of you who have an opinion and have been through this process.

Grace to You,
Charlie

WHW

Welcome to the "Don't Really Want To Be Here Club"
Charlie, welcome to the forum and I am sorry you have to be here.

I was where you are just a few months ago. I was diagnosed in June after a PSA change from 3.0 11/2007 to 6.3 5/09. A trip to the urologist, DRE, biopsy, CT Scan and Bone Scan confirmed the PCa was present.

I too began my search for information. My search was a little easier than most guys because my wife was diagnosed with cancer in 2005. I have become quite adept at medical research and the ability to separate wheat from chaff. As a medical professional you also know that the patient really has to take charge so to speak and be involved much more than in days of old. It is our responsibility and out right to do so.

You will find many opinions on the various alternatives, no doubt. All have some form of side effects and drawbacks that may effect Quality of Life later. I have found that most of them can be dealt with.

I have talked with literally hundreds of PCa club members on this and other forums and see the gamut of results and issues. No two men are the same and therefore no two react to the alternatives in the same way. I am sure you know this.

So what do you do? Personally, I chose to go da Vinci. I really wanted it out now. Having made that decision I started searching for Dr.s and there are a bunch. I kept seeing some of the same names in different guy's posts and researched them. I am blessed with great insurance and knew I could go where the best was. When I researched the different dr.s a common name kept coming up. It wasn't theirs but rather someone they had trained under, mentored under or collaborated with. My philosophy was why go to the student when I can go to the teacher.

If you look back through the posts you can see my recovery process day by day. They usually have the name SONNY in them.

My surgery was almost a non-event. I never took a pain pill, I was walking 2-3 miles a day and have been dry since the day they took my cath out. The cath is always a big issue it would seem, but not in my case. My dr does not use the Foley, his fine tuned surgical procedures utilize the Supra Pubic. That made all the difference in the world to me.

My signature line contains all of my stats and path report info. If I can answer anything direct for you, just let me know.

This forum is a great site and the folks here are knowledgeable and super supportive. You might also check out healingwell.com. The site is a little more active, just find the PCa forum as you did here.

Good luck and God bless you and your family,

Sonny

61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero

qjenxu

WHW said:

Welcome to the "Don't Really Want To Be Here Club"
Charlie, welcome to the forum and I am sorry you have to be here.

I was where you are just a few months ago. I was diagnosed in June after a PSA change from 3.0 11/2007 to 6.3 5/09. A trip to the urologist, DRE, biopsy, CT Scan and Bone Scan confirmed the PCa was present.

I too began my search for information. My search was a little easier than most guys because my wife was diagnosed with cancer in 2005. I have become quite adept at medical research and the ability to separate wheat from chaff. As a medical professional you also know that the patient really has to take charge so to speak and be involved much more than in days of old. It is our responsibility and out right to do so.

You will find many opinions on the various alternatives, no doubt. All have some form of side effects and drawbacks that may effect Quality of Life later. I have found that most of them can be dealt with.

I have talked with literally hundreds of PCa club members on this and other forums and see the gamut of results and issues. No two men are the same and therefore no two react to the alternatives in the same way. I am sure you know this.

So what do you do? Personally, I chose to go da Vinci. I really wanted it out now. Having made that decision I started searching for Dr.s and there are a bunch. I kept seeing some of the same names in different guy's posts and researched them. I am blessed with great insurance and knew I could go where the best was. When I researched the different dr.s a common name kept coming up. It wasn't theirs but rather someone they had trained under, mentored under or collaborated with. My philosophy was why go to the student when I can go to the teacher.

If you look back through the posts you can see my recovery process day by day. They usually have the name SONNY in them.

My surgery was almost a non-event. I never took a pain pill, I was walking 2-3 miles a day and have been dry since the day they took my cath out. The cath is always a big issue it would seem, but not in my case. My dr does not use the Foley, his fine tuned surgical procedures utilize the Supra Pubic. That made all the difference in the world to me.

My signature line contains all of my stats and path report info. If I can answer anything direct for you, just let me know.

This forum is a great site and the folks here are knowledgeable and super supportive. You might also check out healingwell.com. The site is a little more active, just find the PCa forum as you did here.

Good luck and God bless you and your family,

Sonny

61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero</p>

Sony,
Do you mind share Dr. Mani Menon M.D. 's contact information with me? My email is qjenxu@hotmail.com

So far, Dr. Menon is on the top list if we would go Da vinci option. Not sure how our insurance work but with PPO, it may not too bad. we may go see him to help us make up mind.

We would appreciate any of your help. Thanks so much!

Jennifer

qjenxu

celliott7
sorry for you to be here.

My husband had Dx the PC recently. don't know what stage is yet. we are consider all the option at this point but eventually will have to make up our mind. we are learning from all the discussion here including this one. Thanks!

Best wish for you and your family.

Jennifer

WHW

qjenxu said:

Sony,
Do you mind share Dr. Mani Menon M.D. 's contact information with me? My email is qjenxu@hotmail.com

So far, Dr. Menon is on the top list if we would go Da vinci option. Not sure how our insurance work but with PPO, it may not too bad. we may go see him to help us make up mind.

We would appreciate any of your help. Thanks so much!

Jennifer

Dr. Menon
Jennifer,

Just do a search of the Vattikuti Urology Institute, they are in the Henry Ford Medical Center in Detroit Michigan.

Also take a look at these links:

http://en.wikipedia.org/wiki/Vattikuti_Urology_Institute

http://en.wikipedia.org/wiki/Mani_Menon

You will see some very interesting fact about the institute and Dr. Menon.

Let me know if you need more info.

Sonny

saoco

Hi celliott it seens that
Hi celliott it seens that you have done your homework.Fives years ago when I was 46 pc hit me;
it was very hard on me becouse I thought only old people or people in the lasted 60 ware the one afected by pc.It seens that every day the age factor goes down,and in this gruop theare
many people below the age of 50 with pc.I decided to take out becouse my prostate failed me
and I just want this cancer out of my body.I had the same numbers as you,and my doctor told me that at my age and with this numbers the best option was to take it out.any method you use,will have it own side efect so you need to make your own desition based in the risk you are willing to take.I hope this may help you.

celliott7

saoco said:

Hi celliott it seens that
Hi celliott it seens that you have done your homework.Fives years ago when I was 46 pc hit me;
it was very hard on me becouse I thought only old people or people in the lasted 60 ware the one afected by pc.It seens that every day the age factor goes down,and in this gruop theare
many people below the age of 50 with pc.I decided to take out becouse my prostate failed me
and I just want this cancer out of my body.I had the same numbers as you,and my doctor told me that at my age and with this numbers the best option was to take it out.any method you use,will have it own side efect so you need to make your own desition based in the risk you are willing to take.I hope this may help you.

PC Newbie
Thanks to Sonny, Jennifer and SAOCO who replied so quickly. What a wonderful forum and great people! I will keep everyone posted on our journey. I am near Columbus, OH and will also be looking into the James Cancer Center at OSU as I know they offer the robotic surgery.

Grace to You,
Charlie

WHW

celliott7 said:

PC Newbie
Thanks to Sonny, Jennifer and SAOCO who replied so quickly. What a wonderful forum and great people! I will keep everyone posted on our journey. I am near Columbus, OH and will also be looking into the James Cancer Center at OSU as I know they offer the robotic surgery.

Grace to You,
Charlie

Check out the Cleveland Center Also
Charlie, I have seen a lot of good reviews about the folks at Cleveland as well.

Might be worth checking out.

Sonny

qjenxu

celliott7 said:

PC Newbie
Thanks to Sonny, Jennifer and SAOCO who replied so quickly. What a wonderful forum and great people! I will keep everyone posted on our journey. I am near Columbus, OH and will also be looking into the James Cancer Center at OSU as I know they offer the robotic surgery.

Grace to You,
Charlie

look like we are in the same area
we like in outside of columbus. Am trying to find best doctor and surgeon. will share the info with you after we find out.

best wish!

Jennfier

qjenxu

WHW said:

Dr. Menon
Jennifer,

Just do a search of the Vattikuti Urology Institute, they are in the Henry Ford Medical Center in Detroit Michigan.

Also take a look at these links:

http://en.wikipedia.org/wiki/Vattikuti_Urology_Institute

http://en.wikipedia.org/wiki/Mani_Menon

You will see some very interesting fact about the institute and Dr. Menon.

Let me know if you need more info.

Sonny

yes, I did my search
but they don't have a phone number to contact, only email inquiry on their web site.

It is not rush at this point but will ask you if I couldn't fine a number to call.

Thanks so much Sonny!

Jennifer

hopeful and optimistic

Hi Charlie
Please list you other numbers; cores taken, number positive and involvement. This will help in figuring out where you stand, and what you need to do..........

Also I tell everyone to get a second opinion on the biopsy, that is have the parrifin blocks sent to another lab , an expert in the fiend, one expert is Dr. Epstein at Johns Hopkins. You do this so that you are not over or under treated.

we are with you

Ira, age 66
PSA 2.2 in Jan. , 2.5 in July
Diagnosed march 2 0f 12 cores positive, less than 5 percent involvement
April-endro rectal mri with spectroscopy no defined nodule involvement
Stage t1
Active surveillance(that is closely monitored)

NM

hopeful and optimistic said:

Hi Charlie
Please list you other numbers; cores taken, number positive and involvement. This will help in figuring out where you stand, and what you need to do..........

Also I tell everyone to get a second opinion on the biopsy, that is have the parrifin blocks sent to another lab , an expert in the fiend, one expert is Dr. Epstein at Johns Hopkins. You do this so that you are not over or under treated.

we are with you

Ira, age 66
PSA 2.2 in Jan. , 2.5 in July
Diagnosed march 2 0f 12 cores positive, less than 5 percent involvement
April-endro rectal mri with spectroscopy no defined nodule involvement
Stage t1
Active surveillance(that is closely monitored)

another Davinci recipient
Hi my name is Nick and im 52 years old.

Had Davinci on Sept.3,2009

24 needle biopsy-prostate divided into 6 sections-5 showed cancer all with perineural invasion-all 5 50 to 100%involved

Sent samples to John Hopkins for second opinion(250.00) w/o insurance my insurance did cover it.

Got pathology report back with the ammount of involvement expected the worse but My prostate showed NO positive margins.

Goes to show you were all different and even though my cancer was very involved my doctor still said removal was best option. Doctor said could use radiation after removal if needed but cant remove prostate after radiation.
Just a short summary to give you 1 mans opinion and this site helped me tremendously to research and make my decision.

Best to yours as I know what a tough decision you face. God bless and once you make your decision. Accept it ,trust your doctor, pray and dont second guess yourself whatever your decision is.

Nick

PS my psa was 5.9 after taking antibiotics for 30 days

celliott7

NM said:

another Davinci recipient
Hi my name is Nick and im 52 years old.

Had Davinci on Sept.3,2009

24 needle biopsy-prostate divided into 6 sections-5 showed cancer all with perineural invasion-all 5 50 to 100%involved

Sent samples to John Hopkins for second opinion(250.00) w/o insurance my insurance did cover it.

Got pathology report back with the ammount of involvement expected the worse but My prostate showed NO positive margins.

Goes to show you were all different and even though my cancer was very involved my doctor still said removal was best option. Doctor said could use radiation after removal if needed but cant remove prostate after radiation.
Just a short summary to give you 1 mans opinion and this site helped me tremendously to research and make my decision.

Best to yours as I know what a tough decision you face. God bless and once you make your decision. Accept it ,trust your doctor, pray and dont second guess yourself whatever your decision is.

Nick

PS my psa was 5.9 after taking antibiotics for 30 days

Others?
Thank you Nick and all others who are responding. You are all blessings to me as I sort through this.

My observation so far is that most of those who are posting are da Vinci or other surgical survivors, which is great. However, I would love to hear from those of you who were early stage prostate cancer and chose radiation (external or seeds)instead of surgery.

Just continuing to gather data and thank God for allowing me the incredible gift of His mercy.

Grace to You,
Charlie

WHW

celliott7 said:

Others?
Thank you Nick and all others who are responding. You are all blessings to me as I sort through this.

My observation so far is that most of those who are posting are da Vinci or other surgical survivors, which is great. However, I would love to hear from those of you who were early stage prostate cancer and chose radiation (external or seeds)instead of surgery.

Just continuing to gather data and thank God for allowing me the incredible gift of His mercy.

Grace to You,
Charlie

Charlie Check This Out
Charlie,

Go over to healingwell.com, select the forums and chats at the top of the page and scroll down to prostate cancer. There are a bunch of guys over there that have had radiation and they are extremely knowledgeable. You can just look through the over 200 pages of discussions or join up and pose your own question. They will be along quick and you will not want for some really expert and personal experience information.

Bless you and your family,

Sonny