Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Long-Term Effects of Treatment

brain radiation
My dad had brain mets from lung cancer having whole brain rad. My question is has anybody had whole brain rad and how did it affect you? God Bless Kodi
Chemo Question?
Has anybody ever been on a chemo called Navalbine? If so how did it affect you? Kodi
CyberKnife. New Hope.
If you have been told that you have an inoperable tumor(s), please look into CyberKnife, This new treatment is painless, non-invasive, no side-effects, no frame required radiation surgery that is allowing previously inoperable tumors to be treated. For more info, go to www.cksociety.org. I do not work for CyberKnife or any…
excessive mucus production as a result of radiation for throat cancer
I am writing this for my 79 year old father because he has a hernia and cannot sit for long. He had radiation which successfully stopped (inadequate word, I know) his throat cancer in 2000. Immediately after the radiation, his body started producing excessive amounts of mucus, which, along with the scarring (affecting the…
Radiation damage help
My son was 7 when he was diagnosed with rhabdmysarcoma. He has chemo, radiation and partial resecetion. For the past couple of years he has had many problems with pain.
Project about ALL
Hi. We are 6 students from the Danish University of pharmaceutical Science who are making a project about ALL and Children. The most courses we have are focused on chemistry and biology but this project is a little different because it is concerned about the human aspects of ALL. We would be thankfull if you would help us.…
Depression and Agoraphobia
My lovely sister who has endured radical radiotherapy for throat cancer, numerable near-death experiences with pneumonia, etc, permanent insertion of a 'peg' through which to feed, and the loss of a partner who couldn't stay the course is now, 4 years on, suffering from anxiety, depression and fear of going out at all. She…
Occasional Nausea 3 years after treatment
Hi all, Since completing chemotherapy and radiation treatments for breast cancer 3 years ago, I have been experiencing occasional bouts of nausea that last 2-3 days at a time. I just recently realized that it could be a result of the treatment! I went to a general practitioner about it once, and he suggested that I was…
info on Emend, other anti-nausea meds
Hello everyone, I am looking for chemo patients who have used the anti-nausea drug by the name of Emend. My husband will be starting his 4th round of chemo next week, and we are considering this drug. Nothing else has worked during the other rounds over the last 8 years. He will be taking Cisplatin, Adriamycin and Cytoxan…
brain fog and fatigue
I am 2 years in remission from a stemcell transplant and it seems like everyone thinks i should be in perfect health.Just cause I smile alot and I am so happy to be alive does'nt mean I don't have crappy days! anyone else out there having troublr with disability ??I would love to feel as good as they think I do !!!
drugs
Science Friday will be discussing the Drug Companies and whether they are interested in Cures or Profits tomorrow. The program usually airs at 10 AM in my area;check your local PBS station. bud
IMRT
Has anyone had IMRT radiation, and what, if any side effects have you experienced. I just completed IMRT Tx, and was wondering about long term effects. Bud
Loosing hair 5 years after chemo!
Hi, Im 33 and have had 2 cancers in 4-5 years. I had chemo in 99-2000 and lost all my hair...then it grew back. I am now about 5 years post chemo and my hair is dropping out at an alarming rate. All my blood tests are normal. Is anyone experiencing this? Is it okay to use rogain or does that cause cancer too? Any response…
A new website for cancer survivors
A group of cancer survivors (and their friends) have gotten together and launched a new website, specifically for long-term cancer survivors. It includes information on getting appropriate health care after cancer treatments, a reading list, a Q&A, a list of providers specializing in cancer survivors, etc. I hope you will…
radiation treatment
my mom had radiation treatment for her nasal cancer, but now has a piece of skin in her ear missing. it won't grow back b/c of the radiation burn. Are there any burn centers that would graph skin on or something? The bone is exposed and slowly chunks of it keep falling out. Plus she has many ear infections in that ear and…
Frustration about lingering effects
I am a two time cancer survivor, and frustrated with the lingering side effects, their impact on my life, and the skepticism of some (not all) physicians that the physical effects of treatment are long term. I have a wonderful family and support network, but when I try to discuss ongoing treatment for lingering effects my…
Childhood Cancer Survivorship Study-Volunteers Needed!!
Hello. My name is Lauren. I am a survivor of childhood leukemia. Currently I am working on a research grant at the University of Southern California (USC)that is studying childhood cancer survivorship. If you are between the ages of 18-39 now and were diagnosed before the age of 21 and would like more information about the…
LOOKING for Survivors Facing the SAME effects
My domestic partner (Michael) is a 45 year old man whom suffered from Hodgkin's Decease when he was 17 years old. He underwent removal of his spleen and received radiation treatments and lived a cancer free life and was very active even managed to complete 21 marathons, and was a coach/trainer with The Leukemia & Lymphoma…
experiencing anxiety and depression
I finished treatment in the middle of Feb 2002. I couldn't wait to get back to my life. However it was not as easy as I thought. I began to have anxiety attacks everytime I would pain the area where my cancer had been. I would panic thinking the cancer was coming back. I thought I was going crazy because sometimes I would…
Weight gain and inablity to lose the weight I've gained
Hi: I finished my chemo (CHOP) at the end of Jan. 2002 and my radiation at the end of March 2002 for Non-Hodgkin's Lymphoma in my chest. I was given a large amount of seriods (Predisone) with my treatment. I have gained 30 pounds. I was already 20 pounds over weight. So, I am carrying around a lot of extra weight. No matte…
After Effects
Hi After reading all your comments about the after effects of caner treatment I am beginning to think that it is better to survive without the treatment unless its a blockage and life or death No one ever seems to be the same ,menatlly or physically its such draining treatment I have a theory thats if its non aggressive it…
New, with Questions
Hello, all. I'm new here & the reason is my best friend & housemate has just been diagnosed with non-small cell lung cancer (stage 3B). He will be undergoing radiation & chemo therapy at the same time (radiation 5 days a week, chemo once a week). I've been trying to do some research on how to help him keep up…
HELP - 2 Years and still sick!!
I have just joined this and have read through the past messages. I sit here with tears now cause I thought I was going crazy. Everyone is poo-pooing me on these symptoms and I KNOW THEY ARE REAL!!!. I was dx 10/00 with Stage 3 NHL. I had chemo for 6 months and my world crashed. I mean, who's doesn't?? I have never regained…
Will people think I'm a hypochondriac?
Hi, I finished my treatment almost two months ago and I am able to do more now but I still get so tired I get sick at times and I have a lot of headaches. I'm scheduled to return to work in two weeks-I'm afraid if I say anything people will think I'm "milking" it and avoiding work. Does anyone else feel this way?
9 Months After Chemo
Hello All, I finished Chemo Taxotere/Carbo for stage 2 Ovarian Cancer Feb 03. Had further surgery for a hernia repair on the original surgery in May 03. I am doing better all the time. Have Joint (Hip and Leg) but once I get going I am ok. That seems to stay with me, so I keep moving. Have swelling still at times from the…
Neuropathy
I have been diagnosed with neuropathy in my hands and feet after having high dose chemotherapy in November. The drug that caused this is Taxol. I had a severe burning, peeling, painful experience previously when I received a regular dose of taxotere (spelling?) I'm taking 1600 mg of neurontin a day and still have a lot of…
neuropathy
Hi, I had high doses of taxol and cisplatium five years ago. During chemo I had severe pain and burning in all my joints.It gradually eased after tx and with time. Since ending treatment and having some time go by, I still have neuropathy in my fingers and toes. It has eased up as the years have passed, but at times I get…
Emotional vs. Rational After Cancer
I think everyone who is dealing with the after effects of cancer should take a look at what Ceezhar wrote on the emotional support group. We've both been going through a lot of the same stuff and I know we're not alone in this. The emotional after effects of cancer aren't really talked about and a lot of people think…
Moving to another treatment facility.
My sister is fighting a recurrence of fallopian tube cancer after a 10-year remission. Ten years ago, she had a TAH-BSO. The recurrent disease was "optimally debulked" from the lymph node. She has completed about 5 or 6 different chemo courses in the last two years, including platinum drugs, Topotecan, Doxil, Gemcitibine…
survivors conference
The NCI (national institue of cancer) is sponsoring a conference focusing on cancer survivors. The conference will take place June 16th-18th. It will include patient advocates as well as health care professionals. Here is the web site for conference information. http://www.blsmeetings.net/2010/index2.cfm I will be one of…

Long-Term Effects of Treatment

Discussion List

Discussion Boards