Childhood Cancer Survivorship Study-Volunteers Needed!!

LAK
LAK Member Posts: 6
edited March 2014 in Long-Term Effects of Treatment #1
Hello.
My name is Lauren.
I am a survivor of childhood leukemia.
Currently I am working on a research grant at the University of Southern California (USC)that is studying childhood cancer survivorship.
If you are between the ages of 18-39 now and were diagnosed before the age of 21 and would like more information about the study,
please send an e-mail to cansurv@usc.edu.
Please mention in your e-mail that you responding from the ACS CSN.
Thank you...Lauren

Comments

  • dimastbo
    dimastbo Member Posts: 3
    #2
    I am trying to find answers for my son who had a brain tumor at 15. He is now 30 and having side effects from the radiation. He had immediately lost the hormone that controls thirst and urine(he takes DDAVP for that), and he can't use both eyes at the same time. Now, 15 years later, he has lost some of his hearing and feeling on the side of his head where the radiation was given. He is constantly fatigued, and I want to know what else to look for.
  • lindazame
    lindazame ACS Member Posts: 46
    #3
    dimastbo said:

    I am trying to find answers for my son who had a brain tumor at 15. He is now 30 and having side effects from the radiation. He had immediately lost the hormone that controls thirst and urine(he takes DDAVP for that), and he can't use both eyes at the same time. Now, 15 years later, he has lost some of his hearing and feeling on the side of his head where the radiation was given. He is constantly fatigued, and I want to know what else to look for.

    You may find the guidelines for follow-up care helpful in answering your questions. These were developed by the Children's Oncology group. Here is the URL. http://www.childrensoncologygroup.org/disc/LE/default.htm
    Hope this helps.
    Linda Zame

Discussion Boards