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Kidney Cancer

1st oncology appointment
What should I expect for my 1st oncology appointment? I filled out a lot of paperwork family history personal and insurence information Already. I'm alittle nervous as I'm alittle over a month out of surgery. does anyone have advice on what questions I should be asking or what kind of scans do you after surgery? Do they…
Latest scan
Last Thursday I got my latest scans. Everything is stable. Then while watching the Big Bang Theroy on demand I see an ad for OPDIVO aka nivolumab. Peeps there may be light at the end of the tunnel.......
Old drugs
Ive been pulled off of sutent, votrient and Inlyta over the past few years, which means I have vast quantities of very expensive drugs in my cabinet. What can I do with them? it seems such a waste
Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Very Interesting Read
Diabetes, obesity linked to chemical exposure – Endocrine Society http://www.rt.com/usa/316965-endocrine-hormones-chemicals-diabetes/ Guys, found this on RT.com and its very interesting health related article. Shows you how much poison that surrounds us on daily basis... - Jay
25 year old Kidney cancer SURVIVOR new to group
I was just looking here at ACS CSN for other young cancer survivors. I was diagonosed Feb.13th 2003. This friday is my 1st anniversary and I couldn't be happier. I have a lot to live for and a whole new reason to try. I am looking to communicate with any one who has been through kidney cancer.
Express yourself
As most know by now, I am pretty far removed from nephrectomy and it's issues. Unless I am asked for my opinion, I leave those topics to newer people with more recent experiences. I concentrate on living in the present and only make short term plans and set short term goals. Time makes accepting what has happened and what…
Time to retire and move to Florida.
I woke up one day in March after a long cold Michigan Winter and decided that after 72 years, winter was not for me anymore. Flew to Florida, purchased a small villa in Royal Palm Beach and embarked on a 6 month job of fixing up and selling our home we just moved into 45 years ago. One week from today Piper, Icewoman and I…
Work
School started five weeks ago and I have already missed three days of work. Before I had cancer I hardly ever missed work since starting the Votrient I burned through all of my accumulated time off and now I am starting on this years allotment. Yesterday I had to come home because for the first time I was completly…
Maars Guided Imagery CD
Has anyone ordered or heard from Gerald White in a while? I order the CD from the website 8/14/2015 and never received it. I followed up with an E-Mail on 9/14 and again today and have not heard from anyone. Thanks Mark Rupe
Checking in on everyone.
Hi All. Just checking in to say hi. Its about 19 months since Greg's nephrectomy now and all is well. He has had an abdominal ct and a brain scan and spine mri in the past few weeks. Both came back NED which is awesome! He is having a bone scan tomorrow. They are being so thorough because he has had some back pain and leg…
Body Anxiety
Even though I just had clean scans, ever since I saw my oncologist I've been having some of what I'd call minor body issues. For some reason, each of them sends me into a panic. I wish I didn't have that reaction, but I do. It's been a common thing with me since my initial diagnosis almost 3 years ago. Tomorrow I take a…
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New Immune Drug....
http://www.newsmax.com/t/health/article/693553
PPO insurance
I just found out at my PPO plan while no longer be in effected after 2016. I have BCBS PPO. I do not know what to do now. They are going to carry just HMO plans.
mRCC stage IV with brain mets
Hello, this is my first post here. I have stage IV mRCC kidney cancer with mets in both lungs, one shoulder, on an aorta lymph node and in my brain. I was treated with pazopanib for about 8 months with good response and have recently switched to Axitinib as a second, and final, line. I was told by my oncologist that it…
9 months post nephrectomy and CT scan shows suspicious results
Well, 9 months after my nephrectomy, my 2nd CT scan not so promising. Any thoughts? The patient is status post right nephrectomy. 2. There is a new enlarged lymph node in the mediastinum to the left of the aortic arch, of some concern for metastatic disease. This measures 2.2 x 1.7 cm. 3. New 0.4 cm nodule in the right…
Same Old, Same Old....scanxiety
Scanxiety this week....My annual pilgrimage to here and there, and everywhere that spins me out of control. Abdomen, Pelvis, Chest.....$300 later for my annual dues. Thursday....the wait for the DR to come into the room.....yuck! May God Bless me and all of us!
Initial Staging Scans
Got my inital staging bone/brain and lung scans Good news, I have no mets in the bone or brain. Not so good news, I have 11 nodules throughout my lungs. Largest is 2cmx2cm. Most are smaller, under a cm in size. I am at a crossroad as to which therepy to try. I wish I knew how fast they are growing and it may give me a…
Guess who's coming to dinner?
Ding-dong... Whos there? Its Uncle NED for another 6-month stay! Absolutely, Uncle Ned, stay AS LONG AS YOU WANT!!! - Jay
Clinical Trial - MPDL3280A + bevacizumab (avastin)
As some of may know from my previous posts I am a long term kidney cancer survivor. In 1990 I lost my left kidney to RCC. That was followed by 14 good years. During this time I was getting regular check ups. During a check up in 2004 a mass was found on my right kidney. I was sent to UCLA where a partial nephrectomy was…
Scientific Progress in Kidney regeneration
http://www.bbc.com/news/health-34312125 There is progress in growing kidneys from stem cells and getting them to work in test animals. Human testing is a ways off, but the results are hopeful. All of us who are firing on one cylinder will want to see this. Jack
Thank you Paula! MPDL3280A
I've been on this forum for almost 4 years. I don't post a lot anymore, but I always read the posts. I'm on a trial which combines MPDL3280A (atezolizumab), an anti PDL1 drug, with Interferon Alfa 2B. I've been on this trial for 7 months. After initial lung met swelling, I have had significant shrinkage on the last 2…
Side discomfort
Hi all, I had my left lap, hand assisted nephrectomy on July 6. I am curious as at this point I have no pain but can still feel my incision but what I do have is an uncomfortable feeling in my RIGHT side. It's not pain just feels uncomfortable some time, it is the side I tend to lie on too. Just curious if anyone else had…
Pathology report recieved
I had my partical nephroctomy 10 days ago where they successfully removed a 3cm renal cell carcinoma. I was kucky that this was caught pretty early on a catscan. The report states pT1a which I undertand is the best case scenario. For the grading though, it says G2. Can anyone explain the grading system, please?
Date set
Date is set for the partial nephrectomy of remaining left kidney on October 5, three Mondays from now. We were full time RVers, and we have completely changed our lifestyle for this surgery, then the following one removing a tumor from my right lower lung. We have bought a condo, moved in and spent days unpacking and…
Sorry
Sorry I was out for a couple of weeks, we started school back up and I had to get my classroom ready for my kids. I have noticed that since being on the Votrient for seven months I have a lot less energy this year I have only had students for a week and I feel like it is January already physcially. I have also noticed that…
Hello
Just stopped in to read up a little and say hi. I did visit the hospital today for my quarterly CT scans. My anxiety has been quite high these past few days and it will be until next week, because I won't get the results this time for 8 days. I've been spoiled. The past 3 years I had scans in the morning and had results in…
What to expect
Im 45 and was diagnosed with RCC I went to the ER for blood in my urine and flank pain on Aug 27th where a ct revealed a large pt3b tumor on my right kidney that extended to my IVC. The doctors said I had to have it out immediately and on the 31st had an open radical nephorectomy. I get around pretty well after surgery.…
Follow-Up Appt Tomorrow
Hi, all, Tomorrow morning is my follow up with my urologic surgeon, Dr. Lallas, at Jefferson in Philly. To be honest, my mind is in a really good place about it. I can't say that my stress level is very high. I'm just confident. I feel good! A question, though: I had the actual scans a month ago, if you recall. Can I…

Kidney Cancer

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