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Taste
Just finished my last round of chemo may22. My sense of taste has not returned. Well I can taste things but not very good. Just wondering if this improved for anyone and how long it took? Thanks Shawnnna
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pain is worse in stomach
they gave me hydromorphon 2mg but it's not working that good. Don't want something that will knock me out but is there anything else that will help with the pain. Pain is from tumor on small bowel.Also I'm having nausea first thing in the morning. I didn't even have nausea when I was on chemo, whats that all about. chemo…
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My mom's chemo stopped working. Any thoughts or experiences with this?
Hello My mother was diagnosed with Stage 4 Ovarian cancer in October 2011. At this point her cancer was inoperable and she was told to start with carbo/taxol. She had 2 rounds of chemo and her ca125 went from over 3000 to in the 100s. At this point, my mom had an unsuccessful debulking surgery. They gave her a complete…
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Hopefully Pet Scan is a false positive.
I posted last week about 4 very small spots lighting up on my petscan from two weeks ago. One was near my thyroid, the other 3 in my chest areas. The abdominal area was clean, as was my abdominal/pelvic CT. May 8 CA 125 was 12.6 I see my dr. on the 24th. He may order a chest CT at that time just to be sure, but he isn't…
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Hi everyone
Sorry if this reposted, don't know what happened to my other one. I haven't been on group much as not feeling good at all. I have spasm pain in the center of my abdomen, I know I have a tumor there & have been distended since March. I've just completed 3 cycles of carboplatin and had an allergic reaction to cycle 2 & 3 but…
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Just checking in
Hi all I am sorry that I have not been on here much since the reocurrance. I find that I am not handling this well at all I was so hoping to be in remission for longer than five months. I have decieded to go on medication to keep me from getting any more depressed than I am now. I hope you all are doing well and I will try…
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Medicine for legs
Having trouble with aches in my legs and also feeling very shaky. Any suggestions of medicine that has worked for you. My doctor gave me some oxycodone but it seems too strong makes me have bad dreams and more shaky than usual. What have you been using that helps?? This is my third treatment and seems the worse so far.. I…
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What does everyone do to get going in the morning
Hello everyone just wondering does anyone else find it hard to get going in the morning. Just can't get my mojo going like I used too. Of course I know why, all the chemo and the cancer that seems to have kicked our butts. Takes me awhile to wake up and feel good enough to get my day started. I don't want to waste any time…
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Ovarian Cancer awareness Poster Board Ideas Please
I am captain of a Relay team and our Relay is June 23rd. A friend of mine, teammate, lost her best friend Sandra on 5/4/12 to Ovarian Cancer, she was 32yr old wife and mother of 3, her youngest being 18 months. She was diagnosed in her 4th month of Pregnancy with her youngest. At our team captain meeting they asked each…
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I'm one step closer to my dream of teaching school!! :)
I never thought I'd be nearly 50 yrs. old (well I'll be 50 by the time school starts back) and have to support myself. But after losing my Mom 4 yrs. ago, husband, 2 yrs. ago, OVCA diagnosis 2011, I have passed ALL my necessary Praxis exams!! I'm so relieved and excited!! I completed my M.A. in Early Childhood Education…
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gemzar may be working for me....ca125 update
hello all.....i hope i'm not getting excited prematurely. last friday at chemo i asked the nurse what my latest ca125 number was....march 1st it was 1382. she told me the latest number is 750!!! i can hardly believe i could have a drop of over 600 points in a 2 week period. i have a petscan tomorrow and am hoping the…
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Night Sweats
I am having real problems with night time sweats. It is something I used to have when I was first diagnosed. At the time my oncologist said it was the "activity of the cancer" causing the heat. It soon went as the chemo began working. However, it is back. My numbers are up to 1,600 ish and I know my cancer is growing. I…
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anyone on cisplatin?
or have been on it. will be starting this drug next wed. recent cat scan not good. Read that this drug can cause some serious side affects. Hoping this drug brings the numbers down for me. Whatever the side affects are I will get through it, just need some incouragement and hope and prays. thanks Kathy
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Trouble with chronic constipation
Hi, sorry I've been AWOL but I have just come out of hospital. It appears that my cancer has continued to grow and I have an increased thickening throughout my peritoneum. Everything inside of my abdominal cavity appears to be squashed and this is causing me extreme discomfort and pain. I have chronic constipation that I…
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Good news for a change!
I had my 4th dose of Doxil yesterday and my CA-125 was 18 !!! The Dr told me to "enjoy the summer....but stay out of the sun". I am not so sure about the 'stay out of the sun' part but I plan to enjoy many more summers!
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Side effects - do they get easier? any suggestions?
I just had my first treatment of chemo this past Wednesday and am now 5 days later feeling like i can do stuff again. I had a skin rash, constipation (still have that), muscle pain, flushed face, tiredness (a lot) and general feeling like crud for days. Does this get easier as you go with more treatments (I have to have 5…
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Laparotomy vs Laparoscopic for initial surgery?
Hello, I've been scheduled for surgery with my Gyno/Oncologist. I was wondering what all of your thoughts are having been through this, which surgery is 'best' for the first time? I have a Complex Mass on my right ovary, partially solid, partially fluid and have great concerns that it may be ruptured in laparoscopic…
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Sleep Apnea Tied to Increased Cancer Risk
http://well.blogs.nytimes.com/2012/05/20/sleep-apnea-tied-to-increased-cancer-risk/
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menopause symptoms
Hi; I'm 52, had my right ovary removed in April and since then have had about 10-12 hot flashes/night sweats every day not to mention the anxiety, fatique, and lack of concentration. So anyone out there have just one ovary removed and have menopause seem to go into high gear? So tired of drs right now so really don't want…
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cat scan results not good
The pain I'm having in my stomach are due to a tumor on my small bowel. the report reads-there are some dilated fluid-filled loops of small bowel measuring 3.9 cm in diameter, nonspecific and may represent ileus pattern, however, developing small bowel obstruction is conceivable. Next week (wed,) we will start cisplatin.…
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My Angel has her wings
Hello All, I want to thank you all for all of your kind words and encouraging thoughts. I am sorry to say that my mom was diagnosed on 2-19-12 and lost her fight to ovarian cancer on 5-14-12. I now have lost my dad, my mother in law and now my mom in a 2 year time span. We have no parents left (including parent in laws). I…
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42 YR OLD OVARIAN CANCER SURVIVOR ASKS WHAT NOW?
I was diagnosed at age 39 with Stage IIIA. Been in remission since 7/00, and my CA125 has been 10-14 ever since, so my prognosis looks good. BUT, I keep saying to myself: "What now?" I have a boring job, and life seems meaningless. I am married, and my husband and I are on different work schedules. We have no children…
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defeated and not feeling well
since they made me a stage 3 with lymph node involvement I have felt so defeated. My surgery was done with a laproscopy. I wonder if I would have done the other surgery if things would be better now? All I know is if one more person tells me to "stay strong" I am going to blow a gasket. It makes me feel like I am letting…
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The Proverbial Bus
I am crushed. One of my first thoughts when I was diagnosed was relief that I would not have to mourn the death of any of my five brothers or sisters, a small perk but it was important to me. My older sister has died in a car crash coming home from working a twelve hour shift at her hospital. The accident investigators…
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Abdominal fluid build up, now on Gemzar
Hello, I just joined this network and am wondering if anyone has any insight or experience with Gemzar chemotherapy and whether it works on abdominal fluid build up. My mom was diagnosed with advanced primary peritoneal/ovarian cancer 10/08. She initially had fluid build up in abdomen and around lungs, which is how she was…
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breast shrinkage?
Hello all...Lori Ann here! I am wondering if anyone has experienced a noticeable shrinkage in their breast size with this disease? I have not actually "measured", but it's pretty obvious that my breasts have shrunk AT LEAST one cup size. I have not had any other weight loss thus far....I have just found out I have this…
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poopergirl
how are you doing? haven't seen you post lately. Hope you feeling better. Been thinking about you. Love and prays. Kathy
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Where to go now?
A few weeks past I mentioned that my sister was showing symptoms of OVC or something. She has a mass in her left adrexena(sp)area...lower left abdomen. A pelvic sonogram revealed nothing. The mass was found via CT. She is anemic and has bathroom issues like no tomorrow. She can eat normally. She did have a thyroid issue…
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Feeling Overwhelmed
Hi Everyone - I'm new here so be gentle with me. ;) I just passed my 18 month mark from my last chemo treatment (6 treatments - 3 carbo/taxol, 3 carbo/taxotere - completed 11/18/10) and so far NED, so yay! I have horrible neuropathy in my feet (I'm 47 but often feel and/or walk like I'm 87!) and chemo triggered rheumatoid…
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waiting for test results AGAIN
ahh, where to start. I have Stage 1A,clear cell, tumor grade 3. I know the stage one is supposed to be encouraging but the clear cell and tumor grade are not and I was put on the standard chemo treatment. The whole time since diagnosis (2-29-2012) I had this nagging feeling there is still something wrong. I have a new onc…