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heartbroken
I am writing this from Ireland, and I am thrilled to have found this website because I have read lots of messages on the discussion board and its great to see I am not alone in the way I am feeling. To all the ladies out there who are fighting ovarian cancer I send a big huge hug as you all have great courage to be facing…
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CA125?
Hi, I was wondering I know that the CA125 is a blood test that gives a possible clue that Ovarian Cancer is present but what do the numbers mean.I was talking to my sister last night,I had encouraged her to get copies of every test or anything done while she is going through this process.Well she went to see her surgeon…
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Update
Well I have been on quite the rollercoaster ride since Feb.with the first biopsy and it coming back negative to the surgery and now it is disease. My doctor is waiting for results from California right now to see if he will put me on Tamoxifen or another drug, depending on wheather this is estrogen or progestrone fed, my…
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Help me catch my breath...
March of 04 I have a hysterectomy because of endometriosis and large fibroid tumors that were causing me a great deal of pain. I requested that my ovaries be left intact as long as there wasn't any medical reason to take them. At that time I had no reason to suspect I had cancer and the word was never mentioned. For about…
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please respond
hi. PLEASE help me figure this out, this is so confusing. my mom was diagnosed with stage 3 ovarian cancer sept 2004. had surgery and carboplatin and taxol. responded well, in remission until 11/05. resumed chemo treatment (carboplatin) 12/05. had problems with nausea and vomitting. thought it was the chemo. but just got…
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Dr Visit
It was another long and frustrating day! I found out I was scheduled to have a ct scan Tuesday, but no one called and told me ..... sometimes weekly visits to the clinics add up to headaches and frustrations. Oh well now that I got to complain I feel better. :-) Now here is the latest. Today was my Dr Appointment with the…
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Only Taxol
It looks like I will need some maintenance chemo and last time I spoke to the oncologist he had mentioned perhaps doing a low dose of just Taxol. Has anyone had this? Are the side effects less than with carbo/taxol. My hair is starting to grow in nicely will it fall out again? I already had 8 rounds of carbo/taxol BEFORE…
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New to the Network
I recently joined the Network because my mother-in-law is fighting ovarian cancer. She was first diagnosed in April 04. She had surgery & chemo immediately. Surgery got 95% of the cancer. The cancer went into remission in Oct 04. It was back in May of 05 & after chemo was in remission again in Aug. The first of Nov it was…
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Info on Thalidamide vs Tamoxofin Study
Hi, My mom has stage 4 ovarian cancer and has been through with chemo for 2 years. Her CA125 has been creeping up slowly for nearly a year and is now around 65. The doctor said the slow creep is unusual, with no symptoms and a clean CAT Scan. They want to put her in a study comparing the effectiveness of thalidamide vs…
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Assay-Directed Clinical Trial
A prospective, randomized clinical trial of physician's choice chemotherapy versus ATP assay-directed chemotherapy in non-surgically debulked, platinum-resistant ovarian cancer was presented by Ian Cree, M.D., Ph.D., Director, Translational Oncology Research Centre, Portsmouth, England at the May, 2005 ASCO meeting in…
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Sugery for Ovarian Cancer
It is recommended that patients with ovarian cancer undergo aggressive de-bulking surgery up front, prior to chemotherapy. It has long been observed that those patients whose tumors can be resected without any visible residual disease tend to live longer than those who are left with residual tumor after de-bulking surgery.…
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Information please
Hi. I am still not sure if I have ovarian cancer or not. About a month ago I had a ultrasound and then an internal ultrasound. They found a very suspicion growth with a ledge. They want to wait two more months to see if it is growing or not. There is pain, gas, bloatedness and I am having a real problem with bowel…
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Staging????
As I posted earlier I had surgery on April 28 and they were unable to remove turmor(s) or do hysterectomy because of position of tumors. Had 8 rounds of carbo/paxil. Tumors shrunk 39%. December 1st had my surgery. Surgeon said he was amazed at what he found and that he was able to remove ALL of the tumors as well as…
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newly diagnosed
HI im new to the network
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Nutrition
Nov 28 was my daignosis of ovarian cancer, right ovary. I had a partial hysterectomy, because there was a mass around the colon and it couldn't be removed right then.3 cycles of chemo recommended then surgery. I'm right now a week away from my first chemo treatment 12/22 and am having a tough time with my digestive system.…
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Merry Christmas
Wishing everyone a Merry Christmas and a Happier New Year! Paula
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Update from Dr visit
I saw the Dr yesterday, my tumor markers are up, they are at 142 as of Wednesday. I am still in the study, we are going to give it one more month and if they have not reversed direction, I will start on the drug Gemzar. My hair is just starting to fall out so maybe the small daily doses are just starting to work. I have…
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Switch health ins in NY
My question is about health insurance after being dx with OVCA. We live and work in NY state. My husband has health insurance through work and covers me. I want him to quit his job, but friends warn me about switching insurance companies with a "pre-existing" condition. Has anyone had to switch? If so, did you lose…
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My Sister...
Hello Everyone, I am a BC survivor but I'm trying to gather information for my sister who doesn't have a computer.About a week and a half ago she started experiencing swelling in her abdomen-she went to her regular Doctor yesterday(Monday)they did a ct scan and they called her back to be there today at 9am.-they said it…
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Had my surgery
I had my surgery and it went great. Dr. says he got it ALL. Everyone is celebrating. I has on a natural high till yesterday. Then all the old feelings and fears came rushing back. Why can't I get over this depression and enjoy this God given 2nd chance?
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MORE SURGERY
Well, it's official. I will have surgery, probably in January. This will be to remove a 'lymphocele' on the bowel. My CA125 had been climbing. Two months ago it actually dropped 4 points, but this last month it went up to 30. So, my doc is not comfortable with this lymphocele. Recent ct scans show nothing else (except for…
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non-pain physical misery from chemo
My wife, infused with carboplatin and paclitaxel for ovarian cancer, suffered 18 weeks of debilitating fatigue, curled up in a fetal position, and "I-wish-I-could-die" physical misery -- but not pain. Has anyone else experienced physical misery and suffering from chemo -- distinct from pain, nausea, and other more specific…
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Emotional Mess
I went to a friend's daughter's wedding on the week-end. Everyone was so pround and said it was such a milestone because I have not been out socially since April. BUT it was the saddest night of my life. I looked at my beautiful two sons with their gorgeous girlfriends and all I could think was "am I going to be at their…
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taxotere. My mom has a reoccurance
Hi Everybody, Happy Thanksgiving to all! I posted a couple of weeks ago about my mom 's rising CA -125. The doctors at Columbia Pres. did a CT-Scan. They found two lesions on the liver. It is back to chemotherapy. My mom feels healthy and great so we are so shocked it came back. It just sucks that she has to go through…
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a whole new experience
Hello everyone. Recently in my anatomy class, my teacher handed everyone an envelope and inside each person received a diagnosis for a chronic illness, and we were asked to spend the remainder of the semester simulating the experience of having that particular condition. I was "diagnosed" with ovarian cancer. I have been…
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Painful after effects of chemo
I was operated on for ovarian cancer in 1995. I had 6 months of carbo and taxol. I noticed at about the 4th treatment, discomfort in my side and leg. It is still with me. There is also pain in my back. I have done the bone scan, Catscans, MRI etc. and tumor marker is at 17 so feel confident this is not a reoccurrence since…
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I am new 2
Hellow to all,I am new to this , and think that it is a wonderful thing.I found out that I had ovca on Dec.2nd. 2000, during surgery to remove a 16cm. mass.Like all of you, cancer was the furthest thing from my mind.I had a total hysto. , neg. lymph nodes, the cancer was self-containedat at a Stage IIc.I started chemo.…
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cervical cancer survivor
I am a survivor of cervical cancer. But I always have the fear of it coming back. I had a dr. tell me to go home and get my house in order because I would be dead within 6 months. That was 13 years ago and he was wrong. I would like to talk to survivors of cancer because many of my friends don't understand my fears.
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Single Agent Carboplatin
Single Agent Carboplatin For First-Line Ovarian Cancer Single-agent carboplatin is acceptable as first-line chemotherapy for ovarian cancer, with its superior toxicity profile and equivalent survival benefit compared with other regimens, according to the results of a randomized trial reported in the August 17, 2002 issue…
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Ovarian Cancer?????
I went to the Dr a month ago with severe stomach problems. Cramping contipation, diarria, bloating and not feeling well. While being examed the Dr said I needed an ultrasound because my left ovary was large and my uteris was large. I had the utrasound and they found a cyst that has completely replaced my overy and is 7.7…