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Home from the Hospital
Just a little note to let everyone know I am home from the hospital..Today was my first day waking us in my own bed. What a treat. As for the surgery the surgery took longer than the suspected. We knew before I went in it was not going to be a easy one. I spend 4 1/2 hours in surgery instead of the usual 3. The was all…
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Are there any Kidney Cancer Patients that are in a clinical trial with the drug Everolimus?
Hi Is there anyone out there that has been in a clinical trial using the drug Everolimus? Onemore
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loosing mother to kidney cancer
Hi, I just joined tonight since I haven't tried this type of network before. My mom was diagnosed with kidney cancer september 2011 at stage 4 cancer. She had a knee replacement surgery done early that summer, so I don't know how, with all the tests they did, they missed this before the surgery. Since there are tumors in…
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RCC - The sneaky disease
It's no wonder that the problems in dealing with RCC seem so intractable, when you read information like that in the article I've copied below. However, it serves to show the immense effort being made world-wide and the rapid and solid progress now being made. (Another example is the sterling efforts at developing a…
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What we're buying time for
Thanks to John on KIDNEY-ONC for flagging up two recent developments that hold out great hope for truly radical new approaches to tackling cancer (and maybe also heart attacks and stroke). The two links he has given are good summaries - see below. (The Nature article is behind a pay-wall but most of us would find it, like…
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Drug Trial Question
Do all drug trials include a placebo? I was asked to participate in an Everolimus trial for stage 1 kidney cancer patients. The goal was to see if this drug which is designed for stage 3/4 patients would stop recurrence if used by stage 1 patients. This trial does use a placebo and since I've never been involved in…
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Pre opt today
Well I am still working on getting ready for surgery..Today is pre opt all day. Than on to surgery on April 30 930 am is my check in time..Feeling pretty tired about now..Will be glad when this surgery is behind me.. LD
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Back from the Dungeon
I really hope this is it for awhile,the procedure took only a short time but i have to admit that was a little bit of an oweee!!!,stayed overnight in the hospital and am now in my comforting home.Will see the doctor in one month,in the meantime i am just going to put the thought of cancer in the back of my mind,well i hope…
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A Miracle!
A Miracle has happened. I received the pathology report today. It is not cancer. It was a tumor that causes loss of kidney function; but, I can live with that. The doctor and PA called within a few minutes of each other. They were both very excited. They rarely get to deliver good news. My husband and I were both on the…
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Adios everybody
I’m a writer. Not a good one, but a writer who has been fortunate enough to have had two books published over the last 10 years. I finished those books while working at a full-time job. It was a tough thing to do but, unlike other things I have tried in my life, I stuck with it. I retired in 2009 with the intention of…
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Question about fatigue
I was just wondering if any of you have suggestions for fatigue. I am still working full time but it is a definite struggle to get through the day. I have called oncologist for any suggestions too but thought maybe someone here would have some ideas. I have been on votrient 400mg a day and appetite has decreased so decided…
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People say the darndest things
Hi every one ,while waiting for my CT scan this morning I found myself reflecting back to when first dx back in October 2011.What I was thinking was some of the comments I have had to endure over that period,keep in mind I received a lot of positive comments,but also ones that for awhile would cut me but now over time my…
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Post op stuff
Well I no longer have a right kidney,I you remember I held off the surgery to finish some commitments to my students. They tried robotic method and found that under the tumor was a funnel cyst. I do not know what that is, but apparently when they tried to remove it I started bleeding heavily despite my kidney being…
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Swelling in ankle - normal?
Yesterday, John started experiencing swelling in his left ankle. He hasn't experienced this since the week he came home from the HDIL2 treatment. He has been on his feet over the past several days more than usual as his mother died a week ago, and burial and funeral home arrangements have resulted in more standing than the…
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wait over
Hello again its been awhile. I want to update all on whats been happening. In Sept 11 dx with spot on kidney, surgery scheduled for Dec. testing showed stage 4. prostate cancer.Prostate removed Dec 12 April 19 3.5cm removed from kidney Dr. said I should be cancer free now . I will keep following every ones post and praying…
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Ok- What is up with the book Three Months to Life
My dad- 78 has Stage IV Renal cancer and has used Stutent, Nexavar and now on Affinor (excuse the spelling please). First discovered in Sept 2008 and starting to spread now in liver and lungs plus bone. So I saw a post on this book Three Months to Life and sent him the book via Amazon- thinking $9.99 aint hurt nobody. Then…
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Travel insurance
Hi Guys how have you all got on with travel insurance since having cancer and kidney removed, Doc say Im well enough to fly ,just wondered what experience you have had Im 13 weeks after opp. (Errol in Staffordshire uk)
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Dr says NO to TENS, but radiation working
Well, the physical therapy doctor we saw on Tuesday said she would not use the TENS unit on my mom because of the cancer. She said she is concerned that it would also stimulate the nerves and blood supply to the cancer. But, she did prescribe lidocaine patches to help with the pain as we try to cut down the pain medication…
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Magnesium to fight cancer?
http://magnesiumforlife.com/
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What is a fleck of calcification on kidney?
Oh boy.. never mind that mom has rcc.. I got my scan and i have a fleck of calcification on my right kidney. Does anyone know what that is? Here we go again. :(
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Creatine a little high- Normal?
Mom is one month post op. Her creatine is 2.8 is it normal for it to be high after surgery?
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MD Anderson
Is doing an all day seminar on Kidney Cancer. Below is from the email- this is LIVE - they're on break for about 15 more minutes. For the first time, we're streaming live, right now, from MD Anderson Cancer Center in Houston, Texas. As part of a beta test with YouTube, you'll be able to watch the entire series of…
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concerning weight loss
I am going to have the lap nephrectomy in two weeks. After reading lots of comments on this message board, I start concerning the possible weight loss after the surgery. I am skinny (125lb), and not sure I can afford losing another 10-20lb. Any advice?
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3 months post surgery!
I cant believe it has been three months since surgery! I am totally back to normal now. Can eat, drink, work out, and function fine. This day seemed so far away after surgery. I still have pain in my kidney, dull pain that rotates from front to back and aches. Guess its something I will have to live with. I do think that…
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For information only - not alarm!
FDA Puts 16 Drugs on Watch List http://www.medscape.com/viewarticle/762205 I noticed two of the 16 with some interest but please note the reassurances I'm quoting below. One of the items is gadolinium contrast dyes and a fuller story is given here http://www.medscape.com/viewarticle/713593 The other is Nexavar (sorafenib)…
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ASPIRIN - !,543 B.C. to 21st April 2012 announcement
Mechanism of aspirin benefit uncovered 21 Apr 2012 Researchers in Canada, Scotland and Australia have discovered that salicylate, the active ingredient in aspirin, directly increases the activity of the protein AMPK (AMP-activated protein kinase), a key player in regulating cell growth and metabolism. AMPK which is…
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Getting ready for surgery
I have 19 days until my surgery..So I am tying up all the loose ends right now..Pre op appt's and meeting up with my attorney to make sure all my affairs are in order before my surgery. I am a bit tired with it all and am looking forward to getting the surgery over with at this point. I have made peace with it but am…
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Summary of current treatment options
This is a good, succinct conspectus of current and future treatment choices http://www.cancernetwork.com/rcc/content/article/10165/2044903 The paper dates from last month and is entitled "Systemic Therapy in Renal Cell Carcinoma: Advancing Paradigms".
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:)
Good Morning all. and thank you.
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Dumb "research" ?
The fact that an institution is world-renowned as a treatment centre is no guarantee that research emanating from that source is bound to be irreproachable. If you have a brain the same size as a gnat's or venture into areas you know little about and don't try to find out about that terrain, or, more frequently, you have…