Wait & Watch continues:) NHL (follicular)

muledaze
muledaze Member Posts: 18
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Hello all.  Just returned from oncologist visit and results of my CT scan show the 2 nodes in groin and hotspot in pelvis same size since May.  No symptoms, will continue "Wait and Watch" for another 3 months.  Some of you know I live in No. California and just experienced the horrific fires.  My heart goes out to all suffering, we are all safe here and fires almost contained.  Leaving for W. Australia to meet new grandson (as planned for 5 weeks) home for 2 weeks and will do another CT scan, then if all good - off to Brazil to see my grandgirl there for 3 weeks.  

Just wanted to start my day with this positive post and deep gratitude for all the valuabe insight from this forum.  Blessing to all of you with my prayers for continued success and good health.

Lisa

Comments

  • ShadyGuy
    ShadyGuy Member Posts: 922 Member
    #2
    Wait and watch

    Sounds like a fine life! I had been in remission almost 5 years but its back. Had an MRI for back pain and saw swollen nodes. Also my liver enzymes are way high. I declined a PET scan for the time being. So I am on wait and watch till January. 

    For travel I have had 3 trips this year - Mexico City, Turkey and a hunting trip in Alaska where I spent 8 days and nights in a tent about 200 miles north of the Arctic circle in the Brooks Range. Great trips. I am going back to Alaska to photograph the northern lights in January. I did that at Deadhorse in January 2016. Hoping for clear weather. This time I will be in Kotzebue on the Bering sea so weather is iffy. Its often cloudy there. I will be staying in a B&B owned by a very nice but very eccentric lady from Maine. Weird little town but I love it there. The natives are great. I just flag down cars and the people pick me up and take wherever I want to go. The town in only one mile long with no roads in or out. Like an island.  Then in mid February I am taking a trip to Madras India - a culinary adventure then to visit friends in Nepal. I intend to burn the candle at both ends as long ss I can. I spit in the face of death!

  • Evarista
    Evarista Member Posts: 336 Member
    #3
    Kotzebue

    I have a friend who lived in Kotzebue for a couple of years.  She was the school district's Speech Pathologist and had to fly out every week to an even more remote location, sleeping on school-room floors, etc.  She would agree with you on the people. Have fun!

  • muledaze
    muledaze Member Posts: 18
    #4
    WOW Shady Guy

    Your adventures are inspiring and amazing.  GOOD on YOU!  Yes, spit in the face of death - that's the attitude I admire!  Sorry about your remission - part of the package I hear.  I had been in remission for 8 years. Still no symptoms and my fuel is gratitude!  Enjoy your travels as I very much enjoyed reading your travel tales!  Burn that candle.  I will keep you in my prayers.  Lisa

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,817 Member
    #5
    ShadyGuy said:

    Wait and watch

    Sounds like a fine life! I had been in remission almost 5 years but its back. Had an MRI for back pain and saw swollen nodes. Also my liver enzymes are way high. I declined a PET scan for the time being. So I am on wait and watch till January. 

    For travel I have had 3 trips this year - Mexico City, Turkey and a hunting trip in Alaska where I spent 8 days and nights in a tent about 200 miles north of the Arctic circle in the Brooks Range. Great trips. I am going back to Alaska to photograph the northern lights in January. I did that at Deadhorse in January 2016. Hoping for clear weather. This time I will be in Kotzebue on the Bering sea so weather is iffy. Its often cloudy there. I will be staying in a B&B owned by a very nice but very eccentric lady from Maine. Weird little town but I love it there. The natives are great. I just flag down cars and the people pick me up and take wherever I want to go. The town in only one mile long with no roads in or out. Like an island.  Then in mid February I am taking a trip to Madras India - a culinary adventure then to visit friends in Nepal. I intend to burn the candle at both ends as long ss I can. I spit in the face of death!

    South of me.....

    Shady,

    We surfaced on the boat once about 100 miles north of Alaska, but radio was able to pick up a norhtern Alaska FM rock station.

    It made me feel in some little way like I had "been to Alaska," except while shiverring in a black steel tube known as a sub.

    I loved your story,

    max

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,817 Member
    #6
    muledaze said:

    WOW Shady Guy

    Your adventures are inspiring and amazing.  GOOD on YOU!  Yes, spit in the face of death - that's the attitude I admire!  Sorry about your remission - part of the package I hear.  I had been in remission for 8 years. Still no symptoms and my fuel is gratitude!  Enjoy your travels as I very much enjoyed reading your travel tales!  Burn that candle.  I will keep you in my prayers.  Lisa

    Delightful to hear from you Lisa, our globe-trotting Californian with roots in my home town of Charleston, SC.

    Are there mules in Australia ?

    max

  • muledaze
    muledaze Member Posts: 18
    #7
    Howdy Max!!

    HAY how are you Max?  We are just getting thru the horrific firestorms here.  SIX fires surrounded me here in Lake County at the same time.  Many roads still closed, 41 souls perished, over 7,000 homes & businesses.  Prayers to our neighbors in Napa, Sonoma, and Mendocino counties.  

    Mules in Australia - not sure but I have already booked horseback riding in the beautiful Margaret River (W. Australia) region (this area is wine country and looks very much like Napa and some areas of France.)  I am counting the days to hug my 2 1/2 year old grandgirl (not sure I understand her with her very Ozzie accent) and my brand new grandson!  

    I am overjoyed that I have "lazy" cancer and have deep admiration and appreciation/compassion for those suffering but surviving!!

    Better start looking for horseback riding in Brazil too - as long as I pass that next CT scan:)

    Uploaded a pic of Miss Muley - 30 years old and still hauling ****!!

    ciao for now!  Lisa

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,817 Member
    #8
    muledaze said:

    Howdy Max!!

    HAY how are you Max?  We are just getting thru the horrific firestorms here.  SIX fires surrounded me here in Lake County at the same time.  Many roads still closed, 41 souls perished, over 7,000 homes & businesses.  Prayers to our neighbors in Napa, Sonoma, and Mendocino counties.  

    Mules in Australia - not sure but I have already booked horseback riding in the beautiful Margaret River (W. Australia) region (this area is wine country and looks very much like Napa and some areas of France.)  I am counting the days to hug my 2 1/2 year old grandgirl (not sure I understand her with her very Ozzie accent) and my brand new grandson!  

    I am overjoyed that I have "lazy" cancer and have deep admiration and appreciation/compassion for those suffering but surviving!!

    Better start looking for horseback riding in Brazil too - as long as I pass that next CT scan:)

    Uploaded a pic of Miss Muley - 30 years old and still hauling ****!!

    ciao for now!  Lisa

    Mule

    That is an awefully lovely mule !   Although we are in a tiny little town, there are areas of pasture. A property behind us has a mule and several donkeys; they sound off periodically which is so enjoyable to listen to.

    There was a jingle or nursery rhyme when I was a kid that went,  "The old grey mare she aint what she used to be"

    None of us are I suppose.

    max

  • muledaze
    muledaze Member Posts: 18
    #9
    Miss Muley

    My mule is registered with American Mule Association. Her mama was Morgan/Arab.  She drives carts, packs and saddles - triple threat!  We love parades and horse camping!  I'm always amazed when folks tell my how adorable she is as she looks like an old grey mare to me!  Best therapy going!  Have a happy day all!  Lisa

  • ShadyGuy
    ShadyGuy Member Posts: 922 Member
    edited October 2017 #10
    Old Grey Mare

    this discussion reminds me of one of the great mysteries of my youth. What is a whiffeltree? I finally found out it was what people in the midwest called a drawbar used for plowing behind a mule. When I was a child my grandfather had a mule which he rode daily 6 miles into town to his job at at the post office. My Mom's uncle had a black mule which I used to plow the small gardens and tobacco patch every spring. That mule died from eating seed corn treated with mercury and he got a tractor. Grandpa died when I was 10 and I have no idea who got his mule.

    The old gray mare,
    She ain't what she used to be
    Ain't what she used to be,
    Ain't what she used to be
    The old gray mare,
    She ain't what she used to be
    Many long years ago.

     

    Many long years ago,
    Many long years ago,
    The old gray mare,
    She ain't what she used to be
    Many long years ago.

    The old gray mare,
    She kicked on the whiffletree,
    Kicked on the whiffletree,
    Kicked on the whiffletree
    The old gray mare,
    She kicked on the whiffletree
    Many long years ago.

    Many long years ago,
    Many long years ago,
    The old gray mare,
    She kicked on the whiffletree
    Many long years ago.

     

  • ShadyGuy
    ShadyGuy Member Posts: 922 Member
    #11
    Max Former Hodgkins Stage 3 said:

    South of me.....

    Shady,

    We surfaced on the boat once about 100 miles north of Alaska, but radio was able to pick up a norhtern Alaska FM rock station.

    It made me feel in some little way like I had "been to Alaska," except while shiverring in a black steel tube known as a sub.

    I loved your story,

    max

    Thanks Max

    let me know if you want the pictures

  • muledaze
    muledaze Member Posts: 18
    #12
    Whiffletree

    Well I learn something new every day!  Thanks ShadyGuy - very interesting family history.  Gotta love those mules - you get your money's worth from a well trained mule for sure!  Happy Sunday all ya'll!  Lisa

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,817 Member
    #13
    ShadyGuy said:

    Thanks Max

    let me know if you want the pictures

    Yes

    Yes, please do send.

  • illead
    illead Member Posts: 884 Member
    #14
    Hi Lisa

    Just wanted to say hi from Yuba City.  Before the Tubbs fire, (Santa Rosa) there was the Cascade fire in Loma Rica off of hiway 20 going to Grass Valley, they are still reeling. My nephew and family live there and our employee who bought our business have a small horse ranch, which killed them to have to leave, but both families made it, no damage.   Our friends had to evacuate Calistoga and another friend lost everything in the Tubbs fire.  We go through Lake Co. often heading for Ft. Bragg and Calistoga.

    Becky

  • muledaze
    muledaze Member Posts: 18
    #15
    Hi illead

    Hello Yuba City!  Yes I was following the Cascade fire as I have pals in Grass Valley.  I read of the loss of lives in that fire as well - scary and so very sad.  I am very relieved to hear your family made it thru the fire.  I'm saddened to hear of  your friends in the Tubbs Fire.  We are all still just recovering from the shock and smoke.  Blessing and prayers to you and your family/friends.  Thanks for reaching out - lovely to virtually meet you neighbor!  Stay well friend:)  Lisa

  • illead
    illead Member Posts: 884 Member
    #16
    Lisa

    So nice meeting you. Sounds like you have some pretty awesome travel plans to look forward to. Have a great time and stay safe.

    Keep fighting,

    Becky

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