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Staging????
As I posted earlier I had surgery on April 28 and they were unable to remove turmor(s) or do hysterectomy because of position of tumors. Had 8 rounds of carbo/paxil. Tumors shrunk 39%. December 1st had my surgery. Surgeon said he was amazed at what he found and that he was able to remove ALL of the tumors as well as…
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newly diagnosed
HI im new to the network
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Nutrition
Nov 28 was my daignosis of ovarian cancer, right ovary. I had a partial hysterectomy, because there was a mass around the colon and it couldn't be removed right then.3 cycles of chemo recommended then surgery. I'm right now a week away from my first chemo treatment 12/22 and am having a tough time with my digestive system.…
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Merry Christmas
Wishing everyone a Merry Christmas and a Happier New Year! Paula
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Update from Dr visit
I saw the Dr yesterday, my tumor markers are up, they are at 142 as of Wednesday. I am still in the study, we are going to give it one more month and if they have not reversed direction, I will start on the drug Gemzar. My hair is just starting to fall out so maybe the small daily doses are just starting to work. I have…
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Switch health ins in NY
My question is about health insurance after being dx with OVCA. We live and work in NY state. My husband has health insurance through work and covers me. I want him to quit his job, but friends warn me about switching insurance companies with a "pre-existing" condition. Has anyone had to switch? If so, did you lose…
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My Sister...
Hello Everyone, I am a BC survivor but I'm trying to gather information for my sister who doesn't have a computer.About a week and a half ago she started experiencing swelling in her abdomen-she went to her regular Doctor yesterday(Monday)they did a ct scan and they called her back to be there today at 9am.-they said it…
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Had my surgery
I had my surgery and it went great. Dr. says he got it ALL. Everyone is celebrating. I has on a natural high till yesterday. Then all the old feelings and fears came rushing back. Why can't I get over this depression and enjoy this God given 2nd chance?
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MORE SURGERY
Well, it's official. I will have surgery, probably in January. This will be to remove a 'lymphocele' on the bowel. My CA125 had been climbing. Two months ago it actually dropped 4 points, but this last month it went up to 30. So, my doc is not comfortable with this lymphocele. Recent ct scans show nothing else (except for…
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non-pain physical misery from chemo
My wife, infused with carboplatin and paclitaxel for ovarian cancer, suffered 18 weeks of debilitating fatigue, curled up in a fetal position, and "I-wish-I-could-die" physical misery -- but not pain. Has anyone else experienced physical misery and suffering from chemo -- distinct from pain, nausea, and other more specific…
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Emotional Mess
I went to a friend's daughter's wedding on the week-end. Everyone was so pround and said it was such a milestone because I have not been out socially since April. BUT it was the saddest night of my life. I looked at my beautiful two sons with their gorgeous girlfriends and all I could think was "am I going to be at their…
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taxotere. My mom has a reoccurance
Hi Everybody, Happy Thanksgiving to all! I posted a couple of weeks ago about my mom 's rising CA -125. The doctors at Columbia Pres. did a CT-Scan. They found two lesions on the liver. It is back to chemotherapy. My mom feels healthy and great so we are so shocked it came back. It just sucks that she has to go through…
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a whole new experience
Hello everyone. Recently in my anatomy class, my teacher handed everyone an envelope and inside each person received a diagnosis for a chronic illness, and we were asked to spend the remainder of the semester simulating the experience of having that particular condition. I was "diagnosed" with ovarian cancer. I have been…
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Painful after effects of chemo
I was operated on for ovarian cancer in 1995. I had 6 months of carbo and taxol. I noticed at about the 4th treatment, discomfort in my side and leg. It is still with me. There is also pain in my back. I have done the bone scan, Catscans, MRI etc. and tumor marker is at 17 so feel confident this is not a reoccurrence since…
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I am new 2
Hellow to all,I am new to this , and think that it is a wonderful thing.I found out that I had ovca on Dec.2nd. 2000, during surgery to remove a 16cm. mass.Like all of you, cancer was the furthest thing from my mind.I had a total hysto. , neg. lymph nodes, the cancer was self-containedat at a Stage IIc.I started chemo.…
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cervical cancer survivor
I am a survivor of cervical cancer. But I always have the fear of it coming back. I had a dr. tell me to go home and get my house in order because I would be dead within 6 months. That was 13 years ago and he was wrong. I would like to talk to survivors of cancer because many of my friends don't understand my fears.
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Single Agent Carboplatin
Single Agent Carboplatin For First-Line Ovarian Cancer Single-agent carboplatin is acceptable as first-line chemotherapy for ovarian cancer, with its superior toxicity profile and equivalent survival benefit compared with other regimens, according to the results of a randomized trial reported in the August 17, 2002 issue…
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Ovarian Cancer?????
I went to the Dr a month ago with severe stomach problems. Cramping contipation, diarria, bloating and not feeling well. While being examed the Dr said I needed an ultrasound because my left ovary was large and my uteris was large. I had the utrasound and they found a cyst that has completely replaced my overy and is 7.7…
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Dr appointment and new study
Goodmorning, I saw the oncologist yesterday and was told I do have many new areas of cancer ranging in size from about 1cm to a little over 2cm. I was given a couple options of treatment, one is a new research study group. I chose the study group. The drug is docetaxel(taxotere). It is not a new drug and is used for…
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best wishes to you all
Hi I mailed you all a while back telling you the my mams story. I just wanted to mail to send everyone best wishes and hope they are doing ok. Also i am so appreciative of this website, i live in ireland and over the past few weeks have been doing some research in to ovarian cancer here. We have in ireland a support group…
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Need your support
Hi, My girlfriend just told me that her mother has been diagnosed with Ovarian cancer following a leprotomy. I am in the US away from her and very worried about her mother. The Biopsy results show that the cancer is at stage 3c (T3c N1 M0). After some googling I found out that only about 40-50 percent women survive beyond…
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New here,Need a friend! Please!
I had a bunch of test done at the hospital.Exrays showed Tumors,Cysts & polops.In Overies & lots of other places in that region. I`ve been having pain in my stomach,lower abdoman & lower back.It`s getting worse.Im a little scared. they said we need to do a Lyproscopy(where they go in through your belly botton)to find out…
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Tealribbon
I am just wondering if anyone has heard from Sandi? I have sent her emails via CSN mail but no response and I never did get any other email address for her. I know she was not doing well the last time she posted. If you don't want to leave a message on the board would you please email me. If you have an address for her I…
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This message board is very quiet
I have noticed this last week that this board has gone very quiet. It would be nice to think that everyone is well and has no need for help but I don't think we could be that lucky. If you have all found the miricle cure could you please let me know what it is!!!!
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thank you all for your support
Hi Everyone, So nice to see the notes left and recieve the email. God bless you all! I have an appointment to see the Gyn/Onc on November 10th. After the results hit me I had a good cry and now ready for the next leg of this journey, sure does take you on quite a ride sometimes. It was hard to digest how the cancer could…
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Markers rising and pet ct scan
Hi everyone, just an update. My tumor markers were up the first of October so a pet/ct scan was scheduled. Unfortunately I just got the report in the mail and there is way more cancer activity. They wanted to schedule an appointment for me to see the Dr sooner than Dec 8, but I asked to wait until I read the report. It…
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What to expect now?
HI I am sorry for what so many of you are going through! My mother in law was diagnosed with ovarian cancer in Aug of 2003, she had had a hysterectomy 5 yrs before! since then she has had 1 surgery to remove tumours, been on carboplatin until a remission, it came back less the 6 months later,and had spread to her liver and…
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Advice needed on recurrence please
I am a 2 year survivor of OC. 2 years ago I had Carboplatin to shrink the tumour before surgery. Last year I had surgery and chemo Carboplatin/Taxol after which my CA125 was down to 10. After six months remission CA125 began to rise, ct scan and other tests shows a tumour next to my bowel. Surgery is too dangerous as the…
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psammocarcinoma
Hi Jonny here,I mentioned my wifes condition in a previous message,further to this she also has many adhesions which caused multiple SBO's thus she now has an ileostomy bag,the adhesions are caused by her many procedures and the prognosis they have given us is not the best,but she will fight on,as she always does,is there…
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psammomcarcinoma
My wife A'lisa has this rare type,I wondered if there is anyone out there who has this,she has had it for 10 years and it has progressed to a more aggressive state,you can email if you wish also Regards Jonny