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Sarcotomoid?
Hi, i have been reading these messages alot and many people talk about their tumour having sarcotomoid features...what does this mean and how would I know if mine had those features? Would that be on the pathology report or is that something I need to ask the doctor? Thanks.
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pre testing done today..I am getting more nervous!
I went for my pre testing today. I know it's not a big deal, but time is closing in on me. I have open surgery on October 3 (partial). I plan to keep busy over the next 9 days, but boy, it's just not fun having to go through this.... I know mine was caught early, and I am so truly blessed. I don't seem to be worrying about…
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Minor set back
So I've been MIA since I've gone back to work, it's hell since my partial open nephrectomy July 11. Most of my pain comes after work... It had nearly vanished except for when I sneeze however it resurfaced at my incision which stays swollen so my dr said go to the ER. They did a ct and took blood work said I was still…
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Additional treatment options
Good morning folks! As many of you know, Votrient is most likely not working for me. I had 1mm of general shrinkage at my 3 month CT scan, but then a 1mm growth at the 5 month CT scan. My local oncologist suggests switching to another drug. We meet with the oncology team at UW-Madison on Monday morning for their take on…
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bye bye Votrient
Yes, no more Votrient.. Next up is Inlyta. More to follow when I get home tonight.. Ron
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My mother has been diagnosed with Renal Cell Carcinoma
My mother had one of her kidneys removed 3 years ago due to renal cell carcinoma. We found out earlier this month that the cancer has metastized. There is a 5cm mass on the outside of her pancreas which has had a biopsy already. My mom will go see her oncologist next week at which time she will receive the results of her…
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Paranoia has set in: help
I was diagnosed last week with Stage 1 RCC. a biopsy of my kidney is what led to the diagnosis. I was reading how there is a small chance just having the biopsy could have caused the cancer to spread outside my kidney! I am scheduled for a nephrectomy on 10/21. Assuming that the surgery goes well, how will I know if i am…
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ALL CLEAR...
I saw my Onc Dr today. All clear on the scans, xray, and bloodwork from last week. Although, there was no CT with & w/o contrast of the Pelvis, and the CT of the abdoment was only with contrast, not w/o, which WAS ordered by the Dr but Cigna- the "back-end excriment-****" wouldn't approve for another few hundred dollars.…
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Oct 1st important info
On Oct 1st the new insurance market place will open..https://www.healthcare.gov/ go to this site to sign up..this will take affect in Jan but you need to enrol during the enrollment period..if you are lucky enough to be in a state that has a Governor and state legislators who are supportive of expanded health coverage..ACA…
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Fatigue 6 mos out from surgery
I am still dealing with fatigue and get winded easily. Am retired and am just worn out. Is this normal for someone over 50 who had a right side partial who had robotic surgery ? Thanks in advance.
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Catheteters
how many of you who had nephrectomies left the hospital with catheters? My husband was released today after a laparoscopy on Friday. Surgery went well; clean margins and a tip of the adrenal gland (taken as precaution to not spread the cancer by cutting the gland from the kidney. after 3 nights in the hospital and after 3…
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Had a CT scan with contrast today
Had my first CT scan in July at 3 months and shrinkage was shown. Had a CT scan today at 5 months but won't know the results until tomorrow at 2pm (CST). You would think that in this day and age that they would be able to make the contrast somewhat tolerable to drink. Man I hate that stuff. It tastes like a pool cover or…
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Kidney Stones after Partial Nephrectomy
Good Evening..... Can anyone please offer any information with regards to treatment of a kidney stone after a partial nephrectomy for Stage 1 clear cell renal carcinoma using lithotripsy? I was diagnosed on February 11, 2011 with a mass in my left kidney. My surgery was performed at Sloan-Kettering on March 30, 2011, with…
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Blood pressure medications--what are you taking?
As with most, my tumor was discovered by accident. I was having a terrible cough thought due to lisinopril I had started about a month before. Then a chest x-ray which showed a small pleural effusion, CT scan of the chest recommended by radiologist, and the discovery of my large tumor. The day I was seen by my primary care…
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Waiting
My husband is undergoing surgery right now; so far, it will be laparoscopic but that could change.
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Hi All! Checking in!
Friends, My apoloies for being away as long as I have. I fear I will be out a while longer. The reality of cancer and its impact on my immediate circle of family, friends, and me is getting a little too ponderous. I will be out tryng to make sense of it all. My 27 year old step Grand-daughter decided Tuesday she is no…
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Dr Watson I presume...
Hi All..! Neil posted the first link below on Sp, and there are 6 parts to the lecture by Dr J. Watson. Here is a link to the first part, then you can easily find the rest of them. Very interesting, does not matter if you agree or not, this is too good to not pay attention to... This guy tells it as he sees it, and is not…
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6 month ck up
Hey all. I got my ct scan for my Surgeon for my 6 month ck up and I think its bad.. They found a 3cm cystic mass at the lesion site. Is this normal? It has enhancment....**** :)
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Diagnosed at age 39 with Stage 1 Renal Cell Carcinoma
My surgery date is 10/21 to remove my left kidney. I am in shock. I just found out 2 days ago. Any advice on what surgery will be like? What will my diet be like post-surgery? I am in Tucson, AZ. :)
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I just had my scans today....
I had my 4 month routine scan today, but it was about 1.5 months late due to some insurance issues. I'm very nervous. It started with having to change insurance companies, I was with United Healthcare, and now am with Cigna. United never questioned any test the Dr has ordered from Day 1, but Cigna has played hardball with…
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Horrible Anxiety!
Anyone else out here having anxiety problems. I just can't seem to get a grip. I was first diagnosed in 2011 and had right kidney removed. Had my second occurence in March or 2013 and had my right lower lung removed. Scan in June showed no active cancer and my next scan is October 11. I have been having horrible anxiety…
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Latest eGFR #'s
I had two sets of labs done, (1) yesterday 09/17 & another (2), done this morning. Yesterday's was fasting, today's was not. Two seperate labs - to get most accurate reading. 09/17/13 [ fasting ] BUN - 11 Creatinine - 1.10 BUN/ Creat Ratio - 10.0 Albumin - 4.7 ___________________________ 09/18/13 [ non-fasting ] Bun - 10…
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Feeling left out
feelingIt feeling left out; could be my paranoia or my posts aren't coming through. My husband iis having a nephrectomy this Friday; the surgeon is guessing from the MRI that it's probably a grade 3 since it has spread to two spots on thso spine. The lumbar met was surgically removed ana titanium was used as fusion. The…
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Feeling left out
feelingIt feeling left out; could be my paranoia or my posts aren't coming through. My husband iis having a nephrectomy this Friday; the surgeon is guessing from the MRI that it's probably a grade 3 since it has spread to two spots on thso spine. The lumbar met was surgically removed ana titanium was used as fusion. The…
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Post operative check up 6mm lesion
Hi guys,just got my ultrasound result . There was a 6mm partly solid partly cystic residual lesion found at the margin of my surgery site .This is my six month check up and this lesion was also showed on my three month follow up. I had partial kidney removed and pathology report showed stage one grade one rcc. My gp…
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Going downhill quickly and looking for Help!!!
This is Ga_dawg’s wife. He first joined this group in March of this year after he had his kidney removed. He is not doing well so I am taking trying to find out any information I can that might be able to help us. Ga_dawg was diagnosed with stage IV RCC in 8/2012. Cancer was in his kidney, both lungs, spine and left…
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Epidural for Pain Management after Surgery
Hi , I know we talked about this a little bit in a previous thread but I wanted to make it's own thread. Have any of you had an epidural for pain management after your nephrectomies? My surgery is tomorrow morning and the anesthesiologist wants to speak to me about it beforehand. Just curious what other people's…
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Cyber radiation to spine?
Has anyone here experience with cyber radiation to one met on the spine? Thanks, Sarah
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incision area tenderness
Six weeks ago today (7/31), I underwent a Laproscopic radical left nephrectomy. A DiVinci robot was used. 6CM tumor. Stage III. I currently am receiving no chemo nor radiation. I am very fortunate that we caught it when we did. The incision is at about the belt area. I am still tender there. After driving for a couple of…
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Who has had an open surgery?
I know everyone is different, but I am really, really dreading this surgery. I feel like running and hiding. My mass is small (1.5 cm), and I have two small spots on my right kidney that we are "watching." I don't want cyro...and I have to have an open due to having so many surgeries in the past (lots of adhesions).…