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Everolimus - Suggestions?
There is a good chance I will be starting Everolimus this week or in the near future - any suggestions or advice? Are ther better times to take it? Managing side effects? Changes I can expect? Just curious.... PK
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carpe diem
OK.....my partner is now 2 months after radical nephrectomy due to pT3aN0MX furhman grade 2 RCC. And he is positive (or at least seems positive). He is back to work full time since last week, and doing his very best at that. But for the rest....he has now gone in a complet "carpe diem / seize the day" mood. THis means he…
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Nivolumab Update - Birthday Scan Results
Birthday scan results today are simple and to the point. "1) No Evidence of Metastatic Disease." lung mets- GONE! 3.8 cm Adrenal tumor-GONE! See my bio for more information. Protocol from phase I Nivolumab- Sutent trial has been revised and I will continue with Nivolumab infusions every 3 weeks until any adverse effects…
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New here - posterior left kidney mass
My mass was found as an incidental finding while getting an abdominal cat scan. This was followed by an MRI with and without contrast. The good news is that it is small 3x3x3 cm. It is in the back of the kidney and touching the ureter. I met with the urologist/surgeon yesterday and I am scheduled for robot assisted…
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Blood Test results
Hey, all, So I was able to score a look at my blood test into on my insurance website; wanted to get your thoughts on them. I looked up what the "healthy" range is supposed to be, but I wanted to make sure I knew what I was looking at: Healthy level from the National Library of Medicine are in parentheses: Potassium Level:…
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inside is doc report of ultrasound. please does anyone know what any of it means? scared and nervous
hi, been in and out of the doctores office for many months. blood drawn, tests after tests. they did a 2nd ultra sound this time for my liver. but found a cyst on my kidney. liver enlarged (possibly fatty liver), and shadowing of pancreas. i'm honestly more concerned about the cyst. can i trust that they know it's most…
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Home after recovery
I officially got my nephrectomy out of the way on monday and now I'm home. Is this normal for me to sweating a lot especially on my face thanks.
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Biopsy ahead on solitary kidney
Good evening everyone, In March of 2014 I had my rt kidney removed with T3 transitional cell carcinoma in the renal pelvis. I'm 57 year old male. Dr's removed kidney, uretor, and cuff of bladder. I now have an enhancing 1.2cm tumor in my left kidney. I go in on 9/10 to have the biopsy and hope to be able to determine what…
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First Year NED Report
My husband and I celebrated my first cancer-free year and our fifth anniversary two weeks ago. Although my check up was three days ago, I was sure that the report would be NED. My hubby and I first met each other five years ago during last week of August, last year when we were preparing ourselves to celebrate it I got the…
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UTI
Hello Angels ive been experiencing some burning and a little blood while urinating. Went to my PC doctor. She had urine test done and wanted to wait and see if infection was present. Well my symptoms got worse so she went ahead and prescribed antibiotics. Well test result said no infection. So I'm a bit concorned about…
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Miami RCC Conference
http://registeruo.niu.edu/iebms/wbe/wbe_p1_main.aspx?oc=40&cc=WBE4014167
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low haemoglobin anyone had similar?
Hi Cancer fighters 10 months after rad. neph and grade 4 cancer my blood/haemaglobin count has been dropping. Scans show that I have 2 mets and enlarged lymph node in my lungs and I should get on a clinincal trial soon. However They gave me a bag of blood the other day and I asked the Dr. if it could be anywhere else. He…
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Anyone else plagued by anxiety and borderline hypochondria?
I try to follow Fox’s advice and think positively and try to remain upbeat and optimistic. But I just can’t help at times being consumed by anxiety so bad that I wake up with my heart pounding and nearly suffocating. Every single ache or pain or discomfort is filtered through the Big C word and I’m convinced that the…
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Sadness or depression after surgery
Hi Everyone, I was diagnosed with kidney cancer in late June and had surgery on July 22nd. I was just wondering if anyone has had a feeling of sadness or depression after the surgery? I sometimes wonder what in the heck my problem is because I should be thankful that mine was found early and it looks like they got it all…
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Home after surgery
Well, I had my partial nephrectomy August 25 and got home yesterday. The worst part was being extremely nauseous right after and having a low grade fever. Both are better today.surgery pwent well and my kidney function is good enough I can take ibuprofen. Which helps me more than pain killers. I am feeling much better. I…
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Hi everyone
I am so sorry that I have not been on here to help encourage anyone lately, but my life has been like a roller coaster. My husband had a heart attack mid may this was his 3rd one and they got to it before it caused damage to heart. Placed 2 more stents which make him 9 now. Mid July he was outside and I walked out and he…
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Enough!
So I cant eat and havent really eaten for about 3 weeks. I just cant swallow. Nausea all day Horrible diarrhea despite imodium, lomotil, opium Weak as can be and everything hurts. advice?
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Recovery
i had my mass removed Tuesday the 25th. Dr said mass was bleeding so he's sending it out for tests which I think he would have done anyways.. Can anyone tell me what recovery will be like. I have a horrible headache and dizziness..is that common? Can't wait to get back to normal life. Thanks!
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NED !
Hello everyone, I'm happy to report NED for my partner's 6 month check-up! :-) Ultrasound and chest x-ray are clear!!! He has finished Hep C treatment about 2 weeks ago, we are still waiting for blood test results to see if virus was eliminated. But honestly, I'm not so worried about it compared to kidney related…
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MRI results
my husband had an MRI of his spine today and nothing new showed up; one of his radiation oncologist's concern was how the Cyberknife worked on the L4 pedicle that was 1 mm away from the nerves. it appears to have worked well and she confirmed the thought that his kidney cancer is not following a recognizable pattern and…
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Lung biopsy - What to expect?
Can anyone tell me what to expect during/after a lung biopsy? I have one scheduled for Monday. Thank you
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1st post
Greetings! Have been reading with great interest your posts on kidney cancer, but due to some glitch was unable to participate until I got assistance from CSN tech support. To introduce myself, I'm 76 and was diagnosed with a 5.3 cm left kidney tumor, no symptoms. It turned out to be RCC with renal vein involvement which…
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A possible cure for cancer found?
Can this be true? If so, great news! https://www.yahoo.com/tech/s/major-cancer-breakthrough-doctors-solve-long-standing-mystery-223029508.html
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A get together for DC area folks?
Hi everyone - I hope you had a great 4th of July. Found that I was too tired to sit for 3-4 hours waiting for our local fireworks - to say that I was disappointed is an understatement but it's just 10 days since I had surgery. That said, I walked 3.5 miles on the C&O trail yesterday! I know folks are busy or not necessary…
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Partial nephrectomy, creatinine, diet in recovery
I have a partial nephrectomy scheduled August 25 for a tumor that is about 2.8 cm on my right kidney. My doctor's PA went over some risks today and said my creatinine level might stay high after surgery. Did anyone else experience this? Did you go a a special diet that is easier on the kidneys?
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Complications after laparascopic partial nephrectomy - any words of wisdom?
Hi everyone It has been sometime since I have signed on and I hope everyone is doing well, or is on their way to doing better. My surgery was on June 25, went very well, and the path report showed a T1a RCC with clean margins. Easy-peasy, right? I was out and about soon after but almost immediately after having my staples…
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"Good Luck?" - Scanxiety - Furious Pete
Hey, all, Sorry in advance for the long post, but I have a couple things to get off my chest. So I need a reality check. Had my one year scans today; they consisted of renal ultrasound, chest x-ray and basic metabolic panel blood work. I am sure you will agree that the most nerve wracking part of the process is the…
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Nexavar (Sorafenib) for RAF mutation please help
I need to know how good is Nexavar (Sorafenib) at targeting RAF1 mutation, I ask this because Mom used Foundation One, have this mutation, and one of three Targeted Therapies recommended is Sorafenib, the other two being Regorafenib and Trametinib The mutation is related to cell division pathway called the MAPK path:…
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In recovery
Hello all, the past 6 weeks has been crazy, from starting to pass blood, to my scans and finding I have a have a large mass on my left Kidney, then surgery and now recovery. My surgery went well. They ended up taking out more than expected but felt it was contained and wanted to make sure they got it all. When they were…
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lymph nodes.
Has anyone ever a their first recurrence from a t1a show up in groin nodes. Three years out and all scans have been clear. Waiting for ct scan now.