Testicular lymohoma

If a orchiectomy was performed and I was diagnosed with DLBCL after looking at the testicle but it was all confined to the testicle is there a chance that got rid of all cancer cells and I wouldn't have to go through treatment maybe just on a watch. Supposedly I caught it early. Just trying to find the positive in this...

Comments

  • PBL
    PBL Member Posts: 350 Member
    I would say not

    1. Lymphoma is a hematological (so, "liquid") cancer that manifests itself by forming tumors. The fact that the only visible tumor was removed does not guarantee that you are disease-free.

    2. DLBCL is an "aggressive" strain, meaning that it develops rapidly. Watchful waiting is usually, I believe, appropriate for "indolent" (or "slow-growing") strains of lymphoma only.

    Again, Justin, these are questions for your hematologist. I imagine you have an appointment soon?

    PBL

  • ShadyGuy
    ShadyGuy Member Posts: 796 Member
    So sorry to see you here

    but that aside I hope that we can help you in some small way. As I understand it, and I may be wrong, DLBCL is rarely ever exclusively extranodal. By that I mean there is almost always some level of blood and lymph node involvement. As its name says it is "Dispersed". The fact is that wherever it is located, the majority of DLBCL patients are eventually cured. Its shocking to be told you have this disease however try to remain calm and rational about it. You can definitely beat DLBCL. And we are here to help. My best advice is to sit down and organize your thoughts and concerns into a list of questions. Take this list and schedule a frank information gathering session with your medical team. Hopefully you will come away from that meeting with a detailed understanding of your situation and what treatments are recommended. Then, if possible, schedule a second such meeting with a different team. This can sometimes be done by phone after forwarding medical records. Compare the results and make your decision. Then go fishing or skating or dancing or whatever other activity you may enjoy. And as always find a support group of family, friends or neighbors. and keep this board involved. There are some very experienced, intelligent and knowledgeable people here. And almost without exception they will help wherever they can. Best of luck.

  • Justiny35
    Justiny35 Member Posts: 22
    ShadyGuy said:

    So sorry to see you here

    but that aside I hope that we can help you in some small way. As I understand it, and I may be wrong, DLBCL is rarely ever exclusively extranodal. By that I mean there is almost always some level of blood and lymph node involvement. As its name says it is "Dispersed". The fact is that wherever it is located, the majority of DLBCL patients are eventually cured. Its shocking to be told you have this disease however try to remain calm and rational about it. You can definitely beat DLBCL. And we are here to help. My best advice is to sit down and organize your thoughts and concerns into a list of questions. Take this list and schedule a frank information gathering session with your medical team. Hopefully you will come away from that meeting with a detailed understanding of your situation and what treatments are recommended. Then, if possible, schedule a second such meeting with a different team. This can sometimes be done by phone after forwarding medical records. Compare the results and make your decision. Then go fishing or skating or dancing or whatever other activity you may enjoy. And as always find a support group of family, friends or neighbors. and keep this board involved. There are some very experienced, intelligent and knowledgeable people here. And almost without exception they will help wherever they can. Best of luck.

    Thanks guy. So maybe you can

    Thanks guy. So maybe you can help me answer this...if my diagnosis was DLBCL which I agree after research that it's rarely extranodal, than that would mean that my testicles would be secondary and not the primary or the source of the cancer what I be wrong assuming that or is there a chance it could be primary?