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Kidney Cancer

Get Well Soon Djinnie..........
Can we have a big ol shout out to our lovely pal Djinnie?? We miss you!! C'mon lads and lassies lets give her some kidney cancer love Eims xxxx
Renal Vein Invasion
Hi All..! OK, so a few of us have had Renal Vein Invasion. So, I thought this should be discussed a bit and maybe we and others may learn about our experiences. First I will say that thanks to a great surgeon at Stanford, my surgery went well. What he did was to have me do multiple Scans so that as he said.. "not find any…
partial nephrectomy post-op issues
I am 2 weeks out from a partial nephrectomy on the right side. My recovery has been pretty typical until a few days ago when I started to have some diarrhea. It has persisted for about 5 days now. Also, I had some oozing from one of my incisions. I called the doctor who had me send him a picture and he wasn't too concerned…
The Cure in sight, or just getting closer?
http://www.southampton.ac.uk/mediacentre/news/2013/jul/13_142.shtml Translation into a treatment will take a while but this is at the right level of abstraction to give hope that a drug may be coming that could stop all cancers in their tracks.
Looking for feedback
My urologist is proposing that I have a repair of a small hernia and a partial nepherectomy done at the same time, laparoscopically. A general surgeon would fix the hernia after the urologist is done with the kidney. Met with the general surgeon yesterday, and she did not seem that motivated. For starters, she and her…
Need Your Strength
Hi Everybody, I just lost a friend on Saturday to this God awful disease, Pancreas Cancer, she was 69. She was diagnosed in April 2013 and left us on Saturday (July 27, 2013) at 1:15 pm. Not really sure what to say or do, I am still here fighting, NEDing with Kidney Cancer and am very happy to be here doing so. Guess I…
in the dark
Hello everyone. This is the 1st forum i've ever been in for any reason. My reason for joining this one is simple. My dad! After having congestive heart failure and being admitted into the hospital we found out that he had a mass on his right kidney. They were actually scanning his stomach to check for infection when the…
K.C. in the USA.
No, not a Springsteen song... but.. there is one bit of information you all should know. By U.S. Legal definition, Cancer is a registered Disability. This "MAY" mean you are able for Medicare and Social Security benefits at a younger age. Also, taking a leave from work is likely covered under the Family Leave Act. I am no…
Does my fatigue last forever and will I be able to excercise with one kidney.
Had my kidney removed early July, hopefully back to work by November. Just wanted to know the following; will this fatigue last forever, will I be able to swim and get fit with one kidney. Ok no jumping out of planes etc; any advice would be appreciated.
Tyrosine kinase inhibitor and durable responses
Articles on that specific issue is rarely seen. This one isnt actually that new either, but since they are rare and I stumbled over it by accident I thought i would share it. Especially because even though the chances are small, we tend to forget in our debates here that tyrosine kinase inhibitors actually can lead to long…
Chris Battle has died
For those of you following Chris and Dena Battle's website, Kidney Cancer Chromicles, I am sad to tell you that Chris died this morning. Check out the post on Smartpatients.com
Silly question...
My surgery was a month ago, incision healed, can I go swimming?
Crap...there is more than one part of my body to worry about
Ok, so a few weeks ago we got a NED, very happy about that. We went to the beach, partially to celibrate. I walk over the dunes, carying the beach crap, and I start getting pains....chest pains. I stopped. cold. Now, I get another diagnosis code. :) . It is funny, after battling stage IV RCC with Sarcomitoid features, a…
Just had partial nephrectomy
Hi All: I am two weeks post partial nephrectomy for a 1.5 cm clear cell renal cancer. (stage T1a/grade 2) Surgery went well, recovery at home going pretty well, had blood pressure spikes, some back pain, still feel "woozy " at times. I knew about the tumor for a year, it is very dificult to accept that this was actually a…
New Member Struggling a bit....
Hello. I am from Portland Dorset UK. My name is Michelle. I am 52. I was diagnosed 6 weeks ago with a 6cm tumor on my left kidney, found by accident during a routine test for something else. I had the kidney removed 2 weeks ago. Not as bad as I thought it would be. I had good care and came home after 5 days. My pathology…
Dumb question: If my cancerous (presumably diseased) kidney is gone, do I have kidney disease?
Hello All. Someone asked me today if I had checked the kidney disease warning label on my deodorant. Of course, my response was, "huh?" So I got home, and sure enough, there is a statement that I should check with my physician before using this particular brand of deodorant if I have kidney disease. I know this seems…
Sleeping after surgery
Hi, my name is Tiffany and I had a partial nephrectomy 3 weeks ago. I thought thinks were healing fine, I was able to sleep on my side with a pillow propping up my stomach. The past few mornings I've been waking up on my stomach and it feels like its going to explode with I get up. I'm waking up 3-4 times per night…
Any suggestions on how to endure side effect of Sutent?
After two months of trying with 12.5mg dosage (4 weeks on 2 weeks off), Sutent failed. Now we decided to double it to 25mg after consulting 3 oncologists. Besides supplement, I wonder if there is anything I can do to help my 9-year-old son better fight the side effects. He is doing Yoga. I do juicing, smoothies. He takes…
Follow-up to Surgery Routines
Hello everyone! I had my laparoscopic radical nephrectomy (left) to remove my stage 1, grade 2 clear cell renal cell carcinoma on April 16. I have been recovering very well. At this point I feel nearly 100%. The only pain that I experience is very mild when trying to jog or run. I do have extreme numbness that extends in a…
8 months down the road from losing a kidney....
Well, it's been almost exactly 8 months. From discovery to surgery, took only 8 days! I recovered fast I think, able to go to work (desk) just a week after surgery for only 3-5 hours a day, took lots of naps haha. I had a 7cm/stage II/grade III in my right kidney, discovery was precipitated by massive pissing of blood out…
my renal cancer story
First I want to say hello to everyone...I'm so glad I found this site! I've been poking around, and it's amazing to see how many others are in the same boat as I am. I am a 42 year old female, and until recently I considered myself to be in pretty great health. Back in April I went to the dr. to check out a pain in my…
Back in Action
To all cancer survivors: I have been able to occasionally check the board and appreciate all of the support for my first round of HDIL2. If you are curious about details, just read Fox's play by play, it is all true. (thanks Fox, hope all is well as can be expected in round 2). All I can add is a quote from JG, "what a…
Do I or Don't I..?
OK, this is a bit of a difficult subject.. but I have a hunch I m not alone on this one... So here I am a single guy... and of course I would like to start dating again. I am also on a specialized dating site... So, the question is... when should I tell "her" about RCC..?? This was brought up on that dating site by a gal…
Now what....
My 26 year old husband has a 6cm mass on his lower right kidney. We have three little boys. we were told its 90percent sure cancerous. He had a kidney stone last week and that's how the mass was found, he's got a contrast scan scheduled for Wednesday and then a meeting with the urologist to see about surgery options.…
HDIL2 after Sutent
Hi All, my oncologist recently sent me to University of Miami for a consultation for HD Interlukin 2. The Medical Oncologist there said he would not put me on HDIL2 because I have previously been on Sutent and a recent study showed a greater chance of cardiac complications. I have been off Sutent for over a year, I dont…
Moffitt visit
Met with Dr. Wade Sexton at Moffitt Cancer Center today. He is recommending partial removal of kidney. This process started because I was having a burning pain in my right groin after doing a couple of miles on treadmill. I was fairly certain I had a hernia. But ultrasound, CT scan and two doctors said no. The scan,…
can't breathe today (Xp11.2 translocation renal cell carcinoma)
I posted before inquiring about xp11.2 translocation RCC. My 9-year-old boy was dx with this rare cancer. His left kidney was removed in April with other tumors in lymph nodes in tummy. He was on Sutent (12.5mg) for 2 months (4 weeks on, 2 weeks off). He has tumors in chest, stomach and neck now, all in lymph nodes. Today…
What are the odds?
I had stage 1 grade 3 clear cell kidney cancer in May of 2013. Had a partial nephrectomy. All was good. I had a ultrasound in May of this year. They found a very small mass- 5x5x9 mm. The report came back possible Angiomylonoma. My urologist told me there was no way to tell that this was not cancerous, but it is way to…
Post surgery scan 6 months later
Hello, just curious as I have a 5 month wait for my first checkup after that DaVinci T1a episode. Does anyone know if something new can even develop in only 6 months time, large enough to be seen on an ultrascan. It would have to be super aggresive and from what I read on the web my almost 3cm mass took around 3 yrs to…
Gout & kidney cancer
The past week my big toe has been swollen, red, extremely painful. It seems to be gout, but I'm pretty a-typical for a gout patient. So what's up with that? I learned that gout is due to too much uric acid in the blood stream. The kidney's job is to filter it out! Gee, you think there's something wrong with my kidney? : )

Kidney Cancer

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