Any one here have Granulosa Cell Tumor of the Ovary?

beckybryant
beckybryant Member Posts: 2
in Ovarian Cancer #1
I have GCT. It started as a "cyst" that ruptured, which in fact it was the tennis ball sized rt ovary filled with a tumor. After removal of the rt ovary and tube and upon reviewing the path report, my gyn. referred me to a gyn/onc. who 2 weeks later did a robotic total hysterectomy. The path report is back and GCT cells showed up on the right side and outside of uterus. Now he wants me to have 6 runs of chemo and hormone blocker after chemo treatment...

Discuss please....and God Bless

Comments

  • GCTF
    GCTF Member Posts: 1
    #2
    Hi,

    I am sorry to hear that you find yourself battling this rare cancer, but am able to point you to our resources at www.gctf.org.nz

    As the leading resource for women with GCT we strive to maintain a collection of information for both doctors and survivors, as well as push for GCT-specific research.

    As an outgrowth of the world's-first GCT survivors weekend, we have started a Google group called GCTF Warriors where you will find a community of over 70 (so far) survivors who share ideas, experiences, and other information. There is a link to the group on our website.

    We are not medical professionals, and do not provide medical advice or referrals, but we do offer information about what we have discovered through our research. In that vein, I would strongly advise, if you haven't already, that you consult a gynaecological oncologist and feel free to ask about their history and success with GCT.

    Finally, feel free to ask any questions as we always try to assist our members in their personal fight.

    Kind regards,
    Powel Crosley, Managing Director - Granulosa Cell Tumour Foundation New Zealand
  • Lighthouse4
    Lighthouse4 Member Posts: 2
    #3
    GCTF said:

    Hi,

    I am sorry to hear that you find yourself battling this rare cancer, but am able to point you to our resources at www.gctf.org.nz

    As the leading resource for women with GCT we strive to maintain a collection of information for both doctors and survivors, as well as push for GCT-specific research.

    As an outgrowth of the world's-first GCT survivors weekend, we have started a Google group called GCTF Warriors where you will find a community of over 70 (so far) survivors who share ideas, experiences, and other information. There is a link to the group on our website.

    We are not medical professionals, and do not provide medical advice or referrals, but we do offer information about what we have discovered through our research. In that vein, I would strongly advise, if you haven't already, that you consult a gynaecological oncologist and feel free to ask about their history and success with GCT.

    Finally, feel free to ask any questions as we always try to assist our members in their personal fight.

    Kind regards,
    Powel Crosley, Managing Director - Granulosa Cell Tumour Foundation New Zealand

    new to cancer

    hello, i am just looking at you post and thought i would see what you are about

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