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vahepclivercancer.org blog
My blog is about the treatment I am receiving for a malignant hepatocellular/cholangio mixed carcinoma at the Bay Pines Veterans Medical Center in St Petersburg, FL. Veterans and others can learn something about how this disease is treated.
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2nd Chemoambulazation - need your prayers
Hello All. Ed is going for his second chemoambulazation at the end of this week. Doctors saw two new tumors, 1cm and 2cm and they are going after them. I am very hopeful that they will get the tumors, the 1st chemoambulazation was done in March of this year and it was successful, it had better results than Nexavar and…
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HCC long time survivors
Hello, Just wondering if there are any other folks on here treated for HCC doing well? I am heading into my 5th year post resection and would love to find others. Thanks
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My dad has stage 1 liver cancer - is chemoembolization best option?
Hi everyone, I am new to this discussion board... My dad was just diagnosed with liver cancer. They say it's considered stage 1 cus it's small (1.5cm) and only one tumor. He's had hep B since God knows when and pretty advanced cirrhosis but pretty good liver function. He had chemoembolization at Thomas Jefferson University…
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My dad passed :(
My dad passed away monday 9/12 in his home surrounded by his loving children. He was so brave and strong! He did everything the doctors threw at him; surgery, radiation,chemo,ports,stents,ablations,clinical trials, and multiple procedures, you name it he did and all with a smile on his face! Unfortunately he was not strong…
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Any foods to eat or NOT eat with mets to the liver?
I am 3 years into my cancer battle and have only 2 short remissions, with the rest of the time endless chemo and radiation. I have a grade 3 endometrial cancer that metasticized to my liver in early 2010. This summer I had radioembolism to both sides of my liver (6/01 & 8/26), and my Interventional Radiologist told me…
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Question?!?
My mom has Liver cancer and they are not even really sure they are assuming it's from her bile ducts of her liver but if affects both lobes and is the size of a golf ball with tenacles extending from it all in all it's the size of a baseball with all the legs. She also has two lymph nodes affected as well. Her first chemo…
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Anvirzel
Does anyone know anyone who uses anvirzel for cancer treatment? Thank you
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Treatment options for Liver Cancer
My dad was diagnosed with Liver Cancer in April of this year. The cancer has spread into his bones as well. On April 29th he started Chemo (4 Nexavar tablets daily). A week later he had severe mouth ulcers. He came off Nexavar for one week and received medicine to help with the ulcers. He was then placed on a reduced…
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2nd tace
hi everyone want to get opinions.i just got results of 2nd ct scan and the tumor now 10 centimeters was 9 cm at last scan. now there is portal vein invasion in left and right portal vein, so doctor says he does not want do do another tae any experience with this thanks.
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A Caregiver's life
I am posting this in this section because my husband suffers from Liver Cancer and I know that there are plenty of caregivers who read this particular section because they too have a loved one who suffers from this disease! I have participated and read this page since my husband was diagnosed in 2009. Most of the time it…
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2nd tace
hi everyone want to get opinions.i just got results of 2nd ct scan and the tumor now 10 centimeters was 9 cm at last scan. now there is portal vein invasion in left and right portal vein, so doctor says he does not want do do another tae any experience with this thanks.
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Primary HCC with large tumor
One of my dear friends has primary liver cancer (Fibrolamellar HCC) with large tumor >14cm. No metastasis or cirrhosis or jaundice. Just wanted to know if anyone else is in same situation and whats the prognosis. Due to size, there are no treatment options according to doctor.
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Cancer returned after transplant
Just wanted to update everybody. My husband had HCC and had 2 Y90 treatments to shrink the tumors enough to get on the transplant list. Once on the list he got lucky and had his transplant 2 weeks later. I was amazed at his recovery he was doing great. Then he started having some stomach pain and trouble sleeping. He went…
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HCC w/Cirrhosis
Hi Everyone, I just found this site and wanted to make a quick post before I go to sleep. It's quite late and my wife is sleeping soundly. Was diagnosed HCC in March w/ 6+cm tumor. Too large for surgery or transplant. Have Hep-C w/cirrhosis and portal vein thrombosis. Have done 1 partial Chemoembolism that didn't work.…
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Breast cancer patient with question
Does "diffuse low attenuation change is present at the liver." mean something about liver mets?
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Nexavar
My father passed in late February of this year. I have two, 200mg, 120ct,bottles of Nexavar. I would like to sell them to help my mother deal with the financial costs of Dad's passing. Anybody think this is wrong????? Should I be ashamed??? Please reply....feeling lost. Thanks
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Nexavar....what to do??
My father passed away Feb. of this year from a combination of liver cancer and fatty liver disease. Not only did I lose a great mentor but also a good friend. Mom is taking things one day at a time and is having some financial difficulties. Dad was about to begin Nexavar but never did. I have two, 200mg, 120ct, bottles of…
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Lost my boyfriend to liver cancer last week
My boyfriend was diagnosed with liver cancer in Oct. and only lived two months. I don't know how I'm going to go on without him. Terri
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HCC : Don't know if our decision are right or not.
HI My mother(63) who had Hep C & Cirrosis for last 10 yrs was diagnosed with HCC in feb 11. At that time it was around 4 cm. We went for TACE in Feb and in march observed 95% necrosis , however in may 3 small lesion appear on that site (1.8, 1.5 , .9) . We also talked with surgeons ... who were of opinion that going for…
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Rectal To Liver Cancer
Hello, all. I'm brand new. tpmack37's post on the Rare Cancer Support Forum (which I read yesterday)... http://www.rare-cancer.org/forum/viewtopic.php?t=3626 ...brought me to Google his alias and it brought me to this place, specifically his thread @ http://csn.cancer.org/node/190358 So here I am. My family is currently…
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Carcinoid Liver Tumors
After 5 x-rays, 3 CT scans, 1 petscan, 2 different CT liver biopsys, 1 broncoscopy with biopsys, 2 mole biopsys, & 1 colonoscopy the VA has determined I have a Carcinoid tumor on the liver(found at the last liver biopsy). Over the last 10 months, since the discovery of a thin mole melanoma, with no evidence of any…
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Radio Freqency Ablation Side Effects
My husband just had this procedure and at first he was doing great for the first few days afterwards. Then he started getting some pain in the liver area. They gave him some meds for pain so that helped. Now he is very very tired. I can not imagine him being any more tired than he has been. They at least took hiim off…
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The drug Suent
I just started taking the cancer drug, Sutent for 28-days. Does anyone have any infor on this/have you taken it. Tom
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Ascites...what to do
I have again searched the boards and have seen where many people have been "tapped" to remove the fluid from ascites. We are wondering which of the docs would be the one to do this? It has been mentioned to us before when we had hospice. We are kind of on our own right now. My brothers reluctance to take the hospice…
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Dad's HCC reoccurred after a transplant
Hi everyone, My Dad (55) was diagnosed with HCC w/ cirrhosis in March 2010 and we had the transplant done in April 2010. I (26 male) was the donor. They took my entire right lobe and removed all of his liver. Everything went great and we both recovered well, especially him. He has had routine check-ups and tests done ever…
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Just saying hello
Hello Everyone! Ed (my husband) is still doing well. He had a sonogram of the abdomen and has an appt with the VA Liver Clinic next week. There is nothing new to share, I just wanted to check in and say hello. please stay positive and strong!
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HCC reoccurred after resection
Hello everyone, I have been reading your post and decided I wanted to join in with hope of support and maybe someone else having the same problem. I was diagnoised in May 2010 with primary hcc. Tumor size 3.0, had resection done laproscopicly at Cleveland Clinic on July 14th 2010, my hometown is not as advanced enough to…
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Dyna CT/RadioFrequently Ablation (RFA)
Anyone out there have any experience with either Dyna CT's or RFA's. My husband and I have to travel to Kansas City for him to have both to shrink one tumor that is a .1 over criteria for transplant. Need to find more information first hand.
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first tace
hi everyone want to share this with you and get opinion.i had my first tace procedure and dr says he cant tell if the tumor shrank or not says it is nont just a round tumor. he yold me that i now have a blood clot and scheduled another tace next week really depressed here thanks for readind a replying