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My first NED!
Hello everyone, I had my first 6-month follow-up visit at MDAnderson for my stage IIIA RCC after a left radical nephrectomy last May. Results of my labs, CT abdomen and chest x-ray revealed no evidence of disease. My heart is about to burst with joy and gratitude. I've been busy helping with care of my little grandkids,…
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LTD and SSD at the same time?
My husband’s job is processing his LTD claim now to be effective next month. They recommended he also file for SSD. They said that he will get the same amount whether on just LTD or on both LTD and SSD at the same time. They said 2 advantages to doing both LTD and SSD at the same time: 1) you continue to build your SS for…
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PSA and RCC
Is an elavated PSA a sign for RCC too? All the urologists we went to said the PSA is from very large prostate, but after laser surgery which solved the prostate issue and eliminated the chance of Prostate Cancer, the PSA which went a bit down (from 15 to 9, is up again to 15 now). Since I previously had RCC, I suspect it…
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Chemo after removal of kidney
My youngest son called me last night was horrible news. 6 1/2 years ago he had one of his kidneys removed due to RCC. It was contained in the kidney and no spread. He does his check-ups as he is supposed to. He passed blood and went to see the doctor, they did a CT scan and found a suspicious mass on his remaining kidney.…
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Same MRI in a one month period
We just had scans/mri’s 10/5, 10/6 and 10/8. They included an mri of the spine. We were told spine tumor is gone and others are stable. My husband complained of back pain then and they said it could be anything maybe he strained it and to see if it heals in the coming weeks. The plan was to go back in February and redo…
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4 years
Yes next month October 11 makes four years for me.Today went in for a C T scan i guess the focus seems to be on my remaing left kidney that had a RFA procedure done on it,also next month i will need to have my bladder scoped (still hate to go in for that)as for me being stressed im really kind of chilled out about the…
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Sutent in Ecuador
Has anyone check on getting Sutent in another country. Seriously thinking about moving to another country with good medical and low insurance.
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He is here!
Hey, all, Last night Jacob came into this world at 12:51 am on November 2nd. So I guess it was really this morning. He was 7 lbs on the nose. Mom and baby are doing great! Pics to come soon; I consider myself pretty tech savvy but I have no idea how to post pictures to this board so if anyone knows how to let me know. - Jay
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Radical nephrectomy - advise appreciated
I am a 58 year women is excellent health. Recently a contrast CAT scan found a 7.4 cm x 6.1 cm mass on the inferior pole of my left kidney. Radiology report stated it was "highly suspicious for malignancy." The urologist wants to do a radical nephrectomy (whole kidney - NOT laproscopic). Surgery is scheduled a week from…
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Surgery AGAIN -Number 3 :(
Things did not go so well today. Lesion on liver is a mets, spot in abdomen watched from last MRI is now considered a tumor, and enlarged lymph node found near portal vein. Lung CT Scan showed 2 small nodules on watch. Bottom line another surgery with two procedures with two different doctors to remove liver lesion and…
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Joining the club
I just got home from the doctor. I went in for a CT scan for some pain in my "left" side. The results came back to say that a 4.5cm mass was found in my "right" kidney. I have an apppointment with the surgeon tomorrow morning but of course I am scared out of my mind. The dreaded "C" word was a gut punch from out of no…
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Chromophobe RCC case
Hello everyone! I am 2 years post op from complete neprectomy. I had a very large 22cm Chromophobe RCC tumor removed, stage 2, no mets. I am just wondering if anyone with ChRCC ever experienced mets anywhere else after surgery? I am wondering if there are favorite places of ChRCC to reappear as opposed to others. I am…
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First "scan"
I am thrilled that my first scan episode (chest xray, blood and ua) have all come back clean! I am confused about one thing though, I am scheduled for my 6 mo scan in January. It is for a CT with/without contrast. Is that normal? I thought we were not meant to have contrast with one kidney? Thank you in advance for any…
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Delicate issue
Hi this is a delicate matter, my delicate area is irritated and red (like nappy rash) I am wondering if my body fluids are irritating this area as I am on pazopanib and have been since September so nearly 14 months now. Has anyone else had this happen, what creams did you use, I have tried several nappy rash creams and…
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RCC and Anemia/Iron Deficiency
Anyone else experience this? I had severe anemia and iron deficiency prior to discovering my kidney cancer so I assumed afterwards that it was related. However, the summer of 2014, which was after my partial, I was so severely deficient that I got blood transfusion and a series of iron infusions. Told to take iron 2x a day…
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kidney removed 2012, Now reoccurance stage 4
Hello again My husband had his right kidney removed in 2012, he had been ned untill this last scan in aug. We went in expecting to hear the everything is good, see you in a year. That was not the case. He has a mass on liver, needs biopsy. we went to hospital for biopsy scared of what would or could happen. They took him…
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Question Re: Stage III with Metastasis
I need some inspiration from some of you out there whom I know have fought courageously for many years. I just had my 2nd three month MRI etc. since my surgery in April and received the report this morning through my electronic medical record. I am scheduled to see the doctor tomorrow for all of the results. The MRI a few…
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Contrast reaction
Just had my 1 year scan and had a small allergic reaction to iodine contrast(sneezing and itchy eyes). Does that mean i won't receive contrast for my next scans?
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I could swear!
I'm stage 4 grade 4, so newbies with grades 1 & 2 dont take fright! So the last cancer drug I was given reduced my tumour by a third but the side effects made it impossible to eat, work, swallow, leave the bathroom or retain consciousness. Ending up with a spell in hospital with pneumonia and amnesia. So I've had a lovely…
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Probable metastasis to the mediastinal lymph node
Hello everyone. I just received word tonight from my Pulmonologist that they suspect my RCC has metasticized to the mediastinal lymph node. My surveillance CT last month showed nodes in the lungs and an enlarged mediastinal lymph node. PET/CT Scan says that the lymph node is 2.2 cm x 3 cm and the lymph node exhibits…
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Contrast reaction
Just had my 1 year scan and had a small allergic reaction to iodine contrast(sneezing and itchy eyes). Does that mean i won't receive contrast for my next scans?
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Family Affair
I wanted to update you on my family affair. May 2015 I have been diagnosed with kidney cancer. Had surgery chromobe renal cell stage 3. Going in for my first scan on Thurs. 23rd. results on the 29th. My son, 36 years old father of two, has kidney cancer and scheduled for radical nephrectomy on Nov. 12. All I can say is I…
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After the hospital stay
I will be having my surgery on November 17, partial nephrectomy robotic. I'm single and live alone. (Unless you count my dog and cat) Although I have family and friends close by they all have their own lives to live and jobs to go to. Will I be ok by myself once I'm home from the hospital? They say I will be in the…
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Small Renal Mass Recurrence
I had a 1.7 cm renal mass removed from my right kidney in July 2014... I was scanned on Jan 13th and no most recently Oct 13th. Apparenty they found another mass less than 1 cm. When they reviewed the Jan 13th scan they found it was there as well. (It was missed initially but when the MRI in Jan 13th was completed they…
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NED!!!!Scanxiety big time: 2 year mark for my husband
Well, I've been dreading this upcoming week. Our family has suffered some losses this month and it just seems like we can't catch a break. Today we our 10 year old daughter accompanied is to her first funeral, for an amazing family member gone too soon to cancer. Later this month, my husbands close friend will also be…
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Unexpected symptom -- blood in urine
Background: Stage II renal cell cancer diagnosis in September of 2013. Right nephrectomy. All scans have been NED. I had my every-six-month CT scan just the end of August. CT scan of the abdomen and pelvis and a chest x-ray. Everything NED. On Thursday morning, my morning urine looked a bit pink in the toilet. I did a…
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Brand New Here - The Waiting Game....
Brand new here. I am a 43 year old female that had an ultrasound last week for gallstones. Well, they did an entire abdomn ultrasound and found no gallstones (been having horrible abdominal problems like upper abdominal distention, acid reflux, pain, chronic diarrhea - sounds like gall bladder, right?) But, what they did…
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BMS checkmate 214 trial
4th scan results today. 8%reduction in lung mets. very mild side effects. Have been in BMS trail 214 since March. Now only on Nivolumab and have had a total of 58% reduction in 7 months. Again I thank everyone very much for sharing all the information and support. Never give up and always Believe. Praying for y'all. Texas…
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Fat infiltration and calvification
Recently I was in the er for a matter not related to my past history of RCC. which I had partial nephrectomy for in Nov of 2013. The er dr did an abdominal ct without ccontrast and talked to me about a 1.5 cm fat i filtration (hard to see for sure) with calcification at cortex. I know I had ct with/without contrast on Sept…
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Pain in groin/node
I have a small 1.3 tumor on my right kidney that my last scan showed has started to grow. i meet this week with my surgeon to schedule surgery to have it removed. For the past couple of weeks I have had a low grade fever off and on and have had pain in my right groin area. Has anyone else had painful nodes in your groin…