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Encouraging new news for RCC patients
FDA Grants Priority Review to Nivolumab for Renal Cell Carcinoma Silas Inman @silasinmanPublished Online: Monday, November 16, 2015 Michael Giordano, MDThe FDA has assigned a priority review designation to the PD-1 inhibitor nivolumab (Opdivo) as a treatment for patients with advanced renal cell carcinoma (RCC) following…
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child support work with LTD and SSD
How does child support work with LTD and SSD Step daughte dropped off on 11/7 with all her belongings. Bio mom planning on moving to another city Thanksgiving weekend. Bio mom doesn’t work and has not worked in 7 years Bio mom boyfriend didn’t work for about a year; started working 11/2. Bio mom will not modify child…
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From dead man walking to NED
Three years ago, I gave Stage IV RCC with sarcomitoid features. I was given a very low five year survival, and a 20% chance of 3 year cancer free survivial. But I was lucky, though. My Met was lonely and was surgically removed. I scoured the literature to find something promissing -- anything. And, the only thing I found…
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Metastasize to Diaphragm
Anyone ever heard of kideny cancer metastasizing to the diaphragm? My husband had this happen and was able to have the entire lesion removed and his diaphragm repaired with bio-mesh by a wonderful surgeon. He was able to get clean margins on all sides. I just thought his was unusual and wondered if anyone else had…
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Family Affair
Hello All....Well my son has just had his radical nephrectomy. Doctors were and still are completly baffled about my sons tumor. If some of you don't know his story. My son, now 36 years old, had a tumor rupture 11 years ago in a foreign country. Very Serious!!! At the time doctors diagonsed as Angiopliloma. He was…
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Those with sarcomatoid features
I wanted to know if others are willing to share there stories of treatment results, specifically stage 4 grade 4 with high necrosis and sarcomatoid features. I went to Johns hopkins today and the info I recieved depressed me a good bit. I had some missunderstanding of how the treatments worked. They suggest HDIL2, of…
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Having a hard time believing in what my doc says...
Some of you already know my story. I went in for lower left abdomen pain only to be told that I have a stage 1 4.5 mass in my RIGHT kidney. The doc is saying there is no blood vessel or lymph involvement but due to location they have to do a radical. My problem comes in the fact that I am obsessing and I mean OBSESSING…
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I'm also back and I've missed y'all
Just a quick jump in here to let you all know that I'm still alive. Have had a hip replaced and getting ready to have back surgery for collapsed lumbar vertebrates and butting heads with my oncologist. So what else is new, huh? The thyroid is still growing nodules as are my lungs, but I will survive in spite of my…
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Im back
Hi everyone, I am back once again to check on everyone and see how you are all doing. Have missed being on here. Finally got hubby straightened out, I hope. THe carotid artery surgery has done well. The other side is still 60 percent blocked, but they are watching and scan again in 2 months. Now, its me again. I started…
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A meeting with NED today
Just came by to say I had a meeting with NED today, my first year! I promptly sent him on his way to all of you waiting for his visit. Im feeling very happy and grateful!
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5 Reasons Why The Future Looks Bright For Humans And Bleak For Cancer
Some good news for a change. THINK POSITIVE!! Science is kicking cancers ****, I know it is!! http://www.huffingtonpost.com/-joan-massagua/why-future-bright-cancer-research_b_8475284.html?ncid=txtlnkusaolp00000592
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Let's Try The Pictures!
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FYI.....BBQ, Red Meats, Cooking Meat at Hight Temps....
http://consumer.healthday.com/cancer-information-5/kidney-cancer-news-431/barbecued-pan-fried-meat-may-be-tied-to-kidney-cancer-risk-704993.html
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vitamin-c-destroys-mutated-cancer-cells
http://www.babwnews.com/2015/11/extreme-dose-of-vitamin-c-destroys-mutated-cancer-cells/
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Time for my 2nd semi-annual scan....
My first one was three years ago...and showed something. So surgery removed it, and I went to quarterly scans. I am not nervous about what the CT will show....it will show what it shows. I am worried about the creatinine level before the test...which can preclude contrast. My last Creatinine was 1.55....I will be drinking…
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California Urology Surgeons
Looking for names of best urology surgeons for RCC in the California area. Anyone knows of a few names or had good experience? Pls help!!
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My first NED!
Hello everyone, I had my first 6-month follow-up visit at MDAnderson for my stage IIIA RCC after a left radical nephrectomy last May. Results of my labs, CT abdomen and chest x-ray revealed no evidence of disease. My heart is about to burst with joy and gratitude. I've been busy helping with care of my little grandkids,…
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LTD and SSD at the same time?
My husband’s job is processing his LTD claim now to be effective next month. They recommended he also file for SSD. They said that he will get the same amount whether on just LTD or on both LTD and SSD at the same time. They said 2 advantages to doing both LTD and SSD at the same time: 1) you continue to build your SS for…
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PSA and RCC
Is an elavated PSA a sign for RCC too? All the urologists we went to said the PSA is from very large prostate, but after laser surgery which solved the prostate issue and eliminated the chance of Prostate Cancer, the PSA which went a bit down (from 15 to 9, is up again to 15 now). Since I previously had RCC, I suspect it…
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Chemo after removal of kidney
My youngest son called me last night was horrible news. 6 1/2 years ago he had one of his kidneys removed due to RCC. It was contained in the kidney and no spread. He does his check-ups as he is supposed to. He passed blood and went to see the doctor, they did a CT scan and found a suspicious mass on his remaining kidney.…
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Same MRI in a one month period
We just had scans/mri’s 10/5, 10/6 and 10/8. They included an mri of the spine. We were told spine tumor is gone and others are stable. My husband complained of back pain then and they said it could be anything maybe he strained it and to see if it heals in the coming weeks. The plan was to go back in February and redo…
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4 years
Yes next month October 11 makes four years for me.Today went in for a C T scan i guess the focus seems to be on my remaing left kidney that had a RFA procedure done on it,also next month i will need to have my bladder scoped (still hate to go in for that)as for me being stressed im really kind of chilled out about the…
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Sutent in Ecuador
Has anyone check on getting Sutent in another country. Seriously thinking about moving to another country with good medical and low insurance.
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He is here!
Hey, all, Last night Jacob came into this world at 12:51 am on November 2nd. So I guess it was really this morning. He was 7 lbs on the nose. Mom and baby are doing great! Pics to come soon; I consider myself pretty tech savvy but I have no idea how to post pictures to this board so if anyone knows how to let me know. - Jay
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Radical nephrectomy - advise appreciated
I am a 58 year women is excellent health. Recently a contrast CAT scan found a 7.4 cm x 6.1 cm mass on the inferior pole of my left kidney. Radiology report stated it was "highly suspicious for malignancy." The urologist wants to do a radical nephrectomy (whole kidney - NOT laproscopic). Surgery is scheduled a week from…
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Surgery AGAIN -Number 3 :(
Things did not go so well today. Lesion on liver is a mets, spot in abdomen watched from last MRI is now considered a tumor, and enlarged lymph node found near portal vein. Lung CT Scan showed 2 small nodules on watch. Bottom line another surgery with two procedures with two different doctors to remove liver lesion and…
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Joining the club
I just got home from the doctor. I went in for a CT scan for some pain in my "left" side. The results came back to say that a 4.5cm mass was found in my "right" kidney. I have an apppointment with the surgeon tomorrow morning but of course I am scared out of my mind. The dreaded "C" word was a gut punch from out of no…
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Chromophobe RCC case
Hello everyone! I am 2 years post op from complete neprectomy. I had a very large 22cm Chromophobe RCC tumor removed, stage 2, no mets. I am just wondering if anyone with ChRCC ever experienced mets anywhere else after surgery? I am wondering if there are favorite places of ChRCC to reappear as opposed to others. I am…
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First "scan"
I am thrilled that my first scan episode (chest xray, blood and ua) have all come back clean! I am confused about one thing though, I am scheduled for my 6 mo scan in January. It is for a CT with/without contrast. Is that normal? I thought we were not meant to have contrast with one kidney? Thank you in advance for any…
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Delicate issue
Hi this is a delicate matter, my delicate area is irritated and red (like nappy rash) I am wondering if my body fluids are irritating this area as I am on pazopanib and have been since September so nearly 14 months now. Has anyone else had this happen, what creams did you use, I have tried several nappy rash creams and…