Monday at 10:15

allmost60
allmost60 Member Posts: 3,178
Cancer clinic just called and asked if me and my husband could meet with my doctor on Monday morning at 10:15. The nurse said all of my test results from the BMB are back and as soon as they get the heart test results (tomorrow) Doctor will be completely ready to share and discuss her plans for starting my treatment. I didn't even ask what the results were because Monday will be soon enough for me. Soooo...looks like the waiting is about to end..."YES"! I'm going to just chill out while hubby is gone fishing and watch some chick flicks and be calm. Thanks for being so patient with me...I know I've gotten a little weird from time to time...ha! That was a happy phone call...thank goodness!
Sue

Comments

  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    Congrats Sue
    Put your seatbelt on Sue, the ride is about to begin and it all will move very quickly. Almost to the point of thinking "slow down" my brain can't comprehend all the information overload.

    I was really surprised to find out some info today from my onc. Didn't realize how much radiation we are exposed to.

    Enjoy the chick flicks and the time to just be quiet. I treasure my alone time :)

    Let us know how Monday goes chickie!

    Beth
  • merrywinner
    merrywinner Member Posts: 626
    Let the journey begin
    Glad to hear things are moving. Enjoy your peaceful weekend. Relax and recharge. Good luck on Monday and of course keep us posted. Blessings. Mary
  • onlytoday
    onlytoday Member Posts: 609 Member
    Finally!
    Glad your waiting is finally over on Monday! Let the healing begin!! Enjoy the alone time. Keep us posted... :)
  • vinny59
    vinny59 Member Posts: 1,032
    easier said then done, but have a great weekend! Best of luck Monday.... Vinny
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    Treatment Plan
    Well today is the big day for your treatment plan. Let us know what they are planning. Be sure to ask your questions. If they say anything you don't understand be sure to question it. if you don't it will bug the heck out of you when you get home. Good Luck, John
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    COBRA666 said:

    Treatment Plan
    Well today is the big day for your treatment plan. Let us know what they are planning. Be sure to ask your questions. If they say anything you don't understand be sure to question it. if you don't it will bug the heck out of you when you get home. Good Luck, John

    Questions
    Great advise John. I took someone with me so they could make sure I got answers to the questions I had.

    Hopefully they'll get started soon, the waiting is torture. Once things start moving they seem to go so fast it's hard to keep up.

    How you feeling by the way?
  • yesyes2
    yesyes2 Member Posts: 591
    dixiegirl said:

    Questions
    Great advise John. I took someone with me so they could make sure I got answers to the questions I had.

    Hopefully they'll get started soon, the waiting is torture. Once things start moving they seem to go so fast it's hard to keep up.

    How you feeling by the way?

    DR Appt.
    Hey Sue,
    Just wanted to let you know I'm thinking about you today and sending positive thoughts and prayers your way. You'll do fine and remember we're all here for you.
    Let us know how your doing.
    Leslie
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    dixiegirl said:

    Questions
    Great advise John. I took someone with me so they could make sure I got answers to the questions I had.

    Hopefully they'll get started soon, the waiting is torture. Once things start moving they seem to go so fast it's hard to keep up.

    How you feeling by the way?

    FEELING GREAT!!!!!!!!!!!
    Feeling just fine. Wouldn't you know it,I go in for round 3 tomorrow. So the feeling fine will be short. How about you, doing ok? John
  • vinny59
    vinny59 Member Posts: 1,032
    COBRA666 said:

    FEELING GREAT!!!!!!!!!!!
    Feeling just fine. Wouldn't you know it,I go in for round 3 tomorrow. So the feeling fine will be short. How about you, doing ok? John

    feeling great
    Nice to hear John, take those days when you get them, for me they are few and far between!!!! LOL, I'm going in wednesday for my 4th treatment, we are half way their my friend!!!! Vinny
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    vinny59 said:

    feeling great
    Nice to hear John, take those days when you get them, for me they are few and far between!!!! LOL, I'm going in wednesday for my 4th treatment, we are half way their my friend!!!! Vinny

    Side effect
    Vinny, sorry to see you're getting worn down, but the goal is in sight!

    Are you having any issues with neuropathy yet? I got to the point that I couldn't hardly write and getting my hands and feet to work properly was an everyday battle!
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    vinny59 said:

    feeling great
    Nice to hear John, take those days when you get them, for me they are few and far between!!!! LOL, I'm going in wednesday for my 4th treatment, we are half way their my friend!!!! Vinny

    FEELING GREAT!!!!!!!!!!!
    Vinny, Yea I been lucky so far with the treatments. I hope it keeps up. I did notice with the second one I had shaking in the hands about 3 days out. It only lasted a day, but it felt like I had MS. I could not control it. Its like a bad case of the nerves. It is not painful just aggravating. I go tomorrow for round 3 and with a little luck I hope it goes well. I know you are going for round 4 and hope you do well. Have you heard anymore about your blood counts?
  • vinny59
    vinny59 Member Posts: 1,032
    dixiegirl said:

    Side effect
    Vinny, sorry to see you're getting worn down, but the goal is in sight!

    Are you having any issues with neuropathy yet? I got to the point that I couldn't hardly write and getting my hands and feet to work properly was an everyday battle!

    side effect
    Believe it or not my left foot goes completely numb, and I start getting leg cramps in the same leg, when my WBC's go in the bucket. It's like my body's own alarm clock working...... wierd! Vinny
  • vinny59
    vinny59 Member Posts: 1,032
    COBRA666 said:

    FEELING GREAT!!!!!!!!!!!
    Vinny, Yea I been lucky so far with the treatments. I hope it keeps up. I did notice with the second one I had shaking in the hands about 3 days out. It only lasted a day, but it felt like I had MS. I could not control it. Its like a bad case of the nerves. It is not painful just aggravating. I go tomorrow for round 3 and with a little luck I hope it goes well. I know you are going for round 4 and hope you do well. Have you heard anymore about your blood counts?

    feeling great
    Hey John, my count's drop so low after Chemo,but bounce back after the two shots they give me after Chemo...... would be great just one week not to have to get two shots!!!!! I don't think that will happen, my Onc told me it's because of the prior Chemo I had for my Head and Neck cancer....... good luck tomorrow, give them hell!!!!!! Vinny
  • allmost60
    allmost60 Member Posts: 3,178
    COBRA666 said:

    FEELING GREAT!!!!!!!!!!!
    Feeling just fine. Wouldn't you know it,I go in for round 3 tomorrow. So the feeling fine will be short. How about you, doing ok? John

    How long...
    Hey John...Glad your feeling good today! Bummer you won't stay that way with round 3 happening tomorrow. How long will it take for you to feel better again in between each round? I wish the "great days" would last longer for you. Sorry!
    Sue
  • allmost60
    allmost60 Member Posts: 3,178
    yesyes2 said:

    DR Appt.
    Hey Sue,
    Just wanted to let you know I'm thinking about you today and sending positive thoughts and prayers your way. You'll do fine and remember we're all here for you.
    Let us know how your doing.
    Leslie

    So sweet...
    Thanks Leslie...
    It was a l-o-n-g day with alot of information to wrap my head around. The next two weeks are going to be hectic, so get ready for plenty of questions...soooo glad I found this group of wonderful people!!!
    Love...Sue
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    allmost60 said:

    How long...
    Hey John...Glad your feeling good today! Bummer you won't stay that way with round 3 happening tomorrow. How long will it take for you to feel better again in between each round? I wish the "great days" would last longer for you. Sorry!
    Sue

    good and bad days
    Sue, I will be fine for about 2-3 days after treatment and then start to yoyo back and forth. It will be more down days than up ones. About ten days out it will start to even out more. The week before the next round and it will be more ups than downs. The 3 -4 days before the next round I am ready to climb Mt. Everest because I am feeling so good. Then, BOOM its time for the next round. The second round was better than the first,but I don't know how round three will go. The neulastra shot has really helped a lot though. I get that the day after the chemo. They have to wait 24 hrs. I really consider myself lucky so far with very little side effects. Just the usual tiredness. The tiredness is hard to explain. I feel like my body is worn out, but I am not really sleepy. When I do go to sleep I will wake up just as tired. Thats when I know its going to be one of those days. It does not get any better as the day goes on. If I wake up feeling good then thats usually how it is the rest of the day. Thats how it goes for me me anyway. It is a real roller coaster ride to say the least. John
  • KC13167
    KC13167 Member Posts: 215
    allmost60 said:

    How long...
    Hey John...Glad your feeling good today! Bummer you won't stay that way with round 3 happening tomorrow. How long will it take for you to feel better again in between each round? I wish the "great days" would last longer for you. Sorry!
    Sue

    Good, Bad and Ulgy
    Sue,
    My 3rd R-Chop is Wed Aug 4th. I will feel better about 8 days after that. My counts have been good, no need for red or white cell boosting shots. That doesn't mean that my counts haven't been on the low side or that I haven't been afraid of infection, I have. I was diagnosed with Diffuse Large B Cell NHL on June 21, 2010. Positive bone marrow involvement, so stage 4, no sweats, so, type A (I think).

    My side effects from treatment are not as bad as what other people suffer. i like and crave very spicy foods...black bean soup, kosher pickles, bbq ribs....so hard to understand how differently this disease and treatment effects each of us; for me especially because by profession, I am a registered professional nurse; by LOVE of trade, I am a general manager of a large, nation wide pet specialty retail store....oh, or at least I was until my onco said that I couldn't work anymore due to exposure to germs. I'd be glad to offer you any information from my personal experience with this disease, just ask. You have a positive attitude and appear to be a fighter; I imagine you will do fine. Kellie
  • KC13167
    KC13167 Member Posts: 215
    KC13167 said:

    Good, Bad and Ulgy
    Sue,
    My 3rd R-Chop is Wed Aug 4th. I will feel better about 8 days after that. My counts have been good, no need for red or white cell boosting shots. That doesn't mean that my counts haven't been on the low side or that I haven't been afraid of infection, I have. I was diagnosed with Diffuse Large B Cell NHL on June 21, 2010. Positive bone marrow involvement, so stage 4, no sweats, so, type A (I think).

    My side effects from treatment are not as bad as what other people suffer. i like and crave very spicy foods...black bean soup, kosher pickles, bbq ribs....so hard to understand how differently this disease and treatment effects each of us; for me especially because by profession, I am a registered professional nurse; by LOVE of trade, I am a general manager of a large, nation wide pet specialty retail store....oh, or at least I was until my onco said that I couldn't work anymore due to exposure to germs. I'd be glad to offer you any information from my personal experience with this disease, just ask. You have a positive attitude and appear to be a fighter; I imagine you will do fine. Kellie

    Tired
    Oh, yeah... Like John said, tired. I left that out. Tiredness that is very overwhelming. Just plan on taking many naps and embrace each and every one of them!