Nivolumab Update - Birthday Scan Results
Birthday scan results today are simple and to the point.
"1) No Evidence of Metastatic Disease."
lung mets- GONE!
3.8 cm Adrenal tumor-GONE!
See my bio for more information.
Protocol from phase I Nivolumab- Sutent trial has been revised and I will continue with Nivolumab infusions every 3 weeks until any adverse effects are encountered. I have not taken Sutent since October when adrenal tumor was reduced to possible tumor or swollen adrenal gland.
Drinks are on me tonight, who needs a Dirty Banana?
Comments
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Great result !Djinnie said:Birthday Surprise!!
What a great Birthday Present Darron, Congratulations! It looks like this group is on a roll at the moment with clear results:) I'd love to celebrate with you, so pour one for me, with an extra,extra long straw!
Well done:)
Djinnie xx
That is some great news Darron ! I'm on Nivolumab too so your result has special meaning for me . I'll be getting a scan in two weeks .
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Yes!
Darron, I am stoked about your NED status!! Thank you for sharing, proof of the advances of rcc meds. You really made my day, I can only imagine how pumped you and your loved ones must be at this time. Nivolumab is sure to gain approval soon, hopefully before the end of the year. Great work my man! I will have one on the D man, hold the bananas:)
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Awesome!Bellweather said:Yes!
Darron, I am stoked about your NED status!! Thank you for sharing, proof of the advances of rcc meds. You really made my day, I can only imagine how pumped you and your loved ones must be at this time. Nivolumab is sure to gain approval soon, hopefully before the end of the year. Great work my man! I will have one on the D man, hold the bananas:)
Awesome! Awesome! That feels so good to hear. Lets hear it for nivolumab!! Good for you Darron! I'm so happy that more and more people are getting good results with nivolumab. I want to get back on it. I feel so good for you. Nice.
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Great news.! Thanks forfoxhd said:Awesome!
Awesome! Awesome! That feels so good to hear. Lets hear it for nivolumab!! Good for you Darron! I'm so happy that more and more people are getting good results with nivolumab. I want to get back on it. I feel so good for you. Nice.
Great news.! Thanks for sharing.. Ron
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Happy Birthday!!
Darron, What great news! And on your birthday, doesn't get much better than that. You have much to celebrate, so bottoms up!
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Congratulations and HappyTillieSOK said:Heck! I'll take a couple of
Heck! I'll take a couple of those!!! And a Jamaica Smile! I could not be happier for you! That is SOOOO excellent! Hugs from FL. (Yes, we just got home and I am totally wiped out! Going to beddie-bye shortly, not even going to unpack)
Congratulations and Happy Birthday, Darren!
Such great news! Celebrate, celebrate, celebrate! This group is kicking RCC's butt!
Cheers!
And Tillie - welcome home!
Jojo
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WOW
Bam!!! thats what i call KICKIN IT!! enjoy your drinks.
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Encouraging!LynnLuc said:Yay!!!
I did Nivolumab trial for 30 months ( Anti PD 1). I was dx'ed with Stage 4 Melanoma...given 6-9 months in 2009. I have been NED for 3 years, 9 months and 1 week!!
That is brilliant Lynn congratulations, such posts are so encouraging for others:)
Djinnie x
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ALL RIGHT...HOT DAMN...and
ALL RIGHT...HOT DAMN...and Happy Happy
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Tillies back!TillieSOK said:Heck! I'll take a couple of
Heck! I'll take a couple of those!!! And a Jamaica Smile! I could not be happier for you! That is SOOOO excellent! Hugs from FL. (Yes, we just got home and I am totally wiped out! Going to beddie-bye shortly, not even going to unpack)
Welcome home!! It's something to return from vacay only to have to rest up. Whomever said vacations were restfull and relaxing was no doubt, a man. Glad you enjoyed your trip, would be fun to see pics.
hugs,
Sindy
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You're awesome!LynnLuc said:Yay!!!
I did Nivolumab trial for 30 months ( Anti PD 1). I was dx'ed with Stage 4 Melanoma...given 6-9 months in 2009. I have been NED for 3 years, 9 months and 1 week!!
Lynn, what an inspiration you are! Stories like yours brings hope to so many people. Thanks for sharing and I pray for continued good health for you!!
Happy 2014!!
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NED
Just Logged on after Holiday break. Darron Congratulations !!! Your NED status just made my day. What a great way to start the New Year with HOPE! Now, if only Bristol-Myers Squibb would file Nivolumab for FDA approval. I really wonder why is this taking so long and when they plan to file. - BDS
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nivolumabBDS said:NED
Just Logged on after Holiday break. Darron Congratulations !!! Your NED status just made my day. What a great way to start the New Year with HOPE! Now, if only Bristol-Myers Squibb would file Nivolumab for FDA approval. I really wonder why is this taking so long and when they plan to file. - BDS
Wow! so many good stories of people who are now ned due to nivolumab. 2 years ago when I was put on it, I was the only one posting about it. And I was doing well. That's why I was the poster boy. From no chance to probably will be cured. I had some new growths which bumped me out of the trial due to the protocol this past june. Bummer. But at that time I think everyone knew that this drug was a miracle. I am thrilled for everyone on this drug. I hope to return to it sometime.....if necessary.....We will make a plan after my next scan. Perhaps my time with nivolumab and Il-2 will be the combo I needed. When I grow up I want to be just like you guys......I'll tell you my dream....I'll be 62 in march. Fully retired. No cancer. Harley full of gas. Golf clubs polished and ready to go. Back to jogging. I think I'll also paint my house. Then many more years of NED. Pipe dream? I hope not....I forgot to add that nivolumab will be available for EVERYONE!
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Right you are foxfoxhd said:nivolumab
Wow! so many good stories of people who are now ned due to nivolumab. 2 years ago when I was put on it, I was the only one posting about it. And I was doing well. That's why I was the poster boy. From no chance to probably will be cured. I had some new growths which bumped me out of the trial due to the protocol this past june. Bummer. But at that time I think everyone knew that this drug was a miracle. I am thrilled for everyone on this drug. I hope to return to it sometime.....if necessary.....We will make a plan after my next scan. Perhaps my time with nivolumab and Il-2 will be the combo I needed. When I grow up I want to be just like you guys......I'll tell you my dream....I'll be 62 in march. Fully retired. No cancer. Harley full of gas. Golf clubs polished and ready to go. Back to jogging. I think I'll also paint my house. Then many more years of NED. Pipe dream? I hope not....I forgot to add that nivolumab will be available for EVERYONE!
My Dr. is so convinced that Nivolumab is the real deal that he plans to take me off it as soon as it is approved and then just monitor how I am doing and then if the cancer ever comes back retreat with Nivolumab .
I want to see this drug approved for everyone ASAP !
It's such an easy treatment to take with very minimal side effects . And it's effect on my own RCC is astonishing .
This is my experience with this treatment . After loseing my left kidney I was found to have two tumors . One in left lung , one in abdomin and lymph nodes were hinky . Tried Sutent alone for six months . It didn't help me . I started Nivolumab on Dec. 8 ' 2011 . The day before my birthday . I went back six weeks later for a ct scan . Both tumors were still growing especially the one in my abdomin . Probably due to all those years of clean living and exercise . Went back in six weeks for another scan . Lung tumor about the same size , abdominal tumor bigger yet . It must have been pumping iron .
I went home convinced Nivolumab was not going to work for me .
The following week I went to bed one night experienceing the the usual pain in my lower back . Took Oxycontin planning to wake up and take more as needed during the night . I slept through the night for the first time in months . The next morning the pain was completely gone . As though it had never existed . I was not about to start celebrating because I figured the tumor had probably just grown so big and bad that it had destroyed the nerves and I couldn't feel the pain anymore .
With my next scan all signs of cancer were completely gone . I went from hearing " Your tumors are still growing " to hearing " Your tumors are completly gone " in six weeks time .
I really want to see Nivolumab approved . I hate to think that it could be helping so many people and they just can't get it yet .
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