The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

NED !

Max57
Max57 CSN Member Posts: 177 Member
edited November 2017 in Kidney Cancer #1

I had done my scan lab and chest  last week ,today I meet with my doctor and its NED !! The doctor moved me to one year scan,,, she said  you are stage 1 and after 2years we did every 6 months scan  we should move now to one year ...please advise me is this the right guidelines or should I push for another 6 months scan ....any way good karma to all here in csn

Like Care
«1

Comments

  • Wehavenotimeatall
    Wehavenotimeatall CSN Member Posts: 488 Member
    #2
    Congratulations

    Can’t answer your question but pleased you are on the right path

    Like Care
  • AnnissaP
    AnnissaP CSN Member Posts: 632 Member
    #3
    Congratulations!!!!!

    Congratulations!!!!!

    Like Care
  • Gtngbtr58 @aol.com
    Gtngbtr58 @aol.com CSN Member Posts: 206 Member
    #4
    Nice-con

    Nice-continued good health!!

    Like Care
  • icemantoo
    icemantoo CSN Member Posts: 3,362
    #5
    Yearly scans

    Max,

    To me yearly scans sound OK for you, but I'm not a doctor.

     

     

    Icemantoo

    Like Care
  • Retcenturion
    Retcenturion CSN Member Posts: 240 Member
    edited November 2017 #6
    Good news

    Congratulations on scans. Thanks for sending positive news!

    Like Care
  • daisybud
    daisybud CSN Member Posts: 541 Member
    #7
    Congrats !

    Mine was 2.5 cm and that's the schedule my Dr said I would follow too.  

    Like Care
  • Trucker1
    Trucker1 CSN Member Posts: 82
    edited November 2017 #8
    Sweet

    NED is # 1!!

    Like Care
  • Allochka
    Allochka CSN Member Posts: 1,091 Member
    #9
    Congrats on NED!
     
     

    Congrats on NED!

     

     

    Like Care
  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    #10
    YAAAY for NED~~thanks for

    YAAAY for NED~~thanks for sharing!

    I was moved to yearly monitoring after 1st year, I believe.

    Continued good reports!

    Jan

    Like Care
  • APny
    APny CSN Member Posts: 1,995 Member
    #11
    Yay, super good news. I was

    Yay, super good news. I was stage 1 and they moved me to yearly after 3 years. But they did say I could continue with 2 x a year if felt more comfortable doing that. I said no thanks. Once a year anxiety is quite enough.

    Like Care
  • Max57
    Max57 CSN Member Posts: 177 Member
    #12
    Thanks all !

    Thanks all and happy Thanksgiving....God bless all

    Like Care
  • Mighty Frog
    Mighty Frog CSN Member Posts: 152 Member
    #13
    Congratulation!

    Keep it up! Just listen to your body...... 

    Like Care
  • Shecka1121
    Shecka1121 CSN Member Posts: 117 Member
    #14
    Hi.  Congrats on NED.  I was

    Hi.  Congrats on NED.  I was 1.2 cm and stage 1a as well. I followed 6 months scans for 2 years and moved to annual.  Dr wants me to have annual for the rest of my life.  

     

     

    Like Care
  • Optimisticgirl
    Optimisticgirl CSN Member Posts: 82 Member
    #15
    Congratulations!

    Another reason to be thankful this year! Wishing you a lifetime of NED!

    Like Care
  • Max57
    Max57 CSN Member Posts: 177 Member
    #16
    Thanks all !

    Without you my friends it would be really hard 

    Live you all 

    Like Care
  • Ree_Maryland
    Ree_Maryland CSN Member Posts: 161 Member
    #17
    Max57 said:

    Thanks all !

    Without you my friends it would be really hard 

    Live you all 

    scans

    I was stage 1b , had follow up 5mts later than one year apart,coming up on fourth yr in April .CONGRATS ON THE NED .

    Like Care
  • Mary H.
    Mary H. CSN Member Posts: 17
    #18
    I had scans at 6 months the

    I had scans at 6 months the first year.  Then annual scans until year 4.  Now I have scans every two years.  I'm 7 years since surgery and there's never been a trace of anything concerning since 1/4 of my kidney was removed along with the tumor.

    Hope you have continued good luck!

    Like Care
  • Never give up
    Never give up CSN Member Posts: 2
    edited December 2017 #19
    Timing of scans

    Hello, I have been stage 4 for 2 years with no "new" areas to monitor. I'm allergic to the dye and find the whole process of getting a scan, seeing the doctor, and paying the bills (my deductable for scans has increased from 5% to 20%), all very stressful. Take a break for a year, then after your next scan reexamine your frequency. I have found that for me, living with cancer is the hard part. Reduce stress as much as possible, take care of yourself, it's ok to be freaked out by the whole thing. 

    Like Care
  • Rockspin
    Rockspin CSN Member Posts: 77
    #20
    Congratulations! Wonderful

    Congratulations! Wonderful news.

    Like Care
  • ImNotDeadYet
    ImNotDeadYet CSN Member Posts: 244
    #21
    Outstanding news!

    Very happy for you!

    Like Care

Discussion Boards