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Update on BLKJAK
Yesterday was an emotionally exhausting day. We saw the doctor at UW hospital. Normally we feel more hopeful after these appointments, but that was not the case yesterday. Brad did not respond to the medication the way we had hoped he would. Because of this, they went back to look at the pathology again. Brad's pathology…
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Beta-Carotene/superfoods after nephrectomy and splenectomy?
New here, hello! So my mother was recently diagnosed (very late on) with kidney cancer. Basically one of her kidneys had turned into one big cancerous tumor so they removed the kidney (and her spleen, so her immune system is now forever compromised too). I have since been reading about the amazing properties of certain…
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Frustration!
Hi Guys ( and gals ;) ), Well now I'm not sure when my hubby will have his MRI, chest CT or appointment with specialist. It seems that with the government shut down, most TDY military pay is limited. So, one thing is for sure, they will make him take a shuttle instead of his own car because they don't want to pay for his…
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My introduction
Hello everyone. New poster who hopefully will enter the ranks of being a kidney cancer survivor. I had a CT scan of the chest last week, ordered because of a small pleural effusion showing up on a chest x-ray (ordered because of a wicked cough though to be due to my new ACE blood pressure med). Unexpected finding was a 7.5…
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CT Scan is actually this morning
I was not sure whether I should post this as a new thread or as a reply to my other thread. I have been having so much anxiety, I asked to have the CT scan with contrast moved up...and it is now schedule for about 2 hours from now; at 11:30 today. Please please pray for me. I am amazed at the courage of the good people on…
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Our dear, lovely ALICE
Alice, I can't settle, for worry. Where are you, how are you and John? Do you have straight CLL with no treatment indicated and a long life ahead of you? Please give some pointers to focus my research directions. I have a pretty good idea of what particulars I'm seeking out but you can speed it all up with a bit more…
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Really Upset!
Had my stress test Sept. 4 and Cardio Doctor said everything looks good! Got a call this morning to please come in to office to discuss blockage! Really, 11 days before my 8 month scan! I was already anxiety stressed to the max, and now this! I am just hoping and praying that it is nothing. I have a call into my ONC Dr. to…
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Kidney Cancer - husband had it - now me
My husband was diagnosed with kidney cancer that spread to his liver. He was a heavy smoker. Well, I started having blood in my urine last month and had a full nephrectomy (left kidney) - the doctors say it's possible from second hand smoke. I'm still in shock. Has anyone heard of this? My husband died six years ago. I had…
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Forum question --- looking up previous posts
On several occasions, I have wanted to go back to read posts by certain posters to learn of their background story. How do I do that? Clicking on the author's name doesn't bring up an option to view previous posts. Tried searching by the person's name and nothing comes up. Is there a way to look at a person's previous…
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Weight gain
Hey! It’s been a long time since my last post, but I have been lurking off and on J My radical nephrectomy was May 9th. A few weeks after the surgery I felt great – Better than I had in a while. My 10cm tumor turned out not to be cancer (it was MEST) and that added to my euphoria I’m sure! Summer was wonderful. I felt…
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Is 12 weeks too soon
I'm 12 weeks post-op, radical neph. Procedure was laparoscopic, with largest of the incisions being about 4 inches. I recovered without incident and am feeling good. I'm going to Cedar Point this weekend. For those of you who don't know, Cedar Point is the Roller Coaster capital, with the biggest, fastest coasters in the…
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Concerned and Introduction
Hi Everyone, My husband started having back pain in Nov 2012. He's always been the picture of health and in 20 years of marriage, I've seen him sick only once.... well, until now. Anyway, after test after test, in Febuary 2013 he was determined to have a 2cm tumor on his left kidney. A partial Nemphrectomy was done in…
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Surgery date approaching
I will be in Tampa Monday, Oct. 7, for my pre-op. Surgery was confirmed recently for 10/16, partial nephrectomy. They plan to also do hernia repair if the kidney surgery goes well. Been having recent issue with low blood pressure and a slow heart rate. I hope that is not going to delay surgery. Heart rate normally runs in…
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Sarcotomoid?
Hi, i have been reading these messages alot and many people talk about their tumour having sarcotomoid features...what does this mean and how would I know if mine had those features? Would that be on the pathology report or is that something I need to ask the doctor? Thanks.
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pre testing done today..I am getting more nervous!
I went for my pre testing today. I know it's not a big deal, but time is closing in on me. I have open surgery on October 3 (partial). I plan to keep busy over the next 9 days, but boy, it's just not fun having to go through this.... I know mine was caught early, and I am so truly blessed. I don't seem to be worrying about…
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Minor set back
So I've been MIA since I've gone back to work, it's hell since my partial open nephrectomy July 11. Most of my pain comes after work... It had nearly vanished except for when I sneeze however it resurfaced at my incision which stays swollen so my dr said go to the ER. They did a ct and took blood work said I was still…
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Additional treatment options
Good morning folks! As many of you know, Votrient is most likely not working for me. I had 1mm of general shrinkage at my 3 month CT scan, but then a 1mm growth at the 5 month CT scan. My local oncologist suggests switching to another drug. We meet with the oncology team at UW-Madison on Monday morning for their take on…
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bye bye Votrient
Yes, no more Votrient.. Next up is Inlyta. More to follow when I get home tonight.. Ron
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My mother has been diagnosed with Renal Cell Carcinoma
My mother had one of her kidneys removed 3 years ago due to renal cell carcinoma. We found out earlier this month that the cancer has metastized. There is a 5cm mass on the outside of her pancreas which has had a biopsy already. My mom will go see her oncologist next week at which time she will receive the results of her…
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Paranoia has set in: help
I was diagnosed last week with Stage 1 RCC. a biopsy of my kidney is what led to the diagnosis. I was reading how there is a small chance just having the biopsy could have caused the cancer to spread outside my kidney! I am scheduled for a nephrectomy on 10/21. Assuming that the surgery goes well, how will I know if i am…
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ALL CLEAR...
I saw my Onc Dr today. All clear on the scans, xray, and bloodwork from last week. Although, there was no CT with & w/o contrast of the Pelvis, and the CT of the abdoment was only with contrast, not w/o, which WAS ordered by the Dr but Cigna- the "back-end excriment-****" wouldn't approve for another few hundred dollars.…
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Oct 1st important info
On Oct 1st the new insurance market place will open..https://www.healthcare.gov/ go to this site to sign up..this will take affect in Jan but you need to enrol during the enrollment period..if you are lucky enough to be in a state that has a Governor and state legislators who are supportive of expanded health coverage..ACA…
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Fatigue 6 mos out from surgery
I am still dealing with fatigue and get winded easily. Am retired and am just worn out. Is this normal for someone over 50 who had a right side partial who had robotic surgery ? Thanks in advance.
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Catheteters
how many of you who had nephrectomies left the hospital with catheters? My husband was released today after a laparoscopy on Friday. Surgery went well; clean margins and a tip of the adrenal gland (taken as precaution to not spread the cancer by cutting the gland from the kidney. after 3 nights in the hospital and after 3…
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Had a CT scan with contrast today
Had my first CT scan in July at 3 months and shrinkage was shown. Had a CT scan today at 5 months but won't know the results until tomorrow at 2pm (CST). You would think that in this day and age that they would be able to make the contrast somewhat tolerable to drink. Man I hate that stuff. It tastes like a pool cover or…
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Kidney Stones after Partial Nephrectomy
Good Evening..... Can anyone please offer any information with regards to treatment of a kidney stone after a partial nephrectomy for Stage 1 clear cell renal carcinoma using lithotripsy? I was diagnosed on February 11, 2011 with a mass in my left kidney. My surgery was performed at Sloan-Kettering on March 30, 2011, with…
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Blood pressure medications--what are you taking?
As with most, my tumor was discovered by accident. I was having a terrible cough thought due to lisinopril I had started about a month before. Then a chest x-ray which showed a small pleural effusion, CT scan of the chest recommended by radiologist, and the discovery of my large tumor. The day I was seen by my primary care…
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Waiting
My husband is undergoing surgery right now; so far, it will be laparoscopic but that could change.
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Hi All! Checking in!
Friends, My apoloies for being away as long as I have. I fear I will be out a while longer. The reality of cancer and its impact on my immediate circle of family, friends, and me is getting a little too ponderous. I will be out tryng to make sense of it all. My 27 year old step Grand-daughter decided Tuesday she is no…
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Dr Watson I presume...
Hi All..! Neil posted the first link below on Sp, and there are 6 parts to the lecture by Dr J. Watson. Here is a link to the first part, then you can easily find the rest of them. Very interesting, does not matter if you agree or not, this is too good to not pay attention to... This guy tells it as he sees it, and is not…