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Bad to worse
Just a quick note to let you all know that I am not doing well. The cancer has spred to my lungs and liver. The experimental trial drugs did not work for me. I now have fluid around my lungs and they want me to have it drained. Seeing the doctor this week. I feel sleepy all the time. I am trying not to let myself get too…
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Diagnosis
I was told that I had Grade 3B Epithelial High-Grade Ovarian Carcinoma to start off with. On one of my last visits he was reading some of the reports and said that mine was rare, that it was unusual to start in the ovary. I said " What is rare?". He said my cell type. He said that I have Mixed Mullerian Tumor of the Ovary.…
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Dr visit
Hi Everyone! Well today was dose #6 of doxil. My ca 125 was at 18 and last month 17 so it has dropped as low as it's going to go and holding. Last time on Topotecan I hit 17 and held it for 2 weeks and then had a steady climb. I was hoping for a different number this time but grateful for doxil doing the job it did. I am…
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ovarian cancer blood work up!!
Hi Ladys, I go for chemo on the 14th. In one month the blood work has gone into the thousands,3,000. Does this mean I'm done for? I need someone I can e-mail. I'm crying, my belly looks like I'm going to have a baby. I don't want to eat but I know I have to be fit for the chemo. Will the power drinks help me? I had B/b…
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Just Diagnosed and Ready to start Chemo
Hello everyone! I was recently diagnosed with Ovarian Cancer and had surgery on July 1. I will start chemotherapy on July 20. Any information on what to expect from the chemotherapy will be appreciated. The fear of the unknown is overwhelming and I will be glad when I start the treatments.
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psammocarcinoma
My wife has psammocarcinoma a very rare form of ovarian cancer, and she is pregnant. I would like to know if anyone out there has had or knows someone who has had this type of cancer. We are about to have our baby and finish the cancer staging. I just want to hear from someone other than a doctor. Any help would be great.
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Cisplatin IP treatment
Does anyone have information of use of cisplatin IP treatment after completion of standard first line treatment???
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Just had an utrasound no results yet
The technicial told me that on my left ovary there was fluid surrounding it an could be from a ruptured cyst. I looked at the picture as she talked and all around my ovary was just black. I've been very bloated for over a month and have gained 12 pounds in 2 months and I look like i'm aoubt 5 mos. prego. I feel full and…
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Almost to a chemo break
Whew! What a long day yesterday was, left home at 6am heading for the U and thought I would be home around 1:30 at the latest. But my port didn't want to work so 2 1/2 hours were spent dinging around with first heparin and then TPA to get it to work. The nurse even tried to give me my prechemo drugs with a regular IV just…
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Carcinomatous Meningitis (Ovarian)
Leptomeningeal Carcinomatous (Carcinomatous Meningitis) Ovarian cancer does not commonly involve the nervous system. Brain metastasis is a rare complication of ovarian cancer with only 67 well documented cases in the literature until 1994. A multi-institutional study of 4027 ovarian cancer patients over 30 years identified…
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sister's last hope
please help!! my sister 42 was diagnosed with clear cell ovarian cancer stage 1 last november. she had hysterctomy and 6 rounds of chemo (carbo/taxol). A month later found fluid in abdomen and 3 weeks later tumors in lymph nodes. yale dx recomends surgery with "precision chemo" (for rest of her life). does anyone know of…
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just diagnosed
Hi, I have just been diagnosed with cancer. I'm scared and I just want to get this out as soon as possible. I also want to hear from survivors. I have seen a lot of cancer in my family, and some have survived, some not. I have so many people praying for me and much support at home. Guess I just want to hear some happy…
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TealRibbon Update
Hi Ladies, I have not been doing well as far as my cancer goes. Carboplatin stopped working, numbers and tumors growing. The good news, I was accepted into a phase three clinical trial of a new form of Taxol called Xyotax. I had my first treatment today. SO far feeling pretty good. The oncology nurse who administered the…
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CyberKnife. New Hope.
If you have been told that you have an inoperable tumor(s), please look into CyberKnife, This new treatment is painless, non-invasive, no side-effects, no frame required radiation surgery that is allowing previously inoperable tumors to be treated. For more info, go to www.cksociety.org. I do not work for CyberKnife or any…
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Miracles Do Happen
On March 29, 2005, I underwent surgery for the removal of a cancerous ovarian cyst, both ovaries, both tubes,and two lymph nodes. After the operation, my surgeon told me that the cancer had spread to other sites: the liver and the colon... That I would require chemotherapy....She later discussed my case with my GP and…
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update on Daughter's tumor
Here is the latest on Michelle. Her visit at the Mayo was good. She actually sounded like she wasn't so stressed out. She met with the Doctors on Thursday. Here is what she found out, the tumor is right behind her left temple and is 1.5cm and slow growing, appears non cancerous, her black out spells are from low blood…
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new meds
Have any of you tried Elavil for the neuropathy from the chemo? If so did you have any side effects? What were they and how long did they last? My mother has been on for a couple of weeks now and still gets very light headed and dizzy from it. I just wanted to know if anyone else has had problems with it........Thank you.…
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What do we do now? It's back.
It ia the middle of the night and I can't sleep. We just found out on 4/14/05 that my mother in law's cancer is back and has invaded her bowel. She has some ascites and is having trouble catching her breath. Her original gyne/onc says we can start chemo or just try and make her comfortable. We are not giving up that…
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Stage 1a diagnosed - what did you do?
I recently had a total abdominal hysterectomy because of a large tumor on one ovary. They found Stage 1a, serous ovarian cancer in that ovary, but it didn't appear anywhere else. One doctor has recommended four treatments of chemo (carbo/Taxol), and a second oncologist tells me chemo isn't necessary. I'm waiting for a…
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Chemo treatments..
It looks like I'll be having chemo again. My dr. is thinking about useing Cisplatin and Gemzar. Has anyone been on these for treatment?
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New Taxol Study
Hi, I just completed 5 rounds of Taxol & Carboplatin. I am in remission. My oncologist suggested I try a Taxol maintenance dose for three treatments because it showed prolonged remission in ovarian cancer. Since I have significant peripheral neuropathy from the Taxol, he also recommended the option of Carboplatin only for…
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Doxil is working.. P.T.L
Hi everyone, It has been awhile since I've posted an update so here it is and good news at that. Yesterday was my Dr appointment, labwork and chemo. When we saw the Doc he said not to expect my counts to go down until chemo #4, I said that my tumor markers had slowed down in their increase and that I felt they would be…
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my moms cancer
I was on this group about a year ago looking for post surgery and chemo treatment info and everybody was very helpful especially with the nutritional info and support. Anyway to make a long story shot mom was treated for about 7 months with treatments for ovarian cancer only to have the tumors all back in Nov. There was…
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Chemotherapy Drug Concession
Drug Concession Profits are Hugh for Cancer Doctors Cancer doctors have the financial incentive to select certain forms of chemotherapy over others because they receive higher reimbursement. Medical Oncologists are pocketing hundreds of millions of dollars each year by selling drugs to patients, a practice that almost no…
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Chemosensitivity Testing
Chemo resistance may be the one reason many ovarian cancer patients are only receiving very short remissions (not cures). The effectiveness of taxol/carboplatin combination is limited because of the late stages of recurrent ovarian cancer and most patients develop resistance. Most cancer patients have the drug bounce off…
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Chemosensitivity Testing
There are few more imprecise and drastic measures than chemotherapy as a treatment for cancer. The process involves poisoning a patient's system with toxic chemicals in an effort to kill malignant cancer cells. As one who has personnally seen a loved one suffer, I can attest to its destructive and debilitating side…
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Changing the Identity of Medical Oncology
Under previous law, Medicare covered chemotherapy as well as radiation treatment for cancer patients, but did not pay for oral-dose anti-cancer drugs, unless they were available in both oral and injectable form. Medicare Part B covered a total of seven oral-dose anti-cancer drugs under this provision. Older Americans were…
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Officially in remission
I have ovarian cancer stage III and have just completed my first round of taxol and carbo. I now have a clear CT and a CA125 of 11, so I have been told I am in remission. I started a 12 month series of taxotere two weeks ago and so far haven't had many problems. I do wonder if everyone with ovarian cancer fears every…
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tamoxifen after chemo
I just finished 9 rounds of taxol/carbo, have felt rotten for 8 months, had debulking. I've had extreme bone pain, fatigue, hair loss, etc. I'm stage 4 oc. My gyn/onc Dr now wants me to start tamosifen. In researching this drug I find similar side effects and lots of people who say "I had to stop taking it" but don't say…
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adnexal mass
hi, i had a virtual colonoscopy done last week and they asked me to repeat it, could not keep from coughing during the scan and the movement artifacts messed the test up. i am scheduled to go again on thursday. in the meantime, they sent a partial report from the first scan that says i have a 6x3cm left adnexal mass. i…