Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

I need you ladies.
I just got my latest CA 125 result and it is 23. The last one was 8 and before that 5. Up until then it had always decreased or stayed the same. I am scared out of my wits. I know less than 35 is considered within range but that is not keeping me from freaking out. I left word for my oncologist to call me. I have been in…
Week two and Three
Had my first treatment almost two weeks ago. I know everyone is different so am wondering how you felt during week two and three. Week two has been kind of rough with bowel and stomach problems.. My husband thinks that I should be up and dancing in week three but I do not see that happening. Tell me about your week two and…
hello all
my beautiful courageous bride of 40 years has muscinous adenocarcenoma. had debulking surgery feb 23, 2012, removed omentum , recovering great. had 4 carbo/taxol chemos prior, PET showed significant shrinkage. onco still cant identify source of cancer. poorly differientiated, . anyway thanks for your help and support. this…
Tattoo
I have been a little MIA on the site lately sorry about that. There are so many new "faces". Sorry we all had to meet this way. But I wanted to let you know that I finally got my teal ribbon tattoo! It is on the back of my neck where people can see it. The end is shaped like a feather. I will have to post a pic. My cousin…
The "espnW: Jenn Sommermann aims to race 50 triathlons before age 50" story
Please check out the video link below (from ESPNW) about the most amazing woman who is an Ovarian Cancer survivor. I ask that you please forward it to others to share her story and to help spread the word about this silent killer. Help Jenn raise funds for Ovarian Cancer research as well. Thank you!…
makeup
I usually don't feel like messing with it, but today I am having a really good day, so I put some makeup on. Ummmm, I look like a weird doll. So I re applied, and again, uhhh no. I think the problem is since I have no eyelashes left, I have no lash line to follow with the eye liner. And getting the blush or the cheek color…
Dealing with the unknown
I sent an email to my gyn/onc/surgeon today. At my checkup in November I expressed alarm that my count had gone from 3 to 5 and he said anything under 10 was okay. He further stated that even if it went into double digits he would not be too concerned. I wanted to know his thoughts behind that statement since my count is…
Has anyone been consuming black raspberries (not blackberries) on a regular basis as part of her ant
The studies on these berries seemed intriguing so I looked for them in stores and found them unavailable even in NYC where I live. I order them from FrankFarms.com, freeze them in 1 cup portions and add them to my smoothie every morning. I have no idea if they are helping but I am NED from stage 4B UPSC for almost 15…
TO DAVEVG AND YOUR WIFE
Hello Dave: By now I hope that your wife is recovering from Friday's surgery, and that the news is confirmed as benign. I thought started a new topic would help us to 'find you', as the other one was getting very lengthy. Continued prayers - hope to hear from you soon! Monika
Good news report
Hi gals, I just got my CA125 result after 2 avastin and one low dose chemo treatment. It has gone down 323 points. I am not having any side effects from the avastin, a some skin issues from the taxotere, but have more energy than I have had in 3 years. I am sooooo grateful to have some extenstion on my life, and my docs…
this chemo is so hard
Cisplatin/Gemzar..I have one chemo one day for 5 hours and then one chemo 7 days later. Before I had carbo/taxol for 12 infusions. Two done and 4 more to go. I get to keep my hair but I am in bed a good week feeling like..well you know. Just wish this was over and the end of cancers...wishing you all blessings...val
bowel issues
anybody know if constipation is a side effect of chemo?? I have struggled really hard with constipation since chemo last friday. Today had success after much medicine and phone calls. They just keep saying keep doing what you are doing..... but I was afraid of a bowel blockage. Think I'm ok now, but was just wondering.
Breakouts on my head.
So, I started losing my hair a while ago. It's not completely gone but definitely thinned out dramatically particularly towards the front of my head. I ended up getting it shaved. The lady at the salon used the second to shortest setting. I had maybe 1 or 2 pimples on my scalp when I had it shaved, but now there are a ton…
Avaistan and Nose Issues
I have had nose bleeds, runny nose, and extreme pain in my nose due to the avaistan. A friend of mine said she had similar problems while on Avaistan. She said she began coating the inside of her nose every night with Vaseline. (using a Q Tip). I have been doing this the past few nights, and guess what? Very little and…
It's pink again!
A dear friend of mine was at a local festival and there was a firetruck painted pink in honor of breast cancer. She went ahead and wrote a message for me on it anyway. I guess we'll have to paint our own firetruck, ladies. Karen
Soaps & detergents
I read in Chris Bledy's book (12 yr survivor of 3c), that she would only use soaps and detergents that had ingredients in them she recognized as not harmful. This is due to chemicals being absorbed through pores that could hurt the body. However she did not say what she used. Wondering if anyone had suggestions. Thanks…
Metal taste
I know that the metal taste in the mouth is one of the side effects of Chemo but... (this is hard to explain) sometimes my stomach gets very acidy and sour and almost like a metal feeling. Is that weird? Do you go to the chat room on this site. It feels so good just knowing there are people out there that understand. I…
Name of book
yesterday I seen a title of book that was written by an ov survivor of 12 yrs and of I didnt write down the title and I sure dont seem to find it today. I wanted to get the book to read. If anyone can find the name please post the author of book also does speaking on oc. thanks
Fish recipes
Hello everyone. I dont post too often but since my diagnosis in December(stage 3c), I have been reading a lot about foods I should be eating . I have 6 more treatments left and i hear the last ones are tough. So i wanted to help my body. Fish is one of the foods I hear I should be eating. . I rarely have cooked it and was…
Mom's Update
Hello All, We got my mom's patho report and her treatment plan. Her cancer involved the right ovary and fallopian tube and the omentum. It is poorly differentiated papillary serous carcinoma. The good news (if there is any is that) it's stage 3 instead of stage 4, which we were told prior to the patho report. It has not…
Cramps and gas
I am new to all this. Just had my first treatment two weeks ago. HAve been trying to manage my bowels by using pills etc that the doctor recommended but have been getting lots of cramps?? Is this normal? Also how long before the hair starts coming out? As I said I am new to all this. Not much fun is it?
CT results
I am not a nurse but I have been a medical assistant for 25 years. I have given patient results and know a little bit about terminology of reports and so forth. I asked for a copy of my first CT, that was done before first chemo. They said "No obvious tumor" which is good. But a concern is it also said "shotty nodes in the…
WOW...am i bummed out
i went to one of the top rated gyn/onc in pittsburgh today to get a second opinion. i was diagnosed stage IV in aug of 2010...did 6 rounds of carbo/taxol....ned for at least 6 months...ca125 started climbing so did tamoxifen for 2 months...disease progression and high ca125 so did 2 rounds of topotecan...still progression…
Cancer sucks rotten eggs!
I am so angry I can't see straight. My sister may have OVC or some sort of cancer. She is in shock. OK I get that, but she is not moving. She has no health insurance, so I found one. There is no GYN Oncologist so I have been looking all over the state for the closest one to her. She is focused on the side effects of her…
Hair watch 2012
I'm 3 weeks out from my final chemo treatment and I am anxiously awaiting the first sprout of hair. Every morning, I very carefully examine my head, legs, and pits for any sign of hair. I figure my leg hairs will come back first as my legs were the last hold out when my hair fell out. How long did you take for hair to grow…
Cancer cells in urine
So my wife has been having blood in her urine. They tested and found found a UTI. After 2 rounds of antibiotics she was still having problems so they tested for it again and it came back negative for a UTI but positive for ovarian cancer cells. Prior to these findings her Dr had already decided she should see a urologist…
CA125
We have had a lot of talk about CA125. Here is some info from the ACS link...http://www.cancer.org/Cancer/OvarianCancer/OverviewGuide/ovarian-cancer-overview-new-research "Tumor markers Some women with epithelial ovarian cancer have normal levels of the tumor marker CA-125. In these women, the only way to tell whether…
blue toes
Do any of you deal with your toes turning blue mine do all the time. I wiggle the and get the color back but last night I was sleeping and my mom noticed that half my foot was blue I was sleeping so well for the first time in several days she did not want to wake me. Once I woke up and started moving my toes then the color…
On Avastin
So, I've had two treatments now with Avastin, 15 mg. (per kilogram of body weight) every three weeks. Haven't had any side effects, except my body is a little achy (knees, hips, shoulders). Sometimes it's difficult to pull a shirt over my head. However, my onc. said that was due more to the effects of Taxol (my treatments…
So much admiration
I just wanted to take a minute to let you all know what an inspiration you are to me. I do not have cancer, but I've had other female issues that led me to this board and after reading what all you go thru....I'm in awe!!! I would probably lay down and just cry all the time, but y'all seem to handle it all with such grace…

Ovarian Cancer

Discussion List

Discussion Boards