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Richters lymphoma

Pmw
Pmw CSN Member Posts: 2
in Lymphoma (Hodgkin and Non-Hodgkin) #1

My husband was diagnosed with CLL 4 years ago. In march it transformed into Richters Lymphoma which is very aggressive. He just finished 6 cycles of RChop and had a pet scan earlier this week. 

I am trying to connect with others who have this disease as it is rare. 

Thank you 

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Comments

  • Rocquie
    Rocquie CSN Member Posts: 869 Member
    #2
    Transformation

    PMW, I do not have Richter's Syndrome, but I was diagnosed as having a transformed Lymphoma. Therefore, I have done quite a bit of research on the subject. There is a very excellent blog called, Dr. Sharman's CLL and Lymphoma Blog, and I am giving you the link address for an article/discussion of Richter's. 

    I had R-CHOP 8 times and have been in remission for a year and a half. I am on Rituxan maintenance which your husband may or may not have. Your husband's lymphoma, though rare and agressive, may be curable. There is much cause for hope! 

    Best wishes and welcome to the group,

    Rocquie

    Richter's Syndrome

     

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  • Pmw
    Pmw CSN Member Posts: 2
    #3
    Rocquie said:

    Transformation

    PMW, I do not have Richter's Syndrome, but I was diagnosed as having a transformed Lymphoma. Therefore, I have done quite a bit of research on the subject. There is a very excellent blog called, Dr. Sharman's CLL and Lymphoma Blog, and I am giving you the link address for an article/discussion of Richter's. 

    I had R-CHOP 8 times and have been in remission for a year and a half. I am on Rituxan maintenance which your husband may or may not have. Your husband's lymphoma, though rare and agressive, may be curable. There is much cause for hope! 

    Best wishes and welcome to the group,

    Rocquie

    Richter's Syndrome

     

    Thank you

    Dear Rocquie,  thank you for the information. Thanks for the encouragement. 

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