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Stage 4 PanCan ...any advice/info...
Hi...I am new to the CSN message board. My dad was diagnosed with stage 4 pancreatic cancer which spread to his liver in July. He began treatment at Sloan in August, he was on folfurinox(sp?). His CEA went from 375 to 45...however his tumor grew 32%. He is not on GTX. He is the greatest person I know...everything good…
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Surgery for Tony
Dear Survivors: My husband was diagnosed with liver Cancer on the lst week of September. Immediately they told him that he needed to remove 5 tumors from his liver. They set up the surgery for 9-27-2012. Tony was kind of sceptical but he was positive. He had cirrhosis of the liver, diabetes, and hepatitis C. He was always…
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Info please
My dad was taken off of Nexavar today after 4 and half years. His cancer is spreading. My dad doesn't want to talk about it ( which is understandable ) but it's hurting me. I don't know what to expect. Can somebody please tell me what happens next?
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Liver mets and high dose radiation
Hi all: Has anyone out there experienced high dose aggressive radiation for liver mets? I have had pretty aggressive chemo for two years - the folfirinox chemo (oxaliplatin + irenotecan + 5FU) worked but now I have a colostomy (perforated bowel) and chemo is out, at least for awhile. The radiation starts next week and will…
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Hepatic Mass
Hi y'all. My name is Toni. I'm 38. I've never had cancer. I had a gallbladder test Friday (HIDA and ultrasound) and the doctor's office just called to tell me I have a hepatic mass on liver that they want an MRI done on. I'm freaking out. What does this mean?
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Death of a father
Dear members, I've posted on this board only a couple of times, but I was reading all your difficult and touching stories, I've been searching for answers and hope. The love of my life, my father has passed to this horrible disease. He was a fighter, it has been two years in case when he was given only two months to live.…
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When does it end?
I took my dad to see the oncologist last week Friday. Even though his Thermosphere’s were implanted on 9/10/12, they have agreed to do a CT this week to check on the large tumor in his portal vein. Their suspicions are that the radiation beads did put the cancer in check. However it may has also put his liver over the…
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CHEMO & THE FLU SHOT
I am not sure if I am getting the right advice. I am a senior receiving chemo right now. Is it wise or unwise to get a flu shot? What has your doctor said to you? Thanks
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Please help me understand Cholangiocarcinoma 6 - 8 week prognosis
I am writing this in the hope that someone can help guide me. It is August 25 2012. Back in the early part of June, my mom was taken to the ER. She started the week as an amazing active 83 year old woman with type II diabetes that had been managed with diet for over 10 years. She also had survived a run in with endometrial…
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FATHER IN LAW
Hi everyone! I'm an old pro at the head and neck discussion board but now I have a liver question. Father in law was diagnosed with cirrhosis about 15 years ago. He went through a series of 3 different types of treatment, none of which worked. They gave him a life expectancy of about 5 years which he passed about 5 years…
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Losing hope
Hi Folks, well I had the 16cm tumor removed last Oct, in april 5 grew and emblization worked very well but only for a short time, yesterday I was told that there are some in my portal vein and in the bottem vetricle of my heart. I belive they are goint to try Nexavar, which i have read about but it looks like a "last…
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Rapamune (Sirolimus)
Hi there, My mom got a liver transplant in February and now she is doing okay. But, recently she was put on a new drug "rapamune" or sirolimus. Has anyone taken it after liver transplant. It seems the drug is for kidney transplant patients. We are in foreign country and I am worried that they may be just doing drug test on…
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Doctor suggestions
My grandmother was diagnosed with primary liver cancer today. We will be going to an oncologist tomorrow to learn the stage and type of cancer. I would love to know if anyone here has a doctor recommendation so we can ensure we have the best medical advice and treatment options available to us. We're in Michigan, but are…
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So today was a hard day
Found out my dads tumor grew and they are taking him off Nexavar ... It's hard not to be angry. I feel like we are doing everything to be positive. Going to drive to the a cancer hospital in the am and see if I can talk to someone. My dad and I argued about his results today, I think he wants to give up. I understand this…
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Does anyone know what to do?
My father was diagnosed with colon cancer approximately 2 years ago, but now it has spread to his liver and lungs. Today he was told that a part of his treatment (Avemar, i think) was not working. He has been on chemotherapy the whole time, and also had radiation therapy once. What else is there? I dont know much, but i…
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Daughter looking for options for mom's mets in smaller liver ducts causing severe increase in Bili,
Hi all My mom has Stage 4 rectal - diagnosed last June '11. I thought you folks may have some ideas... I posted last night about my mom's liver enzymes flying up over the last 10 days. It seems that her Bilirubin and Alk Phosphatase are those of highest concern - they are very high (over 1300 for Alk Phos). Recent news…
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So confused and broken hearted
I talked to my fathers doctor this morning. They want to implant the Therasphere’s on the 10th of September. I explained that he can hardly walk, his entire body aches and he is extremely fatigued. Not to mention the diarrhea that doesn't end. They decided to stop the Nexavar and I am taking him for blood work. Hopefully…
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Liver Cancer Support Group At CPMC, San Francisco
If you live in the San Francisco Bay Area or near, California Pacific Medical Center will hold their Monthly Liver Cancer Support Group Meeting on Tuesday, September 11th from 2pm to 3:30. They meet every second Tuesday of the month. For more information go to…
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Starting nexavar tomorrow
Well its been quite a ride since last october when a 17cm lesion was removed from my left lobe, 5 months later I had 5 lesions on the liver, I received a embolization which killed 4 of the 5 lesions and the fith one was half dead. Well that was in May, last month I had an MRI done and it showed the lesions grew back and…
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Starting nexavar tomorrow
Well its been quite a ride since last october when a 17cm lesion was removed from my left lobe, 5 months later I had 5 lesions on the liver, I received a embolization which killed 4 of the 5 lesions and the fith one was half dead. Well that was in May, last month I had an MRI done and it showed the lesions grew back and…
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Help! small-cell cancer treated only to find Liver & Adrenal Cancer via PET scan!
Help! I am at a loss for words! My ex-husband just went through agressive chemo & radiation for his small cell lung cancer (also in 2 lymph nodes in his neck). The final xrays showed it was miraculously GONE! They did brain radiation as a preventive...now, just two or three months later,(still feeling nausea & sick all the…
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Widowhood
Hello, I have not been on this site for quite some time. It has been 7 mos. since losing my husband to Liver Cancer. So much has happened since but not a day goes by that I don't wish he were here with me. We would have been married 40 years which seems like to long ago yet just like yesterday. I was only 17 when I met him…
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Radiofrequency Ablation...your input is needed
My husband's dr has suggested Radiofrequency Ablation for his inoperable liver cancer. Some history, he has had radiation/chemo for colon/rectal cancer, then removal and resection and more chemo. Then mets on liver, lung and prostate, so more intense chemo untill he got to the point he couldn't stand any more. Been off…
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Has anyone had SIR-Spheres microspheres?
Has anyone had this targeted radiation done with the microspheres yet?
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Symptoms
Hello everyone. Can anyone tell me what are the signs of knowing you have liver cancer? Did it hurt? Was there a doubt? I know someone that keep saying he think he has serious liver problems but he doesn't want to go see a doctor. He fears it is cancer. I want to help him with some correct info and encourage him to seek…
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pancretic cancer
Hello I'm new to this is there anyone who has pancretic cancer?
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Pancreatic Islet cell carcinoma- metastised to liver
My husband was diagnosed 17 years ago with this rare & slow growing cancer. Is there anyone else that has this same disease?
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Hepatoma - Second Opinion
Hi All, My father has been diagnosed with Hepatoma recently. Here's some background information about the current situation: - Two masses (9.1 cm x 7.4 cm) and (7.7cm x 7.5cm) - The larger of the two ruptured which triggered sharp pain (no such pain now). - TSB @ 355 umol/L (very high) - DSB @ 186 umol/L (very high) After…
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Liver Transplant- the complete picture
I have a primary tumor and cirrhosis, have had two CE treatments, and have recently been placed on the transplant waiting list. My blood type is B, so the list is not that long (but of course the donor population is not that large). My transplant team(Thomas Jefferson University Hospital in Philadelphia) put me in touch…
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Mestatic Liver cancer
My wife was diagnosed with primary Duedonal cancer which has spread to the liver, she is a otherwise healthy 54 female in excellent physical condition. She has been treated with chemo three times once every two weeks , they have done a cat scan and stated that the tumors in her liver have not reduced and taken her off of…