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Creatinine Spike
Hi all. I just had my 6 week blood screening for the study I'm in (Everolimus). Since my right nephrectomy last December, my creatinine has been in the 1.55-1.65 range. Today it was up to 1.83. I've had several blood tests these past few months, and this one is really out of the norm. It's similar to what I was having in…
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Cystatin C Hones Prediction of Renal Function
Worth a read.... http://www.medpagetoday.com/Nephrology/ESRD/41391
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Pathology report
I need some help with my pathology report. I was thrilled to be told my kidney tumour is an oncocytoma. I looked at the pathology report and circled something to check out later but I never did check it out. Tonight I pulled it out while going through a file. The thing I circled was in the staining section......it says…
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Newly diagnosed.
I am a 48 year old female who was just diagnosed last week with a 6mm renal tumor. I am scheduled to have open surgery for a partial neph on Sept. 18. The major complication is that I only have the one kidney as I had the other one removed in 2006 due to a blockage that ruined the kidney. I also have stage 3 Chronic Kidney…
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Back pain
I have no idea if it is related or not but I have this constant low back pain. It gets to the point that I have to take otc pain killers to sleep or function. I talked to the nephrologist about it and she said it was absolutely not related but for some reason my intuition tells me it's all connected to the tumor on my…
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May be a dumb question
Is there any pattern to how this cancer metastasizes? I notice there are many here with mets to the lungs with a few to the spine. since my husband was diagnosed with 2 mets to the spine and several scans with no cancer (of course, microspic would not show) still trying to process this disease and he is set for a…
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Somewhat silly question for the ladies who've had a Neph
In particular an Open surgery: how long before you could wear a bra? . I'm, ahem, large busted and cannot stand being braless. I'm concerned that my open scar will prevent me from donning undergarments. How far up the side does the incision go? Can I wear a front closure style? I gather pulling clothes over my head will be…
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Cedar Point Roll Call of interested survivors and family.
Over the past several months a number of us have expressed thoughts about meeting in Cedar Point next Summer and for those of us who are up to it try a roller coaster of two like the Geimini(not recommended unless a year past surgery). What are your thouths about doing this mid week towards the end of next August?
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Robotic surgery for RCC
I found out six weeks ago when I had a colonopscopy , that they found a tumor on the bottom of my left kidney.Then lots more test, ultasound, ct scan with contrast, then a biopsy, It"s 3.4 cm by 2.7. They say I am lucky as I had no signs and it is cancerous. May 29th I get my surgery using the da vinci robotic machine at…
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new to this
I had a partial.. Tumor was 1.4 cm and patholgy showed papillary renal cell carcinoma.. Scared to death it will return... Advice please...
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Surgery date scheduled
Met with urologist at Moffitt Cancer Center Tuesday. He reviewed results of MRI: right kidney has 2.5 centimeter soft tissue mass. Left kidey looks fine. He plans to do the procedure robotically. He was not in the best of moods, probably because he was scheduled to see 41 patients that day. I have confidence that he will…
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Kidney Transplant and Kidney Cancer?
Hello, I am a kidney transplant recipient and was recently diagnosed with Renal Cell Carcinoma. I will be having a radical nephrectomy on Friday 08/30. I am just wondering if anyone else here has had a kidney transplant and been diagnosed with kidney cancer? Looking at the CT scan the doctor doesn't think it has spread…
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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When do you start feeling better
I'm 52 year old male, 15 months post op for stage 3 tumor. Had 6cm tumor removed( laparoscopic partial ) in April 2012. Major urinoma problems from September 2012 through January 2013.multiple nephrostomy tubes. Ablation surgeries weekly for 3+ months.. still feeling terrible, severe hot flashes, sweats, lethargic. Doctors…
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Open Surgery planned
I have a small 1.5 cm in the upper left pole of the kidney, the urologist said that he is more than 85% positive that it is RCC. YES, I know it is fully treatable with surgery. I am not ready to jump off a brige or have a breakdown. I do have a normal amount of anxiety related to the C word and major surgery. I know so…
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Positive margin = cancer spread?
I had laparascopic surgery on 3/2/06. I'd decided to go for a total nephrectomy but my surgeon convinced me to let him try for a partial. Bad decision!!! I lost my entire kidney anyway because he got a positive margin. Now, I'm scared to death that letting him cut into the kidney rather than remove entire kidney from the…
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In need of Sutent
My mom was diagnosed with collect duct carcinoma of kidney (IV stage) and Sutent might be her only hope. However, she is living in China and the drug is so expensive considering her poor retirement compensation there. I am wondering if any one would spare some unused Sutent so that I can mail to her and save her life...
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newly diagnosed
my 50 year old husband was recently diagnosed with right kidney cancer 2 weeks ago its stage 4 with multiple mets to pelvis, spine and lungs. biopsy has been done but while he is waiting for the results they have started him on sutent 25mg daily, steroids, just completed 5 rounds of radiation on his spine can anyone tell…
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PET/CT scan!
My Rad Onc today took pity on me with all I'm going through and finally agreed to a Pet scan, with Thryogen stimulation to look for any metabolic activity pertaining to my thyroid cancer, and look closer at my kidney tumor. I started to cry with relief when she mentioned it. It's been a struggle to get them to do the…
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Angiogenesis inhibitor foods
Hi everyone, just happened to find this Ted talk and thought I'd share it here in case anyone is interested in watching it: http://www.ted.com/talks/william_li.html interesting, it's a talk by the president of the angiogenesis foundation, about how we can also help starve our cancers in what we eat.
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Block center for integrative cancer treatment in skokie, Illinois
Hi everyone, I was just wondering if anyone here has been to the block center in Illinois? My mom is 50, with stage iv cc rcc, mets to liver and lungs. Our oncologist is dr.robert motzer at mskcc, who had done lots and lots for rcc. We are very confident being in his care, but we are looking for something a bit more…
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VOTRIENT
I am checking to see if anyone who has used Votrient can give me information on it? We were told today my husband needs to start that in a few weeks to hopefully maintain the size of the nodules in his lungs that were metastacized from his kidney. Any and all side effects that any of you would like to share will be greatly…
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8-19-13
Hi All..!! I decided to start a new post... Today was one heck of a day... nice sunshine and all that... as perfect as perfect can be... So we finally got our first practice lap in... but I will digress with a bit of a tease. I have a new look... and I got a LOT of attention all day... many people took my picture but as of…
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wilms - 4yr old just finished treatment
I have a 4yr old daughter who was diagnosed last June with Wilms stage iv - spread to lungs - had 6wkes chemo prior to surgery, surgery went well, then 6mths chemo and 14 treatments of radiation to tummy area and lymph nodes just above tummy which I am told will make her 1-2cm shorter - is there any surviors out there that…
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Clear Cell Renal Carcinoma
I had a radical Nephrecomy on my right kidney on Aug. 2. I had a 9.8cm tumor and was diagnoised as Clear Cell renal Carcinoma Grade IV. The have found no other cancer but the Lymphovascular was suspicious for invasion. Becaue of this I have to have CT Scans every three months. We were told that Clear Cell is least likely…
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Nivolumab-Sutent trial scan results BMS-936558
Hello all!! I am happy to report that my scan results on week 24 of the trial show no measurable disease! I started with a 3.4 cm tumor in my adrenal gland and two small lung nodules. The nodules are gone and my adrenal gland shows no measurable cancer yet is still slightly enlarged. I am actually happy to continue wih two…
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Yup, it's CCRCC
I was called into my GP's office today for the biopsy results. Apparently the results were back Tues night, but she was unable to reach the Urologist who ordered it, and he's "out of the office" until at least Monday. So my poor GP had to do the dirty deed :( . Anyway, yes, I officially have RCC. That makes 2 confirmed…
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All the best with your scan Eims:)
Hey My Friend, I wanted to wish you all the best with your 1st set of scans on Thursday. I know you've not been feeling too good lately, but once this is behind you I am sure those problems will calm down. You will be in my thoughts until I hear back from you. I will be taking my daughter to Paris Airport on Thursday, but…
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Confirmation Call
Well, my doctor did confirm what she already told me.....my MRI was posiitve and the tumor is a little bigger than the CT scan showed. It didn't stage the tumor (or at least she didn't tell me) like she had originally told me it would.
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how long to return to work
Hi: I am 5 weeks post robotic laparascopic partial nephrectomy for 1.5 cm tumor. The surgeon never gave me an exact recovery time and I was laid off from my job a few weeks prior to surgery so I have to look for a job. I have no more surgerical pain, I do have exhaustion, GI problems. can't concentrate for long periods. I…