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Chemo & nutrition?
Hi everyone, I'm again posting on behalf of my friend who was diagnosed with ovca in July. She had her debulking surgery in August, and will begin chemo in Sept. (Stage hasn't been specified, though the stats that were quoted, and the places it had spread to indicate Stage IV.) I would greatly appreciate any perspective…
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vaginal bleeding
Hi all, Thanks Bonnie and Pamela for your input. Guess I should have been more specific, so I'm putting this out again. I was dx in January with Stage IC OVCA and had 6 rounds of carbo/taxol ending June 1st. I started bleeding a bit around 6 weeks after my surgery. My oncologist has known about it since March, but was…
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vaginal bleeding
Hi all, Thanks Bonnie and Pamela for your input. Guess I should have been more specific, so I'm putting this out again. I was dx in January with Stage IC OVCA and had 6 rounds of carbo/taxol ending June 1st. I started bleeding a bit around 6 weeks after my surgery. My oncologist has known about it since March, but was…
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topotecan
Anyone Stage III-c that received topotecan/taxol their first time around?
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ca125
Hello everyone, I just wanted to let you know my ca125 is dropping. It is now at 67, Praise The Lord! I have had only 5 days of topotecan so far. I was scheduled to recieve another round this week but my White Counts are not coming back very good, they are 1.6 as of yesterday so my next treatment was postponed a week. My…
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ovarian Cancer
I was diagnosed with ovarian cancer 12-23-04. I have completed 6 treatments and don't know what is next. They say it is in remission. I would like to hear from someonet that has walked this path.
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pathology report
I'm newly diagnosed Ovarian Ca type IC with papillary serous cells in tumor and adenocarcinoma in peritoneal washings. Am scheduled for my first chem 8/25, sx debulking complete hyst was 7/27/04. Am thankful for my early dx but confused by two types of cells in path report--serous and adenocarcinoma. will be taking…
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Stage IIIC-LMP
Is there anyone out there who has been diagnosed with LMP ovarian cancer and had a recurrence. I am a 38 year old, who was first diagnosed with LMP ovarian cancer at age 32. I had a hysterectomy and debulking surgery at that time and followed up with exams and CA125's every 3 months. I was going on my sixth year of being…
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Confused
I haven't been diagnosed yet but I do have some questions and was wondering if you guys could help me. I am 26 years old and recently went in to the ER with pain in my sides...they did an ultrasound and found 2 cysts on my right ovary and alot on my left ovary with a nodule there as well. I had follow up care with my PCP…
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Topotecan question for first remission
Hi all, I couldn't believe I got a call from the clinic on Friday and they needed another ca125 in a week for me to be in the study so they postponed my chemo. Without asking me! I said take me out of the study. I told her the fluid in my abdomen is now pushing on my ribs and I am not waiting another week. I get the exact…
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New to this site - for a friend
Hi everyone, I've been reading through the messages, and first I want to say thank you for all the wonderful encouragement, the honesty and the community that I've found here. I have been reading the statistics, the medical abstracts etc etc. And when I stumbled on this forum, I was relieved to find you all. I'm sorry for…
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Dr appt
Goodmorning, it is now 3am. I have been up forever! Too many thoughts going through my head. I start chemo on Monday, get my port put in tuesday. I will be getting topotecan, on 1 week off 2 for a series of 8 treatments. Then we'll take a look and see if I can take another break or if we should continue getting treatments.…
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Rupture of mass upon removal
Does anyone know if having a cancerous mass rupture upon surgical removal ups the risk of having a recurrence? I am about two years out from my original dx, with no recurrence. Did six rounds of taxol/carbo after surgery. Thanks for any info available. Kate Beckman
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Food
Does anyone have any great suggestions for me in dealing with taste of food - or should I say non taste? I have had 9 of my 18 chemo sessions and it is getting worse. Thank you
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Recurrence update
I received my PET scan results and Dr Downs said it shows intermediate activity in my lymph nodes in my neck. Here is what the scan says: Bilateral supraclavicular and left paratracheal or AP window foci intermediate activity are noted. A focus of intermediate activity along the peripheral lateral aspect of the liver is…
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NOCC in Michigan
Hi everyone- It's official.. We're up and running in Michigan! Dear Family, Friends and Future NOCC Members: I am writing you to announce the formation of the Eastern Michigan Division of the National Ovarian Cancer Coalition (NOCC). It is my goal as the Eastern Michigan Division President to to raise awareness among women…
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vaginal discharge
Hi, I've posted a few questions before and have a new puzzlement. I was dx with Stage IC OVCA in January, just finished my sixth round of Taxol/Carboplatin June 1st. I've had a persistant vaginal discharge since about 6 weeks after surgery (complete hyterectomy), and it continues to grow in volume. My oncologist knows…
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Lymphocele?
My recent CT scan results mentioned that I have a 2cm lymphocele, 'as seen before'. My doctor did not mention this to me before, and doesn't seem concerned at this point. He said if need be, it could be aspirated. Anyone have info on this? My research turned up nothing conclusive. I had a total hysterectomy, some lymph…
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Drs Visit & Thank you
Thank you all for your support. We saw the Dr and will start Topotecan in a couple weeks. I also wanted to share a short story and I think it applies to all of us, but it's especially for you Mopar - it goes with your favorite verse. If you are of a different faith put the word that fits in place of the word God. For we…
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Gilda Radner Familial Registry
There is an excellent newsletter posted on the website of the Gilda Radner Familial Registry for 2004. It has interesting articles about HRT, health insurance/employability, genetic counseling (did you know that those pesky BRCA gene mutations can help men know if they're genetically predisposed to breast and prostate…
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clear cell ovarian
I'm trying to get info about how clear cell differs from "regular" ovarian cancer, and no one seems to have any real answers for me. I know it's supposed to be worse, but how? Does anyone have info or can you tell me where to go to find out?
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OVARIAN TO COLORECTAL??
Has anyone had experience with colorectal cancer after being in remission with ovarian. I'm not having any symptoms, except the doctor found something on the wall of the rectum. I will go back tomorrow for another exam and he will decide what to do at that time. Anyone that can dispell my fears? I know that's asking alot -…
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ADNEXAL CYST?
I'm a 4 year OVCA survivor, stage 1C. Had total hysterectomy, omentum, lymph nodes removed also. Six rounds of chemo. Just received a copy of my recent CT scan results. It showed a 2cm adnexal cyst ('as in previous test'). I had no idea this was present, so I'm surprised and concerned. Seeing my doctor tomorrow, but in the…
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Looking for someone to interview
Hi! My name is Lauren and I go to Temple University. I am taking a Magazine Article Writing class and we are working on a hypothetical Cancer Survivors magazine. I was wondering if i could interview someone via either phone or e-mail to help get some details about what it is like to have ovarian cancer. The interview would…
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Autologous Stem Cell Transplant
I've just been through my second set of treatments for OVCA. Diag. in Dec. of 2002 with Stage IV, had a total of 11 rounds taxol/carbo plus debulking surgery after 3 rounds. Went into a partial remission (still had pleural effusion sp?) for 7 months. At that point my CA125 was 280. Started up with taxol/carbo again and had…
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Second Look Surgery
I am 39 y.o. and recently diagnosed with Stage II ovarian cancer on 3/13/02. I had a hysterectomy, salpingectomy and bilateral oophorectomy followed by 3 courses of chemo(taxol & carbo). I completed my last treatment on Friday and so far everything appears to be progressing nicely. My gyn.oncologists mentioned the…
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TealRibbon Update
Hi Fellow Warriors! Had my CT scans yesterday. Got the dye but the pre-meds kept any reactions at bay. The doctors office called today and my CT Scans were all NORMAL! I have not gotten the latest CA 125 results but at least there is not anything really big growing. I was so happy! Thank you all for your prayers and…
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Thanks from TealRibbon
Just wanted to thank ALL OF YOU who were kind enough to post supportive messages. You guys are the best! Hope you are all doing well. I will let you know how the CA125 turns out. Hugs, Sandi (TealRibbon)
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new--have a question
My mom was operated on for stage 3 ovca in early April, after a few surgical set backs we are ready to start treatment tomorrow. It has been 6 weeks since the surgery and about two weeks ago she started with a constant nausea feeling. She drinks supplements, but hasn't been able to eat much real food. We see her dr…
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NOCC Chapter in Michigan
I wanted to let everyone know that I'm going to start a Michigan Chapter for the NOCC, specifically the Detroit/Grosse Pointe area. Most likely in August. If anyone is interested in joining our group, please e-mail me at als22937@hotmail.com. The NOCC is a National organization. Their main goal is to raise awareness of…