15th infusion

foxhd
foxhd Member Posts: 3,181 Member
in Kidney Cancer #1
Wow! I never thought I would make it to get #1. Now up to 15! Well, I had that infusion today. Also got my latest scan results. 2 remaining node tumors are stable. 2 months in a row. They must be trying to grow but can't. Thumbs up. 2 bone mets appear bigger, but are probably all swollen and beat up from the radiation. Understandable. That is why my radiation oncologist doesn't want to see me for 2 weeks.... I was afraid of todays visit. Afraid there would be a reason to discontinue my infusions. But no. Thank you, thank you, thank you! Blood work is excellent. And Dr. was smiling and gave me a hug. I squeezed her hard. I really need her to know how I feel. She has saved my life. Every day is a gift. Thanks to her...... I am spent after todays appointment. So for all newer kidney cancer board members, if you ever think we "experienced" members don't have stress or don't freak out in our follow up care, think again. And for all on board who have become my dear friends, thank you. We do this together.
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Comments

  • garym
    garym Member Posts: 1,647
    #2
    OUTSTANDING!!!
    You continue to impress and inspire all that follow your story, that is great news. Next time you are out and about, have a beer on me and have another for me, then just send me the bill.

    Rock on poster boy,

    Gary
  • BDS
    BDS Member Posts: 172
    #3
    Congratulations
    Congratulations, I am glad that all is well. Now go out and have a beer. - BDS
  • tacyarts
    tacyarts Member Posts: 73
    #4
    BDS said:

    Congratulations
    Congratulations, I am glad that all is well. Now go out and have a beer. - BDS

    Great
    Nice job fox, keep up the strong fight. Have a few beers for me too.
  • tacyarts
    tacyarts Member Posts: 73
    #5
    BDS said:

    Congratulations
    Congratulations, I am glad that all is well. Now go out and have a beer. - BDS

    Great
    Nice job fox, keep up the strong fight. Have a few beers for me too.
  • alice124
    alice124 Member Posts: 896 Member
    #6
    tacyarts said:

    Great
    Nice job fox, keep up the strong fight. Have a few beers for me too.

    Awesome
    You continue to set the standard of excellence. God I'm glad you're here!
  • angec
    angec Member Posts: 924 Member
    #7
    GGGGGGGGGRRReat!!!
    I know you were worried a bit, but glad all went well. I seriously doubt they would say that the treatments weren't helping any time soon. You had so many spots before and now are down to 4 and 2 out of 4 are stable. The other two are broken and swollen. Heck, that makes it a GGGGRRREAT day! I want you to know that when our friends go in for checkups and scans it is like we are all there with you worrying and wondering. We are all in this together! Go have yourself two beers and send Gary the bill! ;)
  • I am alive
    I am alive Member Posts: 315
    #8
    High five Fox!
    These are amazing times we live in! I always picture you on your cycle, wind blowing on your face, you wearing sunglasses, smiling, owning the road. Congrats, man.
  • pjune127
    pjune127 Member Posts: 127
    #9
    I am so relieved for you!
    You know how I feel about you, brave warrior! You are my mentor and inspiration. With me and all these other wonderful people praying for you, you will not falter. I will breathe easier the rest of today, because you are getting well. And hopefully I am right behind you. Much love and admiration!

    Paula XO
  • foxhd
    foxhd Member Posts: 3,181 Member
    #10
    pjune127 said:

    I am so relieved for you!
    You know how I feel about you, brave warrior! You are my mentor and inspiration. With me and all these other wonderful people praying for you, you will not falter. I will breathe easier the rest of today, because you are getting well. And hopefully I am right behind you. Much love and admiration!

    Paula XO

    15th nervous breakdown
    this is a more appropriate title... Paula, I'm gonna have an oreo(s). And I treated myself to a Fosters.. I think I'll camp in early tonight , watch tv, and rest...Forgot to mention, also got an infusion of zometa today. Thank you all.
  • Limelife50
    Limelife50 Member Posts: 476
    #11
    foxhd said:

    15th nervous breakdown
    this is a more appropriate title... Paula, I'm gonna have an oreo(s). And I treated myself to a Fosters.. I think I'll camp in early tonight , watch tv, and rest...Forgot to mention, also got an infusion of zometa today. Thank you all.

    Congrats
    Enjoy chilling out for a while,not sure why you buy expensive beer when you could be enjoying alot of Miller Lites for alot less money oh well each to their own.
  • garym
    garym Member Posts: 1,647
    #12
    Limelife50 said:

    Congrats
    Enjoy chilling out for a while,not sure why you buy expensive beer when you could be enjoying alot of Miller Lites for alot less money oh well each to their own.

    Beer
    I refer to "lites" as yellow fuzzy water, gimmee the darks! I also refer to myself as a "beer commonsewer" so keep that in mind. LOL
  • foxhd
    foxhd Member Posts: 3,181 Member
    #13
    garym said:

    Beer
    I refer to "lites" as yellow fuzzy water, gimmee the darks! I also refer to myself as a "beer commonsewer" so keep that in mind. LOL

    cheap beer
    When asked why I generally drink cheap "lite" beer my response is that I really don't like beer. I just like to pee alot!......I guess the stress and "radiation fatigue" hit pretty good yesterday. I fell asleep at 6:30pm and slept till 6:30 this morning. Briefly woke up at 10 checked the "puter" and was back to sleep in minutes.
  • DMike
    DMike Member Posts: 259
    #14
    foxhd said:

    cheap beer
    When asked why I generally drink cheap "lite" beer my response is that I really don't like beer. I just like to pee alot!......I guess the stress and "radiation fatigue" hit pretty good yesterday. I fell asleep at 6:30pm and slept till 6:30 this morning. Briefly woke up at 10 checked the "puter" and was back to sleep in minutes.

    Good News
    Hi Fox,
    I'm happy for you. Take the day off! Some Jimmy Buffett lyrics seem appropriate:

    Take it all in it's as big as it seems
    Count all your blessings
    Remember your dreams.

    And then there are the lyrics to Margaritaville! :)

    --David
  • donna_lee
    donna_lee Member Posts: 1,045 Member
    #15
    DMike said:

    Good News
    Hi Fox,
    I'm happy for you. Take the day off! Some Jimmy Buffett lyrics seem appropriate:

    Take it all in it's as big as it seems
    Count all your blessings
    Remember your dreams.

    And then there are the lyrics to Margaritaville! :)

    --David

    Hey Fox
    When I see what you've been going thru-drugs with a "D" and radiation, it makes my Ct's look like a walk in the park. You must have a rod up your a.. to be able to stand up after all that. Or maybe it's the stout you pour in the top side.
    Any way you cut it, you are one tough biker.
    Besides the fact that you are having success, the other good news to all of us is that they are coming up with newer drugs that are effective.
    How do you like being a guinea pig? The weekend is coming up. Hope it's a good one.
    All best,
    Donna
  • Max Power
    Max Power Member Posts: 60
    #16
    foxhd said:

    15th nervous breakdown
    this is a more appropriate title... Paula, I'm gonna have an oreo(s). And I treated myself to a Fosters.. I think I'll camp in early tonight , watch tv, and rest...Forgot to mention, also got an infusion of zometa today. Thank you all.

    Oreos and Fosters, mmmmm.
    I once got addicted to tollhouse and Bintang.
  • foxhd
    foxhd Member Posts: 3,181 Member
    #17
    donna_lee said:

    Hey Fox
    When I see what you've been going thru-drugs with a "D" and radiation, it makes my Ct's look like a walk in the park. You must have a rod up your a.. to be able to stand up after all that. Or maybe it's the stout you pour in the top side.
    Any way you cut it, you are one tough biker.
    Besides the fact that you are having success, the other good news to all of us is that they are coming up with newer drugs that are effective.
    How do you like being a guinea pig? The weekend is coming up. Hope it's a good one.
    All best,
    Donna

    Guinea pig?
    Who? me? That has come up before. But honestly when I was offered the chance to be part of the MDX trial, I felt more like I was given a heads up to the winning numbers to a lottery. I had a 1 in 3 chance of having the right combination. AND I WON! Now I just wonder how long this trip will last...I will have a good weekend and week to come. A bike night tomorrow, 200 mile ride planned for saturday. Weather permitting, a Volkswagen show sunday. Next week I intend to continue work on the rebuild of my 1970 VW camper. I don't want to even think about cancer next week! Maybe I'll munch on some rice cakes.
  • foxhd
    foxhd Member Posts: 3,181 Member
    #18
    Max Power said:

    Oreos and Fosters, mmmmm.
    I once got addicted to tollhouse and Bintang.

    PEZ
    It's pez for me. and pistachios, and ......
  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #19
    foxhd said:

    PEZ
    It's pez for me. and pistachios, and ......

    WOW
    Fox,

    No words can describe how insperational you are to those that have to really fight RCC, not just the surgery. While I may have a few years on you for survival, your road was much more difficult.


    Icemantoo
  • garym
    garym Member Posts: 1,647
    #20
    Max Power said:

    Oreos and Fosters, mmmmm.
    I once got addicted to tollhouse and Bintang.

    Oreos and...
    Max,

    Are you sure it wasn't Oreos and poontang? LOL
  • foxhd
    foxhd Member Posts: 3,181 Member
    #21
    icemantoo said:

    WOW
    Fox,

    No words can describe how insperational you are to those that have to really fight RCC, not just the surgery. While I may have a few years on you for survival, your road was much more difficult.


    Icemantoo

    difficult
    Thanks Icemantoo. Survivors guilt or whatever, I think I've had it way too easy compared to others.

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