Free T-Cell Lymphoma seminar in Honolulu, HI October 8th

po18guy
po18guy Member Posts: 1,509 Member
edited September 2016 in Lymphoma (Hodgkin and Non-Hodgkin) #1

The T Cell Leukemia Lymphoma Foundation is offering a free day long patient education seminar at the Waikiki Beach Marriott in Honolulu on October 8th, 2016. Presenters will be Dr. Andrei Shustov, a clinical and research hematologist at the Fred Hutchinson Cancer Research Center. He will be joined by Dr. Michi Shinohara, dermatologist/dermatopathologist, as well as Beatrice Franco, R.N. - Seattle Cancer Care Alliance. A certain CSN member will be present to speak on the patient perspective of the lymphoma jounrey. Topics will cover the entire range from sub-types to diagnosis to treatment and clinical trials. The unique aspects of Cutaneous T-Cell Lymphomas will be discussed, as will addressing and reducing the side effects of treatment. A continental breakfast as well as lunch will be provided without cost. Pre-registration is required and avilable online here: http://www.tcllfoundation.org/schedule/events-calendar/honolulu-t-cell-lymphoma-patient-education-forum/2016-10-08

Comments

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #2
    Po

    Po:

    World traveller, lymphoma hero, biker dude.  Catch us some waves !

  • po18guy
    po18guy Member Posts: 1,509 Member
    edited September 2016 #3
    Max Former Hodgkins Stage 3 said:

    Po

    Po:

    World traveller, lymphoma hero, biker dude.  Catch us some waves !

    Pure duty

    Oddly for an American, I have never wanted to travel to Hawaii. Due to battling GvHD, I can go there, but I must avoid the sun. Dichotomy? Paradox? Irony? To encourage is my goal. 

  • Unknown
    Unknown
    edited September 2016 #4
    Hawaii

    I would go if I had T-Cell but fortunately I do not. Not so crazy about Honolulu but the Hawaiin Islands are still one of the worlds most interesting destinations. My wife and I both love some of the islands. Scuba in the morning, surf at lunch and snow ski in the afternoon is entirely within reason on the big island. Just don't get the bends from the altitude change after diving. Keep your dive computer with you. Enjoy but be sure to report back on the conference. I am especially interested in any developments which may also apply to FNHL.

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    edited September 2016 #5
    po18guy said:

    Pure duty

    Oddly for an American, I have never wanted to travel to Hawaii. Due to battling GvHD, I can go there, but I must avoid the sun. Dichotomy? Paradox? Irony? To encourage is my goal. 

    Sun

    Po,

    I have been around the world a few times, but never to Hawaii, and never desired to go.  Not an adversion to the thought: just no desire.  Some places I could not be forced to go:

    Las Vegas (I can burn money at home on alcohol and see 60's stars on YouTube for free. Also, scenery consisting of asphalt and desert I find unappealing);

    Chicago (I can watch Rambo gunfights on DVD, don't need to see it live on city streets. Plus, fewer people die in Rambo movies thanin Chicago);

    Detriot (I'd rather combine a tour of automotive manufacturing plants with the Mexican countryside and a rented villa);

    L.A. (because it's in California; I'll sit on the patio and pretend to be stuck in traffic for a few hours instead, all for free, and with no DUI risks. Blowing yellow smoke in the air will complete the effect.).

    The sun is not just a risk with GvHD (I did not know that one), but also with many chemo drugs, which advise against time in the sunlight.  And melanoma kills so many people every year.  As I have written before, our radiation health experts told us in the submarine service that a day on a sub is much safer, as regards radiation received, than a day at the beach.

    It is a blessing to the whole lymphoma world, what you do for patients, regardless of the city or place.  Enjoy !

    max

    These old guys still had it when this was recorded. I like the vocals even better than the orgiginal studio version. Heck, they even still had hair !

    Three Dog Night had a horrible association with blood cancers:  Cory Wells (lead vocals, black hair, holding black acoustic guitar) died of multiple myleloma in 2015; Jimmy Greenspoon (keyboards) died of melanoma the same year.

    https://www.youtube.com/watch?v=49bl6FrgZTs

  • po18guy
    po18guy Member Posts: 1,509 Member
    #6
    Las Vegas in particular

    I don't drink, smoke or gamble and I got a traffic ticket leaving the place. Yeah...

    As to 3DN, this is their vocal classic, IMO: https://www.youtube.com/watch?v=K8SRD0FK2EE

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