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genetic mechanisms that explain why we don’t all have cancer
http://www.businessinsider.com/chemistry-nobel-dna-repair-2015-10
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Saying goodbye to a kidney
I went to the bathroom right before turning in for the night. Blood in the urine is never a good thing. I went to my family doctor the next day and they sent me for a CT to determine the size of the kidney stones that he was sure was causing the bleeding. He contacted me one hour later with a cancer diagnosis and the…
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By accident, sent for an MRI for back pain.
By accident, sent for an MRI for back pain By accident,I was diagnosed with RCC By accident and it's always by accident Now I see all people have kidney Cancer only they not diagnosed yet Testing for kidney cancer should be part of the physical exam
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Why we get second opinions
Almost 5 years back I had my nephrectomy. I was referred to our local hospital cancer center. No treatments. Just follow up. After my first scans showed multiple mets, I was told there was nothing they could do. I tried 3 more cancer centers. It seemed the only chance I might have was to get Il-2 and that was only being…
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Hey! Did you hear this story about a kidney cancer diagnosis?
They think a shark attacked this guy. When in the hospital, they incidentally found a tumor on his kidney. http://ktla.com/2015/10/09/possible-oc-shark-attack-helps-save-mans-life-after-doctors-discover-cancerous-tumor/
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Bone scan
Did a bone scan today for lower back, hip and shoulder pain that has increased in the last few months. The scan lasted 1h30... Ain't that long? How long were yours? From what I recall, last one I had done was something like 45 min. The technologist seemed a bit worried and spent long time in the shoulders area. Wasn't…
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4cm spot on margin of liver found in CT
Hello All, My husband was diagnosed with RCC December 2015. He was was diagnosed with Stage III. He had his right kidney removed and was put on a clinical tril drug Everolimus. Last week he started having pain on his right side under his ribs that would come and go. He called the doctor and the first thougt was a hernia.…
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Uncle NED Has Paid a Visit
Thank you everyone for all your good wishes, prayers, and Karma in my scanxiety thread. Everything is clear; no change from last scans, doc is happy and I can finally breathe. As much as I love Uncle NED, I’m sending him on his way because he said he had a lot more stops to make before returning in six months. May he knock…
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Prayers, Karma, Good Wishes Please
Today is my six month follow up (1 ½ years out of surgery) chest x-ray and kidney scan and of course I’m getting scanxiety. You know, those little butterflies in your stomach every time you think of something scary. Well, they’re there in full force. My results should be posted in a couple of days but it scares me to death…
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Results not so good - UPDATE
I just wanted to take a few minutes and send an update. I met with the oncologist on Monday and he has scheduled a lung biopsy for Monday 8/31. While he does handle renal cases they are not his speciality and he has referred me to Dr. Sosman at Vanderbilt Hosptial. From what I understand he is a leading oncologist in renal…
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1st oncology appointment
What should I expect for my 1st oncology appointment? I filled out a lot of paperwork family history personal and insurence information Already. I'm alittle nervous as I'm alittle over a month out of surgery. does anyone have advice on what questions I should be asking or what kind of scans do you after surgery? Do they…
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Latest scan
Last Thursday I got my latest scans. Everything is stable. Then while watching the Big Bang Theroy on demand I see an ad for OPDIVO aka nivolumab. Peeps there may be light at the end of the tunnel.......
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Old drugs
Ive been pulled off of sutent, votrient and Inlyta over the past few years, which means I have vast quantities of very expensive drugs in my cabinet. What can I do with them? it seems such a waste
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Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
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Very Interesting Read
Diabetes, obesity linked to chemical exposure – Endocrine Society http://www.rt.com/usa/316965-endocrine-hormones-chemicals-diabetes/ Guys, found this on RT.com and its very interesting health related article. Shows you how much poison that surrounds us on daily basis... - Jay
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25 year old Kidney cancer SURVIVOR new to group
I was just looking here at ACS CSN for other young cancer survivors. I was diagonosed Feb.13th 2003. This friday is my 1st anniversary and I couldn't be happier. I have a lot to live for and a whole new reason to try. I am looking to communicate with any one who has been through kidney cancer.
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Express yourself
As most know by now, I am pretty far removed from nephrectomy and it's issues. Unless I am asked for my opinion, I leave those topics to newer people with more recent experiences. I concentrate on living in the present and only make short term plans and set short term goals. Time makes accepting what has happened and what…
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Time to retire and move to Florida.
I woke up one day in March after a long cold Michigan Winter and decided that after 72 years, winter was not for me anymore. Flew to Florida, purchased a small villa in Royal Palm Beach and embarked on a 6 month job of fixing up and selling our home we just moved into 45 years ago. One week from today Piper, Icewoman and I…
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Work
School started five weeks ago and I have already missed three days of work. Before I had cancer I hardly ever missed work since starting the Votrient I burned through all of my accumulated time off and now I am starting on this years allotment. Yesterday I had to come home because for the first time I was completly…
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Maars Guided Imagery CD
Has anyone ordered or heard from Gerald White in a while? I order the CD from the website 8/14/2015 and never received it. I followed up with an E-Mail on 9/14 and again today and have not heard from anyone. Thanks Mark Rupe
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Checking in on everyone.
Hi All. Just checking in to say hi. Its about 19 months since Greg's nephrectomy now and all is well. He has had an abdominal ct and a brain scan and spine mri in the past few weeks. Both came back NED which is awesome! He is having a bone scan tomorrow. They are being so thorough because he has had some back pain and leg…
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Body Anxiety
Even though I just had clean scans, ever since I saw my oncologist I've been having some of what I'd call minor body issues. For some reason, each of them sends me into a panic. I wish I didn't have that reaction, but I do. It's been a common thing with me since my initial diagnosis almost 3 years ago. Tomorrow I take a…
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New Immune Drug....
http://www.newsmax.com/t/health/article/693553
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PPO insurance
I just found out at my PPO plan while no longer be in effected after 2016. I have BCBS PPO. I do not know what to do now. They are going to carry just HMO plans.
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mRCC stage IV with brain mets
Hello, this is my first post here. I have stage IV mRCC kidney cancer with mets in both lungs, one shoulder, on an aorta lymph node and in my brain. I was treated with pazopanib for about 8 months with good response and have recently switched to Axitinib as a second, and final, line. I was told by my oncologist that it…
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9 months post nephrectomy and CT scan shows suspicious results
Well, 9 months after my nephrectomy, my 2nd CT scan not so promising. Any thoughts? The patient is status post right nephrectomy. 2. There is a new enlarged lymph node in the mediastinum to the left of the aortic arch, of some concern for metastatic disease. This measures 2.2 x 1.7 cm. 3. New 0.4 cm nodule in the right…
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Same Old, Same Old....scanxiety
Scanxiety this week....My annual pilgrimage to here and there, and everywhere that spins me out of control. Abdomen, Pelvis, Chest.....$300 later for my annual dues. Thursday....the wait for the DR to come into the room.....yuck! May God Bless me and all of us!
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Initial Staging Scans
Got my inital staging bone/brain and lung scans Good news, I have no mets in the bone or brain. Not so good news, I have 11 nodules throughout my lungs. Largest is 2cmx2cm. Most are smaller, under a cm in size. I am at a crossroad as to which therepy to try. I wish I knew how fast they are growing and it may give me a…
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Guess who's coming to dinner?
Ding-dong... Whos there? Its Uncle NED for another 6-month stay! Absolutely, Uncle Ned, stay AS LONG AS YOU WANT!!! - Jay