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sorry so long since I posted..update on Chuck the Nivolumab+IPI trial
Sorry its been so long..daughter was home for the summer and we actually got to keep the grandbabies for longer than a few days for the first time in a year..then we took an actual vacation for the first time in 15 years :D was a busy summer.. Okay here goes I am almost afraid to say it...It looks like at least for now as…
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New Member Struggling a bit....
Hello. I am from Portland Dorset UK. My name is Michelle. I am 52. I was diagnosed 6 weeks ago with a 6cm tumor on my left kidney, found by accident during a routine test for something else. I had the kidney removed 2 weeks ago. Not as bad as I thought it would be. I had good care and came home after 5 days. My pathology…
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Wilms tumor & my child
Hello my 4 almost 5 year old daughter was diagnosed with Wilms tumor o. July 8th 2013. She went through 6 weeks if chemo and is scheduled for surgery next week. She was diagnosed with a bilateral Wilms tumor. Since chemo her very large kidney tumor has reduced in size by over 50% but the very small one in her right kidney…
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Advil
I noticed in the past day or two that their was some discussion with Advil on an unrelated forum topic. For what it is worth I will give my experiences. It seems that almost all of the doctors will not allow thier patients with Kidney issues to take Advil or other related drugs. And we all know that sometimes Advil works…
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15 Month Update - Scan Results - Sutent Patients Take Note
Hi, All. I always feel the need for apologizing when I post to the board. I should be on here more, I can add more value. I will try to do better at that, but I do make sure that at significant moments that I update you all. I promise to do that at minimum, and welcome any one of you to contact me via email. I believe you…
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Gary!!!
Hey Gary, I am soooooo glad you are back...we missed you
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I have had some good news today!
I posted recently about my going in for an op to remove my lower bowel and repair my bladder. A little while ago it was discovered that I had a bowel infection, it had caused a perforation via a fistula into the bladder. I had been placed on antibiotics to clear the infection prior to surgery, but they caused issues, so I…
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checking in to say hi
Hello all. Just dropping by to say hello and let you know I have been checking to see how all of you are doing. It's been 2 1/2 months since my surgery (laparoscopic right) and things are progressing great. Went through as tough stretch that required pills from the doctor. (anxiety and depression) But again, right now…
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Renal Cell Carcinoma Confirmed
The biopsy confirmed RCC today for my wife Holly. Kidney is coming out on August 23rd. Thanks for all of your continued thoughts and prayers. God is good. Tom and Holly
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Thanks for your time...
A young man learns what's most important in life from the guy next door. Over the phone, his mother told him, "Mr. Belser died last night. The funeral is Wednesday." Memories flashed through his mind like an old newsreel as he sat quietly remembering his childhood days. "Jack, did you hear me?" "Oh, sorry, Mom . Yes, I…
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OK, I'm going in!
Being admitted today for the Il-2. Maybe I can post during the week. (if I can get on). I'll let you know how I'm doing when I can. I'm in a kick **** mood.
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Taller women may face higher cancer odds after menopause
As a six foot tall woman with a sick sense of humor, I almost put this in FunnyBonz. http://www.medicinenet.com/script/main/art.asp?articlekey=172014#.UfZ4JyfrZyQ.email
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HDIL2 Round 2 Delayed
To all, I apologise for not posting in a while but I had to take a break from all things cancer related. It was refreshing and sure makes you appreciate all of the survivors and caregivers that do not take a break and are on the site to help all of the newbies with their obvious concerns, you have a place in heaven. My…
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3 weeks post radical nephrectomy-feeling emotional
Hi everyone, I've read many posts on people's physical journeys from discovering cancer and the resulting rush for major surgery. I am now 3 weeks post radical nephrectomy for a 4cm chrcc. The pain had eased up and I'm getting out and about, although I still tire easily. I have been really positive and dealt with each…
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Very Hard Indeed
Life I mean. Here we are, mostly a bunch of emotional roller coasters.. In the last week, I heard of not one but six guys, yes SIX that have passed. Here I sit, like some of you wondering why and of course when is my (our) turn.. Last night it was Jim, a gentle giant of a man. But, I must go on... Time for me to say that I…
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Bilateral Partial Nephrectomies
I was searching the boards, and noticed that people that had bilateral partial nephrectomies, had the operations separately. It sounded like that several of them were two months a part. Does anyone know if you can do them at the same time? Thanks!
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Almost 4 months post-op radical nephrectomy
Hello all.....so I am now almost 4 months following a hand assisted laparoscopic radical nephrectomy. I experienced hardly any pain from the surgery, except for some twisting cramp feeling in my belly (like a leg cramp except in my belly). Other than that I rest when I need too and I am resuming college this fall along…
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I had my MRI. Techs comments
Okay, I am a nurse so the MRI tech may have said some things that she wouldn't have ordinarily shared. I have to say that I really feel as though it is RCC. The tech said to me that they saw a lot of them. She said they can tell what is simple cysts and those that are more complicated by how they filled with the GAD from…
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Second biopsy attempt looming on Friday
Well, it's been a while since I logged in to update. I've been pretty busy all summer with company visiting, being out of town and zillions of Dr appts. At last posting, I think I was nearing my first biopsy date of May 27th. Well that didn't go off like it should. The radiologist refused to do it, as my tumor is in a…
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Mouth Sores - CHRCC - One cycle (12 Weeks) of Torisel done!
Hi all - I know its been a long time since I posted! I have just completed my first 12 week cycle of Torisel. I've felt really good throughout and this week I had my first set of scans after treatment and the results were very good! Nothing new in th CT scan and no new legions shown in the bone scan - and there is bone…
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My Story...
Hello to my fellow survivors and survivors to be! I just joined this site. This is the first time I have EVER posted about my journey with the cowardly kidney cancer RCC that I was diagnosed with in November of 2005. Before I joined I read just about every post regarding our specific journey with this disease. I was…
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how would you know?
hi all, is there any signs that would kinda let you know if your remaining kidney wasn't working the way it should? eims x
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Newly found lesions. Waiting is hard.
Hello, In 2009, I had a partial pancreatectomy for a benign cyst. I have been having some left flank pain, and had a CT scan done yesterday. I found out that I have a small heterogenous lesion in both kidneys, which the Radiologist (board certified and experienced) says is suspicious for cancer. Due to my pancreas problem,…
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Scan date getting closer!!
Oh here we go....1 week away and i am definitely suffering from scaniety!!! i always suffered with low blood pressure but it seems to have got worse the last few days and i keep getting blurred vision...its driving me nuts!! has anyone had this?? eims x
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Survey: Did your pre-op testing include Pet scans?
I've often read in the posts here that preoperatively patients aren't aware whether the tumor has metastisized. They are hoping for the " got it all" postoperative declaration. I understand we all have MRI CAT and chest X-ray, but who had a PET scan before planning surgery? Thank you.
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Could I just be over reacting too soon?
I went in Tuesday for my 8th treatment. Had to skip one week because I have been getting severe rashes, Dr had me miss it for fear my skin would peel, bleed and I could end up with an infection. Last week I began having rather strong pains on my right side. Radiating from my back to my belly button. Could it be…
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New Member: My Story
Hi. My name is Emily. I am a 26 year old teacher living in PA. I had a partial nephrectomy on the right side 2 weeks ago today. My doctor told me the 2.3 cm mass turned out to be a chromophobe. Everything has happened incredibly fast and I've found myself at a loss for how to process it all. Here's my story. About two…
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Does my fatigue last forever and will I be able to excercise with one kidney.
I had part of my kidney removed in March this year then on 2nd July had it completely removed. The news is I should be cancer free. So to my question, I wondered how long this fatigue will last it just hits you like a brick wall, I do intend to go back to work by November. Also would like to be fit for purpose and wondered…
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Gene Breakthroughs Spark a Revolution in Cancer Treatment
http://online.wsj.com/article/SB10001424127887323300004578557473861805376.html