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Lymphoma (Hodgkin and Non-Hodgkin)

What changes did you make
Just wondering what changes you all made after your diagnosis and/or treatment. I've talked to a few survivors who made drastic changes to the way they eat, the cleaning products they use, the way they wash their vegetables, etc, etc, etc. But, even more survivors seem to have made little to no changes other than 'trying…
Neulasta
A little nervous. Dad gets his first Neulasta shot tomorrow. I hope we made the right choice.
Has anyone done Bendamustine - Rituxan Chemo for NHL?
Haven't seen this chemo mentioned on the site - it's one being considered for my stage 4, Follicular, B cell cancer that didn't go into Remission on CVP-R. Just wondering if anyone has used it and was it successful? Fran
Happy days!
I know Dad still has a long road ahead of him. He is such a strong man. I am so proud of my Dad. I can not even imaging what it is like to fight a battle like this. His blood counts are back up... he got the feeding tube out this morning YEAH!! His oncologist is very happy with how well the chemo is working. We are going…
Alternitave meds
Took Dad to his oncologist appointment yesterday. Good news is they said the tumors are shrinking. The last CT scan he had does not show all the little spots of cancer that were spread through out his abdominal area. Also the large tumor that made it so he could not eat before has as they said "has practically melted away"…
Home from auto SCT
Home has NEVER felt so good. Really, NEVER. Ever. Ever. Overall, this has been harder, physically, than any previous therapy (including the nearly 600 hours of R-EPOCH + Neupogen back in '11 when my 2 forms of NHL were finally diagnosed.) Through all of that I nearly-always felt like a successful, robust and vigorous…
Waiting time before getting pregnant after ABVD
It is now six months since my wife had her last treatment with ABVD. We are striving to have a baby but doctors are saying we have to wait at least one year. Googling our problem didn't help so much as there is no enough researches on this matter. Therefore, I hope you will share your experience here. 1- How long did you…
Pregnancy after Hodgkins
I am a 3 1/2 year survivor of Hodgkins 2B. I completed 4 months of ABVD and 4 weeks of radiation. My husband and I have two children, ages 4 and 7. We are considering trying for a third. But I have my reservations, I am scared that the cancer may come back during or after the pregnancy. My oncologist says everything should…
new diagnosis of large b cell
my brother (age 36) was recently diagnosed with large b cell....aggressive....he had a tumor removed from his brain last week which the surgeon originally thought was benign....the pathology proved the mailignancy and therefore the diagnosis. This friday, he starts Ritux/CHOP combo and will take methatrexate thru a spinal…
Worried
Hi Everyone, I am in remission from Follicular NHL stage 4 since 09, after doing Zevalin. I had a scan in June and they found 2 small pulmonary nodules with the larger nodule measuring 4.5mm so I worry about that but they said to recheck in a year. I have had scan in early June, and he did not do my neck and my head, that…
Auto cell decision
I'm in Wisconsin and my dilemma for today is that my insurance will cover a stem cell transplant at either Carbone cancer center in Madison (NCI rated) or Froedtert Hospital. Froedtert is not NCI rated but very reputable. Madison is about 90 minutes away, Froedert about 25. I certainly don't want to choose by driving time.…
TB Test
I am curious if anyone has had a TB test during or following treatment of biologic drugs: Abatacept (Orencia), Rituximab (Rituxan) and Tocilizumab (Actemra). I received a letter from my health insurance company today that it may be necessary to have a TB test since I have received one of these drugs. I know I had to be…
Mediastinal grey zone lymphoma (MGZL)
Hi there I was recently diagnosed with this rare lymphoma. Since there isn´t much information about greyzone lymphomas on the web, I figured I might aswell try here instead . I´m currenty being treated with DA-EPOCH R Has anyone got this? Thanks
Correlation between Hodkin's Lymphoma and Liposcarcoma?
I just finished treatment Of Stage IV Hodgkins Lymphoma at the end of May and am in remission. I just had a 18 cm fatty tumor removed from my thigh that they now believe (and have sent away for more testing) could be Liposcarcoma. I won't know for 3-6 weeks, but is there in correlation between the two?
auto stem cell after DA-EPOCH agressive diffuse large b-cell
New to forum, and would like to ask the question of benifits of doing auto stem cell immediatly after my 6 treatments of Da-EPOCH? I am finishing my 6 treatments for agressive diffuse large b-cell, and my pet after 2nd treatments was great with it almost gone.will have another pet in a few weeks, but doctors want to do a…
Is it normal, because I'm worried it's not
I saw my oncologist today and he said we would do a CT after my next treatment. I was surprised by that and asked him why, I thought I would finish treatment before being re-CT'd. He said he just wanted to make sure the treatment is working. It will be my 4th of 6 rounds for SMZL. Tonight my imagination is going wild with…
Clinical Trial Failure
I don't think anyone at the Board has mentioned bieng part of this, but it is important to be aware of, especially members with T-cell issues. max http://www.foxnews.com/health/2016/07/08/juno-cancer-study-halted-after-patient-deaths.html . .
SCT or Rituximab after remission
I, 61 years old, was diagnosed with stage IV MCL in November 2015. I have finished six treatments of Bendamustine and Rituximab. An extra three CT scans occured during the last seven months due to bilateral pneumonia and abdominal pain. The last CT scan two months ago showed the enlarged lymph nodes in my digestive tract…
No SCT
Tues I saw the Stem Cell Dr. My bloods were ok. Still not in the normal range but close. She told me that I am doing good. The 2 scans & bone marrow biopsies done this year show no sign of the cancer although they still don't know what the abnormal cells were in the Nov biopsy. It was because of that Nov test they wanted…
secondary cancers related to radiation
My name is Rory. I am a cancer survivor of Hodgkin's diagnosed in 1974 and treated by mantle radiation. Recently, I developed aching and swelling symptoms in my left upper chest and left arm. My doctor has told me that those of us who received radiation to the chest have a very high risk of secondary cancers. The highest…
Splenic marginal zone lymphoma.
Lymphoma Non Hodgkins
I have began and completed my first round of chemo. I have some questions regarding drinking water through the next 3 treatments. All food tastes terrible and drinking water gets old and hard to keep down. Any suggestions?
Diffuse Large B Cell Lymphoma Of Tonsil
My husband had tonsillectomy last month due to a large growth. Tumor and tonsil were sent to pathology. The report stated that the tumor is 80% Diffuse Large B cell lymphoma and 20% Follicular lymphoma. We were then referred to oncology at Dalton Massey Cancer Center in Richmond VA with the understanding that CHEMO would…
SCT club
Well my DLBCL has returned. The plan of action is ptretty much what I have read on this forum and am greatful to have learned from all the different posts. I will start R-ICE on Monday and work up to a stem cell transplant. What can I expect with the R-ICE as compared to R-Chop? Sharon
DLBC NHL, ABC type, 35% double hit
Hi Everyone, my mom has been diagnosed with stage 4 DLBC NHL ABC type (and 35% double hit expression). Her Dr started her on R-CHOP, but unfortunatley she wasn't responding like she should have been. She is in severe pain all the time which is sometimes adequately managed with morphine, hydrocodone, and a fentanyl pain…
port flush
First of all I am wondering how often every one gets a port flush, when in remission? I have been in remission since 09 but had FNHL stage 4 and am on blood thinners, also other issues so it is not so easy to to go to get it done just like that. I have been going every 6 weeks and this oncology nurse today said we do this…
Immune system and chemo
Is anyone willing to share their experience with chemo completely destroying their immune system? I was wondering how long it took to get your blood count back to a healthy level. Did every additional round of chemo destroy your immune system again? Did it get harder to recover each time? My dad has been in the hospital…
On my way
Well i am about to drive to Massachusetts, will be my first time driving there. Will take a ferry from the northern part of Long Island, across the long Island sound to Bridgeport CT. I am excited, i am going solo, but i have a co-pilot with me, he has never left my side. I am going to celebrate my remission doing what i…
Looking for help
My Dad was a healthy very active 74 yr old man. A couple of months ago things went wrong and he was unable to eat or drink anything. This is what the doctor found. He has papillary renal carcinoma, follicular lymphoma, and diffuse large B cell lymphoma. The follicular lymphoma tumor is on his intestine just below his…
Be safe out there
Wanted to wish you all a Happy and safe 4th of July, i am grateful to be able to see another holiday, and enjoy it. Be safe out there if you go out!

Lymphoma (Hodgkin and Non-Hodgkin)

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