Pet CT Scan

I had my Pet CT Scan done yesterday, Monday July 30 in the afternoon. I was informed
the results would be in the next day Tuesday. I find this very interesting. Why do some
patients have to wait so long for their results of a scan?

I am seeing my oncologist Monday August 6. Will I call today Tuesday, or tomorrow Wednesday? NO. I am so scared things might have changed. If so, let me not know
until next week. Has anyone felt like this?? I want this week to be mine. Ignorance
is bliss right now. I have been in remission for 2 1/2 years without any treatment.

Love and hugs, Maggie

Comments

  • jimwins
    jimwins Member Posts: 2,107
    Anxiety is awful
    Hi Maggie,

    I'm fortunate that I have always gotten my results the same day
    whether it's CT, PET, or blood work. I know sometimes the delay
    is having it analyzed. The cancer center I go to is part of
    a medical school and many of the doctors I deal with are also
    professors. That also means I have had to deal with many students
    and interns. At one point while in the hospital, I had 15 doctors
    standing around my bed when they announced I was going to need surgery.

    I (ever the joker) asked if I could collect money from each of them to
    help pay for it ;).

    The waiting is hard and full of anxiety. I go on August 6th for my
    next round of CT scans, etc. I'm already a little nervous about it.

    You've been doing great and I'm optimistic that will continue for you!
    Please keep us updated and thank you as always for your wonderful posts.

    Hugs and love back with warm and positive thoughts,

    Jim
  • anliperez915
    anliperez915 Member Posts: 770
    Hi Miss Maggie
    Hi Miss Maggie,
    I can certainly understand how you feel, I sometimes feel like you. I just don't want to know anything and just be ignorant and whatever happens happens! But then my inner voice starts to nag at me asking questions and wanting to know whats going on.
    Whatever you decide to do (wait or not) please let us know what the doc says. Hope all is well with you, keep the faith and stay strong sweet Maggie. Many hugs to you!

    Sincerely,
    Liz
  • allmost60
    allmost60 Member Posts: 3,178
    Scans and waiting...UGH!
    Hi Maggie,
    Yes...I always feel anxious and worry until my doctor goes over the scan results with me. I have my results mailed to me which I go over before I even see my doctor. By the time I go in to see him,(usually 10 days later) I've got a list of questions a mile long..ha! I just compare the new scan to the last scan and that gives me a pretty good idea if anything has changed or not. I know it's impossible not to worry, but if you are feeling good and not having any problems, then I'd take that as a good sign that all is well. I'll have my lap top with me while on vacation, so I'll check in each day to see whats happening with everyone. I've got you in my prayers Maggie. Love you....Sue
    (FNHL-2-3a-6/10)
  • AngeH
    AngeH Member Posts: 15
    The Waiting, Is the Hardest Part
    (Now I have that Tom Petty song in my head. lol)

    It all depends on the docs, and the imaging place, really - I think. My doc would always have my scans/reports the next day - or in the one case, the same day, I had them done. But, because he's out of Providence Hospital in DC, and I live in Mount Airy, which is almost 2 hours, I would wait to see him when he did his office share days a whole lot closer to me. I had waited a week for my last PET scan results. But, I sure do know about the waiting.

    I misunderstood my doc when I thought I only had to wait out the "full round" of 3 weeks before getting my last PET scan. Imagine my devastation when he said SIX weeks, then get the PET scan. I thought I was going to cry! lol! But, I waited it out... *sigh*

    Next week is my 6 week follow up to talk about the maintenance part. So wondering which way we're going to go - Rituximab rounds, or maybe the BiovaxID vaccine.
  • scuttlebug11
    scuttlebug11 Member Posts: 175
    AngeH said:

    The Waiting, Is the Hardest Part
    (Now I have that Tom Petty song in my head. lol)

    It all depends on the docs, and the imaging place, really - I think. My doc would always have my scans/reports the next day - or in the one case, the same day, I had them done. But, because he's out of Providence Hospital in DC, and I live in Mount Airy, which is almost 2 hours, I would wait to see him when he did his office share days a whole lot closer to me. I had waited a week for my last PET scan results. But, I sure do know about the waiting.

    I misunderstood my doc when I thought I only had to wait out the "full round" of 3 weeks before getting my last PET scan. Imagine my devastation when he said SIX weeks, then get the PET scan. I thought I was going to cry! lol! But, I waited it out... *sigh*

    Next week is my 6 week follow up to talk about the maintenance part. So wondering which way we're going to go - Rituximab rounds, or maybe the BiovaxID vaccine.

    hate waiting
    m aggie ihate waiting it is hard i hope you have a perfect scan love and prayers denise
  • miss maggie
    miss maggie Member Posts: 929
    jimwins said:

    Anxiety is awful
    Hi Maggie,

    I'm fortunate that I have always gotten my results the same day
    whether it's CT, PET, or blood work. I know sometimes the delay
    is having it analyzed. The cancer center I go to is part of
    a medical school and many of the doctors I deal with are also
    professors. That also means I have had to deal with many students
    and interns. At one point while in the hospital, I had 15 doctors
    standing around my bed when they announced I was going to need surgery.

    I (ever the joker) asked if I could collect money from each of them to
    help pay for it ;).

    The waiting is hard and full of anxiety. I go on August 6th for my
    next round of CT scans, etc. I'm already a little nervous about it.

    You've been doing great and I'm optimistic that will continue for you!
    Please keep us updated and thank you as always for your wonderful posts.

    Hugs and love back with warm and positive thoughts,

    Jim

    Everyone Thank you
    Thank you so much everyone for sharing my journey.

    Jim, when I see my oncologist Aug 6, I will be thinking of you getting your scans.
    I know you will let all of us know the results as soon as you know. You have such a
    great sense of humor. I always look forward to reading your posts.

    Sweet Sue, this Saturday you leave for your vacation. I will let everyone know my
    results Aug 7. Thank you always for being my friend.

    Angie, thank you also. I don't remember if I ever replied to your posts. Please know,
    I know everything you have been going through. I read every post. Let all of us know
    if your doctor suggests Rituxan?

    I feel good and expect to have a good week. I choose to wait for the results. The
    cancer center I go to is also a teaching hospital. Montefiore Hospital- Albert Einstein
    in New York.

    Love, positive energy to all. Love Maggie
  • miss maggie
    miss maggie Member Posts: 929

    Hi Miss Maggie
    Hi Miss Maggie,
    I can certainly understand how you feel, I sometimes feel like you. I just don't want to know anything and just be ignorant and whatever happens happens! But then my inner voice starts to nag at me asking questions and wanting to know whats going on.
    Whatever you decide to do (wait or not) please let us know what the doc says. Hope all is well with you, keep the faith and stay strong sweet Maggie. Many hugs to you!

    Sincerely,
    Liz

    Liz
    I didn't forget you, and thank you. How have you been doing? I remember you once were
    having a bad patch. Are you doing as well as you sound?

    Yeh, I can wait for the results. No problem. Yes, ignorance is sometimes bliss.

    May hugs to you also. Love Maggie
  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,803 Member
    AngeH said:

    The Waiting, Is the Hardest Part
    (Now I have that Tom Petty song in my head. lol)

    It all depends on the docs, and the imaging place, really - I think. My doc would always have my scans/reports the next day - or in the one case, the same day, I had them done. But, because he's out of Providence Hospital in DC, and I live in Mount Airy, which is almost 2 hours, I would wait to see him when he did his office share days a whole lot closer to me. I had waited a week for my last PET scan results. But, I sure do know about the waiting.

    I misunderstood my doc when I thought I only had to wait out the "full round" of 3 weeks before getting my last PET scan. Imagine my devastation when he said SIX weeks, then get the PET scan. I thought I was going to cry! lol! But, I waited it out... *sigh*

    Next week is my 6 week follow up to talk about the maintenance part. So wondering which way we're going to go - Rituximab rounds, or maybe the BiovaxID vaccine.

    Heartbreakers
    Recall Tom's other lyrics:

    Hey baby, there aint no easy way out/
    But I won't back down !

    max