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Any others with Unclassified Renal Cell Carcinoma?

teastman
teastman CSN Member Posts: 5

I am trying to find others with this rare and aggressive RCC that I have been diagnosed with. There is not much information at there due to it's rarity. 

-Theresa 

Comments

  • AnnissaP
    AnnissaP CSN Member Posts: 632 Member
    Sorry, but won't know exactly

    Sorry, but won't know exactly what I have until after my surgery. Best of luck to you.

  • angec
    angec CSN Member Posts: 924 Member
    edited November 2017 #3
    Hello, my mom has

    Hello, my mom has unclassified. She was diagnosed in 2012. It doesn't mean it is aggressive due to unclassification. What is the size, grade, stage? Any mets?  Did you send your slides out to get a second opinion? Always get copies of all test results and reports. Another informative site is smartpatients.com. All the best to you.